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Active journals
tired of being sick
- By fulviaschild · New reply April 7, 2009
- 5 replies
- I haven't written in a while , but there has been a lot going on with me. In august ended up in the hospital dehydrated and unable to eat. I stayed in for about 3 days. When i had a follow up visit with ...
Amyloidosis Support Groups Inc. - Centers of Excellence
- By Muriel · New reply April 6, 2009
- 5 replies
- When people ask where I should be treated now that I have been diagnosed with amyloidosis; I always tell them they have overcome the biggest hurdle. As in any rare disease that would be getting an accurate ...
Amyloidosis Support Groups and Cool Hot Smooth Jazz
- By Muriel · Posted March 27, 2009
- 0 replies
- From Richard Harris I have just received the first formal review by a noted jazz critic of my new CD, which I am posting on my website (www.RichardHarrisLive.com) today. I thought you might be interested ...
Amyloidosis Support Groups Inc. and Kidney Foundation
- By Muriel · Posted March 24, 2009
- 0 replies
- So many of our rare diseases involve organ transplants. Won't you all pitch in and see below. The late Maurice Price was a board member of the ASG. Muriel A message from Stacey Price-Wright tdwsmom@aol.com ...
Amyloidosis Support Groups Inc. - Spring Break
- By Muriel · Posted March 22, 2009
- 0 replies
- Meetings start up again in April. Tampa and Detroit had great meetings yesterday. E-mail me for information and see the website for details. Muriel www.amyloidosissupport.com muriel@finkelsupply.com www.amyloidosisonline.com ...
Amyloidosis Support Groups Inc. - Utah - April 4
- By Muriel · Posted March 18, 2009
- 0 replies
- Please share on your Facebook, MySpace etc blogs...... Meet the Experts: An Update on Multiple Myeloma and Amyloidosis This event is FREE, but pre-registration is required! All patients, family members ...
Amyloidosis Support Groups - Meetings Meetings
- By Muriel · Posted March 18, 2009
- 0 replies
- MARCH 21 - Michigan – Detroit - Dr. Zonder and Linda Vanni RN 21 - FLORIDA – TAMPA - Dr. Alsina and more APRIL 4 - PORTLAND OREGON - Dr. Abar and other doctors from OHSU and LLS Rep See www.amyloidosissupport.com ...
Amyloidosis Support Meeting in Dallas, Texas
- By SLR · Posted March 16, 2009
- 0 replies
- We had a wonderful meeting on Saturday March 14, 2009 here in Dallas. Thirteen were present with two first timers. Dr. Buadi from the Mayo in Rochester, MN. was present and full of information, especially ...
Amyloidosis Support Groups Inc. - Tampa Meeting
- By Muriel · Posted March 15, 2009
- 0 replies
- Can't wait to see all this Saturday at the Tampa meeting. See www.amyloidosissupport.com for details or e-mail me at muriel@finkelsupply.com Love to all, Muriel Remember about 5% of RA an PA do get Secondary ...
Amyloidosis Support Groups Inc. - Animation DVD-Awareness
- By Muriel · New reply March 15, 2009
- 2 replies
- If you go to our website www.amyloidosissupport.com and click on animation under the flag on the right you will see the wonderful animation Greg has produced to help make doctors aware of our disease ...
Amyloidosis Support Groups Inc. - Meetings This Month
- By Muriel · Posted March 10, 2009
- 0 replies
- MARCH 14 DALLAS - Dr. Buadi Mayo/Rochester 14 - DC, MD, VA - Muriel Finkel, President ASG 21 - Michigan – Detroit - Dr. Zonder and Linda Vanni RN 21 - FLORIDA – TAMPA -Moffitt- Dr. Alsina and another ...
Cherry Red Spot is a telltale sign...
- By StephLynStill · New reply March 9, 2009
- 7 replies
- Today I returned a telephone call to a woman who's cousin's 7 month old son, Ben, has been displaying possible symptoms of a neurometabolic disease. You know, darting eyes, not rolling over, trunk weakness ...
Amyloidosis Support Groups Inc. - Fundraiser
- By Muriel · New reply March 5, 2009
- 2 replies
- Amyloidosis affects all of your diseases in one way or another. In some cases amyloidosis AA (secondary) can hit RA and PA and AL amyloidosis can also hit MM and Waldenstrom patients. Plus we are all ...
Amyloidosis Support Groups - March Meetings
- By Muriel · Posted March 2, 2009
- 0 replies
- For more information on the meetings below see www.amyloidosissupport.com http://www.amyloidosissupport.com/suppor t_groups/index.html Please RSVP 7 - OHIO – OSU (football @Indiana) – Dr. Don Benson and ...
Amyloidosis Support Groups Inc. and Multiple Myeloma
- By Muriel · Posted March 1, 2009
- 0 replies
- For Myeloma Awareness Montth, the International Myeloma Foundation is pleased to offer a series of teleconferences covering the world’s premier meeting on multiple myeloma, the International Myeloma Workshop ...
Amyloidosis Support Groups Inc. - Chicago Meeting-Sat
- By Muriel · Posted February 26, 2009
- 0 replies
- We are so exciting to be having our Chicago meeting on Rare Disease Day. We have special bracelets and a special guest and the usual support and sharing as well as education and awareness. If you can ...
Amyloidosis Support Groups Inc. - Animation Awareness
- By Muriel · Posted February 25, 2009
- 0 replies
- In anticipation of Rare Disease Day (Feb. 28), there is an updated version of the "Amyloidosis Awareness" movie. Folks can link or embed the movie on their websites or blogs, or make use of it as they ...
Amyloidosis Support Groups Inc. - Support Meetings
- By Muriel · Posted February 23, 2009
- 0 replies
- Coming up next Saturday is the Chicago Area meeting with Dr. Vesole and others from Loyola. It is Rare Disease Day and we have some surprises along with the Education and Support. We are up to 30 and ...
Chronic Rheumatoid Arthritis and Amyloidosis
- By Muriel · Posted February 19, 2009
- 0 replies
- AA (Secndary Amyloidosis) is cometimes caused by RA, Crohn's and other inflammatory diseases. It usually affects the kidney and then the heart. This can be prevented if caught early. For more information ...
Leukemia Lymphoma Society Benefits also for MM and Amyloidosis
- By Muriel · Posted February 18, 2009
- 0 replies
- Are you aware of the financial assistance offered by the Leukemia & Lymphoma Society? They have two programs, one is the Patient Financial Aid program for up to $500.00 each year and covers such things ...
