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Post Op Recovery after Radical Cystectomy

jgb63
  • By jgb63 · New reply 6:07 pm
  • Journal · 3 replies
  • To All, Was wondering if any of you had issues with serious constipation issues after your surgery? I been home now for 6 weeks and I'm still having issues with bowel movements. Thanks in advance for ...

Why are we here?

Brian
  • By Brian · New reply 4:35 pm
  • Journal · 96 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Another surgery for mom

meandmomsbladder
  • By meandmomsbladder · New reply 2:45 pm
  • Journal · 2 replies
  • Sorry, I haven't logged on in a while and kept everyone updated. Extra time has been very limited. My mom developed an intestinal blockage and has been in the hospital since Friday 8/29. They tried an ...

Do I need a cystectomy now?

balihigh
  • By balihigh · New reply 9:27 am
  • Discussion in Living with invasive bladder cancer · 24 replies
  • Hi Everyone, As some of you know, I recently returned from a visit to Sloan Kettering in NYC. I had a TURB in June and it came back as "suspicious for invasion" My doctor said that he didn't think so ...

CIS diagnosis, Stage, Grade and treatment

PRB
  • By PRB · New reply 9:25 am
  • Discussion in Newly diagnosed · 11 replies
  • I thought it might be useful to raise some diagnosis and treatment issues I'm trying to find answers for. Regarding diagnosis, as I posted in another discussion, I think testing for abnormal cells in ...

Urgency to Urinate after First TURB and 6 week BCG treatments

Leslie45
  • By Leslie45 · New reply September 2, 2008
  • Journal · 12 replies
  • I just completed my 6 week BCG treatments and now have a 2 week break before I undergo another cysto. My last 2 BCG treatments went very well as I had no side effects! I do now have a small window ( or ...

Privacy and control

Brian
  • By Brian · New reply September 1, 2008
  • Journal · 48 replies
  • At Inspire, we think about privacy all the time. Virtually every web site has a privacy policy; you can read ours here: http://www.inspire.com/about/privacy/. But simply following the letter of a privacy ...

Update on BCG + interferon treatments

balihigh
  • By balihigh · New reply August 31, 2008
  • Journal · 11 replies
  • I was diagnosed with bladder cancer in January and had my TURB at the end of that month. I had Stage 1 Grade 3 "superficial " cancer and my doctor recommended 12 BCG + interferon treatments which I began ...

BCG follow-up at home

Deatunes
  • By Deatunes · New reply August 31, 2008
  • Discussion in Treatment choices · 5 replies
  • After my 2nd TURBT I am scheduled to start 6 weeks of BCG. My uro's nurse told me that when I go home, I have to wash the toilet with bleach every time I use it for a day, due to BCG being the TB virus ...

Welcome!

Brian
  • By Brian · New reply August 31, 2008
  • Journal · 20 replies
  • I am pleased to present Inspire 2.0 -- the result of many months of fun and hard work. We have made numerous improvements to your community, the vast majority of which are ideas that came from you! We ...

Having trouble with depression

spartyman
  • By spartyman · New reply August 29, 2008
  • Discussion in Life after radical cystectomy · 26 replies
  • I first had bladder CA 15 yrs. ago and had surgery nd then BCG. All was well until Dec. pf 2007 and CA returned . I had to have a radical cystectomy in Jan. of 2007. I am 59. The urologist says that my ...

4 Surgeries?

Suzie
  • By Suzie · New reply August 27, 2008
  • Discussion in Living with invasive bladder cancer · 7 replies
  • In the past 18 months I have had 4 TURBT's, which means that my cancer continues to return after each surgery. Has anyone else experienced this many surgeries in the same time frame? I am concerned that ...

Urinary tract infections

catbug01
  • By catbug01 · New reply August 22, 2008
  • Discussion in Life after radical cystectomy · 12 replies
  • Hello I had my cysto May 1st and thought that things would be so much better now. but I am finding that I am still having a lot of urinary tract infections. Has anyone else had the same problems? I guess ...

bcan terminology

martymatwr
  • By martymatwr · New reply August 22, 2008
  • Discussion in Help desk · 5 replies
  • There are many terms and abbreviations of procedures that i don't know. how about a site that explains these? Martymatwr ...

After RC

family1
  • By family1 · New reply August 21, 2008
  • Discussion in Life after radical cystectomy · 8 replies
  • Mom comes home from the hospital tomorrow after having an RC, ileal conduit. She will be staying with us until she is all healed up and ready to be on her own again. I'm guessing about 5 weeks. Any words ...

wow

MikeTheJeweler
  • By MikeTheJeweler · New reply August 20, 2008
  • Journal · 2 replies
  • I just was diagnosed with a bladder cancer. Had some bleeding a couple weeks ago after a very vigerous sex night with my wife. Went to the doctor and was set up with an IVP to check for kidney stones ...

Foley Cather/Gift Bag

MMB
  • By MMB · New reply August 19, 2008
  • Journal · 5 replies
  • I would just like to share my experience with my foley cather. The first time I had one I was so upset to have to walk down the hospital corridor with it and then to have to go home with it. The hospital ...

partial cystectomy

angel86
  • By angel86 · New reply August 19, 2008
  • Discussion in Newly diagnosed · 12 replies
  • I was wondering if anyone had any information to offer. Im scheduled for a partial cystectomy in October and have to wait until then (maybe longer) to know if it's a benign tumour or not. As you can imagine ...

Irritable bowel syndrome

letsbeatit
  • By letsbeatit · New reply August 19, 2008
  • Discussion in Life after radical cystectomy · 2 replies
  • Has anyone had a RC who has had IBS before? If so, did you have any problems after your RC? Thanks ...

In Memory of John C. Quale

Bob7
  • By Bob7 · New reply August 14, 2008
  • Discussion in Caregivers corner · 8 replies
  • It is with heavy heart and great sadness that we announce the death of BCAN co-founder and board member, John Quale. John was diagnosed with bladder cancer in 2000, and since then had been a tireless ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.