I wanted to get opinions and/or advice from people living with either or both of these illnesses.
I was formally diagosed with Endometriosis at the age of 24 through a lap procedure. Shortly thereafter, I had a medical 'crisis' and was put on Provera for 10 days, and low and behold I became pregnant soon after ending that course of medication (1993). I'd been told since I began my period at age 14 that I would never conceive or carry a child. (this is what my mom told me, that the doctors told her about me, but was never given a the reason why).
Fast forward to 2003, almost exactly 10 years later, I have exactly the same type of 'crisis' and go to my obgyn who sends me in for an Ultrasound before starting any treatment. The report comes back with the diagnosis of Adenomyosis. In fact, the technician who read the results put in the report that my case was so bad, he could actually diagnose from an Ultrasound, which is almost never the case. I was put on Depot Lupron immediately to get my symptoms under control.
For years now, I have been wondering if I have an autoimmune disorder and have asked several providers, specialists, etc...if Endometriosis and/or Adenomyosis ARE in fact autoimmune disorders and am always told 'No'. However, I've read so much online, and have actually came across article published in 2008 recognizing Endo as an autoimmune disorder...and just yesterday I saw that it is now showing on the list of Social Security Disability Diagnoses'.
The reason why it is so frustrating is that I do not fight infections well...I almost died after a post op infection a few years ago, and then last year I fought an infection for almost 5 months after a dental procedure (which resulted in the loss of a tooth, bone jaw loss that required oral surgery and grafting) and now I have abscesses in my spleen which have turned into Granuloma's.
None of my doctors seem to take seriously that I can not fight infections and do not attempt to even entertain my theory that the Endo, Adeno are causing my weakened immune system...forcing me into these life threatening situations.
Am I crazy? Is it wrong to want definitive answers regarding my simple question? Are Endo and Adeno Autoimmune disorders/diseases?