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Jasta passed away on Monday

vgau
  • By vgau · New reply 5:10 pm
  • Discussion in Caregivers corner · 34 replies
  • I talked to Janny's daughter today and Janny passed away peacefully on Monday. All her children were home and she saw her two grandsons as well. She figured out they had a special surprise for her on ...

veteran administration no bcg ??

duneman
  • By duneman · New reply 4:24 pm
  • Journal · 2 replies
  • i go to vet. admin. hosp. being a veteran with no insurance... just had turb to remove 3cm papillary tumor and pathology said low grade cancer. they said i should get bcg but said they cannot get it ...

bladder

annamarie68
  • By annamarie68 · New reply 4:20 pm
  • Journal · 1 reply
  • Finished my bladder chemo 2 or 3 weeks ago and I go to see the doctor in a couple of weeks. There are times that the color of my urine almost looks like it did when I first discovered the cancer and was ...

BLeeding

graycy
  • By graycy · New reply 4:14 pm
  • Discussion in Living with invasive bladder cancer · 4 replies
  • I've been having hematuria since last week after a pre-cystectomy (will be done on 30th) colonoscopy which doesn't seem related, duh, but there it is. Maybe from having to drink a whole gallon of nasty ...

Help, Support needed

widgetwilk
  • By widgetwilk · New reply 4:09 pm
  • Discussion in Newly diagnosed · 7 replies
  • Someone dear to me has bladder cancer, male 49 yrs old, as I do not know all the right words yet, please bear with me, he has had 2 operations where 'bits' have been taken away, and after the first he ...

Vi gets Ct scan results

vgau
  • By vgau · New reply 1:32 pm
  • Discussion in Living with non-invasive bladder cancer · 19 replies
  • Had ct scans on Friday. Chest ct and then abdomen/bladder area with and without dye. Hoping to find the answers to increased blood in urine. Abdomenal region: Nothing found in the abdomen so that is good ...

Side effects of BCG therapy?

JMeyer
  • By JMeyer · New reply 1:18 pm
  • Discussion in Newly diagnosed · 8 replies
  • I have just been diagnosed with bladder cancer after having TURB on 4/4/12. Like many on this site, I am young - only 42, never smoked, no history of cancer in my family, and never around chemicals. How ...

no bcg for veterans administration

duneman
  • By duneman · Posted 1:11 pm
  • Journal · 0 replies
  • i use v.a. health care and papillary tumor 3cm. they said i should get bcg treatments but said they cannot get it!! ever hear of that? what should i do can you buy your own?? how much ...

Carboplatin vs Cisplatin?

newsie
  • By newsie · New reply 11:32 am
  • Discussion in Metastatic bladder cancer · 13 replies
  • After first Cis/Gem dose, DH's creatinine level went from 1.2 to 2.6. Consequently he missed second Gem dose. Level has come down to 2.4. But now doc is saying she wants to switch to to Carboplatin. Is ...

2 weeks gone

Wintergirl
  • By Wintergirl · New reply 11:28 am
  • Journal · 2 replies
  • Thursday will be 2 weeks since RC and neobladder surgery. Lou is doing very well, walking lots and also passing lots of gas. He is on solid food and is getting his appetite back. Doctors said he will ...

First day back to work

Garebo
  • By Garebo · Posted 10:52 am
  • Journal · 0 replies
  • May 14, 2012 First day back to work went as expected, got tired after 6 hours, luckily I have help for as long as I need. All in all I felt good at the end of the day...10 hours under my belt. 2 nd day ...

Gone aggressive/invasive

spoon61
  • By spoon61 · New reply 10:32 am
  • Discussion in Metastatic bladder cancer · 9 replies
  • I got the BCG's 12 total. Was doing well. Between my 2nd and third cyctoscopes a 3/4 in tumer developed that penetrated my bladder and the surrounding muscle tissue. There is also indications that it ...

First BCGs Coming Up

eilujg
  • By eilujg · New reply 10:26 am
  • Journal · 8 replies
  • It is one week until I begin my first round of 6weeks of BCG intillations. All I keep thinking about is I hope it works and that the Grade3 tumor diagnoses doesn't make recovery /reaccurance more difficult ...

Cathing with Neobladder(Lubricating Jelly)

birdman
  • By birdman · New reply 9:35 am
  • Discussion in Life after radical cystectomy · 22 replies
  • I have been cathing over three years now and have certain brands that work better than others,my preference is Select.I have used Surgical Lube and that causes problems,catheter feels dry going in .I ...

Fresh with Neo-bladder-how to control incontinence

kk1234abc
  • By kk1234abc · New reply 9:18 am
  • Journal · 9 replies
  • Hi Everyone, Had RC with neo-bladder on 26th April. Catheter from neo-bladder was removed today only. I have been leaking almost continuously. Every time I get up from chair I leak a little! Doctor says ...

Vitamin Supplements and BC

quincyst38
  • By quincyst38 · New reply 9:04 am
  • Journal · 5 replies
  • My brother-in-law who has a great deal of knowledge relative to vitamin supplements "he's not an expert" but is very knowledgeable, suggested that since I had a recurrance of my low-grade non-invasive ...

Exercise and Cancer

arnab
  • By arnab · Posted 8:30 am
  • Journal · 0 replies
  • Studies at the National Cancer Institute and others indicate that some exercise will likely extend the life and improve the wellbeing of cancer survivors. Worth a scan. Please see link. http://well.blogs.nytimes.com/2012/05/16 ...

CRAZY again!

karenlamb
  • By karenlamb · New reply 5:22 am
  • Discussion in Living with non-invasive bladder cancer · 6 replies
  • Well aagin, they screwed up my appointment on the 4th, rescheduled for the 9th. The dr can strolling in 2 hours late. had the cytsco and biopsy done, dr tell hubby all clear see her in 3 months. Discharge ...

IS CHEMO BEFORE RC IMPORTANT?

reemz
  • By reemz · New reply 2:42 am
  • Discussion in Living with invasive bladder cancer · 19 replies
  • Hi, I have been reading so much here and everyones experience has been very helpful. However, i am now questioning my dads specialist. He has not emphasised or highlighted the need for pre op chemo? im ...

Dad just diagnosed scared of prognosis figures

Jsbnyc
  • By Jsbnyc · New reply yesterday at 11:20 pm
  • Discussion in Newly diagnosed · 9 replies
  • Just been told my dad has invasive bc. Dont know stage only that he has to have his bladder removed. The lymph nodes nearby look ok but they will be doing more scanning of his lungs etc. The doc said ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.