The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group
Path report during TURB-T
- By heatherdog · New reply 10:24 pm
- Discussion in Newly diagnosed · 5 replies
- Is anyone aware of having had a path sample anyalyzed during the course of a TURB-T? This could eliminate the need for having a second "radical" or "staging" TURB-T to the same site later with either ...
Vitamin Supplements and BC
- By quincyst38 · New reply 10:22 pm
- Journal · 9 replies
- My brother-in-law who has a great deal of knowledge relative to vitamin supplements "he's not an expert" but is very knowledgeable, suggested that since I had a recurrance of my low-grade non-invasive ...
veteran administration no bcg ??
- By duneman · New reply 10:21 pm
- Journal · 3 replies
- i go to vet. admin. hosp. being a veteran with no insurance... just had turb to remove 3cm papillary tumor and pathology said low grade cancer. they said i should get bcg but said they cannot get it ...
Post RC 8mo
- By bs59 · New reply 10:08 pm
- Journal · 1 reply
- ALL CLEAR: 5/15/2012 Got all our stats: PT2A NO MO 55 lymph nodes all negative removed at time of surgery 9-16-2011 Gleason # 3+3 less 1% DOCTOR Sia Daneshmand surgeon, released us to have our every 6mo ...
Matteo on the Beach
- By matteo · New reply 9:51 pm
- Journal · 44 replies
- Hi eveyone, just a quick note about our trip to the beach! matteo was a trooper wow loved the ocean the plane the airport everything about traveling...he was amazing you know i never really thought about ...
Jasta passed away on Monday
- By vgau · New reply 9:44 pm
- Discussion in Caregivers corner · 38 replies
- I talked to Janny's daughter today and Janny passed away peacefully on Monday. All her children were home and she saw her two grandsons as well. She figured out they had a special surprise for her on ...
Fresh with Neo-bladder-how to control incontinence
- By kk1234abc · New reply 9:17 pm
- Journal · 10 replies
- Hi Everyone, Had RC with neo-bladder on 26th April. Catheter from neo-bladder was removed today only. I have been leaking almost continuously. Every time I get up from chair I leak a little! Doctor says ...
no bcg for veterans administration
- By duneman · New reply 7:51 pm
- Journal · 1 reply
- i use v.a. health care and papillary tumor 3cm. they said i should get bcg treatments but said they cannot get it!! ever hear of that? what should i do can you buy your own?? how much ...
CRAZY again!
- By karenlamb · New reply 7:12 pm
- Discussion in Living with non-invasive bladder cancer · 7 replies
- Well aagin, they screwed up my appointment on the 4th, rescheduled for the 9th. The dr can strolling in 2 hours late. had the cytsco and biopsy done, dr tell hubby all clear see her in 3 months. Discharge ...
86 yr. old dad w/bladder cancer
- By vamimi · New reply 6:56 pm
- Discussion in Treatment choices · 5 replies
- Diagnosed 2 months as squamous carcinoma and not alot of research has been done on this type of cancer. He is getting CT scan this Wed., back to dr. on Friday to make decision about treatment if he does ...
Side effects of BCG therapy?
- By JMeyer · New reply 6:40 pm
- Discussion in Newly diagnosed · 10 replies
- I have just been diagnosed with bladder cancer after having TURB on 4/4/12. Like many on this site, I am young - only 42, never smoked, no history of cancer in my family, and never around chemicals. How ...
Help, Support needed
- By widgetwilk · New reply 6:09 pm
- Discussion in Newly diagnosed · 8 replies
- Someone dear to me has bladder cancer, male 49 yrs old, as I do not know all the right words yet, please bear with me, he has had 2 operations where 'bits' have been taken away, and after the first he ...
bladder
- By annamarie68 · New reply 4:20 pm
- Journal · 1 reply
- Finished my bladder chemo 2 or 3 weeks ago and I go to see the doctor in a couple of weeks. There are times that the color of my urine almost looks like it did when I first discovered the cancer and was ...
BLeeding
- By graycy · New reply 4:14 pm
- Discussion in Living with invasive bladder cancer · 4 replies
- I've been having hematuria since last week after a pre-cystectomy (will be done on 30th) colonoscopy which doesn't seem related, duh, but there it is. Maybe from having to drink a whole gallon of nasty ...
Vi gets Ct scan results
- By vgau · New reply 1:32 pm
- Discussion in Living with non-invasive bladder cancer · 19 replies
- Had ct scans on Friday. Chest ct and then abdomen/bladder area with and without dye. Hoping to find the answers to increased blood in urine. Abdomenal region: Nothing found in the abdomen so that is good ...
Carboplatin vs Cisplatin?
- By newsie · New reply 11:32 am
- Discussion in Metastatic bladder cancer · 13 replies
- After first Cis/Gem dose, DH's creatinine level went from 1.2 to 2.6. Consequently he missed second Gem dose. Level has come down to 2.4. But now doc is saying she wants to switch to to Carboplatin. Is ...
2 weeks gone
- By Wintergirl · New reply 11:28 am
- Journal · 2 replies
- Thursday will be 2 weeks since RC and neobladder surgery. Lou is doing very well, walking lots and also passing lots of gas. He is on solid food and is getting his appetite back. Doctors said he will ...
First day back to work
- By Garebo · Posted 10:52 am
- Journal · 0 replies
- May 14, 2012 First day back to work went as expected, got tired after 6 hours, luckily I have help for as long as I need. All in all I felt good at the end of the day...10 hours under my belt. 2 nd day ...
Gone aggressive/invasive
- By spoon61 · New reply 10:32 am
- Discussion in Metastatic bladder cancer · 9 replies
- I got the BCG's 12 total. Was doing well. Between my 2nd and third cyctoscopes a 3/4 in tumer developed that penetrated my bladder and the surrounding muscle tissue. There is also indications that it ...
First BCGs Coming Up
- By eilujg · New reply 10:26 am
- Journal · 8 replies
- It is one week until I begin my first round of 6weeks of BCG intillations. All I keep thinking about is I hope it works and that the Grade3 tumor diagnoses doesn't make recovery /reaccurance more difficult ...
Sign in to see more
Things you can do
Support BCAN
Help the Bladder Cancer Advocacy Network reach its goals and support people like yourself by making a donation today.
Discussion topics
Walk for Bladder Cancer
Resources from BCAN
Group leaders
Inspire others
About this community
The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.
About · Partners · Explore groups · Community guidelines · Our principles · Privacy · Terms of use · Start a group · Help · Feedback · Follow us on: 
Copyright © 2005-2012 Inspire · All rights reserved