Stiff limb syndrome

toph136
  • By toph136 · August 5, 2010 at 7:29 pm · 3 replies
  • In Living with an autoimmune disease
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Hi there. I was diagnosed with SPS 5 years ago. It is in my right foot and leg. My foot is deformed which makes balance and walking difficult. Because it hasnt progressed up my body like it normally does they think I have a variant of SPS called Stiff Limb Syndrome.
There is not as much information on this variant on the net. Practically none really. If anyone knows anything about this variant any info would be greatly appreciated.

I wonder if it can turn into full SPS or always stay SLS. so many questions and not a lot of answers. My neuro dosent know either. Im the only patient he has ever seen with this. Im in New Zealand and there are only 2 of us in the whole country.
any help would be great.
Thanks Vicki

3 replies   

daisybonnie

hi try this site its good for infomation www.niams.nih.gov gud luck

toph136

Thanks daisybonnie. I had a look abd there was info on Stiff person syndrome but not SLS. Then again maybe Im just to blonde to find it. Il have another go.
Thanks again Vicki

daisybonnie

I LIKE UR DOG I HAVE 2 YORKSERHIRE TERRIERS IF U EVER NEED TO TALK HERES MY NUMBER 07549858381

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