although I have been newly diagnosed, I feel like I know this disease very well. My (several) doctors have explained it to me (as well as several web sites, and other professionals and lots of good people who have shared what their MCTD is like) that this is a real disease. It can become life threatening and should be carefully monitored by your doctor(s). Mostly what it is is having an autoimmune disease that is probably pronounced such as raynauds, or maybe a thyroid problem, but also have the underlying symptoms of lupus, RA, or scleroderma, and possibly others. Any one of these diseases can become full blown, and more than likely if you are having serious symptoms like i am, one of them will. however, if your symptoms are mild, they may not progress! Or you may go into remission indefinitely.
I have every RA symptom there is, and some lupus and scleroderma symptoms. I take plaquenil, prednisone and a host of other meds for autonomic neuropathy.
I find there is no telling from day to day what will happen...Undifferentiated only means there is not yet a full blown disease named which would be causing the symptoms...it does NOT mean there is no disease...there is...WILL it develop into a full blown NEW disease is the question.
Today, unilaterally, every joint in my body from my head to my toes is inflammed, sore, clicking and popping in and out of place..my fingers feel like they are broken. I am SO tired and even my pelvic bones are clicking.
I am writing this because I KNOW there are more out there like me...more who need to know what this means...every case will be different, but every case should be taken seriously as every autoimmune problem is exactly that...a problem. my wish is not to scare anyone, but to shed some light....
I do not know how this happened, but I have had autonomic neuropathy for 11 years....it could have been a virus, a surgery, a flu shot...anything that triggered what was underlying. I have ALWAYS had raynauds symptoms, but never like I have now.
I am not trying to alarm anyone, but to me, knowledge is power.
Good luck to all of us!