The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Help.....knowledge of bladder cancer symptoms

StLMama4
  • By StLMama4 · New reply 3:15 am
  • Discussion in Help desk · 21 replies
  • I have been feeling really off for the past 2 months. Symptoms include feet and ankles swelling, pain in back, blood in urine, very fatigued, coughing phlegm, headaches, urinating a lot.....even more ...

Jane618 reporting in

Jane618
  • By Jane618 · New reply 2:50 am
  • Discussion in Living with invasive bladder cancer · 1 reply
  • After several weeks of ups and downs on clinical trial BGJ 398 and losing fifteen pounds and suffering through our non spring in New England and after several days of wanting to call it quits I am happy ...

ENFit Connections With Only One Hand

Duvie
  • By Duvie · New reply 2:37 am
  • Journal · 31 replies
  • Reading some of the comments, I've realized that there is going to be a huge problem connecting the new ENFit connections for patients who only have the use of one hand. How are they going to screw the ...

confused

colken
  • By colken · New reply 2:34 am
  • Discussion in Raising awareness · 9 replies
  • I'm wondering if anybody out there has had the experience I have with contrast dye. I am no longer able to receive IV contrast dye for CT scan or MRI, due to allergic reaction. I had steroids on board ...

What do you wish your doctor knew?

Brian
  • By Brian · New reply 2:07 am
  • Journal · 543 replies · Photos
  • Dear members, Some of you have seen the story of the schoolteacher who asked students to anonymously finish the sentence, “I wish my teacher knew…” in an effort to get the children to share something ...

Spouse Passed a week ago

mhmiller
  • By mhmiller · New reply yesterday at 11:25 pm
  • Discussion in Sharing loss and connecting · 8 replies
  • My husband passed away on April 20th. he had a long fight from first being diagnosed with bladder/prostate ca in 2007. He was cancer free till 2014. although he didn't have cancer in 2010 his ureters ...

Urine Feels Hot

CatieC64
  • By CatieC64 · New reply yesterday at 10:50 pm
  • Discussion in Living with non-invasive bladder cancer · 7 replies
  • My husband just told me that his urine feels hotter than usual. I called his doctor and I am waiting for a call back. Has anyone experienced this. He is now 15 months clear, his next appt is 5/13/15 ...

Help

1733pumpkin
  • By 1733pumpkin · New reply yesterday at 10:45 pm
  • Discussion in Help desk · 12 replies
  • Although my mom is not dying of Bladder Cancer, but I'm on this site for myself daily. Seems like I can only ask these questions to my friends on this site. So this past week because of moms pain, compounded ...

Hear Ye! Hear Ye!.......PROCLAMATION

MargePA
  • By MargePA · New reply yesterday at 10:33 pm
  • Discussion in Raising awareness · 6 replies · Photos
  • The City of Pittsburgh has issued a "PROCLAMATION" declaring May 2015 as Bladder Cancer Awareness Month. William Peduto, Mayor of Pittsburgh was kind enough to listen to the pleas of our Inspire friend ...

Mail order urostomy suppliers ?

samslu
  • By samslu · New reply yesterday at 10:22 pm
  • Journal · 16 replies
  • Ok I called Medicare and got no where. Can anyone tell me who delivers and excepts Medicare? Thank you! LuAnn ...

BCG --side effects, solutions

Salorama
  • By Salorama · New reply yesterday at 10:19 pm
  • Discussion in Newly diagnosed · 13 replies
  • I have recently completed my first six week treatment plan of BCG. Two weeks later I'm experiencing the side effects I had immediately after each treatment--urgency, pain, burning. Are there certain foods ...

Watch "Cancer: The Emperor of All Maladies"

Mickeral
  • By Mickeral · New reply yesterday at 9:48 pm
  • Journal · 251 replies · Photos
  • Dear Friends: I would like to invite each of you in the United States to watch the following series which airs on PBS March 30 – April 1. CANCER: THE EMPEROR OF ALL MALADIES based on the Pulitzer Prize-winning ...

Reactive arthritis From BCG

Baz6123
  • By Baz6123 · New reply yesterday at 9:43 pm
  • Discussion in Life after radical cystectomy · 3 replies
  • After all the joint pains in my hands and arms and my shoulders and other joints that have caused me so much pain I finally got to see a rheumatology specialist at the UCLH hospital in London Who agreed ...

Disbelief

stand-strong
  • By stand-strong · New reply yesterday at 9:09 pm
  • Discussion in Living with invasive bladder cancer · 72 replies
  • Im back to let u all know I had a ct scan today and all good. No cancer!!! Now the unbelievable part ! The mayo clinic is going to publish a case study about me beating my cancer on my own !!! No chemo ...

abdominal pain

fifthbrown21
  • By fifthbrown21 · New reply yesterday at 8:40 pm
  • Discussion in Help desk · 6 replies
  • I am 4 months into my recovery of a full hysterectomy and bladder removal. I had T-2 bladder cancer but thankfully all my other organs came back T-0 ( I see a lot of initials used in these blogs and I ...

BCG shortage

dave4400
  • By dave4400 · New reply yesterday at 8:24 pm
  • Discussion in Living with non-invasive bladder cancer · 7 replies
  • went for my BCG treatment, this past Friday, said they there was a nationwide shortage, any one else here this, and no one called to let us know, my wife missed a day of work, i should charge them for ...

Hurrah for me, hope for you

Humpy
  • By Humpy · New reply yesterday at 7:48 pm
  • Discussion in Life after radical cystectomy · 16 replies · Photos
  • Six years now, and no looking back. It's always a special day to see the man who saved your life. I heart my surgeon. Dr. Hafez. aka DFEZ ...

Bladder Cancer

AnswersNeeded
  • By AnswersNeeded · New reply yesterday at 7:29 pm
  • Discussion in Newly diagnosed · 11 replies
  • After TURBIT, and pre BCG, has anyone experienced or know of eating and drinking restrictions, limitations, and/or advantages in eating and drinking specific foods and/or drinks ...

living with Neo Blader 19 years

meangene
  • By meangene · New reply yesterday at 7:20 pm
  • Journal · 16 replies
  • I was diagnosed with bladder cancer in 1996 and at that time I was told that surgery was the best option because this type of cancer would not be stopped by chemo, it would just make it mad. Because of ...

Concealed Carry and RC/IC

OldGringo
  • By OldGringo · New reply yesterday at 6:10 pm
  • Discussion in Life after radical cystectomy · 26 replies
  • Now that I'm nine months past the procedure and four months post chemo my old life is beginning to return. I've noted on the forum that there are very few trolls and everyone is supportive and cooperative ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.