Man do I have news!!! Cysto was good, however the previous plans to manage me mid year with a urine for cytology is waaaaay outdated. In fact mid year urine subjected to NMP 22 assay are more likely to pick up new tumor cells than the urine for cytology. In the study below, the rate of cell pick up in 46 cases was 39 cases with NMP22 and 19 with cytology, sort of dismal.
Happy to be back, will catch up on entries soon
Me
http://jjco.oxfordjournals.org/cgi/content/abstract/36/3/172
That's one. Then he asked me when I had my last IVP, 1999 I said. Well he said, even in non-invasive tumors, we are remiss if we do not look at the rest of the urinary tract every two years or so........Well, duh. So will be scheduling that right soon. LIVE AND LEARN. Never assume. Anyone else heard that about IVP's and non invasive bladder cancer??? JJ, CHEYENNE, KAREN, ANYONE??? THANKS
NANCY
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Honey, I'm Home, and NOT OFF SUBJECT
- By nancynursez637
- Posted October 11, 2009 at 5:20 pm · 22 replies
- In Taking charge: How to be a proactive patient
- Shared with the public
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22 replies
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- By Moonerj
- Posted October 11, 2009 at 5:36 pm
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Hi Nancy
I have had a CT Scan, every year in Nov since being dx with non-invasive. I just checked all my reports, and the only time I had an IVP test was when I was 1st dx.
I have a cysto on the 19th and will ask my Uro if I am getting an IVP in Nov along with the scan, and if not why.
Congrats on the good news, and also for the info on IVP and NMP22.
Glad to have you back.
Jack
- By lsh
- Posted October 11, 2009 at 5:45 pm
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Glad you are back and the cysto was good Nancy. I have had a CTUrogram a year ago(right after diagnosis) and had one about a week and a half ago. I was T1G3 year ago...no recurrences yet. My advice about the CTUrogram if they do it is have it early in the day so you can drink enough to flush out the barium and iodine before you go to sleep. They have not done the IVP. Glad to have you back,
Lynda
- By Cheyenne
- Posted October 11, 2009 at 6:57 pm
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Yup, my uro does IVP's.
Welcome back.
- By 15yrsurvivor
- Posted October 11, 2009 at 6:59 pm
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Nancy, I am so glad to hear your cysto is negative! We missed you.
- By Cheyenne
- Posted October 11, 2009 at 7:55 pm
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Forgot to mention that my doc cautiously uses Nuclear Matrix Protein 22 tests (NMP22) as he does not feel that it is effective enough to justify it in most cases, the cysto being the best diagnostic tool.. He does feel though that the NMP22 as a screening for BC cells may advance one day to be a better nuclear screening, he still likes the cysto and biopsies and cytology. It's been around since I believe 2004 and hopefully will become a better indicator. Keep us informed. I'll ask my uro about it again when I see him. Hopefully screening will become much more accurate. Early detection is the key. Waiting for symptoms to occur is rather archaic.
- By nancynursez637
- Posted October 11, 2009 at 8:11 pm
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The use in my case Cheyenne would be at the 6 month mark between my annual cystos
- By Cheyenne
- Posted October 11, 2009 at 8:37 pm
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Oh, I know Nancy. I didn't mean to imply you would not get the cysto. I know you better than that.
- By nancynursez637
- Posted October 11, 2009 at 9:43 pm
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I understood you Cheyenne but thanks for clarifying.
Nancy
- By suzywong
- Posted October 12, 2009 at 5:11 am
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hiya nancy
i hav an ivp every 6 months
but i think thats cos i already had a kidney out
take care
nice to hear from u
x
- By LadyJane123
- Posted October 12, 2009 at 7:51 am
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I only had IVP when first dx. Feb, 2007.
Welcome back Nancyyyyyyyyyyy
- By silgal
- Posted October 12, 2009 at 9:00 am
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Nancy we missed you. I have had IVP every year, per the uro to look -interesting to know they told you this and more important: GREAT NEWS THE CYSTO FOR YOU WAS GOOD. YIPEE
michelle
- By Shiz
- Posted October 12, 2009 at 3:36 pm
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OK...At the risk of reinforcing Cheyenne's low opinion of my intelligence.......what the heck is IVP??????
- By Karego
- Posted October 12, 2009 at 3:46 pm
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Shiz, this test is done to look at the kidneys and ureters as the dye flows through to the bladder. I believe it is an IntraVenous Pylogram, IVP.
As the dye travels through the veins and through our kidneys to the bladder, it will show any strictures or masses that may develop there.
As usual, we are finding there is no certain protocol for all urologists to use this test for us. Why a person diagnosed with bladder cancer would not have this test done routinely as a part of their vigilant check-ups, I don't know.
I'm sure it is a question all of us need to ask of our doctors when we go in for our yearly or quarterly check-ups.
It probably would be good to ask if the dye is harmful to our neos also, for those of us who no longer have our own bladders.
Karego
- By CandyB
- Posted October 12, 2009 at 3:55 pm
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Wouldn't an IVP and a CT urogram be redundant? Or would an IVP pick up somethington the CT might miss?
- By JeanneS
- Posted October 12, 2009 at 10:05 pm
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I gotta look that up. I can't tolerate dyes since I am allergic. I wonder if this is why he doesn't do that . Hmmm
- By JeanneS
- Posted October 12, 2009 at 10:07 pm
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Yep, I just read it can't be used if shellfish and /or iodine allergy , I have both .
- By nancynursez637
- Posted October 12, 2009 at 11:25 pm
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intravenous pyelogram meaning they put dye in your veins and take pictures as your kidneys excrete it looking for abnormalities.
nothing wrong with your IQ
Nancy
- By nancynursez637
- Posted October 13, 2009 at 10:33 am
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For shell fish allergies, there is a second dye that can be used and does not precipitate the allergies
- By JeanneS
- Posted October 13, 2009 at 11:14 am
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Really? I guess they just didn't do it . But I do remember having a ct scan.
I guess I'll ask him .
Thanks :)
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