Just a quick update.......
I was having trouble with pelvic pain while trying to walk. This started about 2 weeks after RC. (See clip of original post below). I am happy to report that I am now able to walk without a walker with only moderate pelvic pain. I have not yet regained total feeling in the upper thigh area, but am hoping that this will improve with time.
..........I have little to no feeling at the top of the thighs. I understand that this is probably due to nerve damage during the RC, or due to the positioning during the RC. From what I read, this will either resolve itself, or not.
My other problem presented itself 2 weeks post surgery. I had been walking everyday, first at the hospital, then at home. I was able to walk 100 - 200 yards, but then became tired. The pain seemed normal for the situation, uncomfortable, but not intolerable. Starting last Monday afternoon, I experienced severe pain in the pelvic area when trying to take a step, and am still having this issue today. I can stand with no pain, but cannot lift either foot off of the ground unless I support my weight with my arms. With my weight supported by my arms, I can lift either leg normally with no pain at all. I am now using a walker to take even the smallest step.
I went back into the hospital, where they did tests for blood clots, infection, abscess, etc..... They could find nothing wrong, and sent me home to wait and see........
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Now able to walk again
- By jc3126
- Posted November 10, 2009 at 11:35 am · 13 replies
- In Life after radical cystectomy
- Shared with the public
13 replies
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- Newest first
- By roadrunner
- Posted November 10, 2009 at 2:17 pm
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Happy to hear it,and it will get better...
all these things pop up after surgery,are concerning,,,
time will heal alot of things,
ginger
- By nancynursez637
- Posted November 10, 2009 at 3:48 pm
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Glad to hear you are coming along, and I agree with Ginger time often heals things. Some time we never learn what the issue was, just that it gradually got better. Congrats
NancyN
- By roadrunner
- Posted November 10, 2009 at 5:45 pm
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One thing would be nice,if before surgery we had a after surgery possibility list,,,as you know, it may not be everyone but most have some after effects nerve and muslce issues, bowel issues, there should be a hand book,,possibilities,,,check back if any of these issues come up,,,we are left to see what happens,,,
surprises afer surgery,,,also the pin pricking feelings in the groin area,,also an issue,,so many things take place,,,let us know,,,,when the spark comes back..ginger
- By daveyo
- Posted November 10, 2009 at 6:40 pm
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my legs were "singing" for a month,,,,one is better, one is still pins and needles after 4 months, but not too too bad...
patience.....my friend, gonna be 6-8 weeks before you turn the corner...then marked improvents.
hang tough
- By 15yrsurvivor
- Posted November 10, 2009 at 7:30 pm
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Good to hear you are on the road to recovery! I hope these issues are resolved soon. Keep us updated!
- By jc3126
- Posted November 10, 2009 at 7:41 pm
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Thanks all for the encouragement..... I agree with Ginger, knowing what to expect would be better than the surprises....
John
- By LadyJane123
- Posted November 11, 2009 at 8:27 am
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Thats so good to hear that you are becoming mobile again.
I love good news.
- By silgal
- Posted November 11, 2009 at 8:29 am
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so glad to hear you are able to walk and move around more. Hope things continue to improve. :)
- By gauge
- Posted November 11, 2009 at 8:10 pm
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Good news! Daveyo is right patience is key. It will keep getting better....
- By Keith1
- Posted November 11, 2009 at 8:22 pm
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Glad that you are doing better and headed in the right direction. I know it would be nice to have a list of possibilities, but from what I have seen on this site it would be a pretty long list. It would be like the warning we get for side effect with various medications. Some can handle reading it and be ok. Others,can't and I have one in my family, if he reads the list he has every one of the side effects.
LiveStrong!!
Keith
- By jc3126
- Posted November 11, 2009 at 9:23 pm
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Hi Keith, You make a good point.......
- By mendo_lady
- Posted November 11, 2009 at 9:44 pm
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Hang in there John, sometimes patience is the hardest pill to swallow.
We are sending you good thoughts and plenty of well wishes that soon you will be kickin' up your heels.
- By vtom
- Posted November 12, 2009 at 7:46 am
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Hey John:
I remember feeling weird pain in my shoulders, legs and abdomen after surgery for weeks. My mind would race for awhile as I tried to figure the trigger of the pain. Was it a hernia - did I do too much to soon? Was it nerve damage? or worse.
Then I'd remind myself - a 10 hour surgery - my body took a beating, was pushed, pulled and contorted, cut open, rearranged, and put back together a whole new way. Maybe that's all it was. lol My body needed time to heal. Three months later - I am happy to report - I am adjusting to my new normal and for the most part - the aches and pains are gone. Hang in there - let your body rest - feed it good stuff. Each week things will get better - Veronica
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