Raising a child with cancer

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Muscle weakness

  • By Mommyzika · New reply April 13, 2014
  • 4 replies
  • My son who was diagnosed with ALL has just completed the intensive phase of chemotherapy and is now in the maintenance phase. He is at standard risk and was given dexa in his last protocol. It's been ...

New Treatments for Ependymoma

  • By ABTA_Jillann · Posted March 31, 2014
  • 0 replies
  • Dr. Bouffet is one of a group of dedicated scientists and adult and pediatric neuro-oncologists (CERN) working to find new treatments for ependymoma, The CERN Foundation has one ultimate goal – curing ...

after radioactive scans ? why no consultation

  • By neonlights · Posted March 27, 2014
  • 0 replies
  • Our daughter just finished her scan after radioactiive iodne ablation for her papillary thyroid cancer and then sent on our way don't understand why no consltation from drs about what they learned from ...

Ependymoma: Treatment Options & Quality of Life Concerns Webinar

  • By ABTA_Jillann · Posted March 26, 2014
  • 0 replies
  • Join ABTA Tuesday, 4/1/2014 from 1 p.m. to 2 p.m. Central time as we present a webinar on: Ependymoma: A Discussion of Treatment Options and Associated Quality of Life Concerns. Register here: https://www3.gotomeeting.com/register/95 ...

Behavior Issues

  • By Cags24 · New reply December 29, 2013
  • 5 replies
  • The embarrassing moment is to have to face a parent who is complaining about your child's behavior at school. The tears start to flow as I feel like I am not sure what to do, I've tried everything as ...


  • By ToriandJosh · New reply November 1, 2013
  • 5 replies
  • Just introducing myself. Looking for others who have a child dx with leukemia. Mour third child was dx almost exactly 1 year ago. October 29th to be exact. I engender the very morning he first started ...

1 year remission anniversary party

  • By ToriandJosh · Posted October 13, 2013
  • 0 replies
  • Our son was dx with pre b all on October 29, 2012. He was in remission within 28 days. As the anniversary of dx and remission approaches I'm feeling a desire to do something special to honor him. I want ...

Unexplained stomach pains from meds for ALL

  • By Liams-mom · New reply August 19, 2013
  • 7 replies
  • Hi everyone..I haven't been on here for a while and I hope everyone is doing well. I have a question for other parents who have children diagnosed with A.L.L. My 13 year old son was diagnosed in April ...

Are the doctors right or are my suspicions right?

  • By lillibugsmama · New reply August 18, 2013
  • 19 replies
  • My daughter has been sick for three months. All blood tests are only showing anemia and low sodium. Doctors say it's probably just a virus. I should be happy with this but I still have a feeling deep ...

Separation Anxiety

  • By klgreen · New reply May 10, 2013
  • 5 replies
  • Hello, my son was diagnosed wit Medulloblastoma in October 2012. He celebrated his 4th birthday in November. He had surgery to remove tumor which was a success, 6 weeks of proton therapy radiation, and ...

B Vitamins as antidote to neuropathy?

  • By Andie4 · New reply April 25, 2013
  • 5 replies
  • My 7 year old son is 18 months into his treatment for leukemia, and gets Vincristine IV once a month as part of that treatment. We have noticed that he definitely has some gait issues - he skips or hops ...

Medical Masks for Children

  • By MIT-mask-design-team · New reply April 22, 2013
  • 3 replies
  • I am student at MIT working on a project to design a comfortable, effective and fun-looking medical mask for children. We are looking for volunteers to share your experience with masks and help us understand ...

NY City Free events for pediatric brain tumors families

  • By CatherineML · New reply March 26, 2013
  • 1 reply
  • If you have a child with a brain or spinal cord tumor (as primary dx), and live in the NY, NJ, CT metropolitan area, you may be eligible for free tickets to a show in NYC on February 10 as well as other ...

Wilms Tumor

  • By ChristsAmbassador · New reply March 26, 2013
  • 5 replies
  • Did anyone who had a child with Wilms tumor use Mentholatum (or similar rub) on their child growing up? If so, where did you apply it ...

College During Long Term Maintenance?

  • By BsMomma · New reply November 2, 2012
  • 3 replies
  • Tips for college age kids in treatment... Should they live at home/commute? Take online classes until treatment is complete? Should they live in a dorm or multi-roommate apartment with unstable AGC? How ...

Ewing Sarcoma

  • By Zurba · New reply October 4, 2012
  • 6 replies
  • Dear All, I have an 8 years old son who was diagnosed of July 2012 with Ewing Sarcoma in his right tibia. We were visiting my family in Chicago. I am not a US citizen nor US resident, I do not have social ...

Feeling emotionally drained

  • By Liams-mom · New reply September 25, 2012
  • 27 replies
  • I am feeling emotionally drained still after a year and a half of my son's treatment for ALL. He has not been the best patient at the age of 12 and I have seen him go through a lot of pain and been unable ...

Late side effects of treatment

  • By HopeMama · New reply August 22, 2012
  • 3 replies
  • I am wondering if Medulloblastoma found anyone to help him with his late in life effects of treatment? I am interested in any progress you might have made? Our son had radiation treatment & surgery 5 ...

Wilms Recurrence

  • By kheineman · New reply August 3, 2012
  • 5 replies
  • My four-year-old was recently diagnosed with her second wilms tumor recurrence and I was wondering if anyone else has gone through similar circumstances. It would be good to connect with others whose ...

Chorid plexus carcinoma

  • By Gregwmayo · Posted July 29, 2012
  • 0 replies
  • I have a 4 yr old with this cancer anyone else ...

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