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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Treatment
rituximab
- By louanne · New reply yesterday at 8:56 am
- 2 replies
- I have cns (cerbral vascuilits, diabetes, sle) I have been receiving Cyclophosphamide treatment but my consultant has said he is applying for funding for rituximab and may start this as the next course ...
SUBCONJUNCTIVAL INJECTION OF STEROID in the Eye
- By wcalvinw · Posted November 18, 2009
- 0 replies
- Just got my left eye KO'd with a SUBCONJUNCTIVAL INJECTION OF STEROID (w/TRIAMCINOLONE DIACETATE 40 MG), since the prednisone drops, 8x a day in both eyes don't seem to be helping. Has anyone else had ...
Remicade for Uvenitis and Sarcoid
- By suej1946 · New reply November 17, 2009
- 4 replies
- Hi I have been a member for awhile. Because of my Sarcoid I have unvnitis in my eyes. I have been on Prednizone drops for quite awhile. The real problem is that the drops are not helping and because of ...
Plaquenil
- By ptcbelle · New reply November 17, 2009
- 4 replies
- Wanting some advice please. My doc wants me to start on Plaquenil and I am so afraid. I have no definitive diagnosis at this point. Started out as parvovirus....that has cleared up but i continue to have ...
IgG I/V insurance coverage
- By TheVirtualPatient · New reply November 9, 2009
- 5 replies
- I have been getting I/M injections of IgG because of the cost of I/V. Has anyone else had luck with either insurance coverage or getting the cost down for I/V therapy ...
Dermatomyositis w calcinosis
- By Holli · New reply November 5, 2009
- 6 replies
- I suffer with extremely painful calcium deposits that break through my skin. I am desperately searching for someone that can give me knowledge of what to do. They are too large for surgery, not to mention ...
Plaquenil Problem?
- By SpiritSherrie · New reply November 4, 2009
- 6 replies
- I've been taking Plaquenil for approx 9 months. Began feeling a little better, until a couple of months ago, when a flare-up began that hasn't gotten better. Dr wants me to go back on Prednisone, after ...
Methotrexate and Sexual Side-Effects
- By mystory · New reply October 27, 2009
- 6 replies
- Hello All. I am new to the group and I must say, it is nice to hear so many stories that let me know "I'm not the only one"... I was wondering if anyone that is on injection methotrexate specifically ...
Myasthenia Gravis and breathing limitations
- By MarieTwinTubes · New reply October 25, 2009
- 4 replies
- Hello, Everyone. Does anyone have experience with myasthenia gravis and treatment for breathing limitations? My son in law has severe myasthenia gravis and is struggling with his breathing and swallowing ...
Undifferciated Connective Tissue Disease
- By neatolokey · New reply September 21, 2009
- 5 replies
- Hi, Today I felt like I needed to get out of my head and read about other people dealing with this disease and it has helped to just know I am not going crazy!! I have been dealing with UCTD for about ...
Generics Vs Brand Name
- By Christmaslady · New reply September 16, 2009
- 7 replies
- Ok, here goes. I have taken Generics and Brand names. I am just coming off of Fluoxetine made by SANDOZ. I was on the Brand name Prozac for years and it seemed to really help with pain, and keeping everything ...
Raynaud's and Digital Ulcers
- By Kestrel · New reply September 3, 2009
- 2 replies
- Altho I've had Raynaud's for decades, just developed an ulcer on my finger. I probably don't have to mention how painful it is. I'd like to know how others are being treated. So far, I have nitro cream ...
Laser Surgery for Scarred Eyes from Sarcoid??
- By BeachBumJan · Posted August 14, 2009
- 0 replies
- Hi Everyone I'm not doing good today. Went to the eye dr yesterday I have 95% scarring in my left eye from the Sarcoid. He wants to do laser surgery to create another hole in my eye since the pupil is ...
Has anybody!
- By RT09 · Posted July 27, 2009
- 0 replies
- I hope someone answers this posting! I really need to know if anyone else has been on this combo of meds for 2 yrs. Prednisone ; started @ 100mg. tapered down to 15mg. daily. Cellcept @ 2 grams daily ...
AMELIA HELP
- By amelia58 · Posted June 24, 2009
- 0 replies
- Blank I call Amelia and are Italian, my husband it suffers from 6 years of ANCHYLOSING SPONDYLITIS and is in cure with biological drugs the REMICADE, I would want to know if someone of you suffers from ...
DNA Study for WG Patients
- By clinicalgenetics · Posted June 9, 2009
- 0 replies
- DNA Study for WG Patients Blood Donations Needed The goal of Dr. Katherine Siminovitch’s study: ‘Identification of Novel Wegener’s Granulomatosis Susceptibility Genes’ is to identify the genes that confer ...
I can spit and swallow saliva again!
- By PeggyTllmn · New reply May 5, 2009
- 7 replies
- Okay, forgive me for the title, but this is pretty exciting to me! My recent 1st visit to the Rheumatologist has paid off. For my EXTREMELY dry mouth, she prescribed CEVIMELINE (Evoxac™) capsules and ...
Vasculitius
- By Tippy · New reply April 12, 2009
- 2 replies
- Anyone being treated for Vasculitius ...
Lambert Eaton Myasthenic Syndrome
- By Laveta · New reply April 3, 2009
- 2 replies
- My husband has Lambert Eaton Myasthenic Syndrome(LEMS) He was dx in October 2008. We finially found 2 wonderful neuros that helped him get his dx. He has just received his 3,4 DAP which is an orphan drug ...
Sjogrens and Dentistry
- By PeggyTllmn · New reply March 21, 2009
- 4 replies
- Some good news! Today my dentist told me that there are new treatments and products available for those of us suffering with Sjogrens Syndrome. I will learn more over the next few visits/weeks and share ...
