Bladder Cancer Advocacy Network Support Community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

How is CIS of the ureters diagnosed?

By rustycinders · New reply 1:46 am
Discussion in Newly diagnosed · 1 reply
We have three cancers: CIS of the bladder (Tis), exophytic papillary carcinoma, high grade (TaHG) and CIS of the prostatic urethra (Tis pu). How is CIS of the ureters diagnosed ...

Sex after RC- if under 18 please do not read

By Spitfirenb · New reply 12:08 am
Discussion in Life after radical cystectomy · 11 replies
I would like to find out more about sex after having an RC. I am a 42 year male 5 weeks post RC and have a Neo with nerve sparing done. Maybe at 20-30% erection and no change to % after using 100mg of ...

Why no glossary on this web site?

By Woodworker4fun · New reply 12:05 am
Discussion in Newly diagnosed · 5 replies
How is it that new members of this site are to understand what people are talking about when they use just a few letters to describe something and there isn't any golssary on the site to explain what ...

Lost our battle

By jaxmad13 · New reply yesterday at 11:42 pm
Discussion in Metastatic bladder cancer · 73 replies
It is with a heavy heart that I let you all know that my husband of 29 years (we were together 34 years) passed away, from this terrible disease, on May 4, 2013 at 2:15 a.m. He fought for 9 months with ...

6 cycles of chemo completed

By Maylene · New reply yesterday at 10:37 pm
Journal · 7 replies
I have finished chemo and CT scan show no evidence of cancer. PTL but I am extremely tired and cannot walk without using a walker and after only a few steps I get so dizzy that I have to sit down. Has ...

Frustrated after my BCG followup

By gk105 · New reply yesterday at 10:30 pm
Discussion in Living with non-invasive bladder cancer · 2 replies
Yesterday, after 2 sleepless nights, I went in to my uro office for post BCG 3mo follow up. He said he could do the cysto and biopsy in his office and FISH test. My uro said everything looked good and ...

Prep for RC/ Just off the Press

By Keith1 · New reply yesterday at 9:59 pm
Discussion in Taking charge: How to be a proactive patient · 6 replies
I don't know if this has been brought up here yet. I am just passing the word along. I have spent hours on the phone with a newly diagnosed man who is having an RC on June 6th. I told him that the prep ...

I'm already scared

By MindiJean · New reply yesterday at 9:55 pm
Discussion in Life after radical cystectomy · 18 replies
And surgery isn't even scheduled yet. I have a consultation with a hernia surgeon on July 18. Apparently I will be in the hospital "multiple nights". I hear this surgeon is amazing. Might be able to do ...

Going for 4th TURBT

By Bnelsonr · New reply yesterday at 9:36 pm
Discussion in Taking charge: How to be a proactive patient · 12 replies
I found this site a few day ago. 69 year old male. It sure is nice to read a forum that keeps a positive outlook instead of doom & gloom. My Low grade bladder cancer was found in March 2012. 1st TURBT ...

So what about my pipes?

By graycy · New reply yesterday at 9:32 pm
Discussion in Life after radical cystectomy · 10 replies
So after nearly a year of living with a bag, it all boils down to a plumbing question. Being of a practical mind, and having been present during enough plumbing catastrophes to last a life time, what ...

Just diagnosed with bladder cancer

By Hudsonhawk · New reply yesterday at 9:08 pm
Discussion in Living with invasive bladder cancer · 13 replies
I am 57 and just diagnosed with stage 2 high grade cancer." Going to mayo clinic Wednesday t TO see dr. Boorjian. Anybody been there? The doc who did my turbt said my bladder had to come out. At this ...

Itching skin with BC

By year13 · Posted yesterday at 8:58 pm
Journal · 0 replies
I have not had Mytomycin for a decade, I have been cancer free until now. But, I bought some organic sheets 2 years ago, sadly they had a finish to prevent wrinkles. Sleeping on them I became itchy: Wherever ...

Now know what hath for me, that TURBT #3

By ReadyToBeSoAlive · New reply yesterday at 8:56 pm
Journal · 16 replies
It has been just 8 months since initial dx of primary diffuse CIS of the entire bladder and trigone. it's been 3 of these TURBTs taking 30 biopsies from my bladder, and we've gone through 12 BCG treatments--it ...

Kidneys

By jitterbugsandy · New reply yesterday at 8:36 pm
Journal · 2 replies
By jitterbugsandy Reply 892605 Today at 1:48 pm Report post I came looking for someone with my problem. Had a radical cystectomy in Jan. I am 61 and haven't quit bleeding mildly since. Everything has ...

Denied Blue Light Cystoscopy?

By BCAN_Larry · New reply yesterday at 8:19 pm
Discussion in Taking charge: How to be a proactive patient · 30 replies
Good Day Everyone, I am taking a very informal survey among members of this community and have a question to ask you... Have you ever requested that your (or your loved one's) doctor perform a blue light ...

NOTE TO INSPIRE/BCAN

By Patbfit · New reply yesterday at 8:05 pm
Discussion in Help desk · 15 replies
I realize that you have a need to sell ads to support your web site but I have to say that seeing an ad at the top of every post is most annoying and intrusive. Ads to the side were acceptable and certainly ...

Clinical Trial to Select

By momo82 · New reply yesterday at 7:57 pm
Discussion in Metastatic bladder cancer · 5 replies
Really having a hard time helping my 32 year old husband select a clinical trial. He has had a progression after Cis/Gem showing increase in a couple of his lung tumor mets. Originally his response was ...

Why we do this!!!

By KevinMI · New reply yesterday at 6:44 pm
Journal · 8 replies
I had my RC with Neo for my T1G3 tumor in Nov. 2012 and am currently cancer free. The fear before the surgery and the recovery after the surgery were not easy. But neither of these were worse than the ...

Bladder Cancer recurrence after BCG

By AtlantaGirl · New reply yesterday at 6:33 pm
Discussion in Newly diagnosed · 46 replies
I am starting BCG next week and am curious about the flu type side effects etc. and if people are unable to complete because of difficulties. I am an engineer so I love facts and statistics. I also am ...

The journey is just beginning

By Wscai · New reply yesterday at 6:29 pm
Discussion in Newly diagnosed · 11 replies
My mother, age 83 has just been diagnosed with mucinous adenocarcinoma with signet ring cell cancer in her bladder. We were advised this is a very rare cancer to be found in the bladder without being ...

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About this community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.