The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Answers at last for BCG

  • By Baz6123 · New reply 6:03 am
  • Discussion in Life after radical cystectomy · 1 reply
  • I went to see my clinical nurse yesterday I have been suffering from head aches and joint pain and my arms and hands ache I asked just after my first course of BCG when the aches and pains began could ...

needing some information.

  • By melmac95 · New reply 6:01 am
  • Discussion in Living with non-invasive bladder cancer · 6 replies
  • My husband was dx in August of this year with low grade non invasive bladder cancer. He completed 6 weekly bcg treatments and is now doing 12 months of maintenance treatments (1 per month) He has went ...

Here's my far

  • By Jmwillman · New reply 5:22 am
  • Discussion in Newly diagnosed · 13 replies
  • My name is Joe, I am a 61 yr old male in decent condition for an old fart. In the last few years I've lost weight from about 250-260 down to 195 last week. I eat well don't drink, quit smoking 6 yrs ago ...

Bloating and UTI a few weeks after BCG

  • By lcov · Posted 3:51 am
  • Journal · 0 replies
  • Hi Everyone, My husband had his 6th BCG treatment two weeks ago. A few days ago he was diagnosed with a urinary tract infection. He was very bloated and also constipated. After an xray, he was told there ...

neoadjuvent chemo therapy

  • By vegsen · Posted 3:33 am
  • Discussion in Newly diagnosed · 0 replies
  • Hi everyone... sorry for my bad English, I'm Danish. I have been diagnosed with T2 bladder cancer. Before cystectomy my urologist suggests 3 rounds og chemo with Cisplatin and Gemcitabin. Will reduce ...

My beautiful Dad passed away

  • By livitup2 · New reply 1:10 am
  • Discussion in Sharing loss and connecting · 11 replies
  • My beautiful, strong father passed away on December 6, 2014. He finally lost his battle even though we saw glimpses of him making some recovery. He stopped bleeding and he was urinating clearly. I guess ...

Veterans BC Claims, Smoking and the such.

  • By neoman · New reply 12:35 am
  • Discussion in Taking charge: How to be a proactive patient · 29 replies
  • I just posted this response on another discussion. And I am copying it here to share with others my research and belief on where we look for answers on how we got BC. I see too often we look way in the ...

Its a date

  • By MuleLady · Posted yesterday at 11:47 pm
  • Journal · 0 replies
  • Today went to the University of Colorado for our first appointment with Dr. Shandra Wilson. Someone on here recommended her, and from the valet parking to front desk to her it was professional, compassionate ...

UTI Oh what fun it is to ride a one bottle Cipro sleigh-A.

  • By Gotit · New reply yesterday at 11:46 pm
  • Journal · 4 replies
  • Second UTI since my surgery back in March. The last one I only had back pain, no other symptoms. Last week I went in for normal blood work to refill my BP and cholesterol meds and I thought it strange ...

encrusted nephroscopy tube

  • By Marvbaila · New reply yesterday at 11:27 pm
  • Discussion in Life after radical cystectomy · 1 reply
  • After almost three months I had my nephroscopy tube changed. The interventional radiologist said the tube was heavily encrusted. He was able to remove it, but there was some bleeding and I've had discomfort ...

Happy Holidays To My BCAN Family

  • By Cher53 · New reply yesterday at 10:51 pm
  • Discussion in Sharing loss and connecting · 6 replies
  • To My BCAN Family, It has been a long while since I have been capable of coming here again after losing the love of my life, Doc49. I confess after his death...all the strength I had when taking care ...


  • By suziech · New reply yesterday at 9:02 pm
  • Journal · 1 reply
  • Hi everyone. I thought I would update you on what has been going on lately. I saw the oral surgeon yesterday and had the one infected tooth extracted with no problems. No pain either, Praise God!! I am ...

Stage 4 Urotheliol Cancer of Ureter

  • By marieharvey · New reply yesterday at 8:29 pm
  • Discussion in Newly diagnosed · 14 replies
  • I'm a 59 year old female.. Three months ago a tumor was discovered in right ureter. Two weeks ago had surgery to remove tumor. Yesterday, follow up with urologist and told I have Stage 4 urotheliol cancer ...

RC Helpful advice

  • By llmeador · New reply yesterday at 8:16 pm
  • Discussion in Help desk · 1 reply
  • I remember reading here that someone can email helpful hints on getting thru the surgery. We now have a date for my 82 year old dad. He did 3 cycles of chemo and now resting up for the surgery. Any advice ...

Weight Loss

  • By Pamelasdaddy · New reply yesterday at 8:05 pm
  • Discussion in Living with non-invasive bladder cancer · 7 replies
  • Hi, I had TURBT for Ta CIS and Papillary HG in Sept 2014 and just finished 5 of 6 BCG treatments. #6 on 12/19. Since Sept, I've lost about 23lbs (138-115) and feel like I'm still losing weight. I'm changed ...

Recommendation Doctor at Moffitt

  • By 1733pumpkin · New reply yesterday at 7:33 pm
  • Discussion in Living with non-invasive bladder cancer · 20 replies
  • I think I'm ready to take my head out of the sand, and make an appointment at Moffitt. If you have a recommendation for a doctor please let me know. Thank you friends, Anne ...

Cysto today

  • By Amhope2005 · New reply yesterday at 7:18 pm
  • Discussion in Living with non-invasive bladder cancer · 6 replies
  • Hello all went for a four month cystoscopy today and the doctor was in a big hurry to go to surgery moved my appt up and didn't cancel it thank god, I think, but he said he saw a white plaque in an area ...

Not BC but....

  • By French26 · New reply yesterday at 6:45 pm
  • Journal · 3 replies
  • How breast cancer cells break free to spread in body Summary: More than 90 percent of cancer-related deaths are caused by the spread of cancer cells from their primary tumor site to other areas of the ...

BCT Treatments suspended

  • By LHTC · New reply yesterday at 6:14 pm
  • Journal · 10 replies
  • I am new to the group and newly diagnosed with bladder cancer. Doctor found 2 small high grade non invasive tumors and removed them. He started me on the BCT treatment and I have had 2 treatments. However ...


  • By scott1959 · New reply yesterday at 5:59 pm
  • Discussion in Newly diagnosed · 8 replies
  • well finally completed my 6 weeks of bcg, wasnt as bad as i thought it would be, but took me 9 weeks to do it with a shortage of bcg, i can remember coming here when i found out i had bc, not sure who ...

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About this community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.