Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

just got the path report

DrgnTrappr
0 Recommendations

I just got off the phone with vaderbilt and was surprised by the path report, all tumors were Low grade. Now theese were the Dr.s words when I asked if it was invasive "A SCANT INVASIVE", and he recomends 6 weeks of BCG treatments. Worst part of the call was that they want me to be off work for 4 to 6 weeks so that I heal enough to start the BCG's.
I just want Thank All Of You for your Prayers and thoughts. Ron

Pease read replys for my update to this post.

Explore topics in this discussion:

Cancer Yoga and Pilates Bladder cancer

22 replies

robm

hey ron/drgn trappr - the word "scant" is not acceptable - please go get a second opinion - it's a hassle but you need to know where you stand - take care later rob

cat22

Agree. Definitely get another opinion.

Cathy

LadyJane123

Low grade I love that. Scant invasive, not so sure.
Needs clarification.

Off 4-6 weeks? I find that quite surprising. Maybe its your job. If you are doing a lot of heavy lifting I can see it.

Lets get some calification on scant. Call his office back.
You are already at one of the top hospitals and this is your second uro. He just needs to clarify that scant for you.

Glad you are feeling well enough to post. Do you still have the cath?

lsh

So call your doc and ask what stage it was...that should tell you if it was muscle invasive. Otherwise...low grade is great news. My doc let me go back to the gym two weeks later. I lift pretty heavy weights, do kick boxing, step, yoga and pilates. Six weeks is a normal waiting period from TURB to BCG.

Lynda

joybob

low grade is the word. that is great, thing will be fine. good luck on treatment. Joycee

browns-crossing

"scant" into the muscle, is still into the muscle. anything in the muscle is considered invasive. Please, get a second opinon at hospital with a cancer center. It is quite worrysome to using the word scant with bladder muscle. I agree with all, do it asap.
best wishes,
browns crossing

balihigh

Low grade is what you wanted to hear!! Scant invasive. I, too, don't know about that. JJ where are you? What is your input?
Nancy

roadrunner

Well,
SCANT,,,,,not an option, it is or isn't,,,,,so I guess I would get back to him and ask,,is it or isn't it,,,
I hope he clarifyies it for you,,,,in detail


Ginger

honcho2

I understand the part about not working. The recession hit my industry hard, I have 2.5 months in this year so far and now looking at 3 months recovery after the 30th. You have to know I love a challenge, just have to keep putting one foot in front of the other. Good luck Ron.

Randy

Keith1

Hi Ron,
I'm happy for the "low grade". I would question your uro. Might his term of "scant invasive" mean "slightly invasive"? And is it maybe into the Lamina Propria and not the muscle? He would have to answer these questions. Also a 2nd opinion is always good. I wish you well.
Keith

jj803

Hi Ron,

I agree that scant is not helpful in fully understanding the pathology of your tumor. Invasive in bladder tumors is as follows: Non, lamina propria (T1), Muscularis propria or detrussor or muscle wall (T2a or T2b; inner half versus outer half), through the muscle wall (T3). Most of the time a TURBT will only be able to establish invasiveness into the muscular wall since to establish through you would puncture the bladder with the procedure, which is avoided. So I would get clarification. While you are at it make sure you understood no work for 4-6 weeks. My job was not physically strenuous, but after my TURBTs I was back at work the next working day. The delay before BCG is to allow the bladder to heal to minimize the risk of systemic infection from BCG. If I am not mistaken, your urologist recently authored some papers on treatment protocols for T1 bladder cancer, so I think you have a miscommunication problem not a misinformed surgeon. Best wishes,

JJ

nancynursez637

I agree that "scant Invasive" is pretty non specific, it is or it isn't. JJ has laid it out very well, and you might want to consider a second opinion. I would see about one of the bladder cancer centers, dana farber, md anderson, sloan kettering, cleveland clinic. Many here have gotten their second opinions at one of those and were very glad they did.

lsh

Cheyenne,

It is actually called body combat(aka kick boxing). I do it three times a week. Love it!

Lynda

fowlair

Scant invasive? Is that like being a little pregnant?

Hmmm, didn't think you could be either.

Everyone is right, get the pathology report and read it for yourself. You may need to let your doc know you need him to be more specific. As we as patients and medical consumers become more knowledgable, it forces our doctors to talk to us in more concrete terms. "Slightly invasive" might have been acceptable a long time ago when patients accepted the word of doctor as the word of God. But thanks to places like this, we are learning the lingo. So we have to let them know to speak to us like adults and equal partners in this process.

DrgnTrappr

Hi all.

I to have questions about the scant part, but I was talking with his nurse practitioner and not the Dr. himself. The reason for me being off work is because I have had three TURBT's in two months and with the first two I started bleeding heavy and passing large clots about a week after the procedure, and lasted for about three weeks. My job is very physical climbing up and down ladders and ramps hooking chains to the frames of cars and tightening them down. that takes close to three hours. Then I drive for next ten hours in a truck that has had most of the suspension altered to get it low enough to be in the legal height limits when loaded with as many as 11 cars per load.
Dr. Cookson is a leader in the field and Vanderbilt is an NCI hospital, taht is why I chose there. While I was in recovery I asked Dr. cookson if I would have to lose the bladder, and he said that I was not a candidate for removal at that time he also said that him and his team had removed a large amount of material from my bladder. They were mailing me copys of both the pathology report and the Dr. surgical notes I will know more then and I was going to try to talk to Dr. cookson himself on monday.
Thank you all for the input and support, will let you know more as I can.

Ron

LadyJane123

Well then, from what you do for a living I can certainly understand why they want you off work. Plus the big TURBS done so close to one another.

On Monday you'll have a much better understanding. Let us know how the appt. goes.

Have a restful weekend.

silgal

Thinking of you. Hope you are able to get more info from your reports and talking with the dr.
Sending good karma your way!

Memi

Hi Ron, still praying for you in Tallahassee.
Will be looking forward to seeing the post with your doctors meaning of SCANT.
Rest and God bless.

Memi

jj803

Hi Ron,

I am very glad to hear that Dr. Cookson was not who told you "scant" and that you will be getting follow up soon with him. If my experience at VU is anything like what you will get, there will be ample opportunity for discussion of the findings, the options for treatment, and the recommendations. Best wishes,

JJ

Donna49

Hi Ron,
I had a large amount of material removed from my bladder as well and my first turbt took over 2 hrs. My doc told me to take 6 weeks off as well. I ended up taking 3 weeks off and still had a hard time getting back into the swing of things. I was very surprised by most of the folks here who were back at work the next day, of a few days later!
My doc told me that the LAST thing I wanted was to have that healing scab pop off - trouble with a capitol T. So I listened and tried hard to behave while I was healing. I've come to realize that although we all have the same disease - we are all VERY different!
Your doc wouldn't recommend it if he didn't feel it was necessary.
Best of luck
Donna

Add to the discussion

Don't have an Inspire account? Join now!

Forgot password?

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

Group leaders

You