Newly diagnosed

Information and support for those who have recently learned that their child has cancer.


Can't Stop Crying

  • By tarys19 · New reply March 28, 2014
  • 5 replies
  • My daughter was diagnosed yesterday after her initial MRI. I keep saying those awful words over and over "my child has cancer." We see an Oncologist next week. My child has an Oncologist to start with ...

Biphenotypic Leukemia

  • By avasmom2 · Posted March 14, 2014
  • 0 replies
  • Hello, My 5 year old daughter was recently diagnosed with Biphenotypic Leukemia when we went in for a skin infection that would not clear. We are devastated by this diagnosis. We are 3 days past her first ...

How to help a friend?

  • By stotte · New reply February 20, 2014
  • 1 reply
  • One of my best friends was told last night her 6 year old daughter has Luekemia. Her daughter is like a niece to me I love her so much. Immediatley everyone responded with posts about prayers and thoughts ...

Physical therapy

  • By Aviens-mom · New reply November 17, 2013
  • 1 reply
  • We are on hold in starting consolidation. Counts have been to low, 610 down to 320. Hopefully we can start on Monday. My son has trouble walking but his doctor said his legs should get better now that ...

Sensitive skin

  • By Aviens-mom · New reply November 7, 2013
  • 1 reply
  • Just recently my son will take a bath and play. No problem now that he has a port. The thing is he will not let me try him off. He says it hurts his skin. He has no rash, no dry patches. I am wondering ...

Chemo Course for Hepatoblastoma?

  • By Elizasgrandma · Posted July 15, 2013
  • 0 replies
  • My 11 month old grandaughter was just diagnosed with hepatoblastoma. They are not currently in the US & a chemo cycle has just been recommended of one 6 hour infusion every 14 days. Her parents are still ...


  • By Mishon23 · New reply June 8, 2013
  • 3 replies
  • Need help with treatment for my 11 month old just diagnoses a week ago can anyone help me find a treatment that will help and not destroy her please desperate to find something ...

Could this be cancer?

  • By lilyofthevalley218 · New reply April 3, 2013
  • 5 replies
  • I'm sorry if this is the wrong group to post this in but my daughter is 25 months 22 corrected she has been the same weight for over a year her doctor ordered a thyroid blood test and other blood work ...

Hepatoblastoma 9 months old

  • By Gbishop · New reply February 27, 2013
  • 3 replies
  • Hi my daughter is only 9 months old and was just diagnosed with Hepatoblastoma Stage 3. She was just diagnosed January 31st 2013. And we have started her 1st round of chemo. Not only has this all happened ...


  • By Julie1234 · New reply January 27, 2013
  • 14 replies
  • My son is 3 1/2 years old and had just been diagnosed with medulloblastoma. He had surgery to have the tumor removed but he also has spots on his spine. The doctors say he has a very aggressisve form ...


  • By Vie0882 · New reply December 21, 2012
  • 6 replies
  • My daughter 7 days old suffer from Medulloblastoma as per the MRI report.Kindly suggest me the options available for me to save her life ...

Intraventricular Hematoma

  • By Vie0882 · Posted December 20, 2012
  • 0 replies
  • Thanks for sharing all the information . However now the contrast MRI says she is having a intraventricular Hematoma.In contrast MRI impression is "Well defined nodular lesion is seen attached to roof ...

Anaplastic Astroblastoma

  • By Trackmom · New reply December 20, 2012
  • 3 replies
  • My 20 year old daughter has been diagnosed with an Anaplastic Astroblastoma. She was having horrible headaches and blurry vision. An MRI on 10/25 revealed a large tumor , 11/1 she had a gross total resection ...


  • By ajennifer1016 · New reply December 13, 2012
  • 3 replies
  • My 19 year old brother was recently diagnosed with Medulloblastoma and I was curious to meet anyone who has this or knows someone who does or has had it. I'm so confused on what our/his future is. Can ...

Recurrent Wilms

  • By teamsyd · Posted October 3, 2012
  • 0 replies
  • My daughter was diagnosed with Wilms Tumor April 2008. After radiation and treatment, we'd gone almost 2 yrs cancer free. Yesterday we just found out her cancer has come back in her liver. Its a tiny ...

Please pray for my boy.

  • By JoshuasDaddy · Posted October 2, 2012
  • 0 replies
  • Joshua Cranfill is fighting Rhabdomyosarcoma for the 3rd time. Originally diagnosed at 6 months old, he's now 6 and is undergoing tests for staging at Texas Children's in Houston. ...

astrocytoma in a 16 year old

  • By Gordysmom · New reply September 20, 2012
  • 4 replies
  • my little cuzn due to have surgery on 6-11-12 is surgery the best route ...

wilms tumor stage 4

  • By Irysssmommy · New reply September 1, 2012
  • 4 replies
  • Hi I have a 3 year old daughter who has just been diagnosed with stage 4 wilms tumor. Id like to connect with other parents whos child has been diagnosed with the same illness. I would like to hear about ...

Services for Children with Brain and Spinal Tumors

  • By CatherineML · Posted August 27, 2012
  • 0 replies
  • Making Headway Foundation provides services for families in the NY, NJ, CT area battling Pediatric Brain or Spinal Cord Tumors. Learn about what we do here MA ...


  • By ConcernedAunt · New reply August 16, 2012
  • 10 replies
  • Does anyone here have a child suffering from DIPG? My nephew was just diagnosed and it is horrible. We are currently at CHOP Philadelphia and are to begin radiation on Monday. There are so many trials ...

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