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Active journals
Amyloidosis Support Groups - Meetings Coming Up
- By Muriel · Posted June 3, 2009
- 0 replies
- RSVP - muriel@finkelsupply.com • JUNE • 6 – NYC – DR. DISPENZIERI - Mayo/Rochester • 13 - ATLANTA – Dr. Jonathan Kaufman and Guided Imagery • 27 - CHICAGO - Jeffrey Zonder – Karmanos/Detroit JULY • 11 ...
Amyloidosis Support Groups Inc. - LEADERS RETREAT
- By Muriel · Posted June 2, 2009
- 0 replies
- They came from the Pacific Northwest on one coast and D.C. from the other........with many cities in between.... Friday night we had a meet and greet and informal meeting at my house as people arrived ...
Dogs & Disorders
- By StephLynStill · New reply May 30, 2009
- 2 replies
- I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...
Amyloidosis Support Groups NYC Meeting- June 6
- By Muriel · Posted May 28, 2009
- 0 replies
- When we asked Dr. Dispenzieri to be our guest, she was not at that time a nominee for the NORD Hall of Fame for researchers. If you can make the meeting at Mt. Sinai (see www.amyloidosissupport.com) for ...
Amyloidosis Support Groups Inc. - Awareness and Education
- By Muriel · New reply May 27, 2009
- 1 reply
- www.amyloidosissupport.com and www.amyloidosisonline.com are the two sites that would help for resources and communication. If you choose to go the Holistic route they can help you too. Sincerely, Muriel ...
Amyloidosis Support Groups Inc. - NYC-Manhattan
- By Muriel · Posted May 25, 2009
- 0 replies
- Hope to see everyone at Mt. Sinai next Saturday at 9am....Dr. Angela Dispenzierir of the Mayo Cl.. inic will be our guest and it should be a great meeting. People are coming in from all over New England ...
Amyloidosis Support Groups Inc. - Vacation and Meetings
- By Muriel · New reply May 22, 2009
- 2 replies
- This weekend is our annual fishing trip in upstate NY with cousins Sandy and Kenny. How Steve looks forward to these weekends. Sandy and I shop in Woodstock (window shop this year) and Catskill and Steve ...
Heading off to Missouri and to Boston Medical
- By Paulette1 · New reply May 22, 2009
- 1 reply
- We are leaving for our home in Missouri tomorrow. Heading for some R & R for my hard working husband, Jim. He'll fish and relax and I'll still be unpacking boxes we shipped from Denver. We'll be there ...
This Hannah...
- By StephLynStill · Posted May 14, 2009
- 0 replies
- This what infantile Lysosomal Disease does ...
Amyloidosis Support Groups Inc. and NORD Partners in Progress 2009
- By Muriel · Posted May 12, 2009
- 0 replies
- How lucky we are to have NORD and to be able to join them this week at their annual meeting, summit, and celebration. (All crowded into two days - Wed and Thurs). Wednesday we will have our organization ...
Amyloidosis Support Groups Inc. - Happy Mothers Day
- By Muriel · Posted May 10, 2009
- 0 replies
- Lucky enough to have a "traditional mother's day?" Enjoy and revel. Your mother is gone? You are still a daughter or son. Happy Mother's Day memories. Children left home? Happy Mother's Day phone calls ...
AL amyloidosis
- By Merrimack · New reply May 4, 2009
- 1 reply
- I was diagnosed with 3 fatal diseases/conditions in Feb. '06. 1. multiple myeloma 2. AL amyloidosis 3. congestive heart failure (EF 25%), caused by the amyloidisis. I went to Dana Farber once, (BOS ...
Amyloidosis Support Groups and Rheumatoid Arthritis
- By Muriel · Posted May 3, 2009
- 0 replies
- How many know of the relationship of the above two diseases. RA, along with other immune compromising diseases can cause a form of Amyloidosis (AA). Jessica Saal http://www.amyloidosissupport.com/in_mem ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Amyloidosis Support Groups Inc. - Meetings This Saturday
- By Muriel · Posted April 27, 2009
- 0 replies
- Everyone who is anyone will be at Strong this Saturday to greet and listen to Dr. Zonder and a wonderful Cardiologist from Strong as will as give and receive support. Throw in Breakfast and Lunch and ...
Amyloidosis Support Groups Inc. - Meetings and Help
- By Muriel · Posted April 16, 2009
- 0 replies
- If you have RA, Fibromalgia, Crohns, you could get a secondary form of amyloidosis (AA). Have your doctor check and see the animation on the top right of our website www.amyloidosissupport.com under the ...
New feature - profile completeness gauge
- By Tasha · New reply April 14, 2009
- 14 replies
- Greetings from TeamInspire! I'm your friendly neighborhood designer, here to tell you about some new features. You might notice that today we revamped your member homepage - https://www.inspire.com/member-home.pl ...
Amyloidosis Support Groups Inc. - Support Meetings
- By Muriel · Posted April 11, 2009
- 0 replies
- Blessed Holidays to you all, or just have a good week if you are not observing or celebrating anything but life..... RSVP ALL......to the following...see www.amyloidosissupport.com for details.... I do ...
Lyso-What?
- By StephLynStill · New reply April 9, 2009
- 4 replies
- Just in case you haven't seen it. ;) xoxo s **ps - that's my kiddo ...
Amyloidosis Support Groups Inc. and HAPPENINGS
- By Muriel · Posted April 8, 2009
- 0 replies
- ***ANNOUNCING*** FUNDRAISERS FOR OHIO/MICHIGAN AMYLOIDOSIS Ohio and Michigan Amyloidosis Friends SATURDAY APRIL 18, 2009 @ BELLACINOS PIZZA & GRINDERS 3657 FISCHCREEK ROAD STOW, OH www.secureharbor.org ...
