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Tom (Nucsubman) RC w/neobladder - UPDATE 7/3

baudine
  • By baudine · New reply yesterday at 11:56 pm
  • Journal · 8 replies
  • First off I would like to thank all of you for all your support and prayers. Please keep them coming as we are finally getting the beginning of good news as we are still in the Holy Cross Hospital in ...

Get out the KLEENEX!!

roadrunner
  • By roadrunner · New reply yesterday at 11:35 pm
  • Journal · 26 replies
  • Today is July 3rd,,,,,,,,,,, 2 years ago today my husband was disgnosed with stage 3 bladder cancer,,I didn't think today would be a different day,but much to my surprise it is,,,, As I sat here on the ...

Results

ellenrn
  • By ellenrn · New reply yesterday at 11:04 pm
  • Discussion in Living with invasive bladder cancer · 17 replies
  • Hi Everyone, I'm so sorry it took so long to get on this week. Three twelves in a row and sleep in between. Todays the day to catch up on posts!! ALL CLEAR!! The doc gave us a piece of schedule of what ...

DOES BLADDER CANCER SHAPE WHO WE BECOME?

Cheyenne
  • By Cheyenne · New reply yesterday at 9:44 pm
  • Discussion in Living with non-invasive bladder cancer · 61 replies
  • Does bladder cancer diagnosis shape who we become? Does the cancer shape who we become? Does the treatment shape who we become? Do our responses to bladder cancer and treatments shape who we become ...

Just Found out Husband has Stage IV BC

cat22
  • By cat22 · New reply yesterday at 8:43 pm
  • Discussion in Metastatic bladder cancer · 25 replies
  • Hi All I have posted a few comments since I found this page. I do want to thank you all from the bottom of my heart for all of the wonderful information, prayers, hope, encouragement....the list is long ...

Update on Clinical Trial

luvcntrym
  • By luvcntrym · New reply yesterday at 8:01 pm
  • Discussion in Metastatic bladder cancer · 15 replies
  • Hi all....I haven't been on in a while. Too much going on here with this clinical trial, phone calls back and forth. My mind is about to explode! Dennis was suppose to start clinical trial this past Monday ...

Why Connecting with others with Bladder Cancer is Important

balihigh
  • By balihigh · New reply yesterday at 7:55 pm
  • Discussion in Taking charge: How to be a proactive patient · 14 replies
  • I have been working on getting media attention for our picnic on July 18th in NC (By the way, reservations can still be made-just contact me!!). Yesterday the local TV station in Asheville (ABC news ...

RC - Post Discharge Questions/Thoughts

Crossman
  • By Crossman · New reply yesterday at 7:31 pm
  • Journal · 9 replies
  • This is now my second full day home post-op. Things are going well and I am still amazed at how well I feel compared to what I expected. Here are some random thoughts and questions... 1. My suprapubic ...

Photocure application to FDA

Kyle-MO
  • By Kyle-MO · New reply yesterday at 5:59 pm
  • Discussion in Living with non-invasive bladder cancer · 4 replies
  • Thursday, 02 July 2009 OSLO, NORWAY (Press Release) - June 30, 2009 - Photocure announces today that a New Drug Application (NDA) has been submitted to the US Health Authorities (FDA) to obtain approval ...

BCG or RC?

simpleone
  • By simpleone · New reply yesterday at 5:58 pm
  • Discussion in Treatment choices · 14 replies
  • I am going to Shands Hospital (Gainesville Florida) on the 13th for my BCG follow up cystoscopy by my surgeon. My cancer is at/t1 but very aggressive and I have been dealing with this since 2004. MD Anderson ...

RC - Mucus Question

Crossman
  • By Crossman · New reply yesterday at 5:23 pm
  • Journal · 8 replies
  • The last two days my foley catheter would not drain due to excessive mucus and I had to flush it to get it to run again. Yesterday I had to throw away one of the night foley bags because the bag itself ...

Summer Picnic in the Mountains

balihigh
  • By balihigh · New reply yesterday at 4:41 pm
  • Journal · 23 replies
  • Summer Picnic in the Mountains JerseyGuy and I have been working on a summer gathering in order to meet each other. Many of us have become very close by posting on the website but we would like to put ...

Happy Independence Day

Kyle-MO
  • By Kyle-MO · New reply yesterday at 3:30 pm
  • Discussion in Treatment choices · 6 replies
  • I just wanted to wish everyone a safe, and fun Independence Day tomorrow. Eat, Drink, and be Happy. A great big THANK YOU to those of you that have served in the military, or have friends, and loved ones ...

Update on adorned!!!

roadrunner
  • By roadrunner · New reply yesterday at 2:12 pm
  • Discussion in Life after radical cystectomy · 6 replies
  • Today I received a message from adorned,,,her husband is still in icu,,,the ventilator has been romoved,he is on anti-biotics still for the infection and morphine,,,coughing is a major concern and congestion,,,soreness ...

CAUTION with Choice of Doctor, Especially, 2nd Opinion ....

BJsHere
  • By BJsHere · New reply yesterday at 11:27 am
  • Discussion in Taking charge: How to be a proactive patient · 27 replies
  • I choose to share this with you so as to Open Your Mind... Clear your Head when choosing your Doctor. This is longer than I would like but it is important for you to see where it lead me. It is not meant ...

Just when I thought it was safe to go back into the water

Leslie45
  • By Leslie45 · New reply yesterday at 10:43 am
  • Discussion in Living with non-invasive bladder cancer · 23 replies
  • Today I went to my GYN due to irregular bleeding and ended up being diagnosed with a large polyp in my uterus. The doc immediately did a biopsy (very painful) and am now waiting to hear back tomorrow ...

Back from trip to see family and dad in Illinois

sweety0910
  • By sweety0910 · New reply yesterday at 10:20 am
  • Journal · 4 replies
  • Well, I have not been on a computer for about 2 weeks now. While I was visiting my dad he got his staples out and the next day his insicion split open. Its a opening 14cm long by 10cm wide by 10cm deep ...

JULY CALENDAR,,,HERES THE SCHEDULE!!!

roadrunner
  • By roadrunner · New reply July 2, 2009
  • Discussion in Caregivers corner · 16 replies
  • Where is the summer going? All of you on the calendar,good luck and we will be thinking about you ,please let us know how you are doing,,, and the results of your tests or procedures.... prayers and positive ...

silver water helped my mum

bou
  • By bou · New reply July 2, 2009
  • Discussion in Life after radical cystectomy · 11 replies
  • thank you all for your replies and support my mum had a r/c and an infection after the surgery. her fever was always high and her body resisted all the antibiotics. so the doctors had to stop all the ...

jedda needs our Help

BJsHere
  • By BJsHere · New reply July 2, 2009
  • Discussion in Help desk · 6 replies
  • I just received a note from Jedda. She is a •64 years old, Female •Australia •Joined December 27, 2008 I will let her know that I posted her question. Hope someone can help or encourage her. She came ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.