The Association of Peyronie's Disease Advocates Support Community connects men with Peyronie's disease and their partners for practical and emotional support... More about this group

Xiaflex

Pictou123
  • By Pictou123 · New reply yesterday at 4:18 pm
  • Discussion in Injections · 17 replies
  • Has anybody started xiaflex treatment yet? I'm trying to understand when it will be available ...

Contemporary Management of Peyronie’s Disease

PeyroniesMan
  • By PeyroniesMan · New reply April 12, 2014
  • Discussion in News and research · 17 replies
  • This is a link to a UroToday interview conducted at Mayo Clinic Reviews in Urology 2014. This was conducted by Dr Mulhall as a presentation to Urologists but the information he presents is worthy for ...

Radio Show

PeyroniesMan
  • By PeyroniesMan · New reply April 11, 2014
  • Discussion in Advocacy and awareness · 19 replies
  • This coming Friday evening I will be hosting a new Radio broadcast. The title of the new show is "Men's Health Matters". We will be discussing different health matters that can and do sometimes affect ...

Dr. Morganstern

peyroniesnofun

Vitamin E Is it good to take?

PeyroniesMan
  • By PeyroniesMan · Posted March 31, 2014
  • Discussion in Oral medication treatments · 0 replies
  • Hey Gals and Guys, I came across this article through one of my contacts in the industry. Not only is Vitamin E NOT a viable treatment for PD, it has now been determined that it could very well cause ...

Just Diagnosed, What will happen?

Natet18
  • By Natet18 · New reply March 26, 2014
  • Discussion in General questions and comments · 8 replies
  • Hello, I was just diagnosed this past week. I'm a 32 years old, and started experiencing painful erections about two months ago. It was kind of painful when flacid too at first, but that went away after ...

Urologists at Johns Hopkins

MT_in_DC
  • By MT_in_DC · Posted March 24, 2014
  • Discussion in Working with your doctor · 0 replies
  • Does anyone have information about Drs. Arthur Burnett or Kevin Lenuell Billups at Johns Hopkins? I'm looking for information about anything from demeanor, to treatment methods, to cost. I'm thinking ...

PD is not necessarily all bad

giantbourbon1
  • By giantbourbon1 · New reply March 24, 2014
  • Discussion in Relationships and intimacy · 3 replies
  • I've just joined this group, so please forgive me if I touch upon subjects that have been previously discussed. I'm 63 years old, and just noticed my curvature about a year ago. It's not painful, thank ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Traction

PeyroniesMan
  • By PeyroniesMan · New reply March 3, 2014
  • Discussion in Devices · 9 replies
  • I wanted to give a fair and balanced report on the traction device, based upon a recent post by Jim_in_Texas in the thread "Topical Verapamil". I only felt it fair to show the study that he mentioned ...

Living with PD

punkinbudd
  • By punkinbudd · New reply March 1, 2014
  • Discussion in Living with Peyronie's disease · 3 replies
  • My husband's first episode of PD hit when he was about 32 (currently he is 65) with a small nodule on left towards the head of the penis with a slight indent. Doctors in the 80's suggested lots of vitamin ...

Topical Verapamil

Jim_in_texas

Finasteride

PeyroniesMan
  • By PeyroniesMan · New reply February 23, 2014
  • Discussion in General questions and comments · 11 replies
  • I'm curious to know just how many of the members (men) here in this forum have used and/or are using, Propecia or Proscar? I would further ask that if you are, can you please provide some, if any, side ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Loss of Penile Size

Jackp
  • By Jackp · New reply February 19, 2014
  • Discussion in Living with Peyronie's disease · 2 replies
  • My doctors tell me the most common complaint from men with peyronies is loss of penile size. Over the years I have talked with many man and this subject always comes up (no pun intented). A couple of ...

Stem Cell Treatment

guztavo1
  • By guztavo1 · New reply February 17, 2014
  • Discussion in Other non-surgical treatment options · 16 replies
  • Hi Guys, Just wanted to let you know that i finally went through the Stem Cell treatment mentioned here: http://www.inspire.com/groups/associatio n-of-peyronies-disease-advocates/discuss ion/new-clinical-trial-on-pd/?reply_sort ...

Read this please, and just share your warm thoughts :)

jdawg44
  • By jdawg44 · New reply February 14, 2014
  • Discussion in Living with Peyronie's disease · 1 reply
  • Hi yall. Im brand new to this forum but I would just like to share my story. Its a doozy so sit tight. Also I really have no idea how to navigate through this website lol. Anyway. I am 23. This all happened ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

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About this community

The Association of Peyronie's Disease Advocates Support Community connects men with Peyronie's disease and their partners for practical and emotional support. This community is sponsored by the Association of Peyronie's Disease Advocates, an Inspire trusted partner.