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My Father

Fenstermaker
  • By Fenstermaker · New reply 10:13 pm
  • Journal · 11 replies
  • Tomorrow is the Big day! RC at the Cleveland Clinic. I talked to my dad today by phone and he has been at the clinic all day for pre op testing. He is supposed to be at the hospital at 5:00 am tomorrow ...

I have a question

wanttobefree
  • By wanttobefree · New reply 10:09 pm
  • Journal · 2 replies
  • does anyone know if you can have bladder cancer and Interstitial cystitis. I've heard you don't have much pain with bladder cancer unless its real bad but at first my doctor said i had ic until the bio ...

Kind of sad lately

arefarm
  • By arefarm · New reply 10:01 pm
  • Discussion in Caregivers corner · 13 replies
  • Have any of you noticed how sensitive you can be throughout all of this? Whether its a song, memory, children playing by the fountains. Damn the dumbest things make me cry or smile. A great big pumpkin ...

When to go to a "major cancer center"?

LouiseT
  • By LouiseT · New reply 9:31 pm
  • Discussion in Treatment choices · 32 replies
  • I have seen many posts on these pages with people referring to or advising others to go to a "major cancer center." This may have been discussed here before, but I'm new to this. When do you feel that ...

Wow...2 years

Shiz
  • By Shiz · New reply 9:08 pm
  • Journal · 21 replies
  • I just realized after reading mkates post that I have been cancer free for two years. I owe so much to everyone here. I love you guys ...

inflamation of uterus????

sonia40
  • By sonia40 · New reply 8:31 pm
  • Journal · 4 replies
  • Hello all the wonderful people on this site... for anyone who has been following my posts you would know that i have a few issues goin on...the latest being a 6cm cyst on my right ovary...i finally had ...

major cancer center

osiag
  • By osiag · New reply 8:02 pm
  • Discussion in Newly diagnosed · 6 replies
  • What is considered a major cancer center? Are these the hospitals that have been determined to be "comprehensive cancer centers" by NCI? Or is the term use generically? What would be the MCC for BC accross ...

9/3 Ciboney1 Happy Birthday

vgau
  • By vgau · New reply 7:43 pm
  • Discussion in Taking charge: How to be a proactive patient · 5 replies
  • Friday is the day to celebrate Arlene's birthday. Happy birthday and I wish we were there to help you blow out your candles and have a great celebration. Make sure everyone spoils you and be sure to spoil ...

A Big Deal --How fast a tumor can grow?

PLSHELP
  • By PLSHELP · New reply 7:11 pm
  • Discussion in Newly diagnosed · 6 replies
  • No good news to report. The purpose of this post is two fold. 1) share the information; and 2) seek advice. Background: diagnosed with BC in March 2010. First Tur failed to remove the tumor because excessive ...

HOME!!......Time to heal.

turbo2452
  • By turbo2452 · New reply 7:03 pm
  • Journal · 13 replies
  • Hello everyone, Was discharged from the hopsital last night at 6:00 PM, I am now home and will start the process of healing and getting to know "Chesty". VNA will be hear today 12:00 noon, I did note ...

Blood in Urine

dred01
  • By dred01 · New reply 6:41 pm
  • Journal · 17 replies
  • I 1m a 35 year old mother of 4 and I have had blood in my urine for 3 years. I have seen 2 urologist, a gynocologist, a neuphrologist and a hemotologist. Till this day no one knows how this has started ...

When to tell friends and family.....

Vertigo99
  • By Vertigo99 · New reply 6:33 pm
  • Discussion in Raising awareness · 17 replies
  • Hi there, as most of you know in may i had a BC (low grade) diagnosis, turbt, now 3 mth all clear. I chose not to tell my family (other than my wife) about my diagnosis as I didn't want to worry them ...

Join the birthday club

vgau
  • By vgau · New reply 5:29 pm
  • Discussion in Taking charge: How to be a proactive patient · 53 replies
  • Add your name to the list as we try to give everyone a birthday wish. When is your birthday? You don't even have to say how old you are!!! I only have a few so let's grow that list. Vi ...

DAVEYO'S INSPIRING WORDS

Shayne919
  • By Shayne919 · New reply 1:46 pm
  • Discussion in Raising awareness · 16 replies
  • Hi Everyone As you know I attended Daveyo's "Celebration of Life" on Saturday and posted to Dave's Mom Carol discussion. I wanted to share the beautiful words Daveyo left us. My beloved family, I have ...

SEPTEMBER CALENDAR!!!!!

roadrunner
  • By roadrunner · New reply 11:27 am
  • Discussion in Caregivers corner · 14 replies
  • Hello everyone,,,heres whos having procedures this month,,,,,,,again a very busy month, Prayers for everyone of you, join me and keep them in your thoughts and prayers, as we go through the month of September ...

Shopping . . . for essentials for after the RC . . . What will I need?

calypsois
  • By calypsois · New reply 10:39 am
  • Discussion in Life after radical cystectomy · 17 replies
  • The RC/Indiana is scheduled for 9/16, so I figure now's a good time for me to assemble all the supplies we'll need to have for after I get home. Now I know some stuff: tape, gauze, alcohol, and such ...

Has anyone heard from Whitsmom?

BlueTiger
  • By BlueTiger · New reply 9:55 am
  • Discussion in Caregivers corner · 2 replies
  • I haven't seen posts from Whitsmom recently and I'm getting concerned. The last few posts from her that I read, poor Whit was having a terrible time and feeling very bad. Has anyone heard anything since ...

No, your eyes aren't going bad . . .

calypsois
  • By calypsois · New reply 12:10 am
  • Discussion in Living with invasive bladder cancer · 9 replies
  • I changed my photo. It's the same photo with a filter to give it sort of a blur. I don't know; I've been feeling kind of nervous about my revealing photo. I guess I'm giving you more data on me, but taking ...

Post RC, Day 8, Path Report In

turbo2452
  • By turbo2452 · New reply yesterday at 11:14 pm
  • Journal · 31 replies
  • Hi everyone, Today is Post RC day 8 and my right stent was removed this a.m, doing well. If everything OK today left stent will be removed tomorrow a.m and I will be sent home. Doc just called with the ...

Do I need a second opinion now?

Vertigo99
  • By Vertigo99 · New reply yesterday at 8:12 pm
  • Discussion in Taking charge: How to be a proactive patient · 10 replies
  • I was diagnosed with g1pta NIBC and had a TURBT in may 2010. following my 3 month check (by same uro) I'm all clear. I did not seek a second opinion from surgeon or pathologist, but wonder if I should--given ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.