Bladder Cancer Advocacy Network Support Community

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CrazYhorse

By CrazYhorse72 · New reply 11:44 am
Journal · 8 replies
I just wanted to update everyone that all the Dr's I have been seeing everything is going well. Saw my Podiatrist got my infected toe all fixed. Went to my Cardiologist for the edema in my legs took a ...

RC due next week UPDATE 30 July

By Moglie · New reply 11:41 am
Discussion in Living with invasive bladder cancer · 8 replies
Hi All Just spoke to my mum on the phone, she is in London today for a repeat cystoscopy, as the surgeon who is doing her RC wants one final look before he does the RC next week. Anyway mum has just had ...

survival rate of BC

By mechlin · Posted 11:22 am
Discussion in Newly diagnosed · 0 replies
I foubd out I have t1 3grade invasive BC. I have decided to try BCG. Has anyone did this or is RC better choive. What are the survival rate for this kind of BC> I do not recover well from surgery. I weigh ...

Latest Scan Results

By grandmaof13 · New reply 11:22 am
Discussion in Metastatic bladder cancer · 29 replies
We just got back from the doctor and the scan shows no sign of cancer, anywhere. Nodes are normal size, everything else looks clean. He is off for a month and then goes to have his port flushed and have ...

Jonny my brave man

By Andimaxton · New reply 11:17 am
Journal · 19 replies
Jonny died this morning I was with him. It was quick and he told me that he loved me. His liver failed, I held him through the night. I don't know how I will live without him. The girls are being amazing ...

Who's having surgery , procedures, in August?

By roadrunner · New reply 11:09 am
Discussion in Caregivers corner · 40 replies
August calendar coming up....... If you have anything going on in August please post it here,,tests,surgery,any procedures,,,,then we'll add you to the list,,,,,keep you under our wing,,,hoping to hear ...

latest cysto

By ejc312 · New reply 10:52 am
Journal · 12 replies
headed for my latest cysto on fri.7/30.Am praying it will come back negative like it was the last time around. I am the first one scheduled in the O.R. 7:00.At least the early time gives me less time ...

Summer

By John10-10 · Posted 9:34 am
Journal · 0 replies
I haven't posted in several weeks. Summer gets busy with vacations and kids summer jobs etc.. I have had a chance to catch up on some of the journal entries I have missed. My prayers continue for all ...

Cancer back - in muscle!

By calypsois · New reply 9:20 am
Discussion in Taking charge: How to be a proactive patient · 17 replies
Dr. Campbell called - early - so I know not good. In the 5 biopsies he took at my cysto Tues, he found cancer on the right side - muscle wall invasion. My urethra, he says, will not be viable. It has ...

First 3 month Post TURBT Cysto

By kannon · New reply 8:35 am
Journal · 2 replies
Hi All - Went for my first post TURBT cysto at JHH (Dr Shoenberg) on Thursday. Being the first cysto (at least while I was awake) was enough to keep me on pins and needles, besides the wondering how the ...

Mil is cancer free

By cleofet · New reply 4:40 am
Journal · 2 replies
MIL surgery to remove her bladder, left kidney and a hystorectomy on the 14th of July and as of the 27th of July Dr Thomas said she is cancer free. Praise God. Prayer works. She is 78 years old and is ...

Calendar for AUGUST!!! ITS VERY BUSY!!!

By roadrunner · New reply 4:36 am
Discussion in Caregivers corner · 2 replies
Well here it is,,Calendar for August! We wish all of you success in whatever procedure you are having. Along with that many prayers!!! We have more r/c's than in any other month, we all know the anst ...

Looking for a good surgeon

By Jonny-B · New reply 1:21 am
Discussion in Newly diagnosed · 38 replies
Hi, I am new diagnosed with bladder cancer (high grade/invasive, T1 Stage 3). Have had a TUR 2 months ago. Now, trying to find the best skilled surgeon in the NY/NJ area to increase outcome results (including ...

any one in the ny area

By rpm · New reply 1:06 am
Discussion in Life after radical cystectomy · 9 replies
hi every on i was wondering if there is any one in the ny area i can talk with my surgery is 8/3/10 7:30 am my email is spike12182003@yahoo.com or my cell is 845-803-9414--home 845-269-3602 thanks rich ...

Grandma Cheryl's Musings

By grandmaof13 · New reply yesterday at 11:07 pm
Discussion in Caregivers corner · 5 replies
This morning I got up at 4:20 because I never sleep before the doctor appointments. I have a routine where I turn off the alarm, open the gate, make the coffee, get dressed, take my meds and then over ...

If You had Radiation Treatment

By gr256 · New reply yesterday at 9:14 pm
Discussion in Treatment choices · 5 replies
Would anyone like to share their experience and outcome both good or bad with radiation treatment. If you know for sure what stage and grade you were and machine you were treated with that would be helpful ...

Nodule

By antielia · New reply yesterday at 8:01 pm
Discussion in Caregivers corner · 8 replies
Hi My husband had his post BCG cystoscopy today (following first maintenance Rx). The urologist had told him that the result was good. BUT, I looked into the clinical/operation report and saw a sketch ...

Need Advice

By heydeb2us · New reply yesterday at 7:16 pm
Discussion in Newly diagnosed · 12 replies
My husband was just given the news he has Bladder cancer. I'm trying to find out everything I can about the disease, treatment and how to make him comfortable. He has High Grade type and we don't know ...

Raising Awareness on Diane Rehm Show (national radio show) on Monday

By BCAN_Claire · New reply yesterday at 6:25 pm
Discussion in Raising awareness · 6 replies
Bladder Cancer will be discussed for an hour on this nationally-syndicated radio show on National Public Radio on Monday from 11-noon Eastern time. Guests currently scheduled to appear: * Diane Zipursky ...

Cutting Fat and Calories Can Lower Cancer Risk

By IanC · New reply yesterday at 3:49 pm
Discussion in Taking charge: How to be a proactive patient · 3 replies
Tho' I found that cutting my calories didn't hold back the resurgence of my cancerousness, maybe I should have been just cutting out the fat, especially Omega6's. "Cutting Fat and Calories Can Lower Cancer ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.