The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Medical Marijuana. Let's debate.

  • By Katuha · New reply 5:16 am
  • Journal · 599 replies · Photos
  • AN OPINION: My Sister, who is a RN and who suffers from constant continual severe pain as well as depression from many problems, will not use legal medical MJ for fear her primary physician will be angry ...

She fought a good fight

  • By roses4friends · New reply 1:20 am
  • Journal · 1 reply · Photos
  • Melinda passed away July 5th 2014. She was cancer free and happy to have lived 6 years. She had complications from radiation that kept making her sick. We found out 2 years ago the infections were very ...


  • By jimmy1936 · Posted 12:55 am
  • Journal · 0 replies
  • June 26, 2013 - Gross hematuria June 28 Sonic analysis negative June 29 CT scan negative July 3 Office cystoscopy - observed lesion in my bladder. July 25 TURBT 3cm tumor T1G3 Mitomycin C no muscle invasion ...

Info for Chemo for Upper Tract after Nephroureterectomy

  • By CindyJ1 · New reply 12:52 am
  • Discussion in Upper urinary tract tumors · 8 replies
  • Hi. I'm 52 year old woman and recently diagnosed with T3N0M0 Upper Tract Urothelial Cancer (found in renal pelvis). Was suspected to be Renal Cell Carcinoma before surgery. In O/R discovered UTUC that ...

Cancer in Ureter after RC

  • By Mike-Vary · New reply 12:47 am
  • Discussion in Living with non-invasive bladder cancer · 6 replies
  • I was wondering if anyone in here had the recurrence of cancer in their ureter after RC? what are the treatment options for ureter cancer after RC ...

Sleeping after ileal conduit (IC)

  • By dnathan · New reply 12:41 am
  • Discussion in Life after radical cystectomy · 38 replies
  • I'm considering having a radical cycstectomy with an ileal conduit, but am uncertain whether my tendency while asleep to alternate from lying on one side to lying on the other will cause the tubing to ...


  • By Nicole1111122222 · New reply 12:39 am
  • Discussion in Newly diagnosed · 8 replies
  • Hi I have a question for these that went thru BCG. Had my 1 installation today. And so far no pain or burning. Is it normal? Thank you ...


  • By CDG56 · Posted 12:12 am
  • Discussion in Taking charge: How to be a proactive patient · 0 replies
  • Hello All, Writing to ask some advice from others who have been there. I started off the beginning of the year with an UTI. All the classic symptoms, pain, burning, urgency. Went to Dr. Did urine test ...

An answer to prayer - Greenberg BC Cancer Institute

  • By gk105 · New reply yesterday at 11:49 pm
  • Discussion in Taking charge: How to be a proactive patient · 1 reply
  • Thanks to elvisbubba for sharing this with us. Johns Hopkins is launching the Johns Hopkins Greenberg Bladder Cancer Institute, the first of its kind in the world. Their mission is "to develop new clinical ...

Anyone from Spain or Portugal?

  • By balihigh · New reply yesterday at 9:56 pm
  • Discussion in Raising awareness · 11 replies · Photos
  • When I had my RC 6 years ago, I was afraid my traveling days had ended. However, 5 months after my surgery I was off to India and Nepal and I have traveled many places since. The bag does not limit me ...

Bladder cancer has new growth outside colon. Chemo now after RC / i

  • By kanser · New reply yesterday at 9:49 pm
  • Discussion in Living with metastatic bladder cancer · 4 replies
  • Hi. For the past two months i have been writing about constipation, diarrhea, ribbon thin stools, weight loss, extreme level 7-9 pain, after RC /IC. GI docs checked colon, ct scan with oral contrast and ...

Round 3: 10/30/2014

  • By seymourf · New reply yesterday at 9:47 pm
  • Journal · 9 replies
  • Hi All: Chemo went incident free, as it usually is. My blood work came back and the only issue, which is well known and expected, is low red count making me slightly anemic. Other than that the rest ...


  • By Sundust · New reply yesterday at 9:39 pm
  • Discussion in Newly diagnosed · 2 replies
  • Can anyone give me any information or experiences being diagnosed with papillary urotheil neoplasm of low malignant potential. I had a TURBT and removal of 2 small tumors that were diagnosed as PUNLMP ...


  • By Nanasuzanna · New reply yesterday at 9:29 pm
  • Discussion in Raising awareness · 2 replies
  • My mother used DES When she was pregnant with me. I am 65. I had no gyn abnormalities, except for several early miscarriages. I had one healthy live birth. Had kidney tcc, nephrectomy in Feb 2012. Dxed ...

What to expect a month after a radical cystectomy

  • By Enduring · New reply yesterday at 8:30 pm
  • Discussion in Taking charge: How to be a proactive patient · 14 replies
  • Hi, My husband, 66, had a radical cystectomy with neo bladder a month ago. The surgery took place in a state across the country, and we just got back to our home about ten days ago. He is still very tired ...

October 7, 2014 - Moffitt Consultation

  • By gk105 · New reply yesterday at 8:22 pm
  • Journal · 2 replies
  • 2014, October 7 - First time at Moffitt Center, NCI hospital in Florida. Met Dr. Sexton to review all of my medical records since my diagnosis Dec., 2013. I brought doctors reports, scans, lab, etc As ...

Treatment continues

  • By Partserator · New reply yesterday at 8:16 pm
  • Journal · 5 replies
  • Just got back from the third round of CIS/ gem. Because of the sciatica problem my husband took a percoset and after the port was put in promptly fell asleep. He woke up only when the beepers went off ...

Quality of biopsy, thus resultant staging, related to mortality risk

  • By elvisbubba · New reply yesterday at 7:51 pm
  • Discussion in Raising awareness · 6 replies
  • In my case, the biopsy samples all included cells all the way to the upper layer of the musclaris, beneath the tumors, as the tumors were removed. In other words, my uro, 'went deep'. Path report indicated ...


  • By zivagirl51 · New reply yesterday at 7:44 pm
  • Discussion in Treatment choices · 28 replies
  • Trying to decide whether to have BCG treatment at a local facility close to home or at NCI hospital that my university surgeon practices at which is a bit of a drive away. Curious to know what others ...

ams 800

  • By polytec · New reply yesterday at 7:19 pm
  • Discussion in Raising awareness · 8 replies
  • I have recently had the AMS 800 fitted and am delighted that I am now dry day and night. Using the device is really easy but my one concern is that it may "jam" on and so would like to be able to deactivate ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.