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bob went of oncologist today now what!~

joybob
  • By joybob · New reply 9:15 pm
  • Discussion in Living with invasive bladder cancer · 44 replies
  • Went to MD Anderson Orlando met with oncologist. He told Bob there is a 50% chance the cancer will come back in 18 months. He said the chemo may or may not help by 5-10%. He said if it were his father ...

looking for support

aecann
  • By aecann · Posted 9:04 pm
  • Discussion in Caregivers corner · 0 replies
  • I can only describe myself as frustrated. Bill's bladder was removed mid Oct along with prostate, lymph nodes and some amount of muscle. Is any one else who has been given some amount of charge over said ...

American Society of Clinical Oncology

15yrsurvivor
  • By 15yrsurvivor · Posted 9:00 pm
  • Journal · 0 replies
  • Today, I received my fall newsletter from the Bloch Cancer Hotline, where I am a telephone volunteer. The newsletter introduced me to a website I have never seen, and it is a great source of information ...

The Incidence of Smoking-related Bladder Cancer May Be Increasing

Ciboney1
  • By Ciboney1 · New reply 8:54 pm
  • Discussion in Taking charge: How to be a proactive patient · 2 replies
  • Article on Smoking and relationship to Bladder Cancer. Smokers may have interest in this article from "Caring for Cancer" Web Site.. http://www.caring4cancer.com/go/cancer/n ews?NewsItemId=44306 Arlene ...

November.....who's having tests or surgery?Let us know....

roadrunner
  • By roadrunner · New reply 8:34 pm
  • Discussion in Caregivers corner · 32 replies
  • Yikkkeees...its almost NOVEMBER!!!! All of you who are having any type of tests, or surgery, please let me know here,, in a few days, you will see the CALENDAR FOR NOVEMBER.... Along with prayers for ...

Starting BCG

Burb
  • By Burb · New reply 8:33 pm
  • Discussion in Living with non-invasive bladder cancer · 2 replies
  • I'm starting BCG on Monday. In August I had Mitomycin C and I found that pretty "stingy" to put it mildly. Could some folks who have gone through BCG tell me their experiances? How did you feel the day ...

Home and Good Report!

balihigh
  • By balihigh · New reply 8:31 pm
  • Journal · 7 replies
  • My husband and I arrived home this afternoon after our 6 day trip to NY for my 6 month checkup. All reports are good news! No cancer so I am now 14 months post op and doing fine. However, my thoughts ...

Starting a journey

Stuckdh
  • By Stuckdh · New reply 8:13 pm
  • Journal · 22 replies
  • It has been 4 weeks since initially diagnosed with bladder cancer. Thursday the results of the biopsy came back and I have high grade CIS cancer of the bladder. That God for kidney stones since that was ...

Last BCG

mycopper
  • By mycopper · New reply 8:01 pm
  • Journal · 1 reply
  • Hubby and I both happy end of 6 weeks BCG. Next step Urologist Dec. 23 and I know we are getting an early Chriistmas present. From God And Santa. Candy ...

Onwards and upwards

Trishka
  • By Trishka · New reply 7:54 pm
  • Journal · 8 replies
  • Today is Neo's 7th week birthday! We arrived home safely last week - the long journey went well and it was great staying for a day in London with friends to make the whole thing less stressful. We went ...

bob and the oncologist

arefarm
  • By arefarm · Posted 6:48 pm
  • Journal · 0 replies
  • Sorry, but we don't know, did Bob have surgery for his bladder cancer? We are on our way to Chemo after neo. Would appreciate knowing, as we will be advised soon as to what may be happening. Hope you ...

Thanks

Girly1
  • By Girly1 · New reply 6:37 pm
  • Discussion in Living with non-invasive bladder cancer · 2 replies
  • Thank you to everyone who has replied.As far as the shingles I already thought of that but I am the queen of the shingles I have had them 4 times. Twice in my thirties, and 2 times in my early forties ...

When Doctors call late in the day

Jimbo1968
  • By Jimbo1968 · New reply 6:30 pm
  • Discussion in Living with non-invasive bladder cancer · 23 replies
  • Well the doctor called late yesterday. He called to to tell me biopsy result came back clear - no cancer!!!!! Thanks to all those that sent positive waves and prayers. No doctor appts for like 5 weeks ...

NOVEMEBER CALENDAR......take a look....

roadrunner
  • By roadrunner · New reply 5:21 pm
  • Discussion in Caregivers corner · 33 replies
  • Thanksgiving is near...we have much to be grateful for....a whole cast of people here on the forum...willing to help each other. On to November......here is the calendar of who is doing what and when...tests ...

Where I'm at.

michaeldbentz
  • By michaeldbentz · New reply 3:13 pm
  • Discussion in Life after radical cystectomy · 41 replies
  • Hey guys, it's been awhile since I've posted so I thought I would update you: R/C was April 6, neobladder busted when fascia broke on April 22. I am still wearing a Depends for leakage and I'm incontinent ...

Gentleman,,have you had this problem?

roadrunner
  • By roadrunner · New reply 3:02 pm
  • Discussion in Caregivers corner · 19 replies
  • Well another dilemma, I was wondering if after your r/c you have a problem with your testsicles swelling? My husbnad has one double the size of the other,and........is tender to the touch....I belive ...

BCG

nsk
  • By nsk · New reply 2:35 pm
  • Journal · 23 replies
  • Tomorrow is my third bcg treatment.This will mark my hafway point in mybcg cycle. Ihope this one goes as easy as the first 2 ...

On a positive note

Stuckdh
  • By Stuckdh · New reply 12:52 pm
  • Journal · 13 replies
  • Time for bed. Second BCG treatment tomorrow. I am going to sleep visually imagining my immune system eating the bad cells just like the scubbing bubbles commercial. Positive thoughts attract positive ...

Back home again!!

jacksmimi
  • By jacksmimi · New reply 9:28 am
  • Journal · 6 replies
  • My surgery went fairly well. They were able to patch the hole in my IP without having to take more bowel. My biggest problem right now is the stents they put in from my kidneys down to the IP. they apparently ...

Not even close to on topic , but interesting

JeanneS
  • By JeanneS · New reply 9:23 am
  • Discussion in Living with non-invasive bladder cancer · 10 replies
  • I will be having a verrrrrrrrry busy week, so I thought I would pass on this tidbit I found . I didn't know this How Pumpkin Pies are made ...

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Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.