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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Its A New Day....
- By kris12304 · Posted July 11, 2009
- 7 replies
- I'm hoping today is a better day. Yesterday i was a mess!! I felt like i was all alone dealing with this.... I know tho that i'm not and that its not all bout me. My step dad is out of town on a fishing ...
Trying to stay strong...
- By kris12304 · Posted July 10, 2009
- 12 replies
- My mother my best friend is dying right before my very eyes...what can you do? It so hard for me to see her like she is. Her whole body is swollen, she can bearly walk, I'm scared to leave her alone ...
Tech Issues
- By sjavalos1976 · Posted June 22, 2009
- 2 replies
- I have not been able to log in lately, something about cookies and my computer not accepting them. Well, I am back so I wanted to say Hello and Happy Father's Day to all you dads! Yesterday was the first ...
Test cannot find answers - recommending transplant
- By tobimax · Posted June 20, 2009
- 4 replies
- After another series of test, bloodwork, and doctor appointments - still no answers as to why. Maybe there is not an answer. The doctor is recommending my husband for a liver transplant. I am scared ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Do You Know ?
- By For-Real · Posted May 27, 2009
- 0 replies
- 1. How much of your donations actually go towards huge exec salaries, overhead, and finally for liver diease ? 2. How monies designated for "research only" were tapped by exec's to cover "admin costs ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
autoimmune hepetitis
- By PEGGYB · Posted May 16, 2009
- 8 replies
- When i was 30 1980 i got very sick seen several doctors was told i was depressed i worked too much. I was fatigued sick at my stomach this went on for several months,Finally turned jaundiced was then ...
This Hannah...
- By StephLynStill · Posted May 14, 2009
- 0 replies
- This what infantile Lysosomal Disease does ...
big day tomorrow
- By brodielad · Posted May 13, 2009
- 3 replies
- Well tomorrow i see my cardiologist for my 6 month check up , i,m hoping she has good news , I still have a funny feeling in my chest , like a heavyness, like i need to sigh , or something! dont know ...
hereditary illness
- By tabby69 · Posted May 13, 2009
- 5 replies
- i have stage 3 fatty liver and was told it is hereditary i have four other siblings and none of them are sick don't know why ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Dogs & Disorders
- By StephLynStill · Posted April 20, 2009
- 2 replies
- I had the opportunity to meet about 5 dogs with Lysosomal Disease (mps, I think), about a year ago. It was really an eye-opening and amazing experience. Now, I keep finding more and more articles about ...
Lyso-What?
- By StephLynStill · Posted March 9, 2009
- 4 replies
- Just in case you haven't seen it. ;) xoxo s **ps - that's my kiddo ...
Cherry Red Spot is a telltale sign...
- By StephLynStill · Posted March 4, 2009
- 7 replies
- Today I returned a telephone call to a woman who's cousin's 7 month old son, Ben, has been displaying possible symptoms of a neurometabolic disease. You know, darting eyes, not rolling over, trunk weakness ...
just my story
- By Kerfootman77 · Posted March 1, 2009
- 2 replies
- I had first gotten sick in June or july. So i was sent to the hospital near my hometown and they didnt know what i had. so, i was sent to Mayo Clinic in rochester where i found out i had Wilson's disease ...
INTEGRATED ONCOLOGIST!?? CONVENTIONAL/NUTRITION /STRESS REDUC/EXERCISE
- By Katehere · Posted February 27, 2009
- 10 replies
- Sorry about the length of this post, tried to shorten it but can’t figure out what I should remove. OK, as a caregiver and decision maker involving my mother’s cancer diagnosis, I made some major moves ...
Amazing Experience
- By StephLynStill · Posted February 24, 2009
- 5 replies
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
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