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Can we have some peace please?!!

Annasvenska
0 Recommendations

I haven't been online for three four days and it seems there has been some issues and angry feelings here.
When I joined BCAN/team inspire over a year ago I got an incredible amount of support and value out of being a member.
Now I haven't followed what has been going on but I wonder if it would be too much to ask everybody to try to extend ones level of acceptance of each other a little.

How are we going to have world peace if we can't even get along here.

Anna

Explore topics in this discussion:

Exercise Anxiety Cancer Surgery Anemia Bladder cancer

19 replies

JeanneS

We can't have world peace. Ideal, but people being people..it ain't happenin'.
And I have no idea what is going on here. I'm fine myself :) Just pay no mind and enjoy the good parts , I guess.

Hope you are doing much, much better Anna .

hugsssss

Annasvenska

I am an idealist and I choose to live in the possibility that we can indeed have world peace.

I am doing much better and I am grateful for that. My belly is healing however I had one a onepiece now at our weekend trip at Florida while at the beach. I don't think that my scar would have liked the sun as much as I did.

Hugs to you too Jeanne

Anna

15yrsurvivor

It's great to hear you are doing better! I hope that continues. I am a little envious of your Florida trip!

I agree that the key to getting along here is tolerance of opposing viewpoints and respect when replying, especially when you disagree. Opinions are just that, they are not facts. We are all entitled to them, right or wrong.

Annasvenska

I completely agree with you (15 year survivor) and I think there is where acceptance comes into the picture.(tolerance and respect as well)

There are many different ways of looking at a situation. We all bring in our cultural back ground as well as previous experiences. I am not always good at looking at viewpoints from my neighbors perspective but I know that I am much more effective as a listener or a friend if I can have some understanding from where that person is coming from.
Fear and cancer is very anxiety provoking and has caused me to be less than agreeable more than a few times. I have been fortunate to have had close people (friends and family) whom have understood that and not held me completely accountable. I hope that I can pay back that service to someone else. We all sometimes are not in complete alignment with whom we are committed to being.

Anna

Lyyka

Anna,

I've been on this site every day for almost two weeks. I don't quite know what you are talking about about "peace". I have received an abounding amount of acceptance, support, hard earned knowledge, and advice. There have been a couple of times folks have vented about something or another dealing with bcan, but it is easily ignored.

This site has been a mental life saver for me. I think a tiny bit of disagreement versus the caring I've received about the life changing diagnosis of bladder cancer has been more than worth it. I can't wait until I will be one that can inspire others, instead of being so needy right now on this new journey.

Hope all goes well for you on your path to being cancer free. I love what someone keeps ending his posts with. BCG = Bladder Cancer Gone! Stephany

15yrsurvivor

Anna, it is perfectly normal for you to be a little "testy" sometimes! All of us are, but going through an illness is an emotional roller coaster. Your loved ones should always understand. On here, you seem like a very reasonable and nice person!

I have always believed that we can learn something from everyone, if we can keep our minds open to possibilities.

CandyB

Anna,
We do accept each other. It is Inspire that chose to "dismiss" one of our most beloved contributors. I can't even mention his name, because we have been instructed that he is persona non grata. Disppeared. We are supposed to act like we didn't notice. Sorry, THAT is not acceptable.
Candy

Annasvenska

Sorry guys

I must have misunderstood what was going on. As I previously said I haven't been on for a couple of days and when I am on I am not very thorough and only read a few posts as I am quite busy with getting my kids to do their homework.
I am glad to hear that you feel that you are getting support and acceptance because that is what I have always felt and recieved here.

The person whom is no longer here was one of my favorite persons and I felt that what he had to contribute was very valid (at least what I read) but I don't follow whats going on here closely.

I consider all of you closae friends and when some of you disappear by own choice or not I miss you.

Bob_M

Anna my friend, I know exactly what you're referring to. Just because "what's his name" isn't posting here (keep in mind he's my friend too) doesn't mean we can't support each other. I'll just sit back and grin and/or laugh and keep the faith...

