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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Journals
Amyloidosis Support Groups- Rheumatoid Arthritis
- By Muriel · Posted September 25, 2008
- 0 replies
- Received this last night... It has taken five years to go from committee to an actual floor vote, but it is actually scheduled to be voted upon....this Thursday. This is critically important legislation ...
Amyloidosis Support Groups Inc. - meetings
- By Muriel · Posted September 16, 2008
- 0 replies
- These are the support meetings lined up through the balance of 2008. See the website up date soon on 2009 meetings and look for one near you. Also join wwww.amyloidosisonline.com for support in between ...
Realization has just hit me!
- By scgirl76 · Posted September 15, 2008
- 6 replies
- The past few days have been teary for me. I think that I have realized the seriousness of this horrible disease. Although he was diagnosed in Mar. of this year, (AL,MM) and I have done SO much research ...
Doing Better
- By MichelleP · Posted September 10, 2008
- 5 replies
- It has been a while since I posted an entry. I wanted to let everyone know that in some ways I am doing better. I am still grieving, and I still feel somewhat paralyzed, as I cannot complete all of the ...
Support Meeting
- By Thumbelina · Posted September 7, 2008
- 1 reply
- The Upstate NY Amyloidosis Support Group is having it's next meeting September 27th in Rochester, NY. Our Special Guest Speaker is Dr. Martha Skinner, a Leading Expert from the Amyloidosis Research ...
Today I've been sad
- By Fulviaschild2 · Posted August 28, 2008
- 5 replies
- I spoke to my mothers sister this evening. She is very sad and misses mom terribly. She said when the weekend rolls around they always talked Saturday and Sunday morning. This saturday she said she wanted ...
Amyloidosis Support Groups Inc. - Hurricane
- By Muriel · Posted August 25, 2008
- 0 replies
- We arrived in just that right window at the Tampa airport Friday night. The meeting went off without a hitch and we were able to have dinner with Linda M and family in Dover on Saturday night and dinner ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted August 14, 2008
- 0 replies
- A reminder that we have support meetings (face to face) coming up in various cities and all on our web site, an on line chat group www.amyloidosisonline.com and other on line chat groups for lost loved ...
Last Week
- By MichelleP · Posted August 10, 2008
- 2 replies
- This past week has been a tough one. I have regressed over the last five days. It started with a group grief session I attended; it was not what I thought it would be. The next two days at work I cried ...
Amyloidosis Support Groups and the LLS
- By Muriel · Posted August 8, 2008
- 0 replies
- LOTS OF SUPPORT MEETINGS COMING UP. • August 9th – D.C. Area – Holy Cross – Silver Spring MD – Dr. Francis Buadi – Mayo/Rochester • August 16th - CHARLOTTE NC - Dr. Jeffrey Zonder • August 23 - Florida ...
Michael
- By MichelleP · Posted August 5, 2008
- 15 replies
- The love of my life, Michael Paul Sousae, past away on May 29, 2008, from Primary Amyloidosis. He was 39 years old. He was a vibrant, healthy man. He fought very hard the last few months, and was just ...
Amyloidosis Support Groups Inc.- Loss
- By Muriel · Posted July 30, 2008
- 0 replies
- A loss of the magnitude of David Liebeskind affects us all….beautiful family, lovely wife (now with the new term “widow”) a home they worked hard to build for their retirement…….and now Judy must find ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted July 19, 2008
- 0 replies
- Have we got meetings??? Portland OR. today Rochester NY - next Sat.26th Rocky Mountain - Denver - August 2nd Charlotte N.C. - August 16th Tampa Florida - August 23 See www.amyloidosissupport.com for details ...
AL Amyloidosis
- By tearilee · Posted July 14, 2008
- 1 reply
- Is there anyone in this community in Utah with amyloidosis or has a family member with amyloidosis ...
Amyloidois - Travels With Ellen to Rome - Her Story
- By Muriel · Posted July 11, 2008
- 5 replies
- Hello everyone: A true miracle happened this past week, and I thought it would be good to share it with all of you. I have not been doing much posting lately so many of you may not know all I have been ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted July 8, 2008
- 0 replies
- So much going on I don't know where to begin. We've got the Atlanta meeting this Saturday. The Centers are asking the NIH for a consortium. www.amyloidosisonline.com has started to work on cook books ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted July 3, 2008
- 0 replies
- Off for a "fishing" weekend. Watch www.popsrun.org next week for up dates and www.amyloidosissupport.com for updates. Enjoy the Holiday all. Love, Muriel ...
Amyloidosis Support Groups Inc.
- By Muriel · Posted June 27, 2008
- 0 replies
- Busy wonderful week. NYC support meeting tomorrow. Pop's Run Fundraiser Sunday and Bob King fundraiser yesterday. TV Interview last Wednesday and "Saving Grace" Filming with the Angel played by Leon Rippey ...
from popthames
- By popthames · Posted June 22, 2008
- 3 replies
- Well my Dad passed away from Primary AL Amyloidosis June 21 peacefully at home ...
Support your group and raise awareness with badges
- By Walter · Posted June 20, 2008
- 39 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
