The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

please use caution on here!

  • By vetgirl · New reply 1:15 am
  • Discussion in Life after radical cystectomy · 32 replies
  • recently on this BCAN site, somebody posted a very inflammatory comment . . . to sum it up, the poster said that even after RC, recurrence of cancer is very likely . . . this was posted in a thread about ...

Monday is surgery day!!

  • By SariahS · New reply 12:57 am
  • Journal · 9 replies
  • Well after a long road Monday is the day I am having my bladder removed due to Interstitial Cystitis. I am nervous!! I am nervous about the CVC IV, the GN tube, the pain of everything including my urethra ...

Any noticeable symptoms from a clear turbt to a turbt with recurrence?

  • By Bladderme · New reply 12:38 am
  • Discussion in Living with invasive bladder cancer · 3 replies
  • First of all, thank you all for your comments providing support & informative medical links in our going BC challenges. My question is, has anyone experienced any noticeable symptoms from a clear turbt ...

Should Tubes Be Tucked In Pants?

  • By Duvie · New reply yesterday at 11:56 pm
  • Journal · 31 replies · Photos
  • It might feel natural and seem like a great idea to tuck your long tube in your pants, bra, bikini, or wherever. However, as we soon found out, it wasn't so great. No medical professional of any kind ...

why do i continually say ""go to NCI hospital""

  • By joyus · New reply yesterday at 11:46 pm
  • Discussion in Taking charge: How to be a proactive patient · 4 replies
  • There are many on this board who are alive because because they had their slides read again by an NCI hospital. Most NCI hospitals have a specialty in Bladder cancer. It is not the same as prostate and ...


  • By blackbarn2 · New reply yesterday at 11:28 pm
  • Discussion in Living with non-invasive bladder cancer · 8 replies · Photos
  • Wouldn't you know it....I've waited for a call from U of M for two weeks. I haven't left the house because I kept thinking the phone would ring but it didn't. Sooooo, it's Saturday (who's Dr. works on ...

bladder cancer t2

  • By jaimemylove · Posted yesterday at 11:04 pm
  • Journal · 0 replies

Breaking news - Swallowing Expansion Device

  • By Duvie · New reply yesterday at 10:40 pm
  • Journal · 13 replies · Photos
  • National Foundation of Swallowing Disorders has announced that the manual swallowing device Dr Peter Belafsky invented has been approved for 1st round of clinical trials. For the full story: ...

17 days past RC

  • By ijt1947 · New reply yesterday at 10:32 pm
  • Journal · 12 replies
  • My husband had his bladder removed on Feb.4th, yesterday was his 1st post op appt. he got his catheter and stents removed. He's doing great. The hardest thing is getting up every two hours to pee. We ...

Basking in All Clear

  • By FridaBee · New reply yesterday at 10:22 pm
  • Journal · 4 replies
  • Four months post-IP-surgery, scan results are All Clear. So I am basking in the afterglow of that and the care I received yesterday. The blood lab put me at the head of the line so I could get to my scan ...

Low WBC Count and Infection

  • By marieharvey · New reply yesterday at 10:03 pm
  • Discussion in Taking charge: How to be a proactive patient · 6 replies
  • My WBC count is low - low enough that I will probably not get my chemo treatment next week. My 17-year-old stepdaughter is visiting this weekend, and she is sick. Says she has bronchitis and is taking ...

Sex life after RC

  • By ChrisOH1 · New reply yesterday at 9:23 pm
  • Journal · 3 replies
  • I am one month away from my 18 month anniversary of my RC/Neo surgery. Life has been good as far as my new normal goes. There are times that I even forget I have a Neo bladder. I have been blessed with ...

BCG Treatments

  • By nancyjane77 · New reply yesterday at 9:17 pm
  • Discussion in Newly diagnosed · 12 replies
  • Hi, I wrote in my previous post that my dad was just diagnosed with bladder cancer at age 87. He had a TURBT last month. He has T1 high grade and we believe the cancer has not invaded the muscle. He is ...

Bladder cancer

  • By Meesook · New reply yesterday at 9:05 pm
  • Discussion in Newly diagnosed · 8 replies
  • I was recently diagnosed with TA non invasive but my tumor was over 3 cm, so I'm starting treatment in 4 days with mitomycin therapy instilled in my bladder for 2 hours, 6 consecutive weeks. My question ...

Suicide Among Genitourinary Cancer Patients

  • By 1733pumpkin · New reply yesterday at 8:57 pm
  • Discussion in Raising awareness · 25 replies
  • Renal and Urology News (HealthDay News) -- Suicide is a public health concern for patients with genitourinary cancer, especially bladder cancer, according to a study published online Feb. 17 in Cancer ...


  • By seashacktom · New reply yesterday at 8:55 pm
  • Discussion in Treatment choices · 6 replies
  • Today I start CG0070 treatment. I would love to hear from you if you have any experience with CG0070. Hopefully the success here will lead to new hope for all of us, Thank you, Tom ...

Anxious, Scared and Thankful

  • By kjptlp · New reply yesterday at 8:43 pm
  • Discussion in Caregivers corner · 13 replies
  • Wow, what a past 7 months! We had ourplan in progress to sell our home and move to Florida..2 days before listing and leaving to buy...Dx: Bladder Cancer! No real symptoms just microscopic blood in urine ...

BCG Catheter

  • By bwoodbiker · New reply yesterday at 8:25 pm
  • Discussion in Treatment choices · 16 replies
  • This is my second post and I'm hoping there are BCG patients who can clear up an issue I have with how BCG is administered. When I first started BCG treatments, the catheter was in place only during the ...

Path Report In, a few more questions

  • By trimadsco · New reply yesterday at 7:20 pm
  • Discussion in Newly diagnosed · 6 replies
  • Had my Dr. Appt. this afternoon with my urologist to go over Pathology Report from my TURBT performed on 2/13/15. I had already spoken with the Dr. over the phone, and he had told me it was low grade ...

dry mouth

  • By mcopts · New reply yesterday at 7:08 pm
  • Discussion in Life after radical cystectomy · 9 replies
  • I am three years post RC and doing well. But I have terrible dry mouth, especially at night, and find I am always thirsty. I'm, not on any medication or under any treatment. I thought it would go away ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.