Bob

PS: Glad to hear you're doing well. Let me know when it's time to start training for "you know where." LOL

Annasvenska

Bob

I went back to the gym today for the first time since "you know when" and I did some light weight training for my arms...very light I might add..my local YMCA gym is the home of several local police officers and I have to many times take deep breaths and NOT tell them that their forms are not condusive to building strength and that they ought to lift lighter and slower.

jj803

You know guys,Anna. It's all about I can do more. I have gotten better about that since RC, but still have to compete with myself sometimes. Best wishes,

jj

nancynursez637

You are reading too much into this anna, people were stating their wishes, wanting to let BCAN know what their thoughts were. we all recognize nothing is going to change, time to let it go

mendo_lady

Anna

So glad you are every so lightly stepping back into the gym. You are an inspiration, nothing keeps you down for long. Cheers to you!

Like everyone else here, I have no idea what really happened and believe as Candyb does. But I liked what Bob said "grin and or laugh and keep the faith."

That said, it does not lessen the sincerity of my awe of your remarkable strength and happiness that you are doing well.

browns-crossing

Anna,
I am so happy to see you are better and posting again. Missed you. Glad you are feeling Ok to get your strenght back. I am 10 months now post surgery and chemo. I have just been in the hospital too, for all most a week with a rare bacteria infection in my bladder/kidney. I don't think I have ever been so sick. Went home on IV antibiotics for two weeks. Since the neo bladder I have been in the hospital three times with infections. Each one seems to knock me down more and make me weaker. I know you have been through much, how do you get back your strength? I feel like I have been through a grinder. I am exhusted no matter how much sleep I get.
Browns Crossing

Annasvenska

Dear Browns crossing

I know the feeling of exhaustion can be so depressing especially if one is used to being very active and having energy.
I was just soo tired for the first two or three weeks after I came home from the hospital but some of that was due to anemia. I was really helped my taking iron supplements (gluco someting ferrous 325mg) and vitamin B complex.( as well as a multivitamin).
Our bodies have an amazing ability to regenerate don't forget that no matter how tired you are. Its just going to take some time.
I don't recall any numbers except that a healthy individual looses 75% of his strength after 7 days in bed rest. I think it takes 2-3 times as long to get back to normal. Give yourself time but its absolutely possible.
I believe in balance for healing: eat well, rest , activity, exercise, spiritual and friends/family. I know you know all this as a nurse but its not as simple to be objective and clearminded when one deals with ones own problems (at least not for me).

Take care and get stronger

Anna

Kyle-MO

Anna, I am glad to see you posting, and doing well in your recovery. Just take it slow and easy, and you will be back to 100% in no time.
Wishing you the best in your continued recovery.
Take care,
Kyle

browns-crossing

that sounds right. I would recover, then get sick, and recover, then sick again. This has happened every other months since chemo and the neo bladder surgery. I have never gotton back to 100% and feel like I am running on one cylinder. I am 50 and feel like I am 80. I try to eat well at meals, rest, don't over do it, and still feel like I am crawling. It's such a long struggle, but I am alive, and still cancer free.
thanks,
Browns Crossing

Annasvenska

Given what you have gone through it will probably take you a little while to get back to your old self.

I do hope that this is the end of the kidney infections for you and that you can continue to recover. I have found that one recovers in spurts. It can be a while where it feels like nothing is happening then all of a sudden one makes a big step. Its also easier for people that one sees sporadically to notice ones recovery.
Two weeks ago my exhusband came on a friday to pick up the girls for his weekend. I was exhausted that day. He dropped of the girls that following Sunday and said (a couple of weeks later) that it was a huge difference in how I looked. He just couldn't believe how much better I got in a couple of days. It didn't feel to me that I had gotten much stronger but it was encouragning to hear him say that.

Yes, the main thing is that you indeed are cancerfree!!!

browns-crossing

thanks, I felt only marginally better, but last Fri. my doc could not believe how much better I looked. So I guess your right. Time hopefully will heal.
Best,
Browns Crossing

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