The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Mostly success

  • By pacoald · New reply 2:16 pm
  • Journal · 4 replies
  • Just an update. My wife was diagnosed last May 2013 with a large tumor that was found by accident. She went through two initial TURBTs at NYU Langone that showed 3 tumors that were classified as high ...

Got a 2nd today

  • By Absr · New reply 2:14 pm
  • Journal · 5 replies
  • Went to Moffitt here in Tampa. It was my first time there. Very nice facility but unfortunately, very busy. In the good news camp, there were no new surprises. They confirmed that my treatment plan is ...

He;lo from Austin!

  • By CaptainJan · New reply 2:03 pm
  • Journal · 13 replies
  • We are here, having arrived just over 2 weeks ago. Houses in our subdivision were selling really fast -- like 1 to 5 days, so we expected ours to sell fast too, and we planned to move as soon as there ...

Poor Me!!

  • By blackbarn2 · New reply 1:48 pm
  • Discussion in Living with non-invasive bladder cancer · 22 replies · Photos
  • I sure don';t know what is going on lately...I'm so sad. Feels like the world is closing in and my life has no meaning anymore. I'm in a relationship that is so one sided, it's going nowhere or is in ...

pain after cystectomy

  • By MillieMel · New reply 1:42 pm
  • Journal · 9 replies
  • Hi all -I am writing for my Mom who had cystectomy on Aug 5 and is still having severe pain. I want to know if anyone else has experienced this. She was in great pain before surgery. She was on pain meds ...

Not Sure What To Do :(

  • By AliceLaFave · New reply 1:40 pm
  • Discussion in Living with non-invasive bladder cancer · 5 replies
  • I just joined Inspire a few days ago. Been fighting non-invasive BC since 2005. Just diagnosed with TAG1. Took first BCG treatment on Thursday, August 28, 2014, even though it is not the first time I ...

Long and frightening road

  • By ActingPete · New reply 1:35 pm
  • Discussion in Newly diagnosed · 21 replies
  • 3 weeks ago I had a tumor removed from my bladder. This was after nearly a week of waiting to see a urologist. All this time I'm told one of two things: "you're 32 that's way too young to have bladder ...

the long journey

  • By Amarie71 · New reply 1:24 pm
  • Discussion in Newly diagnosed · 1 reply
  • Hi friends, this is a long journey, I have been on and off this site for a few months with different issues, If I start from the beginning it will make more sense. I went to the ER because of the blood ...

Vietnam Veterans with bladder cancer

  • By jfbrucewidow · New reply 1:07 pm
  • Journal · 52 replies
  • For all Vietnam Vets exposed to Agent Orange (et al) who've been diagnosed with bladder cancer: I am getting together some information to send to the national VA in support of our claims! As such, I would ...

Peeing blood again!

  • By RosieQ22 · New reply 12:55 pm
  • Discussion in Living with non-invasive bladder cancer · 31 replies
  • This past Saturday night around 6 PM I urinated a lot of blood. I was getting ready to go to my sons house to participate in a karaoke get together with the group in his community, a 45 minute drive from ...

Ileal Conduit verses Neobladder

  • By BigW1 · New reply 12:49 pm
  • Discussion in Treatment choices · 15 replies
  • My wife is 51 and is trying to choose between the bag and a neobladder. Are there any women that could discuss the choice they made by talking to my wife? I tried explaining the differences, but I realized ...

Remembering Portorchardpat

  • By Adevaul · New reply 12:20 pm
  • Discussion in Sharing loss and connecting · 18 replies
  • It's been a while since I last posted, but I wanted to share with a heavy heart that my mother Portorchardpat passed Away on July 21st from from this awful disease. My mom was diagnosed a year ago with ...

Please someone wake me up from this bad dream

  • By Lourdespl · New reply 12:10 pm
  • Discussion in Caregivers corner · 15 replies · Photos
  • In loving memory. My best friend. My travel partner. My heart and soul grieves for him. Shane passed away on Saturday August 30th, 2014. @ Doha Qatar. May his soul rests in peace. To my beautiful children ...

1 year for next test

  • By duneman · New reply 11:42 am
  • Discussion in Living with non-invasive bladder cancer · 5 replies
  • i had low grade non invasive bladder cancer removed,, no follow u-p treatments of any kind...i went through one year of every 3 months, no recurrence,,,, went through a year of every six months,, no recurrence ...

Treatment of Recurrent Cancer

  • By dzdorfman · New reply 11:40 am
  • Discussion in Treatment choices · 8 replies
  • I am American living in Palau. My treatment is at St. Luke's, Global City, Manila. I was diagnosed with T2 tumor in 2007 & kept tumor free until this month by initial BCG treatment after TURBT & 2x/year ...

My father's footsteps

  • By ActingPete · New reply 11:26 am
  • Journal · 1 reply
  • If my dad were alive today I feel like he would wish he could take my cancer away, as I recall his father saying to him. "Bob; if I could trade places with you I would do it in a heartbeat." To which ...

Indiana Pouch Help

  • By wampag · New reply 11:23 am
  • Discussion in Life after radical cystectomy · 6 replies
  • I am in the stage of the pouch were i have to cath every 2hrs for the next two weeks and it seems there is a little swollen spot right next to my stoma and I had trouble getting my 14 gauge in and had ...

Cancer stole again...

  • By Lourdespl · New reply 10:46 am
  • Discussion in Caregivers corner · 11 replies
  • My husband might have just few hours, he has put up a good fight but we have lost the battle to cancer. Doha has been his home for the last 12 years. As unfair as it is, seven years ago he lost his first ...

Having Your Voice Heard - Unmet Needs of Bladder Cancer Patients

  • By BCAN_Staff · New reply 10:32 am
  • Discussion in Raising awareness · 37 replies
  • As everyone in the community knows, bladder cancer is largely overlooked. Many of you have personally stated your frustration and from BCAN's perspective we know that there needs to be more research to ...

The journey is moving in a different direction

  • By loried · New reply 10:22 am
  • Journal · 6 replies
  • Well the time has come. My father's cancer has progressed , spots in his lungs, growth in his right pelvic metastisis and he is no longer strong enough for any treatment options. We brought him home from ...

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About this community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.