The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group
All new and active discussions & journals
Agent Orange and Bladder Cancer
- By Cheetahrat · New reply yesterday at 11:41 pm
- Discussion in Metastatic bladder cancer · 3 replies
- Hello everyone, some of my contacts in the medical field have suggested there could be a link between Agent Orange and Bladder cancer. There are several conditions and cancers that the VA assumes as caused ...
Ben's MVAC Cycle 3 coming up!!!!
- By cat22 · New reply yesterday at 11:37 pm
- Journal · 19 replies
- We went to the Oncologist today. Ben's counts are good - NO DELAYS- next chemo infusion will be on Monday. Oncologist is very pleased with Ben's tolerance to this regimen. Thanks for all of your past ...
Treatments start tomorrow
- By Stuckdh · New reply yesterday at 11:05 pm
- Journal · 11 replies
- Well tomorrow I start my treatments. I am not sure how I feel overall. There is the feeling of finally moving forward and also that feeling of optimism. I know it will work and be a journey. I also know ...
New Caregiver - would like advice
- By Eudys-Annie · New reply yesterday at 10:09 pm
- Discussion in Caregivers corner · 18 replies
- My finance and I have already been through a month long ordeal leading up to his diagnosis of bladder cancer. I will never forget the look on the Dr. 's face me as he handed me a picture of Jeff's bladder ...
Can anyone explain what this term means
- By Girly1 · New reply yesterday at 9:58 pm
- Discussion in Living with non-invasive bladder cancer · 12 replies
- Yesterday I asked for a copy of my Pathology report from docs office. It says diagnosis is High grade in-situ papillary Urothelial Carcinoma (4 CM in aggregate).I know I had this 1 big tumor and 12 what ...
Lymph node biopsies--positive
- By Jemuna · New reply yesterday at 8:55 pm
- Discussion in Treatment choices · 26 replies
- Okay, so now what? I have only posted a couple of times here but do read and gain strength just about every day from all of you on this site. Dennis had bcg, chemo and then r.c. in March with 21 lymph ...
Today Is Very Special For Me
- By Moonerj · New reply yesterday at 6:01 pm
- Journal · 48 replies
- Hi Everyone. Well a few years ago after having a few recurrences, and struggling with BCG treatments, I never dreamed this day would come. I can officially say I am 2 YEARS Cancer free today. Thanks to ...
Removal of bladder and prostate
- By Dan-Accra · New reply yesterday at 5:41 pm
- Discussion in Life after radical cystectomy · 29 replies
- On 2 November, 2009 I go into Sibley Hospital for removal of my bladder and prostate. I know it is a major operation and will change my life in a big way but I am not too worried about it, leaving all ...
Cataract surgery!
- By Annasvenska · New reply yesterday at 2:28 pm
- Journal · 23 replies
- Today I had the dreaded cataract surgery. It was just something about having surgery in my eye that was very unfomorting to me. I even aksed the opthalmologist to not go into detail when describing the ...
I do not wish to share any personal info.
- By kanjan · New reply yesterday at 1:51 pm
- Journal · 11 replies
- I'm not 18. Let's say I'm some where between 18 and death. I am happy to share my experiences as a care-giver. Kanjan ...
Beth Israel Deconess Boston Hospital
- By markl1966 · New reply yesterday at 1:29 pm
- Discussion in Newly diagnosed · 1 reply
- Hello, Anyone here who is receiving care now or in the past at Beth Israel Deconess Medcal Center in Boston? Just looking for feedback on how you like the care and doctors there. Thanks ...
New caregiver looking for support
- By TrippinToni · New reply yesterday at 11:09 am
- Discussion in Caregivers corner · 15 replies
- I am not sure if I am in the right place. My mom has RCC and had a kidney removed with spots found on her liver and lung. She has had three MVAC treatments and I do not see anything saying MVAC is for ...
Maitake mushrooms
- By jmch · New reply yesterday at 10:56 am
- Discussion in Taking charge: How to be a proactive patient · 3 replies
- I get alerts from uro today and got one the other day that talked about work being done with maitake mushroom extract, which got me doing some more searching, this article was also interesting: http://findarticles.com/p/articles/mi_m0 ...
Looking For Best Doctor in SF Bay Area
- By Stoogemom · New reply yesterday at 10:54 am
- Discussion in Newly diagnosed · 17 replies
- My sister in law was just diagnosed with bladder cancer. Her urologist is recommending she have her whole bladder removed. We are looking for the best doctors in the San Francisco bay area. Thanks for ...
Status on Ind. Pouch Discussion
- By neoman · New reply yesterday at 8:51 am
- Discussion in Life after radical cystectomy · 3 replies
- I earlier posted a discussion on Indiana Pouch patients to chime in. I want to give you my status my situation. I had a AMS 800 urinary implant put in around August 2, 2009. It turns out the surgeon nicked ...
Now able to walk again
- By jc3126 · New reply yesterday at 7:46 am
- Discussion in Life after radical cystectomy · 13 replies
- Just a quick update....... I was having trouble with pelvic pain while trying to walk. This started about 2 weeks after RC. (See clip of original post below). I am happy to report that I am now able to ...
Christmas for Annebelle
- By joybob · New reply yesterday at 3:30 am
- Journal · 31 replies
- Dear bcan members, so many have asked how Jon and Annebelle are doing. They are doing ok. Jon has posted Annebelles picture up occassionally, and she is a doll. So many have asked what they can do for ...
BCG treatments
- By bob1468 · New reply November 11, 2009
- Discussion in Newly diagnosed · 11 replies
- Hello everyone, I am 63 years old and was recently diagnosed with Superficial CIS. The CIS is very small and the recommended treatment was BCG. I underwent 6 BCG treatments then at the 3 month check up ...
Support Group in Los Angeles
- By BCAN_Staff · New reply November 11, 2009
- Discussion in Taking charge: How to be a proactive patient · 1 reply
- For information - a bladder cancer support group meets at USC Norris Comprehensive Cancer Center in Los Angeles on the 4th Tuesday of each month from 6pm to 7.30PM . The group meets in the Lobby Conference ...
Mitomycin Side effects very bad
- By Markdb0 · New reply November 11, 2009
- Discussion in Treatment choices · 12 replies
- Anyone else have bad reaction to Mitomycin? Male, age 43, Mitomycin give 09-10-09 direct into bladder. Extreme burning Pain urination, Blood in the urine, Blood Clots, Sluthing, Pain from the bladder ...
- More »
- New
- Active
- Discussions
- Journals
Sign in to see more
Inspire others
Related links from BCAN
Group leaders
Discussion topics
You
About this group
The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.