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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
from popthames
- By popthames · New reply November 12, 2009
- 3 replies
- Well my Dad passed away from Primary AL Amyloidosis June 21 peacefully at home ...
Inspire members featured
- By Brian · New reply November 4, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
fed up!
- By ready4glory · New reply November 4, 2009
- 4 replies
- I was DX over a year ago with Amyloid I have been to Boston three times. Finally on the last visit they said my AMyloid was secondary but they couldn't figure out secondary to what! Neither could my doctors ...
HIDS
- By mommymanda · New reply October 20, 2009
- 8 replies
- Payton is now almost 4 and it seems like he just keeps getting new symptoms. It feels as if he never gets a break! As of right now we are on Kineret injections during episodes for 3 days and also on Humira ...
Your vote helps to raise money for research!
- By T-Gayle · Posted October 3, 2009
- 0 replies
- Hello all ~ As a Al Amyloidosis patient, I am trying to raise money to donate for research. I am only asking for your VOTE in order to win. I have entered my handsome French Bulldog in the www.cutestdogcontest.com ...
Amyloidosis Support Groups and Blood Diseases
- By Muriel · Posted September 29, 2009
- 0 replies
- www.mayoclinic.org/blood-patient-worksho p The second Living with a Blood Disease Symposium: A Comprehensive Workshop for Patients, Family and Friends Mayo Clinic Rochester, Minnesota May 8-9, 2010 Symposium ...
my daughter and husband
- By 5cats · New reply September 2, 2009
- 17 replies
- my husband's father died in his sixties undiagnosed from a mysterious condition in the 1960's. at age 27, my husband had strange symptoms which took 2 1/2 years to diagnose- confirmed as amyloidosis and ...
Amyloidosis Support Groups Inc. - "Happenings"
- By Muriel · New reply August 24, 2009
- 2 replies
- AUGUST 23 - POP'S RUN-FUNDRAISER - www.popsrun.org 29 - ROCHESTER NEW YORK – DR. SUZANNE HAYMAN/MAYO - NOTE CHANGE IN VENUE SEPTEMBER 5 – LABOR DAY WEEKEND 11 – David Jamieson Memorial Fundraiser - Hillview ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
5 minutes on the lysosome. Because it's time we know.
- By StephLynStill · Posted August 13, 2009
- 0 replies
- So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Lysosomal Disease and Alzheimer's
- By StephLynStill · Posted July 27, 2009
- 0 replies
- Hi, Here is another little boy affected with Lysosomal Disease, Dillon. The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With ...
Amyloidosis Support Groups - BLOOD DISEASE SYMPOSIUM
- By Muriel · Posted July 25, 2009
- 0 replies
- Second Living with a Blood Disease Patient Conference in Rochester, MN on May 8-10, 2010. Our meeting last year was a spectacular success with almost 400 participants. Realize it is Mothers Day on May ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Support your group and raise awareness with badges
- By Walter · New reply June 22, 2009
- 39 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Amyloidosis Support Groups Inc. - Upcoming Events
- By Muriel · Posted June 12, 2009
- 0 replies
- JUNE 6 – NYC – DR. DISPENZIERI - Mayo/Rochester 13 - ATLANTA – Dr. Jonathan Kaufman 20 - FATHER’S DAY WEEKEND 26 - Bob King Memorial Fundraiser - Ohio 27 - CHICAGO - Jeffrey Zonder – Karmanos/Detroit ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Dr. Robert Kyle to attend Charlotte Amyloidosis Support 7/18/09
- By Muriel · Posted June 8, 2009
- 0 replies
- I think I read somewhere that Dr. Kyle is the most published Hematologist in the New England Journal of Medicine....and knows every hematological malignancy and disease that exists. He is supposedly retired ...
Mayo Clinic Lectures for Patients/Caregivers- Amyloidosis,MM,Breast Cancer
- By Muriel · Posted June 4, 2009
- 0 replies
- Mayo Clinic invites patients, families and caregivers interested in breast cancer and hematologic malignancies to special dinner lectures and a wellness program at the Ritz Carlton on Amelia Island, Florida ...
