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JWNugent
  • By JWNugent · Posted 1:00 am
  • Journal · 0 replies

Went to Doc today

LadyForce
  • By LadyForce · Posted yesterday at 9:23 pm
  • Journal · 0 replies
  • Well, I went to the Doc today, first time in a long time... I know, I know, I should have gone a long time ago... bad me. The doc refilled my presecriptions (Thank the Goddess that he refilled my vicodin ...

Went to State for assistance

LadyForce
  • By LadyForce · New reply August 19, 2008
  • Journal · 1 reply
  • Well, I finished my appl for State Assistance and sat/stood/walked, etc... there for 3 hours. Now it hurts like *#&@*# !!! The 'good news' is that I got a 'Pending Medical' slip so I could go see a doctor ...

Back to Day-to-Day Stuff

LadyForce
  • By LadyForce · New reply August 19, 2008
  • Journal · 2 replies
  • Well I thought that I was on the mend from the other day, but alas, I was wrong... or it's just the day to day stuff getting to me again. My hips are bad today. My left side is the weakest, thanks to ...

My First Journal

LadyForce
  • By LadyForce · New reply August 18, 2008
  • Journal · 4 replies
  • Well, I'm an idiot!!! First of all, I wanted to spend time with my husband... how silly of me :). My husband is a drummer, and a courier. We spent the day together, and then decided that I would go with ...

Patience

LadyForce
  • By LadyForce · Posted August 17, 2008
  • Journal · 0 replies
  • Well, really haven't been out of bed much since we got home this morning. The pain has mostly subsided, but I haven't really done anything either. I am still having muscle spasms, although they are not ...

My first journal entry-finally diagnosed

AmyRinNC
  • By AmyRinNC · New reply August 12, 2008
  • Journal · 6 replies
  • I was diagnosed with sarcoid after nearly 3 years of doctor visits, medicines, therapy, etc, because no one could figure out what was wrong. I literally went from being a very energetic wife and mom of ...

IGA coming from Nephrotic Syndrome

MariekeV
  • By MariekeV · New reply August 12, 2008
  • Journal · 2 replies
  • Hello everybody, I want to get in contact with people that have IGA nephropathy after having started Nephrotic Syndrome at early childhood stage. What medication have you had, prognosis given by nephrologists ...

Hi Friends!!!

BeachBumJan
  • By BeachBumJan · New reply August 11, 2008
  • Journal · 3 replies
  • Well, I'm feeling much better and I start back to work this Thursday, July 31st. I still get short of breath but I'll have to learn to live with it... it's better than the alternative. I will be using ...

Sed rate questions

Twuzzy
  • By Twuzzy · New reply August 10, 2008
  • Discussion in Treatment · 1 reply
  • I am new to this site. I was diagnosed with Sarcoid 12/07 after a surgical biopsy of my lymph nodes. My doctor (Rheumatologist) started me on 60 mg of prednisone per day 1/08, which has gradually tapered ...

sarcoidosis

bigdog
  • By bigdog · Posted August 10, 2008
  • Discussion in Symptoms · 0 replies
  • I'VE HAD SARCOIDOSIS FOR 3 YRS NOW ITS AWFUL TREATMENTS WHEN YU GET A COLD IT TAKES LONGER TO GET BETTER ON REMICADE MAKES YOU FEEL YUKKY HAVING LAPBAND SURGERY OCT ...

Sjorgrens Syndrome

sonshine33564
  • By sonshine33564 · New reply August 8, 2008
  • Discussion in Newly diagnosed · 5 replies
  • After years of pain and stiffness, I was sent to a Rheum and bloodwork has come back as me having Sjorgrens antibodies. Lupus and Rheum arthritis are not showing up. He wants to start me on Plaquenil ...

ORGANIC FOOD: COST and BENEFITS

JanetGrant
  • By JanetGrant · New reply August 7, 2008
  • Journal · 24 replies
  • Hello to all and I hope you are having a good, happy day. After reading and believing in Delirium's excellent post titled: "Diet For Sarcoidosis", I just wanted to put in my two cents about our food here ...

FEVERS

JWNugent
  • By JWNugent · New reply August 5, 2008
  • Journal · 4 replies
  • FEVERS You can feel it coming on The heaviness of false exhaustion Arriving with a warning Foretold by respiratory distress Fits of sneezing difficulty breathing Feel your self slowly breaking down The ...

AGENT ORANGE

JWNugent
  • By JWNugent · New reply August 4, 2008
  • Journal · 6 replies
  • AGENT ORANGE It flowed like a cloud Ground bound crop dusting An odd orange yellow mist Silently from the trees Sweeping into our clearing Expecting this as riot gas We all held our breath Couldn’t under ...

Why are we here?

Brian
  • By Brian · New reply July 30, 2008
  • Journal · 79 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

My daughter Alina

heidisosa
  • By heidisosa · New reply July 30, 2008
  • Journal · 1 reply
  • My daughter is 15 years old. At age 2 she was diagnosed with hypoparathyroidism. At age 3 she was then diagnosed with Addisons disease. At age 11 she was diagnosed with alopecia areata. At age 13 she ...

I'm Back!

CoastalCoreKayla
  • By CoastalCoreKayla · New reply July 30, 2008
  • Journal · 5 replies
  • Hey everyone, I'm finally back. My computer was down for a while and then after that I had a ton of wedding stuff to do. I'm officially a wife as of July 13th! In other family news, my daughter is turning ...

Gait problems & Stiff Person Syndrome (SPS)... Any hope?

serendipity
  • By serendipity · New reply July 27, 2008
  • Journal · 32 replies
  • I have found quite a few other postings regarding SPS, so I would like to share this and am hopeful that some of you can offer your input.... I am posting this in all of the Groups to which I belong in ...

Bacteriality: L-Form Bacteria

CoastalCoreKayla
  • By CoastalCoreKayla · Posted July 26, 2008
  • Discussion in In the news · 0 replies
  • My mother sent me this article in an e-mail. Some of you may have read it already but I'll post a link to it as well as part of the article. See link for complete version. Link: http://bacteriality.com/2007/08/15/l-for ...

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