The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Hernia repair

  • By MrsMindiJean · New reply 9:11 am
  • Discussion in Life after radical cystectomy · 1 reply
  • I currently have a hernia the size of a soccer ball, to the left of my belly button stoma (result of bladder cancer and Indiana Pouch). I will be having surgery on May 6 and would like to know what to ...

Night drainage bags

  • By Guidojoe · New reply 9:06 am
  • Discussion in Help desk · 10 replies
  • So, here's a dumb question: I have read on this site that the night drainage bag should last 2-4weeks before replacing with a new one. I have been using the same reliamed bag for probably 2 months. It ...

low white blood cells when having chemo

  • By tahoemama55 · New reply 8:53 am
  • Journal · 3 replies
  • My husband has bladder cancer stage 3 he is having chemo and now he has low white blood count and they are stopping chemo and giving him shots for 3 days.. has anyone had this when they had chemo.. He ...



What About This

  • By jrt · New reply 8:48 am
  • Discussion in Living with non-invasive bladder cancer · 1 reply
  • I started a year ago with a Ta low grade pap tumor and a spot of CIS. I had TURBT to remove pap tumor and two series of 6 each BCG's for CIS. Last cysto under general anesthesia involved 6 biopsies which ...

Bladder removal

  • By thsttymom · New reply 8:35 am
  • Discussion in Life after radical cystectomy · 6 replies
  • My dad is having his bladder removed next week. I can't find anyone in my area that has had this done. Has anyone been thru this? If so what good advice can you offer ...

opting for bladder removal

  • By MzMc · New reply 8:24 am
  • Discussion in Living with invasive bladder cancer · 42 replies
  • Not really sure how to define "invasive" but my aggressive tumor, T1-capillary, is in the lamina propria. I also have T1 insitu covering so much of the bladder that a resection will not leave enough healthy ...

Must Read Before Deciding on RC!!!

  • By gmoorefl2 · New reply 8:01 am
  • Journal · 76 replies
  • YOU MUST READ THIS BEFORE DECIDING ON RADICAL CYSTECTOMY (RC)!!! For those of you who have been diagnosed with organ specific bladder cancer and are being told the only option is radical cystectomy, you ...

Seal Problems

  • By LarryG1 · New reply 7:33 am
  • Discussion in Life after radical cystectomy · 5 replies
  • I have used the convatec two piece system since my RC, 4 years ago. About 3 months ago the seal was fragmenting when I changed it. This never occurred before, but now happens each time I change. .I am ...

Stage 4 bladder cancer

  • By cutie21410 · New reply 7:30 am
  • Discussion in Newly diagnosed · 34 replies
  • Hi, My husband was diagnosed with bladder cancer about a month ago. Within the last 1-2 weeks, we have found out it is stage 4 TCC. He has a 5.3cm bladder tumor with groin lymph nodes affected and suspected ...

Body image program for cancer survivors

  • By robin5 · Posted 6:05 am
  • Discussion in Taking charge: How to be a proactive patient · 0 replies
  • I saw this and thought it might be interesting for Bcanners- On Wednesday, April 30, an educational program called “Embodied: Coping with Cancer and Body Image Changes” will discuss common concerns about ...

female age 58-new here-need some hope

  • By tweekerbeeker · New reply 5:33 am
  • Discussion in Newly diagnosed · 14 replies
  • well, first appt. with urologist is over. Going for CT scan ASAP, then cystoscopy(sp?) in office. I'm trying to get prepared for all this, as it came out of the blue. So-some background. I know from past ...

Foley Catheter help

  • By chiprich · New reply 4:53 am
  • Discussion in Life after radical cystectomy · 3 replies
  • Hi, I had the RC with a neoBladder 3 weeks ago and for the most part AOK. I have an ongoing problem that the tube that enters the penis from the Foley Catheter (where urine and mucos exits the body) often ...

ostomy bag vs. Indiana pouch?

  • By cswpink · New reply yesterday at 9:57 pm
  • Discussion in Treatment choices · 32 replies
  • I will be having RC on 4/22 and am having difficulty deciding on the 2 options available to me. I would like to hear how some of you made this decision, what questions did you consider? Are you happy ...

Anyone experience some air in their neobladder after using external cathete

  • By IndianaJeff · Posted yesterday at 9:44 pm
  • Discussion in Life after radical cystectomy · 0 replies
  • Just wondering how to get rid of this air that I am sure I caused by using external catheters and night bag ...

bladder removal

  • By thsttymom · New reply yesterday at 9:15 pm
  • Journal · 4 replies
  • My dad has bladder cancer and they are removing his bladder next week. Has anyone been thru this? Any experiences good or bad ...

Cancer info most people do not know

  • By RosieQ22 · New reply yesterday at 9:10 pm
  • Journal · 32 replies
  • I have learned, over these many years of my own and others’ cancer journeys, not all cancers are life threatening, nor require body part removal, nor need chemo or radiation nor any other type of treatment ...

White substance around stoma

  • By ander12 · New reply yesterday at 9:08 pm
  • Discussion in Life after radical cystectomy · 17 replies
  • Checking my 1 piece Hollister bag and we noticed a white ring around the stoma. Since we can't get into look at it could it be mucus build up? Should I take a shower without the bag and place on a new ...

A Life-Changing Diagnosis

  • By Lazy-Bones · New reply yesterday at 9:02 pm
  • Discussion in Newly diagnosed · 33 replies
  • I've was diagnosed with BC last week, and I'm glad that I found this group. I go into UNC Cancer Center this Thursday (4 days from now) for my first interview. I have no idea what will transpire, but ...

Appointment with Sloan Today..

  • By ancona9409 · New reply yesterday at 8:27 pm
  • Discussion in Newly diagnosed · 13 replies
  • Hi Everyone, My husband has his first appointment with a surgeon at Sloan Kettering this afternoon. We are nervous yet relieved.. finally a place where we will get the proper treatment and some answers ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.