The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

What does the future look like

  • By Secndchance · New reply 3:23 am
  • Discussion in Newly diagnosed · 8 replies
  • In two weeks I will have my first cystoscopy since the removal of a low grade bladder cancer in March this year when I was 20 weeks pregnant. I've read and been told that this cancer has one of the highest ...

Is anyone taking Chlorella for long term?

  • By CW2014 · New reply 2:32 am
  • Discussion in Treatment choices · 3 replies
  • Hi, My father had BC T1G3. His Naturopath Dr. (Alternative treatment) asked him to take Chlorella and detoxify his body in order to prevent recurrence? He just start taking. Does anyone have the similar ...

RC on Wednesday 9/3/14

  • By PegO · New reply 2:18 am
  • Journal · 4 replies
  • My RC is a few days away and I'm as ready as I can be. Thanks to the many on this site especially Pat ad Elisabeth. I'm chosen IC and feel very comfortable with my choose. Hospital stay will be 7 to 10 ...

1 year for next test

  • By duneman · New reply 1:28 am
  • Discussion in Living with non-invasive bladder cancer · 6 replies
  • i had low grade non invasive bladder cancer removed,, no follow u-p treatments of any kind...i went through one year of every 3 months, no recurrence,,,, went through a year of every six months,, no recurrence ...

Barrier rings

  • By Dadtrkr777 · Posted 1:10 am
  • Discussion in Life after radical cystectomy · 0 replies
  • We are new to this.My husband had his bladder,prostrate and lymph nodes removed at USC Keck August 21.We don't have our permanent supply yet.Having trouble with the barrier rings starting to deteriorate ...

BCG treatments

  • By melmac95 · New reply 12:39 am
  • Discussion in Newly diagnosed · 8 replies
  • So my husband is currently doing his 6 weeks of BCG treatments. Has had only 1 so far but tomorrow he gets his 2nd treatment. Dr informed us that after the 6 weeks of treatment he will get the scope test ...

hands stretched across the pond

  • By snettie · New reply 12:31 am
  • Journal · 29 replies · Photos
  • Dear Friends and family, In 2011 I got diagnosed with Bladder Cancer, lost and feeling like it was all surreal and very lost I found you. People who knew exactly how I felt, and said the right things ...

Having Your Voice Heard - Unmet Needs of Bladder Cancer Patients

  • By BCAN_Staff · New reply yesterday at 11:57 pm
  • Discussion in Raising awareness · 47 replies
  • As everyone in the community knows, bladder cancer is largely overlooked. Many of you have personally stated your frustration and from BCAN's perspective we know that there needs to be more research to ...

one week post cysto-turbt

  • By tb51191 · New reply yesterday at 11:45 pm
  • Discussion in Newly diagnosed · 2 replies
  • Hi there, my husband is newly diagnosed and just one week post cysto. He is having a lot of frequency and urgency urinating every hour or so, is there anything I can do to give him some relief?? Doctor ...

Bcg not working

  • By Cinshep · New reply yesterday at 11:35 pm
  • Discussion in Treatment choices · 22 replies
  • 2 six week rounds of bcg. Cis high grade with every cystoscope. Mitomycin given after last cysto. Going to the md to discuss options this week. Any advice ...

Labor Day Family Sail

  • By seymourf · New reply yesterday at 10:34 pm
  • Journal · 9 replies · Photos
  • We should take time to give thanks for those things we have and to remind us why we need to fight the good fight. Took the family for the last sail of the year. It is a big boat and clearly as my energy ...

Prostate Problems for Men

  • By Dr_Z · New reply yesterday at 10:10 pm
  • Discussion in Newly diagnosed · 16 replies
  • Any men out there that have had Prostate problems after these TURBT procedures? They say that Catheters can irritate the Prostate and some men have problems with this. I developed this problem after my ...

SWFLBC Support Group meets Sep 3

  • By Karego · New reply yesterday at 9:36 pm
  • Discussion in Taking charge: How to be a proactive patient · 1 reply
  • Calling all interested members who can join us on September 3 (3-5 p.m.) at the Regional Cancer Center in Fort Myers, FL. (exit 136 on I75) The center is on your right, when heading West from the Interstate ...

Kidney group gone

  • By mews · New reply yesterday at 9:33 pm
  • Discussion in Help desk · 1 reply
  • Hi all I used to be a member of the kidney group and I stepped away for a few months and now it's all changed and the kidney group is gone, any one know what is going on?? Thanks Mary ...

bladder cancer

  • By asap · New reply yesterday at 8:39 pm
  • Journal · 4 replies
  • Will start my chemo 9/22/14 not sure when I'll have my port installed ...

3 Year All Clear

  • By tom1947 · New reply yesterday at 8:01 pm
  • Discussion in Living with invasive bladder cancer · 25 replies
  • Thanks to my great doctors, all of my BCAN friends, my family and most importantly my faith on God, I just had my 3 year scan and all I well. There is hope for stage IV cancer patients ...

c.I.s is back

  • By polipan · New reply yesterday at 7:51 pm
  • Discussion in Help desk · 5 replies
  • Hi everybody, after two years with cancer free life, the c.i.s. came back.....I am going to have a turb on the 27th this month.I am scare and from the other hand I am positive.I hope is superficial like ...

Cancer a lepers touch

  • By Cackler · New reply yesterday at 7:49 pm
  • Journal · 14 replies
  • I equate cancer with the stigma of leprosy. People run away, stumble over there words, don't know what to say. The time we get the dreadful news is when we need support. I hear this fact over and over ...

TURBT recovery worse than BCG

  • By SonomaCountyEric · New reply yesterday at 7:46 pm
  • Journal · 22 replies
  • Don't get me wrong, I'm still glad to have my bladder. But right now, I'm not very happy about it, and there have been a few times I've wished it was gone. I know there are people out there in far worse ...

He;lo from Austin!

  • By CaptainJan · New reply yesterday at 6:58 pm
  • Journal · 18 replies
  • We are here, having arrived just over 2 weeks ago. Houses in our subdivision were selling really fast -- like 1 to 5 days, so we expected ours to sell fast too, and we planned to move as soon as there ...

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About this community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.