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Amyloidosis Support Groups - NEW MEETING K.C.
- By Muriel · Posted July 2, 2009
- Journal · 0 replies
- August 8th. E-mail muriel@finkelsupply.com for details. We are excited to be starting a new group. Watch the website www.amyloidosissupport.com for updates. Muriel Muriel Finkel President AMYLOIDOSIS ...
Familial Amyloidosis
- By RON-C · New reply July 2, 2009
- Discussion in Familial (hereditary) and TTR amyloidosis · 11 replies
- Interested in talking with other people who have this type of Amyloidosis. I received a liver transplant in 1997 at the Mayo Clinic. Also interested in new research and the development of pharmaceutical ...
Amyloidosis in the Lungs
- By styxx18 · New reply July 2, 2009
- Discussion in Localized amyloidosis, CAA, cutaneous amyloidosis, and others · 16 replies
- Hi i'm a new member my name is Stacy and unfortunately my mom has localized amyloidosis in the lungs. I'm trying to find out if anyone out there has the same diagnosis. She has a really bad cough to the ...
Amyloidosis Support Groups - Clinical Trial
- By Muriel · Posted July 2, 2009
- Journal · 0 replies
- Dr. Solomon is aware that I am sharing this with you and as he says.....we have the trial information on www.amyloidosissupport.com under medical links and clinical trials....just scroll down.......and ...
Amyloidosis Support Groups Inc. - Summer/Fall meetings
- By Muriel · Posted June 29, 2009
- Journal · 0 replies
- JULY 11 - DALLAS - Dr. Shaji Kumar Mayo/Rochester 18 - CHARLOTTE NC – Dr. Robert Kyle Mayo/Rochester AUGUST 15 - DC, MD, VA, - - Dr. Joseph Mikhael – Mayo/Phoenix 22 – ROCKY MOUNTAIN – DENVER - Dr. Matous ...
Share your story via video!
- By TeamInspire · New reply June 23, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Support your group and raise awareness with badges
- By Walter · New reply June 22, 2009
- Journal · 39 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
Amyloidosis Support Groups Inc. - Charlotte - Jyly 18- Dr. Kyle
- By Muriel · Posted June 22, 2009
- Journal · 0 replies
- As you know we are lucky to have Dr. Robert Kyle of Mayo as our guest for the Charlotte meeting on July 18th.....when I mentioned this to Dr. Martha Skinner of Boston University Amyloid fame, she said ...
Amyloidosis Support Groups Inc. - Chicago Area Meeting
- By Muriel · Posted June 18, 2009
- Journal · 0 replies
- June 27th at Finkel Supply 1285 Hamilton Parkway Itasca IL 60143 Call for directions or see www.amyloidosissupport.com for details. It's all about sharing and caring and not being alone. All affected ...
Amyloidosis Support Groups Inc. - New Meetings
- By Muriel · Posted June 15, 2009
- Journal · 0 replies
- New meetings forming in Memphis, Nashville and K.C. See www.amyloidosisonline.com for details. Muriel Finkel President AMYLOIDOSIS SUPPORT GROUPS ASG www.amyloidosissupport.com Toll Free 866-404-7539 ...
Amyloidosis Support Groups Inc.- Mayo Clinic Breast Cancer and More
- By Muriel · Posted June 15, 2009
- Journal · 0 replies
- Mayo Clinic invites patients, families and caregivers interested in breast cancer and hematologic malignancies to special dinner lectures and a wellness program at the Ritz Carlton on Amelia Island, Florida ...
symptons ??
- By apr · New reply June 14, 2009
- Discussion in Primary amyloidosis (AL) · 8 replies
- My 48 year old husband was diagnosed with systemic primary AL two years ago. He has had a stem cell transplant at Mayo with the followup chemo. He is currently taking Revlimid, on 21 days, off 7. He has ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · New reply June 12, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Amyloidosis Support Groups Inc. - Upcoming Events
- By Muriel · Posted June 12, 2009
- Journal · 0 replies
- JUNE 6 – NYC – DR. DISPENZIERI - Mayo/Rochester 13 - ATLANTA – Dr. Jonathan Kaufman 20 - FATHER’S DAY WEEKEND 26 - Bob King Memorial Fundraiser - Ohio 27 - CHICAGO - Jeffrey Zonder – Karmanos/Detroit ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · New reply June 9, 2009
- Journal · 36 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
Dr. Robert Kyle to attend Charlotte Amyloidosis Support 7/18/09
- By Muriel · Posted June 8, 2009
- Journal · 0 replies
- I think I read somewhere that Dr. Kyle is the most published Hematologist in the New England Journal of Medicine....and knows every hematological malignancy and disease that exists. He is supposedly retired ...
Mayo Clinic Lectures for Patients/Caregivers- Amyloidosis,MM,Breast Cancer
- By Muriel · Posted June 4, 2009
- Journal · 0 replies
- Mayo Clinic invites patients, families and caregivers interested in breast cancer and hematologic malignancies to special dinner lectures and a wellness program at the Ritz Carlton on Amelia Island, Florida ...
Amyloidosis Support Groups - Meetings Coming Up
- By Muriel · Posted June 3, 2009
- Journal · 0 replies
- RSVP - muriel@finkelsupply.com • JUNE • 6 – NYC – DR. DISPENZIERI - Mayo/Rochester • 13 - ATLANTA – Dr. Jonathan Kaufman and Guided Imagery • 27 - CHICAGO - Jeffrey Zonder – Karmanos/Detroit JULY • 11 ...
Guestbooks are now live!
- By TeamInspire · New reply June 3, 2009
- Journal · 3 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Amyloidosis Support Groups Inc. - LEADERS RETREAT
- By Muriel · Posted June 2, 2009
- Journal · 0 replies
- They came from the Pacific Northwest on one coast and D.C. from the other........with many cities in between.... Friday night we had a meet and greet and informal meeting at my house as people arrived ...
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About this group
The Amyloidosis Support Groups Support Community connects patients, families, friends and caregivers for support and inspiration. The Amyloidosis Support Groups Support Community is sponsored by Amyloidosis Support Groups in partnership with Inspire.