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Journals

Amyloidosis Support Groups - Meetings Meetings

Muriel
  • By Muriel · Posted March 18, 2009
  • 0 replies
  • MARCH 21 - Michigan – Detroit - Dr. Zonder and Linda Vanni RN 21 - FLORIDA – TAMPA - Dr. Alsina and more APRIL 4 - PORTLAND OREGON - Dr. Abar and other doctors from OHSU and LLS Rep See www.amyloidosissupport.com ...

Amyloidosis Support Meeting in Dallas, Texas

SLR
  • By SLR · Posted March 16, 2009
  • 0 replies
  • We had a wonderful meeting on Saturday March 14, 2009 here in Dallas. Thirteen were present with two first timers. Dr. Buadi from the Mayo in Rochester, MN. was present and full of information, especially ...

Amyloidosis Support Groups Inc. - Tampa Meeting

Muriel
  • By Muriel · Posted March 15, 2009
  • 0 replies
  • Can't wait to see all this Saturday at the Tampa meeting. See www.amyloidosissupport.com for details or e-mail me at muriel@finkelsupply.com Love to all, Muriel Remember about 5% of RA an PA do get Secondary ...

Amyloidosis Support Groups Inc. - Animation DVD-Awareness

Muriel
  • By Muriel · Posted March 13, 2009
  • 2 replies
  • If you go to our website www.amyloidosissupport.com and click on animation under the flag on the right you will see the wonderful animation Greg has produced to help make doctors aware of our disease ...

Amyloidosis Support Groups Inc. - Meetings This Month

Muriel
  • By Muriel · Posted March 10, 2009
  • 0 replies
  • MARCH 14 DALLAS - Dr. Buadi Mayo/Rochester 14 - DC, MD, VA - Muriel Finkel, President ASG 21 - Michigan – Detroit - Dr. Zonder and Linda Vanni RN 21 - FLORIDA – TAMPA -Moffitt- Dr. Alsina and another ...

Lyso-What?

StephLynStill
  • By StephLynStill · Posted March 9, 2009
  • 4 replies
  • Just in case you haven't seen it. ;) xoxo s **ps - that's my kiddo ...

Amyloidosis Support Groups Inc. - Fundraiser

Muriel
  • By Muriel · Posted March 5, 2009
  • 2 replies
  • Amyloidosis affects all of your diseases in one way or another. In some cases amyloidosis AA (secondary) can hit RA and PA and AL amyloidosis can also hit MM and Waldenstrom patients. Plus we are all ...

Cherry Red Spot is a telltale sign...

StephLynStill
  • By StephLynStill · Posted March 4, 2009
  • 7 replies
  • Today I returned a telephone call to a woman who's cousin's 7 month old son, Ben, has been displaying possible symptoms of a neurometabolic disease. You know, darting eyes, not rolling over, trunk weakness ...

Amyloidosis Support Groups - March Meetings

Muriel
  • By Muriel · Posted March 2, 2009
  • 0 replies
  • For more information on the meetings below see www.amyloidosissupport.com http://www.amyloidosissupport.com/suppor t_groups/index.html Please RSVP 7 - OHIO – OSU (football @Indiana) – Dr. Don Benson and ...

Amyloidosis Support Groups Inc. and Multiple Myeloma

Muriel
  • By Muriel · Posted March 1, 2009
  • 0 replies
  • For Myeloma Awareness Montth, the International Myeloma Foundation is pleased to offer a series of teleconferences covering the world’s premier meeting on multiple myeloma, the International Myeloma Workshop ...

Amyloidosis Support Groups Inc. - Chicago Meeting-Sat

Muriel
  • By Muriel · Posted February 26, 2009
  • 0 replies
  • We are so exciting to be having our Chicago meeting on Rare Disease Day. We have special bracelets and a special guest and the usual support and sharing as well as education and awareness. If you can ...

Amyloidosis Support Groups Inc. - Animation Awareness

Muriel
  • By Muriel · Posted February 25, 2009
  • 0 replies
  • In anticipation of Rare Disease Day (Feb. 28), there is an updated version of the "Amyloidosis Awareness" movie. Folks can link or embed the movie on their websites or blogs, or make use of it as they ...

Amyloidosis Support Groups Inc. - Support Meetings

Muriel
  • By Muriel · Posted February 23, 2009
  • 0 replies
  • Coming up next Saturday is the Chicago Area meeting with Dr. Vesole and others from Loyola. It is Rare Disease Day and we have some surprises along with the Education and Support. We are up to 30 and ...

Amyloidosis Support Groups Inc. - Centers of Excellence

Muriel
  • By Muriel · Posted February 23, 2009
  • 5 replies
  • When people ask where I should be treated now that I have been diagnosed with amyloidosis; I always tell them they have overcome the biggest hurdle. As in any rare disease that would be getting an accurate ...

Chronic Rheumatoid Arthritis and Amyloidosis

Muriel
  • By Muriel · Posted February 19, 2009
  • 0 replies
  • AA (Secndary Amyloidosis) is cometimes caused by RA, Crohn's and other inflammatory diseases. It usually affects the kidney and then the heart. This can be prevented if caught early. For more information ...

Leukemia Lymphoma Society Benefits also for MM and Amyloidosis

Muriel
  • By Muriel · Posted February 18, 2009
  • 0 replies
  • Are you aware of the financial assistance offered by the Leukemia & Lymphoma Society? They have two programs, one is the Patient Financial Aid program for up to $500.00 each year and covers such things ...

Amyloidosis Support Groups Inc.- Meetings

Muriel
  • By Muriel · Posted February 18, 2009
  • 0 replies
  • Big support meeting all in NYC on Sunday and Chicago area on the 28th. See www.amyloidosissupport.com for details. Muriel Amyloidosis Support Groups Inc ...

Amyloidosis Support Groups Inc. - Volunteer Help Wanted

Muriel
  • By Muriel · Posted February 15, 2009
  • 3 replies
  • We need people to put flyers out in most areas in the countries, certain hospitals and certain departments of the hospitals as well as dialysis centers and other medical centers. We need help in most ...

Amyloidosis Support Groups - NYC

Muriel
  • By Muriel · Posted February 13, 2009
  • 0 replies
  • SUNDAY FEBRUARY 22, 2009 MT. SINAI HOSPITAL 9AM TO 3PM We welcome all. www.amyloidosissupport.com Toll Free 866-404-7539 We say good bye to dear friends Michael Masius and Harold Silberzweig Harold and ...

Mortality Risk Following Osteoporotic Fracture

Muriel
  • By Muriel · Posted February 6, 2009
  • 0 replies
  • FREE FULL-TEXT ARTICLE Summary and Comment Mortality Risk Following Osteoporotic Fracture Elevated risk was associated with even minor fractures and, with hip fractures, persisted for at least 10 years ...

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