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I have lost my power

deebelle
  • By deebelle · New reply 2:37 am
  • Journal · 23 replies
  • The Lost Hip : I scheduled December 17 for total hip replacement but my daughter does not like it and refuses to help because its bad timing at the Christmas season. Note that she was there for my back ...

pots/dysautonomia

Nina372
  • By Nina372 · New reply 12:50 am
  • Journal · 15 replies
  • Does anyone here have experience or knowledge about getting a pace maker for their postural orthostatic tachycardia syndrome (pots ...

Happy Thanksgiving!

Jody-C
  • By Jody-C · New reply yesterday at 10:56 pm
  • Journal · 2 replies
  • I want to wish all a Happy Thanksgiving and thank those of you that have 'chatted' with me. We've helped each other these past few months I've been on Inspire and I appreciate the responses I've received ...

Feeling really low today...

Whitetiger
  • By Whitetiger · New reply yesterday at 10:55 pm
  • Journal · 6 replies
  • I hate to come on and start so negitive but that is how I feel. I was up all night and also kept my poor husband up. I feel so very ill (as I am sure do many others who are not complaining.) My breasts ...

Which autoimmune disease(s) do you have?

sport
  • By sport · New reply yesterday at 9:23 pm
  • Discussion in Living with an autoimmune disease · 181 replies
  • Since there are at least 80 distinct autoimmune diseases, I'm asking which one(s) people here have ...

This is NOT an inspirational entry

piperpetpete
  • By piperpetpete · New reply yesterday at 9:13 pm
  • Journal · 3 replies
  • After the last visit to the rheumy, who is still not wanting to put the sclero dx, I am tired....tired of all the bullshit and "maybes ,maybe nots" She had more lab tests done...12 vials! and said "well ...

I don't know where to start....

Whitetiger
  • By Whitetiger · New reply yesterday at 7:59 pm
  • Journal · 5 replies
  • I was so happy when my husband found this site as I had tried for years in UK to find someone with my conditions. It was such a long list that I did'nt know how to write a profile without it sounding ...

rituximab

louanne
  • By louanne · New reply yesterday at 1:42 pm
  • Discussion in Treatment · 1 reply
  • I have cns (cerbral vascuilits, diabetes, sle) I have been receiving Cyclophosphamide treatment but my consultant has said he is applying for funding for rituximab and may start this as the next course ...

to boost or not to boost the immune system

Annette99
  • By Annette99 · New reply yesterday at 12:28 pm
  • Discussion in Living with an autoimmune disease · 7 replies
  • I'm wondering everyones thoughts on whether we should boost our immune systems with all the wonderful supplements out there or what? Any thoughts ...

SO excited to share what I have found!

pwrsrg77
  • By pwrsrg77 · New reply yesterday at 10:06 am
  • Journal · 45 replies
  • I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...

Does anyone have hyperviscosity syndrome?

mammathreetime
  • By mammathreetime · Posted yesterday at 9:07 am
  • Discussion in Getting a diagnosis · 0 replies
  • I was in the hospital for what the Drs thought were heart problems. I have IgA nephropathy. i was told to make an appointment with an immunologist, but the closest one is an hour away. I was looking up ...

Question to anyone who would know ..

shortstuff
  • By shortstuff · Posted yesterday at 4:51 am
  • Journal · 0 replies
  • Can or does R.A. cause loss of sleep ...

Thanksgiving

Meema
  • By Meema · New reply November 23, 2009
  • Journal · 6 replies
  • Hi all, I pray each of you have a great Thanksgiving, and have a wonderful time and are most of all as pain free as possible Rest in between your fun and are able to reach the end with a sigh of happiness ...

Should I be concerned?

ptcbelle
  • By ptcbelle · New reply November 23, 2009
  • Discussion in Living with an autoimmune disease · 10 replies
  • I am currently taking prednisone and plaquenil for a autoimmune disorder that remains elusive to name right now (no definitive dx). Well, I have never really felt well since starting meds. People always ...

TIRED OF EXPLAINING WHATS WRONG WITH ME

Hollee
  • By Hollee · New reply November 23, 2009
  • Discussion in Living with an autoimmune disease · 12 replies
  • I have a mixed connective tissue disease along with Raynauds syndrome. I am constantly explaining to friends, and family that I am tired and don't feet that good. This always comes up when family and ...

Knocked out and unhappily married

musbmh
  • By musbmh · New reply November 23, 2009
  • Journal · 18 replies
  • I am currently being worked up- I have so far been told i have a mixed connective tissue disease- WOW- I was surprised because I was the healthiest person I knew, and very active. I work in the medical ...

polymyalgia rheumatica

ayel
  • By ayel · New reply November 23, 2009
  • Journal · 12 replies
  • I dont have fibromyalgia but do have polymyalgia rheumatica, along with giant cell arterits, I know fibro and poly are very similar. would be interesting to talk to others out there who suffer with either ...

Spouse cannot handle an autoimmune disease

musbmh
  • By musbmh · New reply November 23, 2009
  • Discussion in Getting a diagnosis · 7 replies
  • I am recently married, recently diagnosed and will probably add to this list being separated. My husband does not understand (though he says he does) and is ready, able and willing to walk away. Sadly ...

GOOD NEWS BAD NEWS PULMONARY CHECK UP

Blkjewelz8960
  • By Blkjewelz8960 · New reply November 22, 2009
  • Journal · 25 replies
  • Well had my 6 month Pulmonary check up. Visited the vampires and photographer first. Took pretty pictures of my scarred up lungs. They have automated the system now so no film to take with you. Did my ...

looking for yoga tape

LittleDudesMom
  • By LittleDudesMom · Posted November 22, 2009
  • Journal · 0 replies
  • Can anyone recommend a gentle yoga tape or one that isn't too strenuous? Thanks ...

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