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I was DX over a year ago with Amyloid I have been to Boston three times. Finally on the last visit they said my AMyloid was secondary but they couldn't figure out secondary to what! Neither could my doctors here so I have gone untreated all this time I am now on diaylsis as it took my kidneys, my legs are turning to wood I have EMG proven neuropathy and amyloid has also been biopsied out of my esphogas and colon I need a doctor who can firgure it out!
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