Raising a child with cancer

Ask questions and share information and support here.

Discussions

Muscle weakness

Mommyzika
  • By Mommyzika · New reply April 13, 2014
  • 4 replies
  • My son who was diagnosed with ALL has just completed the intensive phase of chemotherapy and is now in the maintenance phase. He is at standard risk and was given dexa in his last protocol. It's been ...

New Treatments for Ependymoma

ABTA_Jillann
  • By ABTA_Jillann · Posted March 31, 2014
  • 0 replies
  • Dr. Bouffet is one of a group of dedicated scientists and adult and pediatric neuro-oncologists (CERN) working to find new treatments for ependymoma, The CERN Foundation has one ultimate goal – curing ...

after radioactive scans ? why no consultation

neonlights
  • By neonlights · Posted March 27, 2014
  • 0 replies
  • Our daughter just finished her scan after radioactiive iodne ablation for her papillary thyroid cancer and then sent on our way don't understand why no consltation from drs about what they learned from ...

Ependymoma: Treatment Options & Quality of Life Concerns Webinar

ABTA_Jillann
  • By ABTA_Jillann · Posted March 26, 2014
  • 0 replies
  • Join ABTA Tuesday, 4/1/2014 from 1 p.m. to 2 p.m. Central time as we present a webinar on: Ependymoma: A Discussion of Treatment Options and Associated Quality of Life Concerns. Register here: https://www3.gotomeeting.com/register/95 ...

Behavior Issues

Cags24
  • By Cags24 · New reply December 29, 2013
  • 5 replies
  • The embarrassing moment is to have to face a parent who is complaining about your child's behavior at school. The tears start to flow as I feel like I am not sure what to do, I've tried everything as ...

new

ToriandJosh
  • By ToriandJosh · New reply November 1, 2013
  • 5 replies
  • Just introducing myself. Looking for others who have a child dx with leukemia. Mour third child was dx almost exactly 1 year ago. October 29th to be exact. I engender the very morning he first started ...

1 year remission anniversary party

ToriandJosh
  • By ToriandJosh · Posted October 13, 2013
  • 0 replies
  • Our son was dx with pre b all on October 29, 2012. He was in remission within 28 days. As the anniversary of dx and remission approaches I'm feeling a desire to do something special to honor him. I want ...

Unexplained stomach pains from meds for ALL

Liams-mom
  • By Liams-mom · New reply August 19, 2013
  • 7 replies
  • Hi everyone..I haven't been on here for a while and I hope everyone is doing well. I have a question for other parents who have children diagnosed with A.L.L. My 13 year old son was diagnosed in April ...

Are the doctors right or are my suspicions right?

lillibugsmama
  • By lillibugsmama · New reply August 18, 2013
  • 19 replies
  • My daughter has been sick for three months. All blood tests are only showing anemia and low sodium. Doctors say it's probably just a virus. I should be happy with this but I still have a feeling deep ...

Separation Anxiety

klgreen
  • By klgreen · New reply May 10, 2013
  • 5 replies
  • Hello, my son was diagnosed wit Medulloblastoma in October 2012. He celebrated his 4th birthday in November. He had surgery to remove tumor which was a success, 6 weeks of proton therapy radiation, and ...

B Vitamins as antidote to neuropathy?

Andie4
  • By Andie4 · New reply April 25, 2013
  • 5 replies
  • My 7 year old son is 18 months into his treatment for leukemia, and gets Vincristine IV once a month as part of that treatment. We have noticed that he definitely has some gait issues - he skips or hops ...

Medical Masks for Children

MIT-mask-design-team
  • By MIT-mask-design-team · New reply April 22, 2013
  • 3 replies
  • I am student at MIT working on a project to design a comfortable, effective and fun-looking medical mask for children. We are looking for volunteers to share your experience with masks and help us understand ...

NY City Free events for pediatric brain tumors families

CatherineML
  • By CatherineML · New reply March 26, 2013
  • 1 reply
  • If you have a child with a brain or spinal cord tumor (as primary dx), and live in the NY, NJ, CT metropolitan area, you may be eligible for free tickets to a show in NYC on February 10 as well as other ...

Wilms Tumor

ChristsAmbassador
  • By ChristsAmbassador · New reply March 26, 2013
  • 5 replies
  • Did anyone who had a child with Wilms tumor use Mentholatum (or similar rub) on their child growing up? If so, where did you apply it ...

College During Long Term Maintenance?

BsMomma
  • By BsMomma · New reply November 2, 2012
  • 3 replies
  • Tips for college age kids in treatment... Should they live at home/commute? Take online classes until treatment is complete? Should they live in a dorm or multi-roommate apartment with unstable AGC? How ...

Ewing Sarcoma

Zurba
  • By Zurba · New reply October 4, 2012
  • 6 replies
  • Dear All, I have an 8 years old son who was diagnosed of July 2012 with Ewing Sarcoma in his right tibia. We were visiting my family in Chicago. I am not a US citizen nor US resident, I do not have social ...

Feeling emotionally drained

Liams-mom
  • By Liams-mom · New reply September 25, 2012
  • 27 replies
  • I am feeling emotionally drained still after a year and a half of my son's treatment for ALL. He has not been the best patient at the age of 12 and I have seen him go through a lot of pain and been unable ...

Late side effects of treatment

HopeMama
  • By HopeMama · New reply August 22, 2012
  • 3 replies
  • I am wondering if Medulloblastoma found anyone to help him with his late in life effects of treatment? I am interested in any progress you might have made? Our son had radiation treatment & surgery 5 ...

Wilms Recurrence

kheineman
  • By kheineman · New reply August 3, 2012
  • 5 replies
  • My four-year-old was recently diagnosed with her second wilms tumor recurrence and I was wondering if anyone else has gone through similar circumstances. It would be good to connect with others whose ...

Chorid plexus carcinoma

Gregwmayo
  • By Gregwmayo · Posted July 29, 2012
  • 0 replies
  • I have a 4 yr old with this cancer anyone else ...

Things you can do

Support ACCO

Help the American Childhood Cancer Organization reach its goals and support people like yourself by making a donation today.

Donate to the American Childhood Cancer Organization

Discussion topics

Financial Impact of Childhood Cancer

Download the free report from Inspire and ACCO -- The Financial Impact of Childhood Cancer

Help Raise Awareness!


PJammin (r) - For kids with cancer

Go Gold - For kids with cancer

Links and Resources from ACCO

About Us
About the American Childhood Cancer Organization's purpose and mission.

Free Resources
We offer a variety of FREE books and materials for kids and families.

Treatment Information
Information about childhood cancer treatment centers, clinical trials, and more.

Donate
Your gift will allow us to continue developing new programs and to continue creating and distributing free materials for children and families.

Educate Your Community
This presentation, entitled "Unsung Heroes" will help you educate yourself and your community about the trials and tribulations faced by children and families. As a parent, caregiver, patient, or survivor, you'll have a powerful tool to supplement your already-powerful story.

Gold Ribbon Awareness
ACCO's new awareness program. Host a gold-themed event to raise funds and awareness!

PJammin for Kids with Cancer
Create supportive schools and businesses in your community by hosting pajama days for kids with cancer!

Sign up for our Email Newsletter

Connect with ACCO on Facebook

Community leaders