Active posts

afraid of malignant bone tumor!!!!!

mango1990
  • By mango1990 · New reply March 8, 2014
  • Discussion in Awareness and fundraising · 2 replies
  • hello all.. my brother is 6years old and since last one year, complains about severe leg pain at night. it was occassional. but recently its happenning every night. he is always less intersted abt foods ...

ACCO Family Perspectives

MomtoMarleigh
  • By MomtoMarleigh · Posted February 28, 2014
  • Discussion in Advocacy · 0 replies
  • The American Childhood Cancer Organization had decided to expand the opportunity for writing for its new book on pediatric palliative care to children with cancer and to siblings in addition to parents ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

How to help a friend?

stotte
  • By stotte · New reply February 20, 2014
  • Discussion in Newly diagnosed · 1 reply
  • One of my best friends was told last night her 6 year old daughter has Luekemia. Her daughter is like a niece to me I love her so much. Immediatley everyone responded with posts about prayers and thoughts ...

15 Things I Wished I'd Known about Grief

meichner
  • By meichner · New reply February 19, 2014
  • Journal · 4 replies
  • 15 Things I Wish I’d Known About Grief. 1. You will feel like the world has ended. I promise, it hasn’t. Life willgo on, slowly. A new normal will come, slowly. 2. No matter how bad a day feels, it is ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Questions about cancer??

fuji
  • By fuji · New reply February 10, 2014
  • Discussion in Teens · 4 replies
  • I wasn't sure where to post this, seemed like the best place to get some answers or at least some encouragement that we are going in the right direction. 1. I see in much of the articles that often there ...

New infographic: Inspire Rare Disease Health Communities at a Glance

John2
  • By John2 · Posted January 9, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 1/9//13 Dear members, I am writing to share with you a new infographic that Inspire published yesterday: Inspire Rare Disease Health Communities at ...

relapse fears

ErinE
  • By ErinE · New reply January 6, 2014
  • Discussion in Emotional support for parents and caregivers · 4 replies
  • Hi everyone, I'm new to the discussion board and looking for some advice on how to deal with relapse fear. My 8 year old daughter, Moira, was diagnosed with a very high risk form of t-cell ALL on May ...

Loss of 12 year old son AML 11/1/2013

gibbysue
  • By gibbysue · New reply December 30, 2013
  • Journal · 3 replies
  • One week after diagnosis, my 12-year old son died due to complications of AML. A whirlwind.... The shock of diagnosis, paperwork, testing, complications and shock of death of a child. ..still reeling ...

Behavior Issues

Cags24
  • By Cags24 · New reply December 29, 2013
  • Discussion in Raising a child with cancer · 5 replies
  • The embarrassing moment is to have to face a parent who is complaining about your child's behavior at school. The tears start to flow as I feel like I am not sure what to do, I've tried everything as ...

A Pop Pops Front Porch Merry Christmas

SammyandRhonda
  • By SammyandRhonda · Posted December 23, 2013
  • Discussion in Emotional support for parents and caregivers · 0 replies
  • Rhonda and I would like to wish you all “A Pop Pops Front Porch Merry Christmas” singing Christmas Card I created for my friends, my kids and my 17 grandkids. I recorded a Singing Christmas card of 11 ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Hospital Group Purchasing Organizations (GPOs) & Generic Drug Shortages

nycphil
  • By nycphil · Posted November 24, 2013
  • Journal · 0 replies
  • PhysiciansAgainstDrugShortages (PADS) is a grassroots coalition working pro bono to expose the role of anticompetitive hospital group purchasing (GPO) contracting practices, self-dealing, and kickbacks ...

Hospital Group Purchasing Organizations (GPOs) and the Drug Shortages

nycphil
  • By nycphil · Posted November 24, 2013
  • Discussion in Advocacy · 0 replies
  • PhysiciansAgainstDrugShortages (PADS) is a grassroots coalition working pro bono to expose the role of anticompetitive hospital group purchasing (GPO) contracting practices, self-dealing, and kickbacks ...

Do these groups help?

dtaylor3105 (Inactive)
  • By dtaylor3105 (Inactive) · New reply November 23, 2013
  • Discussion in Emotional support for parents and caregivers · 4 replies
  • Hi! I am a senior nursing student studying the benefit of support groups for patients and their families. I would like to express my profound respect for you as caregivers for taking on this challenge ...

Genetic Testing-Medulloblastoma

Cade2010
  • By Cade2010 · New reply November 22, 2013
  • Discussion in Treatment · 5 replies
  • Our 2 1/2 year old son passed away of a medulloblastoma in April 2013. His pathology was a large cell medulloblastoma. He also had leptomenigeal spread. We are having a difficult time trying to find a ...

Physical therapy

Aviens-mom
  • By Aviens-mom · New reply November 17, 2013
  • Discussion in Newly diagnosed · 1 reply
  • We are on hold in starting consolidation. Counts have been to low, 610 down to 320. Hopefully we can start on Monday. My son has trouble walking but his doctor said his legs should get better now that ...

Sensitive skin

Aviens-mom
  • By Aviens-mom · New reply November 7, 2013
  • Discussion in Newly diagnosed · 1 reply
  • Just recently my son will take a bath and play. No problem now that he has a port. The thing is he will not let me try him off. He says it hurts his skin. He has no rash, no dry patches. I am wondering ...

Love them like it could be the last day!

wylieswish
  • By wylieswish · New reply November 3, 2013
  • Journal · 3 replies
  • I know you must wonder why I still write. I write so my son`s life will not be lost in vain. Wylie was the most fantastic child I could ever have wished for. Diagnosed at age 9, his only wish was to survive ...

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