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5K to Raise Funds for Bladder Cancer-June 6th

andreaseltzer
  • By andreaseltzer · New reply 4:42 pm
  • Discussion in Raising awareness · 1 reply
  • As many of you may know, on Friday, January 15th, we found out that my husband Jamie had been diagnosed with bladder cancer. Thanks to the information and support given to us through the Bladder Cancer ...

Airport/Cruise Ship Security

Gnomic
  • By Gnomic · New reply 4:35 pm
  • Discussion in Life after radical cystectomy · 1 reply
  • Just wondering if anyone has had recent experiences with any of the new scanning devices in place at some airports etc. I have an urostomy pouch and that may be a problem when traveling these days. Perhaps ...

BCAN's latest e-newsletter now available at www.bcan.org

BCAN_Claire
  • By BCAN_Claire · New reply 4:29 pm
  • Journal · 2 replies
  • BCAN publishes an e-newsletter 3-4 times a year. It is available here: http://www.bcan.org/stay-informed/newsle tter/ Our latest issue includes a Stanford urologist talking about robotic cystectomy, info ...

After the Surgical Pathology Report?

doleslie
  • By doleslie · New reply 4:18 pm
  • Journal · 10 replies
  • It's been about one month since my TURBT. After a blood infection and 2 additional catheters due to urinary blockage, I had the catheter removed yesterday along with a voiding test. The voiding test was ...

Six months into RC

ncbake
  • By ncbake · New reply 4:07 pm
  • Journal · 6 replies
  • Greetings to all: While I have contributed little to this forum, I have gained a great deal of knowledge of bladder cancer from others who have been kind enough to share their experiences. With this in ...

North Carolina Picnic July 24, 2010

balihigh
  • By balihigh · New reply 4:05 pm
  • Discussion in Raising awareness · 14 replies
  • Last summer JerseyGuy and I organized a picnic at The Swag in Waynesville, NC. The purpose was to meet other bladder cancer warriors and to raise awareness of our cancer. 38 people from 10 states gathered ...

Support your group and raise awareness with badges

Walter
  • By Walter · New reply 4:04 pm
  • Journal · 53 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

questions to ask

marthageorge
  • By marthageorge · New reply 3:55 pm
  • Discussion in Living with non-invasive bladder cancer · 4 replies
  • I will be going again tomorrow to see the doctor who I visited last year for a second opinion. My urologist suggested that I revisit her to see if she can shed some light as to why I have failed two rounds ...

Not what I was hoping for.

LadyJane123
  • By LadyJane123 · New reply 3:53 pm
  • Journal · 23 replies
  • Had my cystoscopy this morning and was really expecting to be tumour free. I had had my first all clear in December so I thought I was on a roll. Not so. We saw 5 new tumours today, small, non-invasive ...

Alot of Pain

DebbieMP
  • By DebbieMP · New reply 3:45 pm
  • Discussion in Life after radical cystectomy · 7 replies
  • Hello All: You are such an inspiration and have posted several times about our experience and to hopefully encourage and support others. I am almost at the end of my rope. My husband had his RC and neo ...

MARCH CALENDAR......heres the line up!!!

roadrunner
  • By roadrunner · New reply 3:13 pm
  • Discussion in Caregivers corner · 16 replies
  • Another busy month.. All of you grab our hands as we walk with you through treatment.......please get back to us and let us know how things are going for you..... Prayers, positive thoughts, lots of love ...

Have a Blast in NC!

balihigh
  • By balihigh · Posted 2:53 pm
  • Discussion in Raising awareness · 0 replies
  • I just wrote a follow up to my NC picnic post that tells about planned activities for the July 24th weekend. I included some websites so that you can get a feel for the area. I am going to repeat some ...

My Father

Fenstermaker
  • By Fenstermaker · New reply 2:20 pm
  • Discussion in Newly diagnosed · 6 replies
  • My father was just recently diagnosed with bladder cancer. He had blood in his urine and went to the urologist who did surgery and found a 2 cm tumor in his bladder. The pathology report came back as ...

"Please Read & Help Someone"!!!

Giamarie
  • By Giamarie · New reply 2:02 pm
  • Journal · 21 replies
  • I havent been on here but 2xs now,Iam getting worse,after the Hiatal Hernia surgery,I thought that would at least help some of my problem,well Iam right back to square 1.. Iam in constant PAIN everyday,bedbound,never ...

Fun and good for you too !

DrgnTrappr
  • By DrgnTrappr · New reply 12:58 pm
  • Discussion in Life after radical cystectomy · 4 replies
  • I just wanted share how my wife got me outside and more active after surgery. I was first diagnosed with Transition Cell Carcinoma in October of 07 and had my kidney removed in November and my wife saw ...

Alternative Therapies / Treatment

Vanquish
  • By Vanquish · New reply 12:51 pm
  • Discussion in Taking charge: How to be a proactive patient · 18 replies
  • Looking for information from those who have experimented with alternative therapies, be it diet, supplements, laetrile etc and the results. Each person is different and there are so many contradictory ...

Bit of a setback

IanC
  • By IanC · Posted 12:18 pm
  • Journal · 0 replies
  • I've got a bit of a setback in my attempt to resolve my BCa. As some of you may know, I've been monitoring my BCa using NMP-22 ELISA. This has a cut-off for normal of less than 10 on its reading. Mine ...

Sparing the bladder

IanC
  • By IanC · New reply 12:10 pm
  • Discussion in Treatment choices · 8 replies
  • Combined Modality Therapy Spares Cystectomy in Majority of Patients with Locally Advanced Bladder Cancer Researchers from the Massachusetts General Hospital have reported that 75% of patients with locally ...

New Diagnosis...Chronic renal failure

Annasvenska
  • By Annasvenska · New reply 11:35 am
  • Journal · 31 replies
  • I have my six month follow up with my surgeon next week so I thought it would be a good idea to bring the CT scan with me. I had my husband pick up the Cd and report today from the small little hospital ...

sleepy bowel

lotuswithbuddha
  • By lotuswithbuddha · New reply 11:04 am
  • Discussion in Help desk · 3 replies
  • Hello my husband is 56 and he just had his right kidney removed. The problem is he has been told he has sleepy bowel. Anybody know what causes it and how to deal with ...

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Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

Donate to BCAN
Your generous donations help BCAN increase public awareness about bladder cancer, provide support to patients, and promote an increased allocation of resources to the treatment and cure of this disease.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.