Bladder Cancer Advocacy Network Support Community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

A survey: BCG reactions vs. effectiveness

By Herreshoff · New reply 2:39 pm
Discussion in Living with non-invasive bladder cancer · 38 replies
Since reactions to BCG vary wildly and it doesn't seem to work for everyone, I got to wondering if there's a correlation? Probably a too-simplistic view, but hey, we've got quite a group of observant ...

KNICKERS IN A BIT OF A TITHER

By Katuha · New reply 2:39 pm
Journal · 93 replies
photo funny-animation-7_zpsc20f2bac.gif Did I cause some trouble? Me? Sure didn’t mean to. I guess an explanation is in order after what TimboR might describe as “getting a lot of knickers in a bit of ...

Help me

By jill1225 · New reply 2:29 pm
Journal · 5 replies
Does anyone else experience a constant wetness and leaking from their pee hole? I get it everyday. And it's really annoying. I am constantly wet. Doesn't smell it's a clear liquid and its constant ...

Help lots of leaks

By jill1225 · New reply 1:20 pm
Discussion in Taking charge: How to be a proactive patient · 14 replies
Hello all it's been a while since I have been on this sight. I am having a lot of issues. I still have hernia above stoma which is causing me to leak a lot. I am going through supplies and the company ...

update from surgery

By sweet28546 · New reply 1:16 pm
Journal · 8 replies
I am still in the hospital and have been taking everyone's advice on walking walking walking! I get so stir crazy just laying in bed or sitting in the chair. Just waiting to hear from doctors on discharge ...

Please help me.....

By jill1225 · New reply 1:09 pm
Discussion in Life after radical cystectomy · 2 replies
I wouldn't normal do this but I need to wrench out to you all to see if anyone can help me,I have a hernia above stoma and can't get surgery till I get bariatric surgery to loose weight. Then I will recover ...

Hair coloring with BC

By agwesq · New reply 1:08 pm
Discussion in Taking charge: How to be a proactive patient · 33 replies
This past week I finally finished my sixth round of chemo and surgery is set of June 10th. Between now and then I have two major presentations to make to large groups. I had been coloring my hair for ...

What a week!

By karenlamb · New reply 1:05 pm
Journal · 6 replies
It has been a tough trying week for me this past week. I took off Monday for my TURBT. All plans included going back to work on Tuesday, and here I am on Friday, 2nd catheter in place. Hoping and praying ...

Work

By Spitfirenb · New reply 12:57 pm
Discussion in Life after radical cystectomy · 7 replies
After a RC with a Neo bladder, how long should I expect to be off of work? I work in a high stress finance job, I find I can barely get the simplistic things done around the house let alone deal with ...

Not the same without Kathua

By Debbie1212 · New reply 12:47 pm
Discussion in Life after radical cystectomy · 9 replies
My fellow Micropapillary Carcinoma buddy. This Vice President misses you dear President ...

Neo, mucus, and diet?

By Chelsiaann · New reply 11:17 am
Discussion in Life after radical cystectomy · 10 replies
I'm two weeks out from RC and having frequent mucus blockages with my indwelling catheter. I flush two to three times a day at 60ml, but have been advised against exasperating. I'm wondering if anyone ...

Neo bladder

By Stansgurl · New reply 11:12 am
Discussion in Life after radical cystectomy · 8 replies
I had my bladder removed 4 wks ago and I'm going through a deep depression. Is anybody else in my shoes? I'm a 50 yr old female trying to potty train myself. With no appetite comes no energy. This is ...

GOOD NEWS GOOD NEW - UPDATE ON MAYRE

By snettie · New reply 10:52 am
Journal · 22 replies
My Dear Friends I realise that maybe using my journal is not the best place to write this notice but I was afraid that maybe some of you would no longer be followings the TOMORROW IS THE DAY! posting ...

new here-should I Be on these boards?

By cosmikit · New reply 10:40 am
Discussion in Newly diagnosed · 12 replies
I had to have an emergency turbt on May 3rd. Had a 4cm x3cm x1cm removed from bladder. That tumor grew from my ureter tube down. They put 2 stents in, but al hope is gone for keepingbthe kidney. Doctor ...

STAPLES-FOR OSTOMY SUPPLIES ?!! Really !?!

By wilsel · New reply 10:07 am
Discussion in Life after radical cystectomy · 8 replies
Yes,....!!!! REALLY!!! For years I've heard of the 'EASY' Staples Button, but never thought of them as an 'ostomy product' supplier,...but it seems they are !!! Yep, had to pass this info along. In my ...

Dark brown ring around stoma; IP

By iamwoman53 · New reply 8:42 am
Discussion in Life after radical cystectomy · 16 replies
I have developed a brown ring around my stoma. I took a picture of it and emailed it to Dr. Steinberg. He says that it is scar tissue. Sound familiar, well this scar tissue is like right up against my ...

Just a few more..........questions on the road!

By snettie · New reply 6:03 am
Discussion in Life after radical cystectomy · 16 replies
Why is it that when you going about your daily business you cannot get these silly damn questions that come to mind out of your head ! So I know you guys would rather I post them, than have sleep-less ...

Diet before RC

By Maidan · New reply 2:05 am
Discussion in Living with non-invasive bladder cancer · 6 replies
Hi all, I have been a member of this group for a couple of months but have never posted a discussion. You are all so helpful and wise that I can't say just how helpful you have been to me. Dear Mayre ...

Cytology, FISH, DNA testing questions

By gk105 · New reply yesterday at 10:12 pm
Discussion in Taking charge: How to be a proactive patient · 6 replies
Can anyone tell me the difference in what they test for between cytology and FISH? When giving a urine sample for these tests, does a clean catch matter? Do these tests determine the amount of cancer ...

The journey is just beginning

By Wscai · New reply yesterday at 7:58 pm
Discussion in Newly diagnosed · 8 replies
My mother, age 83 has just been diagnosed with mucinous adenocarcinoma with signet ring cell cancer in her bladder. We were advised this is a very rare cancer to be found in the bladder without being ...

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About this community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.