The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

What to expect and how to cope

  • By debdon · New reply 11:00 pm
  • Discussion in Newly diagnosed · 12 replies
  • Hello A very close family member is in his 70's and has just been told that he has bladder cancer and he will have the operation in 2 weeks to remove his bladder and he will have a bag. Can anyone give ...

Recurrance after BCG. What's next?

  • By tangled_knot · New reply 10:55 pm
  • Discussion in Caregivers corner · 5 replies
  • Hi everyone, This is my first post to this forum, and am so thankful for finding it. My dad (83) was diagnosed with T1Hg cancer just under a year ago. At the time, it hadn't penetrated the muscle, so ...

Nu-Hope Non-Adhesive bags

  • By wisdomstruggle · New reply 10:49 pm
  • Discussion in Life after radical cystectomy · 9 replies
  • It has been one year since my radical cystectomy. I chose to have an ileal conduit and struggled for months with the various adhesive bags. I had constant issues with severely irritated skin. Finally ...

Day 3 of chemo

  • By sweet28546 · New reply 10:49 pm
  • Journal · 8 replies
  • I am almost complete with this first round of chemo. The only side effect I had was an anxiety attack. That was quickly taken care of. Tonight after my last bad finishes I will be given 2 units of blood ...

papillary bladder cancer

  • By RosieQ22 · New reply 10:47 pm
  • Discussion in Living with non-invasive bladder cancer · 44 replies
  • I am still learning more since my original bladder cancer diagnosis in 2000 - 14 years ago and 6 TURBT to date. My most recent surgery was New Years Eve 2013. PUNLMP is a new term I now understand as ...

night bags

  • By ohhhcrap · New reply 10:25 pm
  • Discussion in Life after radical cystectomy · 3 replies
  • Where can you purchase tubing to extend the night drainage bag. On some of the urostomy sites I've looked the tubing seems very expensive. Just wondering how everyone else extends the night bag tubing ...

Which surgery would be best

  • By ciom2023 · New reply 10:19 pm
  • Journal · 3 replies
  • I had my biopsies on Tuesday, where the urologist took from 4 locations in the bladder. Now while I wait for the results, I'm beginning to think about the type of surgery I'll be having. I'm wondering ...

when to move into fiber

  • By ander12 · New reply 9:39 pm
  • Discussion in Life after radical cystectomy · 2 replies
  • This morning I had an awful bowel movement. Very hard stoole and the. Watery afterwards. I did take 2 stools softners last night as I felt something was not right. Nothing has changed in my low residue ...

Newly diagnosed and TURBTed

  • By Trbleshter · New reply 9:36 pm
  • Discussion in Newly diagnosed · 3 replies
  • Thank you all so much for being here. I'm in Atlanta and had a Turbt last week to remove five papillary growths. I'm still home enduring this blasted folley. I will see my doc on Monday for the pathology ...

chances of not being cancer?

  • By computer · New reply 9:24 pm
  • Discussion in Newly diagnosed · 14 replies
  • Microscopic hematuria and urgency turns out to be a bladder "polyp." I am a 48 yr. old female who has had an ultrasound and cystoscopy and now needs to meet with a urology surgeon for removal. I just ...

Helping family face the music...

  • By Musicmom58 · New reply 9:15 pm
  • Discussion in Living with invasive bladder cancer · 27 replies
  • Ok, I have been on this road for a little bit. I was diagnosed in early September 2013 with high grade T1 bladder cancer. When I had the beginnings of a recurrence at the second TURBT, I was referred ...

Time to Sign Up for the Charlotte Bladder Cancer Walk!

  • By NL · New reply 9:12 pm
  • Discussion in Raising awareness · 5 replies
  • Bladder Cancer Friends, If you live anywhere near Charlotte, NC, now is the time to sign up for the Bladder Cancer Walk on May 3rd! We want a large group to walk and raise money for research as well as ...


  • By KPDD · New reply 8:49 pm
  • Discussion in Taking charge: How to be a proactive patient · 15 replies
  • Hi freveryends. I am on my south pacific tour right now. Didnot have any problems with security ,went through four so far. I have an IC and did not carry any card. All Going good so far. My questions ...

3 Years Cancer Free!

  • By VirginiaKen · New reply 8:38 pm
  • Journal · 31 replies
  • Just wanted all my fellow bc comrades to know I just received word that my latest Cysto and pathology all came back negative and I am cancer free which marks over 3 years of such blessed news. Since my ...

Should I request more frequent cystoscopy?

  • By ks0012 · New reply 8:09 pm
  • Discussion in Newly diagnosed · 5 replies
  • Im from Australia but have found this network very reassuring, Its my first time talking about this but I have a lot of questions too. I was diagnosed with noninvasive bladder cancer last November after ...


  • By jill1225 · New reply 7:28 pm
  • Discussion in Life after radical cystectomy · 4 replies
  • Hi there all. I am not doing many thing have happend in my life but why I am here is I am going to a water park in May this will be my first time back in water like swimming since my surgery ...

OAB from BCG

  • By ChuckT · New reply 7:21 pm
  • Discussion in Living with non-invasive bladder cancer · 2 replies
  • After my first TUR (Dec 2012) and initial 6 BCG treatments I developed an Overactive Bladder (OAB) getting up 5 times per night and averaging 20 times per day. Through bladder control techniques I was ...


  • By irishpappy · New reply 7:13 pm
  • Discussion in Life after radical cystectomy · 6 replies
  • hi, was just thinking of all of you on here, ...... word's sometimes just don't flow ...... BLESSED BE EVERYONE'S DAY ...


  • By irishpappy · New reply 6:47 pm
  • Discussion in Life after radical cystectomy · 9 replies
  • peep's, sorry for the delay in getting back on here last week... the new's is in my peep's..... all 6 month test are done..... Im very, very happy to say... IM CANCER FREE PEOPLE, we've been doing the ...

Please help

  • By SASW · New reply 4:17 pm
  • Discussion in Help desk · 10 replies
  • I had a partial cystectomy on Wednesday and was sent home on Friday. I have a Foley catheter. Is it normal for there to be urine in the toilet after a bowel movement? I also was feeling very uncomfortable ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.