The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Must Read Before Deciding on RC!!!

  • By gmoorefl2 · New reply 11:41 pm
  • Journal · 88 replies
  • YOU MUST READ THIS BEFORE DECIDING ON RADICAL CYSTECTOMY (RC)!!! For those of you who have been diagnosed with organ specific bladder cancer and are being told the only option is radical cystectomy, you ...

CIS after 2nd Turbt

  • By Paptap · New reply 11:33 pm
  • Discussion in Treatment choices · 5 replies
  • I am a male 64 years old originally diagnosed with T1hg non invasive. Two days ago got the pathology from the 2nd turbt and am told I have CIS in the mucus lining. Dr will start with BCG tomorrow. Dr ...

How much BCG is too much?

  • By Sharon1955 · New reply 11:04 pm
  • Discussion in Living with non-invasive bladder cancer · 3 replies
  • My husband Wayne has had 2 six week treatments of BCG. First round still showed the CIS but after a gruelling additional six weeks he was showing no cancer. He had one three week maintenance course during ...

Our own, KimberlySC, is in the news

  • By balihigh · New reply 10:59 pm
  • Discussion in Raising awareness · 6 replies
  • Many of you have met Kimberly Sanders at the NC Picnic. She has attended 3 of them, the first time just prior to her surgery. She is KimberlySC here. Great article in her local newspaper. We celebrate ...

Radical Cystectomy and Neobladder Surgery recovery with severe COPD

  • By RunnerGirl13 · New reply 10:43 pm
  • Discussion in Life after radical cystectomy · 5 replies
  • Hi all, I have been reading all of your posts and it has helped a great deal. My dad was diagnosed with Muscle Invasive Bladder Cancer 2 weeks ago. Our Urologist and Urologic Oncologist have both stated ...

Boston, MA Area

  • By akalambkin · New reply 10:38 pm
  • Discussion in Raising awareness · 3 replies
  • Are there any fundraising walks going on in the Boston, MA area ...

Test results

  • By bettybygosh · New reply 10:16 pm
  • Discussion in Life after radical cystectomy · 10 replies
  • Hi all, I had an r.c. In june of 2013 and had scan and blood work done recently.finally got an all clear. Woohoo. I was worried because this oncologist questioned why I did not have chemo after surgery.scared ...

Second Opinion

  • By pabchatta · New reply 8:42 pm
  • Journal · 2 replies
  • I have had 2 TURBT'S and a round of BCG since being diagnosed in November (T1G3)--and am currently cancer free. I would like to go to a major cancer center now for a second opinion--to be as fully informed ...

Wednesday,April 23, cystoscopy

  • By spunkynana2u · New reply 7:14 pm
  • Discussion in Living with non-invasive bladder cancer · 25 replies
  • It has been 5 months since having a tumor removed in the doctors office and now getting ready for my cystoscopy on Wednesday, I am asking you all to keep your fingers crossed that it comes back all clear ...

1st BCG Treatment

  • By scottmonaghan · New reply 7:02 pm
  • Journal · 9 replies
  • Had first treatment yesterday, April 22. Went well, although insertion of catheter without lidocaine wasn't any fun. But it's all over quickly - less than 10 minutes start to finish. Felt a little "blah ...

Hernia repair

  • By MrsMindiJean · New reply 6:23 pm
  • Discussion in Life after radical cystectomy · 3 replies
  • I currently have a hernia the size of a soccer ball, to the left of my belly button stoma (result of bladder cancer and Indiana Pouch). I will be having surgery on May 6 and would like to know what to ...

Shocking Report

  • By Lazy-Bones · New reply 4:38 pm
  • Journal · 7 replies
  • In February, 2014, I noticed a large quantity of blood in my urine. I went to the family doctor, who thought it was probably a minor UTI, so he prescribed 7 days of an antibiotic. After 3 days, I had ...

Foley Catheter help

  • By chiprich · New reply 4:32 pm
  • Discussion in Life after radical cystectomy · 4 replies
  • Hi, I had the RC with a neoBladder 3 weeks ago and for the most part AOK. I have an ongoing problem that the tube that enters the penis from the Foley Catheter (where urine and mucos exits the body) often ...

female age 58-new here-need some hope

  • By tweekerbeeker · New reply 4:31 pm
  • Discussion in Newly diagnosed · 15 replies
  • well, first appt. with urologist is over. Going for CT scan ASAP, then cystoscopy(sp?) in office. I'm trying to get prepared for all this, as it came out of the blue. So-some background. I know from past ...

Process for getting second opinion via mail/fedex?

  • By Dee76 · New reply 4:19 pm
  • Discussion in Newly diagnosed · 2 replies
  • Hi everyone, As I posted in an earlier email, I am a 43-year-old woman that has been newly diagnosed with BC. I'm having a second TURBT in a week to get muscle. The Dr. seems to think I am T1 or T2 (High ...

Where would you go and why?

  • By Jekelly2012 · New reply 4:02 pm
  • Discussion in Newly diagnosed · 7 replies
  • I am awaiting the results of path but we are all anticipating a cancer diagnosis. I will most likely need to travel for treatment. I am willing to travel anywhere. I am looking for an all-encompassing ...




  • By Tealeader · New reply 2:51 pm
  • Discussion in Caregivers corner · 1 reply
  • I’m looking for a reason not to be concerned about my boyfriend. He’s 54 years old and generally in good health. In October he developed an abscess on his colon (complications from his diverticulitis ...

What to expect and how to cope

  • By debdon · New reply 1:30 pm
  • Discussion in Newly diagnosed · 15 replies
  • Hello A very close family member is in his 70's and has just been told that he has bladder cancer and he will have the operation in 2 weeks to remove his bladder and he will have a bag. Can anyone give ...

bladder removal

  • By thsttymom · New reply 12:25 pm
  • Journal · 7 replies
  • My dad has bladder cancer and they are removing his bladder next week. Has anyone been thru this? Any experiences good or bad ...

Log in to see more

Don't have an Inspire account? Sign up now!

Forgot password?

Things you can do

Support BCAN

Help the Bladder Cancer Advocacy Network reach its goals and support people like yourself by making a donation today.

Donate to the Bladder Cancer Advocacy Network

Discussion topics

Walk for Bladder Cancer May 3rd

Walk for Bladder Cancer

Resources from BCAN

BCAN on Facebook

Like the Bladder Cancer Advocacy Network on Facebook

Community leaders

Inspire others

About this community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.