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Discussions

Spouse cannot handle an autoimmune disease

musbmh
  • By musbmh · Posted November 19, 2009
  • In Getting a diagnosis · 6 replies
  • I am recently married, recently diagnosed and will probably add to this list being separated. My husband does not understand (though he says he does) and is ready, able and willing to walk away. Sadly ...

Bloated Upper Belly

JoanCMD
  • By JoanCMD · Posted November 19, 2009
  • In Symptoms · 5 replies
  • My upper belly has been bloated to the point that I look like I'm 7 months pregnant and carrying it very high. I still have a waist line on sides and in back. This has happened over the last year or so ...

SUBCONJUNCTIVAL INJECTION OF STEROID in the Eye

wcalvinw
  • By wcalvinw · Posted November 18, 2009
  • In Treatment · 0 replies
  • Just got my left eye KO'd with a SUBCONJUNCTIVAL INJECTION OF STEROID (w/TRIAMCINOLONE DIACETATE 40 MG), since the prednisone drops, 8x a day in both eyes don't seem to be helping. Has anyone else had ...

remicade use

rnstephdcandbri

New Here/ Lupus/MCTD(question vitD,calcitriol

kmb
  • By kmb · Posted November 17, 2009
  • In Newly diagnosed · 1 reply
  • Hello. I recently got results back from a Rheumatogist visit. He says that I have antibodies for Lupus/MCTD. I have been ill for the past year. I thought it was sarcoidosis because I had a biopsy proven ...

fed up with drs

sickandtierd
  • By sickandtierd · Posted November 16, 2009
  • In Getting a diagnosis · 10 replies
  • i am soo...pissed right now. after going to drs for over 2 years and getting a new primary care dr that seem to care, and looked over all my records and did his own set of blood work and diagnosed me ...

Should I be concerned?

ptcbelle
  • By ptcbelle · Posted November 15, 2009
  • In Living with an autoimmune disease · 8 replies
  • I am currently taking prednisone and plaquenil for a autoimmune disorder that remains elusive to name right now (no definitive dx). Well, I have never really felt well since starting meds. People always ...

WHAT DR'S will do to you

keingram
  • By keingram · Posted November 15, 2009
  • In Symptoms · 1 reply
  • I AM A STROKE VICTIM SINCE 2002, IN APRIL 2008 I HAD A BACLOFEN PUMP PUT IN WHAT THIS DOES IS HELP WITH THE SPACITICY , MUSCLE SPASM, MAKE YOUR GATE BETTER.I TOOK A PILL CALLED BACLOFEN AND IT CAUSED ...

How many auto immunes can one person get?

Annette99
  • By Annette99 · Posted November 15, 2009
  • In Newly diagnosed · 1 reply
  • I've had subacute cutaneous lupus and raynauds for 11 years and was recently diagnosed by my rheumatologist via bloodwork, with mixed connective tissue disease, and rheumatoid arthritis. sent me to the ...

how many autoimmune diseases can 1 person rack up in a lifetime?

AmyLauren
  • By AmyLauren · Posted November 15, 2009
  • In Newly diagnosed · 6 replies
  • Two weeks ago I was diagnosed with Hashimoto's, and Premature Ovarian Failure....(i had already diagnosed myself with it two years ago and was just waiting for the docs to finally make it official) I ...

discrimination

Tinman
  • By Tinman · Posted November 9, 2009
  • In Living with an autoimmune disease · 4 replies
  • I am on my way right now to put in a discrimination case for assuming I was a liar, druggy, drinker, abnormal mentally and many other things rather than truly ill with a rare disease. Medications and ...

Calcium deposits??? Please help!

donna_untamed
  • By donna_untamed · Posted November 5, 2009
  • In Newly diagnosed · 1 reply
  • I am desperately searching for some advise. If anyone would please take a minute to reply with any, I would be forever grateful! About three years ago I started getting sick. It is at the point now where ...

polymyalsia rheumatica

cinnabar
  • By cinnabar · Posted November 4, 2009
  • In Newly diagnosed · 1 reply
  • Hello everone, I'm a 56 year old female that was recently diagnosed with PMR. I would love to here from anyone who has this and what input they can give me. I'm a diebetic and cannot take prednisone because ...

Plaquenil

ptcbelle
  • By ptcbelle · Posted November 3, 2009
  • In Treatment · 4 replies
  • Wanting some advice please. My doc wants me to start on Plaquenil and I am so afraid. I have no definitive diagnosis at this point. Started out as parvovirus....that has cleared up but i continue to have ...

wow

marana
  • By marana · Posted November 1, 2009
  • In Living with an autoimmune disease · 2 replies
  • Hi guys joined this group last week and have been to scared to write but I feel like I have gotten to know some of you through reading the discussions. All I can say is wow, I thought my life has been ...

RA or Lupus

Judy59
  • By Judy59 · Posted October 27, 2009
  • In Getting a diagnosis · 5 replies
  • I was diagnosed with RA in 2000, and my Rheum says that I do not have Lupus, but I have this rash on my face and on my chest. He says that you can not get Lupus after about 45 years of age. I am wondering ...

Help please

breno14
  • By breno14 · Posted October 26, 2009
  • In Getting a diagnosis · 4 replies
  • Hi everyone, It sounds like there is alot of very brave people in here, quite inspiring! I have been ill for about 2 months and have had numerous blood tests etc with no diagnosis. I often google my symptoms ...

Myasthenia Gravis and breathing limitations

MarieTwinTubes
  • By MarieTwinTubes · Posted October 23, 2009
  • In Treatment · 4 replies
  • Hello, Everyone. Does anyone have experience with myasthenia gravis and treatment for breathing limitations? My son in law has severe myasthenia gravis and is struggling with his breathing and swallowing ...

SLE, CPPD, Carpal Tunnel and Inflammatory Arthritis! Linked???

MarkandSusan
  • By MarkandSusan · Posted October 23, 2009
  • In Newly diagnosed · 0 replies
  • Looking for some advice, in particular for medications and whether they are linked in any way. 6 weeks ago I was fit and healthy and working full time. Now, I'm visiting a rheumatologist for SLE (have ...

Oh My God The Pain

kraemer40
  • By kraemer40 · Posted October 18, 2009
  • In Living with an autoimmune disease · 1 reply
  • Dr. says it fibromylgia. I like many, have gone through many drs. Nerve pain is hitting hard. Doing fairly decent on medication,lyrica,tegretol, savella and now lortab. The lortab didn't even touch the ...

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