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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
fed up!
- By ready4glory · Posted November 3, 2009
- 4 replies
- I was DX over a year ago with Amyloid I have been to Boston three times. Finally on the last visit they said my AMyloid was secondary but they couldn't figure out secondary to what! Neither could my doctors ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Your vote helps to raise money for research!
- By T-Gayle · Posted October 3, 2009
- 0 replies
- Hello all ~ As a Al Amyloidosis patient, I am trying to raise money to donate for research. I am only asking for your VOTE in order to win. I have entered my handsome French Bulldog in the www.cutestdogcontest.com ...
Amyloidosis Support Groups and Blood Diseases
- By Muriel · Posted September 29, 2009
- 0 replies
- www.mayoclinic.org/blood-patient-worksho p The second Living with a Blood Disease Symposium: A Comprehensive Workshop for Patients, Family and Friends Mayo Clinic Rochester, Minnesota May 8-9, 2010 Symposium ...
Amyloidosis Support Groups Inc. - "Happenings"
- By Muriel · Posted August 20, 2009
- 2 replies
- AUGUST 23 - POP'S RUN-FUNDRAISER - www.popsrun.org 29 - ROCHESTER NEW YORK – DR. SUZANNE HAYMAN/MAYO - NOTE CHANGE IN VENUE SEPTEMBER 5 – LABOR DAY WEEKEND 11 – David Jamieson Memorial Fundraiser - Hillview ...
5 minutes on the lysosome. Because it's time we know.
- By StephLynStill · Posted August 13, 2009
- 0 replies
- So did you ever wonder what happens to the tadpole's tail? Does it just fall off? No actually. Lysosomes eat it. (autophagy: the cell's ability to eat itself...) And the webbing in our fingers and toes ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
my daughter and husband
- By 5cats · Posted August 7, 2009
- 17 replies
- my husband's father died in his sixties undiagnosed from a mysterious condition in the 1960's. at age 27, my husband had strange symptoms which took 2 1/2 years to diagnose- confirmed as amyloidosis and ...
Lysosomal Disease and Alzheimer's
- By StephLynStill · Posted July 27, 2009
- 0 replies
- Hi, Here is another little boy affected with Lysosomal Disease, Dillon. The correlations between Lysosomal Disease and much more well-known issues like Alzheimer's are being uncovered every day. With ...
Amyloidosis Support Groups - BLOOD DISEASE SYMPOSIUM
- By Muriel · Posted July 25, 2009
- 0 replies
- Second Living with a Blood Disease Patient Conference in Rochester, MN on May 8-10, 2010. Our meeting last year was a spectacular success with almost 400 participants. Realize it is Mothers Day on May ...
HIDS
- By mommymanda · Posted July 12, 2009
- 8 replies
- Payton is now almost 4 and it seems like he just keeps getting new symptoms. It feels as if he never gets a break! As of right now we are on Kineret injections during episodes for 3 days and also on Humira ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Amyloidosis Support Groups Inc. - Upcoming Events
- By Muriel · Posted June 12, 2009
- 0 replies
- JUNE 6 – NYC – DR. DISPENZIERI - Mayo/Rochester 13 - ATLANTA – Dr. Jonathan Kaufman 20 - FATHER’S DAY WEEKEND 26 - Bob King Memorial Fundraiser - Ohio 27 - CHICAGO - Jeffrey Zonder – Karmanos/Detroit ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Dr. Robert Kyle to attend Charlotte Amyloidosis Support 7/18/09
- By Muriel · Posted June 8, 2009
- 0 replies
- I think I read somewhere that Dr. Kyle is the most published Hematologist in the New England Journal of Medicine....and knows every hematological malignancy and disease that exists. He is supposedly retired ...
Mayo Clinic Lectures for Patients/Caregivers- Amyloidosis,MM,Breast Cancer
- By Muriel · Posted June 4, 2009
- 0 replies
- Mayo Clinic invites patients, families and caregivers interested in breast cancer and hematologic malignancies to special dinner lectures and a wellness program at the Ritz Carlton on Amelia Island, Florida ...
Amyloidosis Support Groups - Meetings Coming Up
- By Muriel · Posted June 3, 2009
- 0 replies
- RSVP - muriel@finkelsupply.com • JUNE • 6 – NYC – DR. DISPENZIERI - Mayo/Rochester • 13 - ATLANTA – Dr. Jonathan Kaufman and Guided Imagery • 27 - CHICAGO - Jeffrey Zonder – Karmanos/Detroit JULY • 11 ...
Amyloidosis Support Groups Inc. - LEADERS RETREAT
- By Muriel · Posted June 2, 2009
- 0 replies
- They came from the Pacific Northwest on one coast and D.C. from the other........with many cities in between.... Friday night we had a meet and greet and informal meeting at my house as people arrived ...
Amyloidosis Support Groups NYC Meeting- June 6
- By Muriel · Posted May 28, 2009
- 0 replies
- When we asked Dr. Dispenzieri to be our guest, she was not at that time a nominee for the NORD Hall of Fame for researchers. If you can make the meeting at Mt. Sinai (see www.amyloidosissupport.com) for ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
