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Familial (hereditary) and TTR amyloidosis
Information and support for those with familial (hereditary) and TTR amyloidosis.
Familial Amyloidosis
- By bellographix · New reply yesterday at 2:50 pm
- 2 replies
- Hello all, my father past away in 2004 from Amyloidosis and I wanted to know what I should do to either test to see if I or my sister inherit this? Any suggestions? Thank you ...
Meds for ATTR
- By kennethpletz · New reply September 6, 2009
- 6 replies
- Saw the hematologist today and she confirmed it is indeed familial amyloidosis. They sent off blood for dna sampling to determine which strain it is. In the interim, she prescribed Dolobid (Diflunisal ...
Familial Amyloidosis Polyneuropathy
- By joan45 · New reply August 26, 2009
- 1 reply
- Info to both Ron C and Ken regarding your journies. My husband has FAP (see above) and his 4 year episode with this disease is almost unbelievable and much like Kens. Took about 3 1/2 years to finally ...
Familial Amyloidosis and Neuropathy
- By kennethpletz · New reply August 7, 2009
- 2 replies
- I haven’t really seen much mention of familial amyloidosis and neuropathy mentioned. I have severe neuropathy – went from cane to walker to now a wheelchair. My legs are so weak and they feel like tree ...
Familial Amyloidosis
- By RON-C · New reply July 13, 2009
- 14 replies
- Interested in talking with other people who have this type of Amyloidosis. I received a liver transplant in 1997 at the Mayo Clinic. Also interested in new research and the development of pharmaceutical ...
