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Mets - any advice gratefully received

By BetsyMae
Posted November 4, 2009 at 1:28 pm · 14 replies
In Metastatic bladder cancer
Shared with the public

I was given the diagnosis earlier today that I have long dreaded - I have mets in my left hip bone. They are unsure whether they are from my urachal tumour (removed August 2007) or my breast tumour (removed Oct 2008).
I am not in any great pain - just a bit 'lurchy' when walking as there is discomfort in my hip and do not appear to have any significant weight loss. I had always understood these two factors came into play with mets.
Any advice/insights gratefully welcomed.
Betsy Mae

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Cancer Pain Breast cancer

14 replies

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By 15yrsurvivor
Posted November 4, 2009 at 4:24 pm
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BetsyMae, I am so sorry to read of your mets! At least you are not in a lot of pain, but I suppose that is small comfort right now.

I wish I had advice for you. What are your treatment options at this point?

By sunshine604
Posted November 4, 2009 at 4:29 pm
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Hi Betsy Mae -
So sorry about your diagnosis! I don't know much about mets (yet) so can't give you advice - but my heart is going out to you. Did they give you any info about treatment?
Eileen

By LadyJane123
Posted November 4, 2009 at 4:36 pm
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BetsyMae,
I am so sorry to read this. All I can offer is a hug or two or three. (((((U and Me))))

By suzywong
Posted November 4, 2009 at 5:27 pm
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betsy i dont know much on this either

but please remember i am thinking of you

stay strong xxxxxx

By jj803
Posted November 4, 2009 at 6:52 pm
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Hi Betsy,

So sorry to hear that you have bone metastases. Will they biopsy the bone to try to determine the source? I would think that if the recommended therapy is different for breast vs. urachal bone mets that that would be a useful bit of information. I seem to remember a fairly recent post from someone in Britain who had a similar dilemma (I think signet ring ca of breast and bladder, both considered primary sites). I hope you can find answers and appropriate treatments soon.

JJ

By nancynursez637
Posted November 4, 2009 at 7:02 pm
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AM happy to hear you have not had much weight loss, and would advise nutritional consult to keep your weight constant with the no doubt coming therapy. I often see folks doing well with their regular foods, unless they get some changes in the mouth or nausea. These too can be managed and high protein/cal shakes can support snacking very nicely esp if you like icecream!!!

Good luck with your next step and do keep us up on your progress

NancyN

By Annasvenska
Posted November 4, 2009 at 9:58 pm
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Betsy Mae

I am sorry about the mets to your hip bone.
You are in my thoughts!

Anna

By lsh
Posted November 4, 2009 at 10:02 pm
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Betsy Mae,

I'm so sorry to hear about your bone mets. Please keep us updated as you go through treatment so we can support you during that time.

Lynda

By roadrunner
Posted November 4, 2009 at 11:42 pm
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BetsyMae,

I now of 3 friends who had mets in the bone,hip area, they did very well with treatment,I will dig up the info,,,and pass it along,,,I am sorry to hear this,
what are they suggesting?
Ginger

By BetsyMae
Posted November 5, 2009 at 5:12 am
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Thanks for your support folks!
NancyN - thanks for your concern regarding nutrition - it is often overlooked. I am actually a registered dietitian working in nutrition support!
JJ - the recent post was from me too!
Ginger - would be very very interested in your friend's results.
So far I have been offered Zometa infusions to strengthen the bone and a referral to a hip specialist. Just waiting for it all to happen! Things seem to take longer over here!!!
Thanks again,
Betsy Mae

By Moonerj
Posted November 5, 2009 at 5:44 am
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Betsy I pray they will be able to find a way to treat the mets.
God Bless,
Jack

By grampadonut
Posted November 5, 2009 at 7:30 am
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tammie , my s/o had breast cancer and about 1 1/2 yrs later had :hot spot: on hip..got rad and is now doing fine
was told this is very common with breast cancer patients
best of luck
peter

By Annasvenska
Posted November 5, 2009 at 8:14 am
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Betsy Mae

I am a homehealth physical therapist and I had a patient whom I still talk to whom has had mets to her hip for over 10 years now and she has been responding very well to treatment. I think it was from breast cancer a long time ago.

I haven't talked to her for a while and I think I will give her a call.

She was one of my inspirations when I became sick.

I also believe that nutrition is often overlooked. I read a wonderful book by David Servan Shreiber "Anti cancer a new way of life" last year. I am not completely following it but I did cut out meat. So much of it absolutely makes sense.

Anna

By Memi
Posted November 5, 2009 at 8:35 am
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Betsy Mae, all I can add is my prayers that the correct treatment will be found and the mets will be arrested.
Hugs
Memi

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