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Too personal?
- By Lyyka · New reply 9:37 am
- Discussion in Caregivers corner · 10 replies
- If I ever get 'too personal' in these discussions please let me know. I've found myself deleting parts of my responses at times for just this fear. Living with bladder cancer, or any cancer, affects every ...
Going forward
- By wheatmaw · New reply 8:38 am
- Journal · 11 replies
- Well, this is my first of many entries to come, and I welcome any input that you wish to give. It has been about 3 weeks since the dreaded day in Dr. T's office after my TURB. My cancer is back and very ...
Thanksgiving Day 2009
- By gibsonflo · New reply 8:27 am
- Journal · 1 reply
- As I sit here at the computer I am grateful for all of the survivors out there no matter what you are fighting.We are somehow all connected by family,friends, co-workers, or others we may know who are ...
stoma appliance success
- By aecann · New reply 8:26 am
- Discussion in Caregivers corner · 4 replies
- I have to say, you all know how frustrated I have been trying to figure out all the technical stuff. Appliance gear, healing or not healing, split incision possibility of infection. Bill and I are pleased ...
Finally...
- By loonym · New reply 7:41 am
- Journal · 34 replies
- I actually had a day, the first in around 3 weeks, that the pain was something less than unbearable. The doctor bumped up my kadian again last week. My dose of that is 300mg twice a day now and she told ...
Life is a Journey
- By nancynursez637 · New reply yesterday at 11:22 pm
- Journal · 10 replies
- So often we are moving along in life as if a rosy life is a given. When things happen, we sometimes wonder what happened, why me, or when will life get back to normal? Sometimes life is rough right from ...
Question for the men
- By Donna49 · New reply yesterday at 8:58 pm
- Discussion in Taking charge: How to be a proactive patient · 4 replies
- I have a question to the men....my husband is having urgency as well as testicular pain particularly in the wee hours of the morning. He says that it wakes him up and when he goes to the bathroom, the ...
HELP is NEEDED . . .
- By BJsHere · New reply yesterday at 7:38 pm
- Discussion in Living with invasive bladder cancer · 11 replies
- Diana, aka Taurus1461 here, is an amazing individual. I was blessed to meet her in NC in July. As would be expected, we became friends. Our husbands too! Diana has asked that I place a discussion here ...
Back from Bangalore, Have Bag will Travel
- By pjfcafe · New reply yesterday at 7:25 pm
- Journal · 8 replies
- In the 18 months since RC my wife and I have done pleasant long distance traveling. Five months from RC we did a great Alaskan Cruise. I did have some pain on the trip and ended up back in the OR for ...
This is a TEST!!!
- By roadrunner · New reply yesterday at 7:10 pm
- Discussion in Caregivers corner · 12 replies
- Many times I think about the ones here on the forum who do not post or reply. Maybe too shy,can't find the words,,,,, So being I think about you to I wonder, heres an open door for your turn to ask,and ...
Thanks to the group
- By Girly1 · New reply yesterday at 7:07 pm
- Discussion in Living with non-invasive bladder cancer · 9 replies
- Hello everyone You may know my wife (girly1 aka Joan ). I just wanted to thank everyone for their support. This is a wonderful site for information and support. I was ignorant to the word cancer before ...
Here we go again!
- By S1wdrum · New reply yesterday at 4:15 pm
- Journal · 15 replies
- After 14 years of biopsy after biopsy, BCG treatment after BCG....I have finally realized that "Someday" has arrived and I have to have a radical cystectomy. I have been very blessed to have kept my bladder ...
Back home again!!
- By jacksmimi · New reply yesterday at 10:32 am
- Journal · 11 replies
- My surgery went fairly well. They were able to patch the hole in my IP without having to take more bowel. My biggest problem right now is the stents they put in from my kidneys down to the IP. they apparently ...
THANKSGIVING REFLECTION . . .
- By BJsHere · New reply yesterday at 10:07 am
- Discussion in Life after radical cystectomy · 3 replies
- As a Bladder Cancer Survivor of one year December 10th, I reflect differently this year on what Thanksgiving means to me. I would like to share it with you. T ~ to be Thoughtful to those around me H ...
New Member First Post. Post TURBT Comments
- By Activeskies · New reply yesterday at 9:49 am
- Discussion in Living with non-invasive bladder cancer · 18 replies
- Good reading here. Not sure how much I should read. Makes me a little nervous. Had my TURBT on Friday the 13th. Pathology today is High Grade (2-3), Non Invasive. Some of that was good news. Everything ...
Just an update...
- By cat22 · New reply yesterday at 9:37 am
- Journal · 28 replies
- HI All, I haven't been here too much lately. Ben has been having a tough time since his 3rd MVAC infusion. I also lost my brother today to brain cancer. I want to thank you all for the prayers you have ...
Update on Cysto today
- By Girly1 · New reply yesterday at 8:24 am
- Discussion in Living with non-invasive bladder cancer · 18 replies
- Well I had my cysto today and it wasn't good.There were 8 new tumors. I am scheduled this Friday to have them removed. The doctor said after the biospsy he will have to detemine what new chemo to do because ...
Injection shot-
- By birdman · New reply yesterday at 8:05 am
- Discussion in Life after radical cystectomy · 9 replies
- I am curious about others that inject theirselves after RC. What percentage of erection do you have now vs before surgery. I feel like I am at 85% now with the shot vs 100% before surgery.Can I get it ...
Paying it forward....at a scheduled appt....
- By roadrunner · New reply November 25, 2009
- Journal · 6 replies
- Well it happened again....... Two weeks ago,the Cleveland Clinic gave us the name of someone to call who will be having a r/c... Very nice guy named Jim, he and his wife been married 2 years,was diagnosed ...
Man to man post deleted?
- By EricAndre · New reply November 25, 2009
- Discussion in Life after radical cystectomy · 31 replies
- A nice man ask info about intimacy after RC. I wrote a reply but where is it? I spent an hour on that.... With love EricAndre ...
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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.