The Andre Sobel River of Life Support Community connects single parents, families and friends of pediatric and teen patients and survivors for support and inspiration... More about this group

All new and active discussions & journals

DMD Treatment

AKSHAT2009
  • By AKSHAT2009 · New reply yesterday at 1:57 am
  • Journal · 3 replies
  • dear all my son is 18 months old, he is diagosed for DMA . pls guide me about this treatment . what is the present statsu for this disease ...

A wonderful idea from the mind of a little girl

dleach
  • By dleach · New reply November 12, 2009
  • Journal · 4 replies
  • Watch this story about an amazing little girl who let the world know how she felt about them. http://abcnews.go.com/Health/CancerPreve ntionAndTreatment/child-brain-tumor-leav es-notes-family-death/story?id=8998612 ...

Inspire members featured

Brian
  • By Brian · New reply November 4, 2009
  • Journal · 29 replies
  • Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

MY WAY TO A NEW ME

joni_kay
  • By joni_kay · New reply November 2, 2009
  • Journal · 7 replies
  • I WANT T O CHANGE INSIDE AS WELL AS OUTSIDE,I BELIEVE IN MY HEART I CAN HELP MYSELF AND OTHERS EXSPECIALLY MY DAUGHTER ...

Choosing Doctors & Hospitals

coachphyllis
  • By coachphyllis · New reply October 30, 2009
  • Discussion in Finding the best care · 4 replies
  • As parents, we are always making decisions on behalf of our children. As parents of sick children, those decisions are critical. The question is how do we find the right doctors for our child? How do ...

communicating what you need

dleach
  • By dleach · New reply October 29, 2009
  • Journal · 4 replies
  • I think the hardest thing to do is ask for specific help. I think when everyone asks "what can I do" we often say nothing or say don't worry about it. Why are we so shy to admit we may need someone to ...

Hey All

SuaSponte
  • By SuaSponte · New reply October 13, 2009
  • Journal · 3 replies
  • Sorry, i been flying about for work this week! How is everyone? I sooo look forward to reading all your posts ...

Strenth Of Mind And Body

SuaSponte
  • By SuaSponte · New reply October 6, 2009
  • Journal · 7 replies
  • Looking back over the years i have found that i can be a strong person. When i was in the military, i achieved unbelievable physical strength. I was slim and fit and could do anything. When it was my ...

Here to help

SuaSponte
  • By SuaSponte · New reply September 26, 2009
  • Journal · 5 replies
  • Therapy can come in sooo many different forms. When i was first separated from the military, i was sooo depressed i didn't leave the house for at least 6 months! A friend forced me out of the house and ...

First Journal Entry

SuaSponte
  • By SuaSponte · New reply September 26, 2009
  • Journal · 9 replies
  • We cant always reach our goals or over come some of lifes obsticals alone. No one can. Everyone no matter how successful they are has a support network and someone to give them a helping hand every once ...

When do you externally shunt the brain????

Bill48
  • By Bill48 · New reply September 25, 2009
  • Journal · 1 reply
  • My 18 year old had an automobile accident only minutes from a hospital; she was transport by ambulance to that hospital. Upon arriving at the hospital I was confronted by a doctor in charge of the emergency ...

Mommy come with me in Heaven

Cherime
  • By Cherime · New reply September 22, 2009
  • Journal · 8 replies
  • After treating several chemotheraphy and radiation, Charles body will just rest for two months, then after that, the cancer cell will grow again to liver, bone.... Still fighting the beast for three years ...

Preparing Separate Meals at Home

coachphyllis
  • By coachphyllis · New reply September 5, 2009
  • Discussion in Special diets for a sick child · 2 replies
  • It can be difficult when your sick child requires a separate diet from the rest of the family. Just getting one dinner on the table can be challenging enough! Do you have experience with having to cook ...

Parenting Challenges With Sick Child

coachphyllis
  • By coachphyllis · New reply September 5, 2009
  • Discussion in Raising a child with a serious illness · 4 replies
  • When our children are very sick, we indulge them, and rightfully so. Life for them is so hard and painful, and we want to provide them with as much of a childhood as possible. Those gifts that we would ...

Scheduled maintenance this evening

TeamInspire
  • By TeamInspire · New reply August 12, 2009
  • Journal · 13 replies
  • All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

Every child is their own statistic

dleach
  • By dleach · New reply July 26, 2009
  • Discussion in Raising a child with a serious illness · 2 replies
  • Thought I would share a piece that I wrote about our son Mason. I think it is important to remember that every child is their own statistic and their own experience. Our Mason: Our Mason was a fighter ...

Feeling Overwhelmed

coachphyllis
  • By coachphyllis · Posted July 23, 2009
  • Discussion in Newly diagnosed · 0 replies
  • It seems that one day you have a healthy child, and then the next day they have a serious illness. We, parents, go into overdrive finding doctors, hospitals, making arrangements, dealing with schools ...

New to this!

kate63
  • By kate63 · New reply July 14, 2009
  • Journal · 4 replies
  • What a great idea this is. I hope to find answers regarding insurance and doctors, and also for pain management; and in return to provide inspiration with my own experiences. The best medicine, in my ...

A great saying

dleach
  • By dleach · Posted July 7, 2009
  • Discussion in Raising a child with a serious illness · 0 replies
  • You may have seen this before.... What Cancer Cannot Do-- Cancer is so limited; It cannot cripple Love; It cannot shatter Hope; It cannot corrode Faith; It cannot destroy Peace; It cannot kill Friendship ...

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About this group

The Andre Sobel River of Life Support Community connects single parents, families and friends of pediatric and teen patients and survivors for support and inspiration. The Andre Sobel River of Life Support Community is sponsored by the Andre Sobel River of Life Foundation in partnership with Inspire.