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Medical Marijuana. Let's debate.

Katuha
  • By Katuha · New reply 9:09 am
  • Journal · 829 replies · Photos
  • AN OPINION: My Sister, who is a RN and who suffers from constant continual severe pain as well as depression from many problems, will not use legal medical MJ for fear her primary physician will be angry ...

Hernia or something else?

Theparentys
  • By Theparentys · New reply 9:06 am
  • Discussion in Life after radical cystectomy · 3 replies
  • My husband had his RC in Sept. 2014. He now has a lump near his left groin.. Alittle smaller than a golf ball. He has pain in that groin as well but also has pain on the right side. I am thinking hernia ...

Skin irritations & infections under wafer

Gwarkentin
  • By Gwarkentin · New reply 8:57 am
  • Discussion in Life after radical cystectomy · 2 replies
  • I am 10 weeks post RC IC and I have had continual skin irritations & infections under my wafer. I also have a concave stoma causing issues with the wafer sticking so I have to change often. Does anyone ...

During RC/Neo bladder surgeon finds prostate cancer (Gleason 3+3?)

bladderii
  • By bladderii · New reply 8:33 am
  • Discussion in Raising awareness · 12 replies
  • Surprised post op that my husband,Craig, has prostate cancer too.Didnt see that coming.Surgeon said Gleason 3+3. Anyone familiar with this? BTW Doing well post op 4hrs.;) Donna ...

15% over medicare approved charges?

gk105
  • By gk105 · New reply 8:31 am
  • Discussion in Taking charge: How to be a proactive patient · 10 replies
  • has anyone heard of a 15% upcharge that doctors and hospitals can charge over the Medicare approved amount? if so what is your experience with this? thanks Katy ...

Exercising abs post surgery

Jwclark
  • By Jwclark · New reply 8:28 am
  • Discussion in Life after radical cystectomy · 8 replies
  • Prior to surgery I worked my abs in order to keep a good posture and keep my back from hurting. It also helped prepare me for surgery and I attribute a good recovery to this. My question is at what time ...

AND THEIR OFF!!

blackbarn2
  • By blackbarn2 · Posted 8:27 am
  • Discussion in Living with non-invasive bladder cancer · 0 replies
  • It' Memorial Day weekend and the people are flocking to their cabins with fishing poles, beer and loaded for bear. It's a busy one for sure!! Also, time for the first parade of the year ( pix's to follow ...

The ONE thing they don't tell you but you wish they did!

doggiedoos
  • By doggiedoos · New reply 8:19 am
  • Discussion in Life after radical cystectomy · 27 replies · Photos
  • Ok maybe two things they didn't tell us.... Since my husbands diagnosis in June 2014 I've been writing about our experience with his bladder cancer. After the initial diagnosis saturates your mind a feeling ...

Follow-up to MPDL3280A clinical trial

MightyMIT
  • By MightyMIT · New reply 8:17 am
  • Discussion in Treatment choices · 13 replies
  • Hi Everyone, It's been a while since my last post. As some of you may remember, I’ve been in a clinical trial for Roche's MPDL3280A (an immunology-based PD-L1 inhibitor) since January 2014. This treatment ...

CT results

ijt1947
  • By ijt1947 · New reply 8:13 am
  • Discussion in Caregivers corner · 2 replies
  • My husband got his Neobladder in Feb. So he's 3 months past his surgery, the CT scan he has this morning showed some very small tissue in the pelvic area and a very small spot on his liver, the Dr. Thinks ...

BCG or RC?

concretebiz
  • By concretebiz · New reply 7:43 am
  • Discussion in Newly diagnosed · 18 replies
  • I'm a 49 year old female diagnosed with bladder cancer mid February 2015. First TURBT on March 2. Biopsy showed T1-high grade, no muscle present to examine. Had a second TURBT on April 13. That biopsy ...

Changing Urostomy Pouches

323232
  • By 323232 · New reply 7:35 am
  • Discussion in Life after radical cystectomy · 15 replies · Photos
  • During the pouch changing process, washing around the stoma with just plain water or 50/50 solution of water and distilled vinegar, should one use the bathroom lavatory ? I have been using the lavatory ...

Insurance Won't Cover a Comprehensive Cancer Center?

NomadiKat
  • By NomadiKat · New reply 7:12 am
  • Discussion in Treatment choices · 7 replies
  • So we live in rural Maine, and there are no comprehensive cancer centers at all in Maine, and our insurance is an in-state only HMO. My husband has T2, high grade BC, and we've already been denied twice ...

How to find a pelvic floor physical therapist in your area

Annasvenska
  • By Annasvenska · Posted 7:01 am
  • Discussion in Taking charge: How to be a proactive patient · 0 replies
  • I am a physical therapist ( I do home health) whom also have experienced first hand what difference pelvic floor physical therapy can make when it comes to treating partial incontinence. I started leaking ...

how long

nooneknows
  • By nooneknows · New reply 6:52 am
  • Discussion in Life after radical cystectomy · 8 replies
  • I had a RC with neobladder 1yr 5mo ago. At nite I can go for 2.5hr before I get up and void. During the day I'm about 99.9% but at nite 2 1/2 hr. Any more and I am pushing it. I was just wondering if ...

Good News

SamBundy
  • By SamBundy · New reply 6:17 am
  • Discussion in Life after radical cystectomy · 18 replies · Photos
  • Five year check-up today at UNC-Chapel Hill. No Problems!!!--doing just fine. Life is Good and so is God ...

Bladder Cancer Awareness Month Officially Recognized

BCAN_Staff
  • By BCAN_Staff · New reply 6:17 am
  • Discussion in Raising awareness · 10 replies
  • Great news! The Senate officially recognized National Bladder Cancer Awareness Month. Senator Menendez (NJ) and co-sponsors Senator Isakson (GA) and Senator Schatz (HI) introduced SRES 187 in agreement ...

TOO MANY TEARS

Katuha
  • By Katuha · New reply 2:38 am
  • Discussion in Sharing loss and connecting · 11 replies · Photos
  • TOO MANY TEARS. Oh God, far too many. · August 5, 2012 at 10:56 am I sit here writing through my tears. Too much sadness. Too much sorrow. Too many friends gone too suddenly. Two close acquaintances and ...

Hurry up and wait!

Ronvin
  • By Ronvin · New reply 2:35 am
  • Discussion in Newly diagnosed · 21 replies · Photos
  • . I was diagnosed a week ago and have been reading about BC, changing my diet, increasing frequency of exercise.......etc. the waiting for dr. Appt, tests, test results etc......hard. I am keeping busy ...

Skin breaks around Stoma

Cheneve
  • By Cheneve · New reply 2:32 am
  • Journal · 7 replies
  • Have anyone ever had the skin around their Stoma come off while removing the barrier ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.