The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Second opinion

  • By zivagirl51 · Posted 10:54 am
  • Discussion in Treatment choices · 0 replies
  • Would like to get feedback on hospitals of choice for second opinion of pathology results (slides) and procedure steps to contact facilities, PLEASE ...

Feeling anxious

  • By Dunni83 · New reply 10:52 am
  • Discussion in Help desk · 12 replies
  • Hi guys I'm hoping someone could give me a little advice please? I was admitted to hospital last December for kidney pain. I had only ever experienced this pain 3 years prior during pregnancy and it was ...

Diagnosed with bladder tumor

  • By missjessie · New reply 10:50 am
  • Journal · 4 replies
  • A week ago I went to the euro gynecologist after a month of pelvic pain, flank pain, and random vaginal pains that feel like someone has stuck a knife in me. in this time the only thing that has helped ...

My initial US

  • By missjessie · Posted 10:47 am
  • Journal · 0 replies · Photos
  • So hard to believe that this little thing could be causing me so much...and constant pain ...


  • By zivagirl51 · New reply 10:45 am
  • Discussion in Living with non-invasive bladder cancer · 1 reply
  • Just had my third TURBT (one every four years) last week by Dr Steinberg at University of Chicago. In the past I received my pathology results by phone which were always low grade non invasive papillary ...

Round 2 day 1

  • By SidB · New reply 10:37 am
  • Journal · 1 reply
  • Yesterday was round 2 day 1 of a 4 round treatment plan of Cisplatin/Gemcitabine. All went well. My next round of just Gemcitabine if my blood levels are ok is next Monday. The oncologist suspects they ...

Outside bag or inside bag

  • By Kim8er · New reply 10:04 am
  • Discussion in Treatment choices · 24 replies
  • my dad was just diagnosed with invasive bladder cancer and it's aggressive he's trying to decide on if he should go for the bag on the outside or the internal reservoir bag. He is 71 years old. Just trying ...

Happy dancing

  • By millyh · New reply 10:00 am
  • Discussion in Life after radical cystectomy · 14 replies · Photos
  • One year after RC and ct scan shows I am still cancer free. Woo Hoo. Happy dance in hospital parking lot drew just a few stares:) thanks irishpappy for that can of cancer whoop ass. It is still working ...

The Truth About Cancer

  • By JJGirl · New reply 9:58 am
  • Discussion in Raising awareness · 9 replies
  • I've been watching this online documentary, sorry I should have posted earlier, they are on episode 3 now. You can sign up to watch for free, there are 11 episodes in total. ...

waiting for surgery

  • By Scilly · New reply 9:45 am
  • Discussion in Life after radical cystectomy · 6 replies
  • Hi every one. Diagnosed with bladder cancer about a year ago. Had BCG treatment plus repeated check cystoscopy but the tumour keep coming back. Mine is G3 high grade. My surgeon decided that I must have ...

BCG Shortage

  • By BCAN_Staff · New reply 9:22 am
  • Discussion in Treatment choices · 81 replies
  • We have been informed by Merck, the manufacturer of BCG, that there has been a production issue. While doses of BCG in the community are still available, our understanding is that there will be a backlog ...

Hard to Know what to Do

  • By Michele720 · New reply 9:18 am
  • Journal · 3 replies
  • So here I am with a significantly enlarged kidney that isn't draining, and high grade non invasive bladder cancer. I think my urologist is concerned that a tumor is blocking the end of the ureter. I'm ...

Survival after chemotherapy

  • By LPFL · New reply 9:12 am
  • Discussion in Newly diagnosed · 14 replies
  • I am 76 years old and was diagnosed with invasive high-grade ureteral carcinoma, Grade III/III Bladder Cancer after cystoscopy was performed on August 11, 2014. I have received 4 chemotherapy treatments ...

BC and Kidney Blockage

  • By Michele720 · New reply 8:40 am
  • Discussion in Newly diagnosed · 12 replies
  • Hi all, I was diagnosed with TA/1 HG bladder cancer following a "surprise" TURBT on 9/9. My urologist did a cystoscopy to figure out why my kidney was enlarged and found a cancerous tumor instead. So ...

BCG versus Carcinoma In situ


Surgery Oct 15

  • By fwstocks · New reply 8:15 am
  • Discussion in Help desk · 25 replies
  • I am scheduled for RC with neo on Oct 15th. Had my pre-op appointment yesterday. Getting pretty anxious about the whole situation. Especially since I now have a nice new purple dot on my stomach marking ...

4 days since RC

  • By fish4ever · New reply 6:45 am
  • Journal · 7 replies
  • Greg had a textbook RC, according to the surgeon straight after the op. Extensive nodes removal, bladder felt good with no lumps. It took 7 & a half hrs. They had 2 attempts to get epidural in as he fainted ...

T1G3, had mytomycin, now what?

  • By BMadgett · New reply 6:26 am
  • Discussion in Treatment choices · 12 replies
  • Hi, Briefly about me - 41 year old male, good health otherwise, 2 young boys (5 & 2) who I look after full time - a stay-at-home dad, that rare breed! (with a wonderful wife who works in medical research ...

Compassionate Use Matching Service/Social Network

  • By MNMKONA · New reply 5:57 am
  • Journal · 13 replies
  • "Why Innovative Drug Access Can't Wait" I have been moved lately (more so than usual) in reading many threads & posts from people expressing frustrations related to the long process of drug development ...

Bowel movement problems. Anyone have blockage that did not show on CT scan

  • By kanser · New reply 4:11 am
  • Discussion in Living with non-invasive bladder cancer · 4 replies
  • Four months after RC/IC, i feel constipated all day and evening. But, when I go to the bathroom, after feeling I will have major dump immediately coming, there is only a tiny lima bean shaped bm. It is ...

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About this community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.