The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Watch "Cancer: The Emperor of All Maladies"

Mickeral
  • By Mickeral · New reply 4:28 pm
  • Journal · 99 replies · Photos
  • Dear Friends: I would like to invite each of you in the United States to watch the following series which airs on PBS March 30 – April 1. CANCER: THE EMPEROR OF ALL MALADIES based on the Pulitzer Prize-winning ...

upset..

felly
  • By felly · New reply 4:28 pm
  • Discussion in Taking charge: How to be a proactive patient · 15 replies
  • *Please click on my name to see all my posts..so you understand whats going on * Well April 2nd .. I was finally due to have my cysto/ possible biopsy. I was informed of the Dr's fee and worked some overtime ...

BCG Maintenance Schedule

BillNashville
  • By BillNashville · New reply 4:04 pm
  • Discussion in Living with non-invasive bladder cancer · 2 replies
  • Just finished my first of 3 weekly BCG maintenance installations (1st set). For those of you on BCG maintenance what schedule have you followed for maintenance? How many weeks between the sets of 3 maintenance ...

This is what got me through the tough times.

Katuha
  • By Katuha · New reply 3:59 pm
  • Journal · 22 replies
  • I close my eyes and I see and hear little Connie as I sing or hum her song to myself. Everything melts away and I feel no pain. A calm comes over me from within and I thank God for this little girl who ...

Sanofi Canada vax plant again producing ImmuCyst bladder cancer drug

bobcarrotfield
  • By bobcarrotfield · New reply 3:58 pm
  • Discussion in Raising awareness · 1 reply
  • Sanofi claims that the (BCG) product will progressively be made available starting in the second half of 2015. http://www.fiercepharmamanufacturing.com /story/sanofi-vaccine-plant-canada-again -producing-immucyst-bladder-drug/2015-03 ...

Introducing myself

Natalie1982
  • By Natalie1982 · New reply 3:40 pm
  • Discussion in Living with non-invasive bladder cancer · 14 replies
  • Hey all. Was just diagnosed with stage 1 low grade BC a few days ago. I had surgery last Monday to remove a tumor from my bladder and am recovering. My urologist wants to see me every three months now ...

NG tube

BarbaraMc
  • By BarbaraMc · New reply 3:21 pm
  • Discussion in Treatment choices · 4 replies
  • Could you tell me what an NG tube is? I'm having an RC in April and have never heard of it or had any consultant discuss it ...

Bladder Cancer mentioned "On The Media"

JJGirl
  • By JJGirl · New reply 2:56 pm
  • Discussion in Raising awareness · 4 replies
  • Have you heard this segment on the recent "On the Media" show on public radio? Give a listen, some very good points about "Perception vs. Reality," and using bladder cancer as an example. http://www.onthemedia.org/story/percepti ...

Bladder Cancer Event at Johns Hopkins

BCAN_Staff
  • By BCAN_Staff · New reply 2:11 pm
  • Discussion in Taking charge: How to be a proactive patient · 1 reply · Photos
  • Johns Hopkins is hosting a free educational event for patients and loved ones on May 7. The invitation is open to the public but an RSVP is appreciated. See the invitation attached ...

SWFLBC Support Group meets- April 1

Karego
  • By Karego · New reply 1:59 pm
  • Discussion in Taking charge: How to be a proactive patient · 3 replies
  • Wednesday, April 1 (3-5 p.m.) will be our next support group meeting in the conference room (4th floor) at the Regional Cancer Center in Fort Myers, FL. All interested persons are invited to attend. Driving ...

Nivolumab clinical trial is working on my mets BC

kbros
  • By kbros · New reply 1:17 pm
  • Journal · 13 replies
  • Recap: I was diagnosed with micropapillary BC in November 2011, had two TURBTs, and was staged at T2b in January 2012. A baseline CT scan in December 2011 found no evidence of nodal involvement. I went ...

Hope & Healing After BC Diagnosis Article

Bladderme
  • By Bladderme · New reply 11:39 am
  • Discussion in Raising awareness · 3 replies
  • Hope and healing after a bladder cancer diagnosis By Cancerwise Blogger on March 30, 2015 7:30 AM | Comments (0) Last May, doctors in Iowa City, Iowa, gave Gerald Vilmont just five months to live. He'd ...

Bcg worried

Lizpet
  • By Lizpet · New reply 11:08 am
  • Journal · 2 replies
  • I'm worried my grandchildren visit me often worried they could be any dangers for them recommendations I'm going to have my second surgery and bcg treatment to follow ...

What should I expect?

LDolezan
  • By LDolezan · New reply 10:41 am
  • Discussion in Newly diagnosed · 13 replies
  • Well, I may be posting this too soon. I hope I am welcome to ask some questions as I am very scared. I am 48 years old and live in Michigan. I should start by saying that I was diagnosed with Breast Cancer ...

Viewing things from both sides now.

HLamb88937
  • By HLamb88937 · New reply 10:04 am
  • Discussion in Life after radical cystectomy · 10 replies
  • I am wondering if I am the only one that now looks at statistics and various bladder sparing techniques different.y. Since my bladder was removed and no cancer was found I am seeing things differently ...

how long is chemotherapy after RC?

Babyshann
  • By Babyshann · New reply 9:58 am
  • Discussion in Living with invasive bladder cancer · 4 replies
  • Hi! My dad who is 76 has done RC with ileal conduit..recovering well, starting to gain back some weight and eat better. We had an episode of UTI 2 weeks after RC and he was back in hospital for 2 days ...

Vietnam Veterans with Bladder Cancer

jfbruce
  • By jfbruce · New reply 9:38 am
  • Discussion in Taking charge: How to be a proactive patient · 901 replies · Photos
  • Most all VA Claims for Bladder cancer are tied to the veterans exposure to Agent Orange. If you filed a claim you have been denied because it is not on the Agent Orange "presumptive list". When the military ...

Cancer Centers of America

ruddone
  • By ruddone · New reply 8:57 am
  • Discussion in Newly diagnosed · 36 replies
  • Any thoughts? My husband has T4b high grade transitional cell cancer of the pelvic wall (no other metastasis that we know of yet) and is 3 weeks post op after cystectomy/neobladder surgery. Local oncologist ...

Questioning RC

littlebet
  • By littlebet · New reply 12:15 am
  • Discussion in Newly diagnosed · 24 replies
  • I am 65 & have micropapillary BC & need a Radical Cystectomy. (They call it T1, high grade). No surgery date. I feel healthy now & my great fear is, that I will never feel good or strong again after such ...

Bcg bladder thickening?

samslu
  • By samslu · New reply yesterday at 11:41 pm
  • Journal · 4 replies
  • Has anyone else noticed that after BCGs you have to go to the bathroom more often? Sams dr. said he has noticed that people who's bladder is thicker are those who have had BCG treatments. I wonder if ...

Log in to see more

Don't have an Inspire account? Sign up now!

Forgot password?

Things you can do

Support BCAN

Help the Bladder Cancer Advocacy Network reach its goals and support people like yourself by making a donation today.

Donate to the Bladder Cancer Advocacy Network

Discussion topics

Resources from BCAN

BCAN on Facebook

Like the Bladder Cancer Advocacy Network on Facebook

Community leaders

About this community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.