The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Starred Chemo today

  • By sweet28546 · New reply yesterday at 11:51 pm
  • Journal · 10 replies
  • Today is the first week of chemotherapy. I have finished all pre med and now hooked up to my first chemo regime Looking forward to finishing this week ...

Any advice would be helpful

  • By ander12 · New reply yesterday at 11:39 pm
  • Discussion in Life after radical cystectomy · 8 replies
  • I am Currently 2 days shy of 3 weeks post RC/IC. This is what my pouch looks like after only 2 days of wear. We are cutting the opening the size of the stoma and using a hair dryer to dry the skin and ...

Stage 4 bladder cancer

  • By cutie21410 · New reply yesterday at 10:36 pm
  • Discussion in Newly diagnosed · 12 replies
  • Hi, My husband was diagnosed with bladder cancer about a month ago. Within the last 1-2 weeks, we have found out it is stage 4 TCC. He has a 5.3cm bladder tumor with groin lymph nodes affected and suspected ...

Almost 2 Year Patient

  • By ssp · New reply yesterday at 10:07 pm
  • Discussion in Caregivers corner · 1 reply
  • 2nd checkup clear after 1 year maintenance with BCG therapy. Have courage! The next checkup is in 3 months. Send us your best wishes and prayers ...

Surgery is scheduled

  • By GarageSaleManiac · New reply yesterday at 10:07 pm
  • Journal · 5 replies
  • My surgery is scheduled for May 1. I am nerves about the not knowing but I am very ready to be done with all this. We meet with the surgeon on April 22 and I should have some questions answered but surgery ...


  • By Nancylhm · New reply yesterday at 9:47 pm
  • Discussion in Caregivers corner · 3 replies
  • My husband is in the hospital with a fever of 101.9and it just won't quit. He started on this past Friday with 103.3. They said it was E-Coli infection seems to be from surgery a month ago. The fever ...

"Long" wait for surgery?

  • By salnap7 · New reply yesterday at 9:43 pm
  • Discussion in Living with invasive bladder cancer · 21 replies
  • I am starting to worry, and don't know if it is valid or not. I started chemo on 12/19/13 - last actual treatment was 2/20/14 - missed my last treatment cycle day, as my counts were too low. Tried a second ...

Cancer info most people do not know

  • By RosieQ22 · New reply yesterday at 9:38 pm
  • Journal · 4 replies
  • I have learned, over these many years of my own and others’ cancer journeys, not all cancers are life threatening, nor require body part removal, nor need chemo or radiation nor any other type of treatment ...

ostomy bag vs. Indiana pouch?

  • By cswpink · New reply yesterday at 9:30 pm
  • Discussion in Treatment choices · 20 replies
  • I will be having RC on 4/22 and am having difficulty deciding on the 2 options available to me. I would like to hear how some of you made this decision, what questions did you consider? Are you happy ...

Thoughts on Dr. Douglas Scherr

  • By LJV · New reply yesterday at 9:29 pm
  • Discussion in Treatment choices · 3 replies
  • After my dad was told he would have to wait until June to have his bladder removed due to that being the first opening with Dr. Herr he was recommended to call Dr. Scherr. Does anyone have any experience ...

3 Years Cancer Free!

  • By VirginiaKen · New reply yesterday at 9:28 pm
  • Journal · 28 replies
  • Just wanted all my fellow bc comrades to know I just received word that my latest Cysto and pathology all came back negative and I am cancer free which marks over 3 years of such blessed news. Since my ...


  • By GIPE · New reply yesterday at 9:15 pm
  • Journal · 5 replies
  • I completed 3 BCG's in February. They were more difficult than the previous 9, but always better than the alternative, so I pushed thru. Had a CT Urogram in March and saw my doc on April 10th. Ct Urogram ...


  • By B----- · New reply yesterday at 9:10 pm
  • Discussion in Living with non-invasive bladder cancer · 16 replies
  • I’ve just had my 1st BCG treatment Monday and I’m worried about giving TB to my wife…. I have been as careful as I can be with everything but there seems to be a drop here and there that goes into my ...

papillary bladder cancer

  • By RosieQ22 · New reply yesterday at 9:09 pm
  • Discussion in Living with non-invasive bladder cancer · 7 replies
  • I am still learning more since my original bladder cancer diagnosis in 2000 - 14 years ago and 6 TURBT to date. My most recent surgery was New Years Eve 2013. PUNLMP is a new term I now understand as ...

I have a question

  • By cbmb · New reply yesterday at 9:07 pm
  • Discussion in Taking charge: How to be a proactive patient · 6 replies
  • This is a strange question. By drinking a lot of water hide hematuria? I know I did not ask this correctly. Say you have micros opic hematuria but drink kots of water all the time. Will drinking lots ...


  • By irishpappy · New reply yesterday at 9:05 pm
  • Discussion in Life after radical cystectomy · 6 replies
  • peep's, sorry for the delay in getting back on here last week... the new's is in my peep's..... all 6 month test are done..... Im very, very happy to say... IM CANCER FREE PEOPLE, we've been doing the ...


  • By SASHAMORE · New reply yesterday at 8:42 pm
  • Discussion in Newly diagnosed · 3 replies
  • hi folks........i am newly diagnosed and last week had the turbt procedure; left the hospital with stents in both ureters.....the stents are due to be removed on april 30th..(2 weeks from now)......i ...

Time to Sign Up for the Charlotte Bladder Cancer Walk!

  • By NL · Posted yesterday at 7:47 pm
  • Discussion in Raising awareness · 0 replies
  • Bladder Cancer Friends, If you live anywhere near Charlotte, NC, now is the time to sign up for the Bladder Cancer Walk on May 3rd! We want a large group to walk and raise money for research as well as ...

Chemotherapy-T2 muscle-invasive

  • By jcfisher2005 · New reply yesterday at 7:29 pm
  • Journal · 17 replies
  • I start my 12 wk course of chemotherapy including Cisplastin in 2 days, I know this will be a challenging road but everyone has slightly to drastically different experiences with bladder cancer chemotherapy ...

What does Dr Lamm mean??

  • By mis2kids · New reply yesterday at 7:21 pm
  • Discussion in Treatment choices · 5 replies
  • Just wondering exactly what Dr Lamm meant. I asked him about a low grade occurrence after high grade original diagnosis and 6 BCG treatments. He said "May need to have Rx for the low grade disease, such ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.