Autoimmune Diseases Support Group

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overseas

By nishalove · New reply 10:22 pm
Journal · 14 replies
I might as well move to canada or europe..because fda here sucks ...

NEW patient: Scleritis from my psoriasis Need Help!

By RobynR · Posted 10:04 pm
Journal · 0 replies
I have had ongoing eye inflammation for several years on and off diagnosed as uveitis, iritis, episcleritis, and now scleritis. Went to have bloodwork, fastforward rheumotologist says the scleritis is ...

Justin passed

By sherryberrys · New reply 3:18 pm
Journal · 33 replies
I lost justin april 26th. I went to wake him up for dialysis to find him dead. Take care everyone. Much love. Sherry ...

Thanks to all

By sherryberrys · New reply 10:18 am
Journal · 2 replies
Thank you to all of you who read and posted to my post. I appreciate you all. I am here if you ever need a friend ...

Why can't doctors get a 'proper' diagnosis?

By Waff · New reply 9:57 am
Discussion in Living with an autoimmune disease · 7 replies
I am living with an autoimmune disorder that ticks certain boxes on illnesses such as sarcoidosis & Non-alcoholic Steato Hepatitis, but not all so I struggle on every day undertaking new drugs & rejecting ...

The week from Hell!!! Venting....

By christinejm · New reply 7:20 am
Journal · 16 replies
Last Friday i had my checkup with my RH Doc. My body is not handling being on the prednisone and MTX.. so Mtx is discontinued until i get my catscan/MRI/MRA to see how the RF is doing. I am also tapering ...

UPDATE, Stay Strong!!

By FunSyze · New reply 3:21 am
Journal · 8 replies
Hi everybody ;) I would like to share a post I shared with my new friend Nanc1234, in hope that it will help many who are suffering. Nanc1234, I pray you are having some relief from your pain today and ...

Pinsky 265 - masto and "chicken skin"

By COOP8991 · Posted 2:28 am
Journal · 0 replies
Pinsky - you posted something regarding "mystery masto " on 12/31/11 and in it you talked about having what you call "chicken skin." (Those awful white bumps that seem come up from under the skin) There ...

Looking for some emergency help for a friend

By rhf340 · New reply yesterday at 7:19 pm
Journal · 7 replies
MY friends 5 year old son has a rare form of Leukemia but that is not what this is about. She found a local equestrian farm that lets sick kids go and enjoy their horses for free. The main horse that ...

MCTD itchies

By GabrielleAngelina · New reply yesterday at 4:05 pm
Discussion in Living with an autoimmune disease · 9 replies
Hi, I am back again. I just went through an hour + of the severe itchies again (It started at about 2:15 EST in the US). I was writhing and wincing in discomfort while lying on the bed. I was moaning ...

SPS/Fibro. and my life as of date

By LaurylThomas · New reply yesterday at 3:07 pm
Journal · 21 replies
So sorry, I haven't journaled in awhile... Alot of things have been going on, as you already know about. Here's an update. Nothing has changed in the way my family treats or helps me-I think that maybe ...

CAN THERE BE LIFE WITHOUT PREDNISONE?

By clscolo · New reply yesterday at 10:19 am
Journal · 7 replies
Hi everyone with an autoimmune disease. I've been taking the Predinisone for a week now and the severe pain has lifted. I worry about long term use and I get the impression that many of us in the same ...

Henoch Schonleinpurpura-Purpura

By sticorp · Posted yesterday at 8:20 am
Discussion in Newly diagnosed · 0 replies
Hello. My son is 18 years old and has recently been diagnosed with HSP. Since Christmas of 2011 he has has several bouts of rashes, swollen joints, and painful abdomen cramps. He has been symptom free ...

ONLY A BREATH AWAY....

By mybutterfly · New reply yesterday at 1:45 am
Journal · 8 replies
Jim (my dear hubby since 1975...how many years is that??) ....should be going home tomorrow!!! He's doing so very much better....sitting up....eating....even net surfing a bit :) I'm so very thankful ...

My mothers day

By sherryberrys · New reply May 14, 2012
Journal · 5 replies
I had decided I wasnt celebrating Mothers Day. Justin was gone and I lost my mom Sept. But I woke up today and realized I still had to fufill one last wish for my son and that was to spread his ashes ...

Increase of Autoimmune diseases.

By fordfrog · New reply May 14, 2012
Discussion in Living with an autoimmune disease · 41 replies
I work for a Lab and it seems everyday more and more people I see, have some kind of Autoimmune problems. Lately young children. I would like to know if there is a drastic increase, in autoimmune cases ...

Anyone else like me. Need some friends to talk to.

By jenjenlanning · New reply May 13, 2012
Journal · 3 replies
Well I am a 32 momma of 3 . And a great wife until this past year. I have been diagnosed with AS. Ankyling spodylitis how ever you spell it. I am on sulfer mobic and cymbolta. Thay are trying to fix my ...

Multiple auto immune disorders

By auntiekat · New reply May 13, 2012
Discussion in Living with an autoimmune disease · 8 replies
I have multiple auto immune disorders, psoriatic arthritis, diabetes, lichen sclerosis,etc. I am in a severe inflammation flare up. It is soooo frustrating that my family and friends don't understand ...

Senate investigates pain advocacy groups ties to drug companies[APF closes]

By coonhound · New reply May 13, 2012
Journal · 3 replies
We have observed many of our inspire friends losing their medications and being left to suffer. Our biggest advocate,The American Pain Foundation closed amid allegations of controversial funding(90 ...

new fear

By Bels · New reply May 13, 2012
Journal · 12 replies
Hi everyone, I wanted to get somethng off my chest. Yesterday my husband got a promotion. Great right? I should be so happy; and I am for him but I'm not for me. He'll have to travel once a month to New ...

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Inspire connects patients, families, friends and caregivers for support and inspiration.