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Active journals
Amyloidosis Support Groups - Meetings - Coming Events
- By Muriel · Posted October 7, 2008
- 0 replies
- October 11 - South Cal L.A. - Dr. Vescio and LLS (Also Columbus Day Weekend) October 18th – New York - Dr. Jeffrey Zonder Karmanos/Detroit October 18th – Carlise, PA - 2nd annual Chip Miller Charitable ...
Amyloidosis Support Groups Inc. - Types of amyloidosis
- By Muriel · Posted October 1, 2008
- 0 replies
- It is important to note that although about 90 per cent of amyloisosis is AL (Primary) there are also AA (Secondary) ATTR (Familial) SSA (Senile or Mature) CAA (Cerebral) Localized and several others ...
A lot of questions
- By fulviaschild · New reply October 1, 2008
- 3 replies
- Well I have been diagnosed with crohns disease.My gastro doctor said that he was suprised at this diagnosis. I had gotten sick last month and ended up in the hopital for a few days. Well this prompted ...
Amyloidosis Support Groups- Rheumatoid Arthritis
- By Muriel · Posted September 25, 2008
- 0 replies
- Received this last night... It has taken five years to go from committee to an actual floor vote, but it is actually scheduled to be voted upon....this Thursday. This is critically important legislation ...
Doing Better
- By MichelleP · New reply September 25, 2008
- 5 replies
- It has been a while since I posted an entry. I wanted to let everyone know that in some ways I am doing better. I am still grieving, and I still feel somewhat paralyzed, as I cannot complete all of the ...
Realization has just hit me!
- By scgirl76 · New reply September 21, 2008
- 6 replies
- The past few days have been teary for me. I think that I have realized the seriousness of this horrible disease. Although he was diagnosed in Mar. of this year, (AL,MM) and I have done SO much research ...
Amyloidosis Support Groups Inc. - meetings
- By Muriel · Posted September 16, 2008
- 0 replies
- These are the support meetings lined up through the balance of 2008. See the website up date soon on 2009 meetings and look for one near you. Also join wwww.amyloidosisonline.com for support in between ...
Support Meeting
- By Thumbelina · New reply September 8, 2008
- 1 reply
- The Upstate NY Amyloidosis Support Group is having it's next meeting September 27th in Rochester, NY. Our Special Guest Speaker is Dr. Martha Skinner, a Leading Expert from the Amyloidosis Research ...
Today I've been sad
- By Fulviaschild2 · New reply September 6, 2008
- 5 replies
- I spoke to my mothers sister this evening. She is very sad and misses mom terribly. She said when the weekend rolls around they always talked Saturday and Sunday morning. This saturday she said she wanted ...
Michael
- By MichelleP · New reply September 3, 2008
- 15 replies
- The love of my life, Michael Paul Sousae, past away on May 29, 2008, from Primary Amyloidosis. He was 39 years old. He was a vibrant, healthy man. He fought very hard the last few months, and was just ...
Amyloidois - Travels With Ellen to Rome - Her Story
- By Muriel · New reply September 1, 2008
- 5 replies
- Hello everyone: A true miracle happened this past week, and I thought it would be good to share it with all of you. I have not been doing much posting lately so many of you may not know all I have been ...
Amyloidosis Support Groups Inc. - Hurricane
- By Muriel · Posted August 25, 2008
- 0 replies
- We arrived in just that right window at the Tampa airport Friday night. The meeting went off without a hitch and we were able to have dinner with Linda M and family in Dover on Saturday night and dinner ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted August 14, 2008
- 0 replies
- A reminder that we have support meetings (face to face) coming up in various cities and all on our web site, an on line chat group www.amyloidosisonline.com and other on line chat groups for lost loved ...
Last Week
- By MichelleP · New reply August 11, 2008
- 2 replies
- This past week has been a tough one. I have regressed over the last five days. It started with a group grief session I attended; it was not what I thought it would be. The next two days at work I cried ...
Amyloidosis Support Groups and the LLS
- By Muriel · Posted August 8, 2008
- 0 replies
- LOTS OF SUPPORT MEETINGS COMING UP. • August 9th – D.C. Area – Holy Cross – Silver Spring MD – Dr. Francis Buadi – Mayo/Rochester • August 16th - CHARLOTTE NC - Dr. Jeffrey Zonder • August 23 - Florida ...
Amyloidosis Support Groups Inc.- Loss
- By Muriel · Posted July 30, 2008
- 0 replies
- A loss of the magnitude of David Liebeskind affects us all….beautiful family, lovely wife (now with the new term “widow”) a home they worked hard to build for their retirement…….and now Judy must find ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted July 19, 2008
- 0 replies
- Have we got meetings??? Portland OR. today Rochester NY - next Sat.26th Rocky Mountain - Denver - August 2nd Charlotte N.C. - August 16th Tampa Florida - August 23 See www.amyloidosissupport.com for details ...
AL Amyloidosis
- By tearilee · New reply July 14, 2008
- 1 reply
- Is there anyone in this community in Utah with amyloidosis or has a family member with amyloidosis ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted July 8, 2008
- 0 replies
- So much going on I don't know where to begin. We've got the Atlanta meeting this Saturday. The Centers are asking the NIH for a consortium. www.amyloidosisonline.com has started to work on cook books ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted July 3, 2008
- 0 replies
- Off for a "fishing" weekend. Watch www.popsrun.org next week for up dates and www.amyloidosissupport.com for updates. Enjoy the Holiday all. Love, Muriel ...
