The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

color change

  • By NOBLADR · New reply 7:54 am
  • Discussion in Help desk · 6 replies
  • A few days ago I woke up with a full overnight bag. No big deal, but the bag had literally changed color. After emptying the "clear" bag I saw that it had changed color to a pale "burgandy" color inside ...

off shore immunotherapy treatments

  • By gainesvillegirl · New reply 7:52 am
  • Discussion in Living with invasive bladder cancer · 3 replies
  • My husband has Stage IV bladder cancer. He has undergone three aggressive chemo treatments with hospitalization and about to have another. His tumor outside his bladder has shrunk by 1/3. His cancer is ...

Question for other IPers

  • By karenab · New reply 7:33 am
  • Discussion in Life after radical cystectomy · 2 replies
  • Just wondering if other with Indiana Pouch have noticed an increase in the cost of catheters since the ACA has gone into effect. Our insurance company just changed in April, but the coverage for durable ...

I still cant believe it!!!

  • By Amarie71 · New reply 7:28 am
  • Discussion in Newly diagnosed · 17 replies
  • I just love everybody, hearing everyone stories gives me hope and a little peace, Im still a little scared and angry and I know its to be expected, its hard for me to go to work everyday and put on a ...

Will the first TURBT be the last one?

  • By Realdawg · New reply 7:23 am
  • Discussion in Living with non-invasive bladder cancer · 7 replies
  • I see a lot of folks on here posting about numerous TURBTS but I am wondering if anyone ever just has one and then that's the end of it? I don't see a lot of success stories here yet have talked to so ...

Vietnam Veterans with Bladder Cancer

  • By jfbruce · New reply 7:11 am
  • Discussion in Taking charge: How to be a proactive patient · 579 replies
  • Most all VA Claims for Bladder cancer are tied to the veterans exposure to Agent Orange. If you filed a claim you have been denied because it is not on the Agent Orange "presumptive list". When the military ...

Asparagus (Shatavari) Juice/Powder

  • By v1arp · New reply 6:01 am
  • Discussion in Raising awareness · 5 replies
  • Does anyone take Asparagus as a juice or in powdered form (Shatavari) for BC or other ailments ...


  • By Katuha · New reply 3:54 am
  • Journal · 66 replies
  • A HERD OF SPIRITUAL BUTTERFLIES This week started out with my finding a group (flock? … or maybe a herd?) of butterflies in the woods of our property. From a distance, I observed a colorful yellowish ...

Cystoscopy costs

  • By Pekka · New reply 2:47 am
  • Discussion in Treatment choices · 13 replies
  • I had T1 high grade BC in my kidney which was removed june 2013 at Fox Chase Philadelphia where I mostly live with my fiancé. That was covered from my travel insurance. Insurance covered only the first ...

Cat Scan

  • By moni641948 · New reply 2:41 am
  • Journal · 2 replies
  • If a Dr. calls the same day of the cat scan for a follow up appt. two days later, is there something to worry about ...

Broccoli Juice benefits

  • By v1arp · New reply 2:03 am
  • Discussion in Raising awareness · 4 replies
  • I was worried that I had not received my last 6 week supply of Brocolli Sprout Juice, so contacted my supplier. Just got an email telling me that they are having trouble keeping ...

Orlando Bladder Cancer cystoscopy surveillance checkup tomorrow

  • By gk105 · New reply 12:51 am
  • Discussion in Living with non-invasive bladder cancer · 50 replies
  • I am living in Orlando, Fl with non-invasive bladder cancer. Wednesday, July 16, I am due for my quarterly surveillance check-up and I am asking for prayers for tomorrow. I am very anxious to hear the ...

Just had my TURBT this morning

  • By Realdawg · New reply yesterday at 11:58 pm
  • Discussion in Newly diagnosed · 9 replies
  • I was diagnosed in April this year after discovering blood in my urine -- pretty standard!! My tumor was 2.5 cm and my urologist said today that it hadn't changed at all in size and had stayed the same ...

First BCG

  • By gordo2 · Posted yesterday at 11:40 pm
  • Journal · 0 replies
  • Thank you THANK YOU for the words of encourgement the past days. Just had my first treatment of BCG 5 hours ago, The anticipation was worse then the procedure for sure. No side effects so far. Also PSA ...

Day by Day

  • By NoNameNecessary · New reply yesterday at 11:11 pm
  • Journal · 2 replies
  • today we are in day 5 of hospice. We had quite a scare Sunday morning when husband woke up terrified. He said he was dying, asked me if he was dying and if so he wanted to talk to the kids. We called ...

Question about post-TURBT intravesical infusions

  • By Realdawg · New reply yesterday at 10:50 pm
  • Discussion in Newly diagnosed · 4 replies
  • As I posted before, had my first TURBT yesterday for a 2.5 cm tumor that hadn't progressed at all in the 5 months since it was discovered. Initial diagnosis after first cysto was a "papillary tumor ...

Positive Fish Results

  • By Scotsm · New reply yesterday at 10:44 pm
  • Journal · 36 replies
  • I have had 4 urinalysis tests since March that show positive FISH results, the original tests done by my urologist, and most recent done by my urology oncologist at cancer center. My urologist felt positive ...

Anyone with Stomach and Bowel issues after BCG

  • By Loucksy · New reply yesterday at 10:41 pm
  • Journal · 6 replies
  • Good morning everyone Karen here, just an update on my BCG treatments. The first two of six went perfect, I had no problem with the 2 hr hold period, no burning, no cramping and felt relatively well ...

Kindess among members

  • By Annasvenska · New reply yesterday at 10:22 pm
  • Discussion in Raising awareness · 19 replies
  • I am not on here much as so i am now almost six years post op RC and i am fully living my life as i single mom with two teenagers but when i do come here I have seen how much one cares for one another ...

Are we near the end?

  • By Sandyfet · New reply yesterday at 9:13 pm
  • Journal · 16 replies
  • Last Wednesday, My husband started his 3rd week of the Lilly clinical trial at MSK that targets his PIC3 mutation and MTor. Ever since he started on it he has gone down hill really fast. They almost pulled ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.