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Recurrent fevers and amyloidosis
- By TomT · New reply February 6, 2010
- Discussion in Primary amyloidosis (AL) · 14 replies
- I was diagnosed with amyloidosis and multiple myeloma in February of 2008. I receive care from Mayo Clinic in Jacksonville Forida. I have been on a three drug treatment that has been very efffective in ...
fed up!
- By ready4glory · New reply January 27, 2010
- Journal · 10 replies
- I was DX over a year ago with Amyloid I have been to Boston three times. Finally on the last visit they said my AMyloid was secondary but they couldn't figure out secondary to what! Neither could my doctors ...
please help???
- By Nic1951 · New reply January 22, 2010
- Discussion in Familial (hereditary) and TTR amyloidosis · 12 replies
- hi all, Im currently i search of some help. My dad died in 2001 of cancer, only thing i aware of it was amyloidosis. It's got to the time where i want to know more about this horrible condition, i surely ...
Amyloidosis Support Groups Inc. - Meetings
- By Muriel · Posted January 15, 2010
- Journal · 0 replies
- January 23rd – Atlanta/Emory – Dr. David Seldin - BUMC February 6 – Tampa/Moffitt February 20 – NYC – Mt. Sinai - Dr. David Vesole – Hackensack and Dr. Robert Kyle – Mayo/Rochester February ...
SHINGLES
- By love2b · New reply January 6, 2010
- Journal · 2 replies
- why do these thangs make you feel so bad. I don't know about anybody else,but my teeth upper and loer hurts all the time , and my throat is sore. my pcp gave me neurotins to take and a antiviral calledvaltrex ...
Amyloidosis in the Lungs
- By styxx18 · New reply January 5, 2010
- Discussion in Localized amyloidosis, CAA, cutaneous amyloidosis, and others · 25 replies
- Hi i'm a new member my name is Stacy and unfortunately my mom has localized amyloidosis in the lungs. I'm trying to find out if anyone out there has the same diagnosis. She has a really bad cough to the ...
WILL WE LIVE OR DIE WITH SCAR
- By love2b · New reply December 22, 2009
- Journal · 18 replies
- we will continue to live with god help. I believe in fighting until I can't fight anymore. So everyone hang in there ...
yes we will live.!fighting a good fight
- By love2b · New reply December 6, 2009
- Journal · 4 replies
- will we live or die?that is the question. I believe we can make it with Gods help and trust in him ...
dIABETES IS CRUEL TO THE BONE
- By love2b · New reply December 4, 2009
- Journal · 2 replies
- i HAVE HAD DIABETES FOR THREE YEARS NOW AND IT IS NOT ANYTHING TO FOOL AROUND WITH. tHE DISAESE ALONE MAKE YOU FEEL TERRIBLE WITH ALL TYPES OF SYMPTOMS THAT COME ALONG WITH IT . sOME OF MY FAMILY MEMBERS ...
HIDS
- By mommymanda · New reply December 2, 2009
- Journal · 11 replies
- Payton is now almost 4 and it seems like he just keeps getting new symptoms. It feels as if he never gets a break! As of right now we are on Kineret injections during episodes for 3 days and also on Humira ...
How do I go about getting tested?
hand pain
- By justinelvn · New reply November 23, 2009
- Discussion in Primary amyloidosis (AL) · 11 replies
- does anyone out there have pain in their hands --supposedly carpal-tunnel (SUPPOSEDLY CAUSED BY AMYLOID) and if so what do you do for pain ...
Familial Amyloidosis
- By bellographix · New reply November 12, 2009
- Discussion in Familial (hereditary) and TTR amyloidosis · 4 replies
- Hello all, my father past away in 2004 from Amyloidosis and I wanted to know what I should do to either test to see if I or my sister inherit this? Any suggestions? Thank you ...
from popthames
- By popthames · New reply November 12, 2009
- Journal · 3 replies
- Well my Dad passed away from Primary AL Amyloidosis June 21 peacefully at home ...
The 2 fronts of amyloidosis
- By apr · New reply November 11, 2009
- Discussion in Primary amyloidosis (AL) · 2 replies
- Our Mayo Dr. explained that amyloidosis attacks on 2 fronts--organs and blood. Does anyone know more about this???? My husband 's bloodwork is still ok, but we are afraid his organ involvement is growing ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Enlarged tongue w/ridges for over 8 months
Itching associated with Primary Amyloidosis
- By Constantvigil · New reply October 18, 2009
- Discussion in Primary amyloidosis (AL) · 3 replies
- My wife was diagnosed with Primary amyloidosis three years ago. Melphalan has brought her Lambda count down to the normal range so she's been taken off it. However, she has intense itching, especially ...
Your vote helps to raise money for research!
- By T-Gayle · Posted October 3, 2009
- Journal · 0 replies
- Hello all ~ As a Al Amyloidosis patient, I am trying to raise money to donate for research. I am only asking for your VOTE in order to win. I have entered my handsome French Bulldog in the www.cutestdogcontest.com ...
Amyloidosis Support Groups and Blood Diseases
- By Muriel · Posted September 29, 2009
- Journal · 0 replies
- www.mayoclinic.org/blood-patient-worksho p The second Living with a Blood Disease Symposium: A Comprehensive Workshop for Patients, Family and Friends Mayo Clinic Rochester, Minnesota May 8-9, 2010 Symposium ...
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The Amyloidosis Support Groups Support Community connects patients, families, friends and caregivers for support and inspiration. The Amyloidosis Support Groups Support Community is sponsored by Amyloidosis Support Groups in partnership with Inspire.