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Does anyone out there have or had T2 or3 grade 3 cancer that spread in muscle wall. That is what my husband has, and they want to do chemo and then RC. We think we are goin g to MD Anderson for surgery. But he is very upset and depressed. If anyone can talk to him I'd appreciate it. Our number is 352-988-5419, His name is Bob. Than ks, Joyce
hi joyce
i am also t3 g3....same treatment here at dana farber. chemo first , then RC....
i'm am doing fine and waiting for the RC next week in boston.
he will be fine....
best to get going on the chemo to shrink the tumor and prevent any micro metastasis.
go to a top cancer hospital.....
again, he's going to be ok!!!
david
THANKS DAVE, WE GET RESULTS OF SCANS ON FRIDAY, HOPING FOR SOME GOOD NEWS. sO FAR NOTHING ENCOURING. gINGERS HUSBAND gENE CALLED TONITE AND TALKED TO BOB, THAT HELPED A LOT. i WILL LET HIM READ YOUR MESSAGE TOO. gOOD LUCK TO YOU MY PRAYERS ARE WITH YOU. jOYCEE
you need to be positive,,,"nothing encouraging", ...can't be like that joycee. i'm only 43 and thank god they have a plan to save me.
... and so far i see he has this confined to the bladder, thats good news, they have a treatment plan thats good news too.
positive mental has huge impact , you both need to know he will be ok.
be strong
we are here to help
david
Thanks, Dave, I just woke up having trouble sleeping, You are right, but its been a tough few months with many ups and downs. I will keep the positive thoughts. I think talking to Gene helped him. You have a won derful attitude. I thnk you for thinking of me. And I wish the best for you, you are my daughter Lynda's age. And when she became diabetic at a very young age I went to pieces then. But she is doing well even had 2 kids. So hopefully this will be a good ending as well. Probably a few years ago they didn't even have these treatments. I'm going to have a cup of tea and go back to bed. Joycee
Hi David,
You have been talking with my mom Joycee.... I just wanted to thank you for your reply to her, this is the only real source of encouragement for her and my Dad. We can not believe the amount of concern for a complete stranger, it has helped tremendously to hear from people who are going through the same thing. And for us to seek advice,and suggestions on this website,it has made the differance in giving us hope. I am so sorry to hear that you are in this boat, But like you said there are things we can do to beat this and live a productive life. Im curious, when did you get diagnosed,and what was the timeline of getting chemo,and scheduling an RC?
Thanks-
Lynda
There are many of us here who were diagnosed with muscle invasive BC and had RC's. Some of us had chemo first then the RC, some of us had chemo after. Some of us didn't have chemo at all. Each case is dependent on the individual and the recommendation of the Dr's, plus the knowledge of the patient at the time.
I am 5 years post RC with no recurrence of BC. I didn't have any chemo.
You must be proactive in mind as well as in body. Plan on being cancer free!
Karego
Thanks, that was good to hear. Tomorrow we get the sdcan results, I think that is as bad as the doctor visit this week. He just said the bladder had to come out and lets see the scans. We are getting by day by day, some are better then others. But I don't want to be disappointed again. today going out for day with our daughter and evening with our son, need some good activity. We like to feel normal and not think about this. Joycee
Yes, I had a T4 G3 and had chemo before RC. I am a 1.5 years post surgery, clear and doing fine.
That is wonderful to hear and very inspiring :))
Hi Joy -
I'm thinking it really doesn't matter what kind of cancer you have -- it's all scary and depressing. Yep, I like most out here have bladder cancer and trust me I feel exactly like your husband lots of the time. But you have a lot of great things working for you...
* You found BCAN -- this is a great place with lots of great people and you can get almost any question you need answered. Most of all though you will get great support.
* There are several very active members in your area taking treatment at MDA. Great facility, great care -- and it helps to know you are not alone with folks in your local area to talk to. Look for Cheyenne, Ish, and Bob here -- heck I'm in Delaware and you can feel they're support way up here! And of course you already met Karen and Dave.
* You're getting knowledgeable, getting care, and staying on top of the cancer. That's like job #1 -- staying on top of this. There's lots of great stories out here of success against this cancer.
Keep positive, keep the faith, and get knowledgeable. Whatever you need, ask -- we're here for you. I'm happy to call or write. Just ask.
