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Bladder Poll
- By GrannaDana · New reply 7:57 pm
- Discussion in Newly diagnosed · 12 replies
- Let's take a poll....After you know what you know now If you had it to do over again would you fight to keep your bladder ...
Right Lung Lobectomy in the AM
- By martyofmass · New reply 7:50 pm
- Journal · 13 replies
- Hello Friends, Hunkered down here at the Candlewood Suites in Burlington, MA. Watching the Superbowl with my sister Jac who's come up from FL to be with me. My surgery is at 7:30 AM here at Lahey. Nervous ...
For the Newly Diagnosed
- By Moonerj · New reply 7:09 pm
- Discussion in Newly diagnosed · 17 replies
- Dear Newcomers to our site. I know there are several of you that visit this site, but have yet to start a discussion. First of all, you are very fortunate to have found this site in the early stages of ...
Need Advice
- By GrannaDana · New reply 7:00 pm
- Discussion in Newly diagnosed · 12 replies
- Okay my husband insists I ask everyone for some advice. I had Transitonal Cell in my Right Kidney (rare) and had it removed in September. I also have a "node" on my left kidney that they are watching ...
FEBRUARY CALENDAR...VERY BUSY!!!!!
- By roadrunner · New reply 5:47 pm
- Discussion in Caregivers corner · 20 replies
- February may be short but it is very busy..... Everyone on the list grab on,we will hold your hand through your journey....if I have missed you add yourself by replying and I will add you to the list ...
Steve's RC/neobladder Scheduled for February 23
- By pinewoodswriter · New reply 5:38 pm
- Journal · 6 replies
- Hi everyone, Just wanted to let you all know that Steve will be having a cystectomy at M D Anderson in Orlando (Dr. Charles J. Rosser) on February 23rd. This came about because the cystoscopy done by ...
MY PARTNER HAS WALKED AWAY FROM ME....
- By sonia40 · New reply 5:14 pm
- Journal · 92 replies
- Hello all just wanting to vent off a little....my partner of 6 yrs has finally packed his bags and walked away...leaving me with my 3 children and our 2 children together...his excuse??? well he couldnt ...
Pay it backwards
- By vgau · New reply 5:08 pm
- Discussion in Taking charge: How to be a proactive patient · 7 replies
- All the discussions on caregivers and support people in our lives reminded me of a thought I had not too long ago. There are many people in our lives, including those here, that have help us make it through ...
Clothing for RC bag
- By silgal · New reply 3:19 pm
- Discussion in Life after radical cystectomy · 40 replies
- I know this has been covered, but I forgot what/where I read. What did you bring to the hospital to wear (or did you just wear the hospital drafty thing) for walks after RC. I will be having the bag ...
Change in Plan
- By MisterBill · New reply 2:48 pm
- Journal · 8 replies
- I spent two days at Moffit Cancer Center last week. I was sceduled for RC on February 18. Docs have changed plan to 3 cycles of chemo first, then surgery. Although they found no positive indication of ...
BCG
- By operadoll · New reply 2:32 pm
- Discussion in Metastatic bladder cancer · 13 replies
- I am convinced that BCG hastened the growth of my squamos cancer. That treatment should be restudied. I eventually had a radical cystectomy ...
BCG And Fatigue/Tiredness
- By spbatchan · New reply 12:49 pm
- Discussion in Newly diagnosed · 13 replies
- Hello, I am new here. Diagnosed in August - Stage 3 superficial. Have had two TURBT's and just finished my six week course of BCG December 7. During the BCG I became increasingly fatigued toward the end ...
Valstar "graduates"
- By midwestone · New reply 12:46 pm
- Discussion in Living with non-invasive bladder cancer · 1 reply
- As members can tell from my journal entries, I was BCG refractory after two BCG series, and then went to Valstar (valrucibin). I have been wondering how many of us there are who are or have been treated ...
Recurring Cancer has been confirmed for Diana
- By Taurus1461 · New reply 12:28 pm
- Discussion in Newly diagnosed · 17 replies
- Hi Everyone, My biopsy has come back and we received the news that my Bladder Cancer had returned as suspected. Today is day 1 of Chemo (gemcitabine) for the next 3 months (3 weeks on & 1 week off). The ...
Been reading for a few weeks... time to add my 2 cents
- By karenab · New reply 11:03 am
- Discussion in Newly diagnosed · 18 replies
- Went to prim doc for referral to rheumatologist, he then sent me to urologist due to results of blood test and urinalysis results. Have had CT of abdomen and IVP of kidneys. Was going for a scope but ...
CAREGIVERS!!! WHO......AND WHERE ARE YOU?
- By roadrunner · New reply 10:58 am
- Discussion in Caregivers corner · 36 replies
- In another discussion,Sandy 1 asks,,,,,, DO YOU KNOW OF A CAREGIVER SUPPORT GROUP? Well,here it is,,,,,I am glad to ask all of you who are on here,and take care of your loved one to report in!!! CAREGIVERS ...
neobladder/cystectomy
- By jata · New reply 10:57 am
- Journal · 10 replies
- my 75 year father had a cystectomy neobladder surgery on Jan. 21st. He is still in the hospital in ICU. He has diarhea. He also has VRE infection. I am thinking that maybe this was not the right choice ...
Urologist Recommendation
- By bigdflorida · Posted 9:50 am
- Discussion in Life after radical cystectomy · 0 replies
- I live in Hendersonville, NC. Had RC in 2005 while living in Florida. We now live in NC. Two of the closest larger towns to us are Asheville, NC and Greenville, SC. I wish to find a Urologist in this ...
TRUBT 0n 2/2/10
- By karenab · New reply yesterday at 10:22 pm
- Journal · 3 replies
- Had my TURBT on 2/2/10. Went to Uro today to have cath removed. Final path report not in yet, but Dr said CIS throughout most of the bladder. Nothing invasive seen. Recommended starting BCG on 2/23. See ...
:) hi everyone
- By jumbleigh · New reply yesterday at 10:13 pm
- Journal · 7 replies
- We are still struggling along. He has difficulty emptying the bladder and has constipation. He does stool softners. Suggestions welcome. Last time we had a problem, our doctor was busy and we saw the ...
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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.