All the best -
Pat
Pat without this group I would not have made it thru the week. I think my husband is going to ask about that car in the picture. he and my son love cars. his mustang convertible is in ny wse were going to have it shipped down, its a 1992 red special edition, he loves it. maybe we should get it down here. He has many emotions and going to the doctor and hearing stuff is scary. But we will hang in there. thanks again. Joycee
I am happy for you and wish I could be saying that for my husband too. Keep up the good work! Joycee
Get as much normal as you can!!!
Ginger
and call anytime,,,,
Hi Joycee and Bob,
Keep hanging in there. It will get better. I believe the scans will be good news and then you can get on with the planning. Please feel free to call me for info or support.
JJ
hi lynda and joyce
as you can see i don't listen to the odds or any of that.
i live my life as if nothing has changed, many people on here helped me at first too.
its natural to be scared, and i feel the stress sometimes, but i always remember things could be worse, and that i have Harvard Medical School doctors on this, so i can't ask for better.
as far as timelines i got this for xmass this year, and it was a shocker as you can imagine.
went local for treatment, did my turbt. early febuary...and got the bad news. t3g3 agressive.
my uro was very negative, had limited solutions, and i was done with him!!!
i immediately went to dana farber, and they stated my chemo in march, as you know clinical trial high dose MVAC....i wanted the baddest they had to kill this stuff!!
drove to boston mon, tues, wed every 2 weeks....even though they said there was no way i could drive, and this dosage was brutal.....but i shocked them all and did it.
now next monday my RC....
and seeing all these post RC people here living well, thats what makes me know i can do it too.
and so should you!!!
mind and body can do amazing things!!
anyhoo....thats the deal
i'll be here if you need to talk
peace
david
ps....does my saab turbo convertible count???...anna, you being swedish must think it should be discussed here....lol
Hello,
I was told in July 2008 my birthday is Sept. 3 it was the worst gift I ever got. My urologist asked if a family member was there with me before he announced that I have bladder cancer my reaction was what is that?? How? Why? I told him this is my fight the only family member I have is 14 years old and the less he knows the better until I research and I decide what he should know.
Then I said I guess all those questions are not important at the present time the question that needs attention now is HOW do we get rid of it????
The first thing my urologist said is we must get the bladder out. I said ok, I will think about that.
I got in my car and drove to the hospital that had my test results and took them to the Cancer Center here in N.J.
I was told my options about removal, chemo, and radiation. I then arranged to get the tumor removed and start 38 treatments of high tech radiaton along with 8 chemo treatments of Cisplatin.
My treatments were finished in time for a Merry Christmas and Happy New Year with my son who turned 15 this Feb. 28. It was hard on me but, I never skipped a beat even on days I was getting run down I would say Yo Lorraine don't let this beat you that is what this cancer wants, show IT who is boss!
My blood count recently just went down due to both treatments @ the same time. With my treatments after the last treatment your counts start to go down to a low point then it takes time to build them up. A small price to pay.
I got one transfusion in April, my red blood counts are going up slow.
Thank you to all blood donors you are very un-selfish people.
I am now getting weekly IVs of iron I must go 6 more weeks and every 2 months I get B12. Until my iron builds up. Every 3 months I went for my poke & peek I got all clear 4 times counting the second opinion poke & peek @ a different urologist. I still have my bladder that works as good as before my cancer.
God is watching over me. Cancer is a very sneaky, pesky critter you must keep IT away at all costs.
YOU CAN DO IT!!!! Face it with all your energy don't focus on negative energy just positive energy is needed now!! Before I was told about the BIG BC I just got over having my T8 compression fractured by my chiropractor while making an ajustment to my spine.
I was in pain and a full body cast from under my chin to my pelvis for 8 weeks driving was the worst, well anything you did with sitting involved was not pleasure
moments. I could write another book about my life.
But,atleast I have a life, remember positive energy!!!!
Bye 4 now, Lorraine :~)
If I can still smile after all that, maybe I made you smile!
Lorraine , thanks for sharing. today was expecially hard because tomorrow we get the results of the scans, we are hopin g they are all clear, that would be good news. JJ anf Gene called Bob and he is much more positive today, he said let's get this over with. We did not chose this, but we can choose how we react to it. I am counting hours hours and keeping busy. I will let ev eryone know what happens, and I will be thinking of you tomorrow, you did this, I can do it to! Joycee
ginger my daughter took us to lunch and a movie, keeping busy. tomorrow oh Lord give me strength. keep us in your prayers, God must be saying "who is the Bob guy" so manyu requests! Joycee
ok we will include you too! I hav e to find a picture of b ob mustang, its a real bright red and white inside special edition, only made a few hundred. tomorrow D Day for scans, wish us luck, getting nervous....ok...I believe.....
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