New posts

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Muscle weakness

Mommyzika
  • By Mommyzika · Posted April 11, 2014
  • Discussion in Raising a child with cancer · 4 replies
  • My son who was diagnosed with ALL has just completed the intensive phase of chemotherapy and is now in the maintenance phase. He is at standard risk and was given dexa in his last protocol. It's been ...

Blast Found

Vgrande
  • By Vgrande · Posted April 4, 2014
  • Journal · 3 replies
  • Question for anyone who can help .. My son has been going though treatment for almost 3 years .. we just had his last LP and we only had one more to go .. first time ever they called us and said they ...

Response needed

dleach
  • By dleach · Posted April 3, 2014
  • Discussion in Advocacy · 0 replies
  • **URGENT** Immediate response needed! Any family who has had a successful or unsuccessful attempt to get access to a drug for compassionate use. Please contact Ruth Hoffman this morning as soon as possible ...

child afraid is afraid to go to school

neonlights
  • By neonlights · Posted April 1, 2014
  • Discussion in Emotional support for my child · 1 reply
  • My daughter 13 just completed her treatment for papillary thyroid cancer and was supposed to go back to school today and refused to she finally broke down and admitted she is afraid something is going ...

New Treatments for Ependymoma

ABTA_Jillann
  • By ABTA_Jillann · Posted March 31, 2014
  • Discussion in Raising a child with cancer · 0 replies
  • Dr. Bouffet is one of a group of dedicated scientists and adult and pediatric neuro-oncologists (CERN) working to find new treatments for ependymoma, The CERN Foundation has one ultimate goal – curing ...

Send children to grandparents' house?

wonderwoman5432
  • By wonderwoman5432 · Posted March 31, 2014
  • Discussion in Brothers and sisters · 4 replies
  • Hello, I'm struggling here--after my nine-year old daughter was diagnosed with very high risk Leukemia, we sent my four year old son to stay with grandparents in another state. It has been two months ...

after radioactive scans ? why no consultation

neonlights
  • By neonlights · Posted March 27, 2014
  • Discussion in Raising a child with cancer · 0 replies
  • Our daughter just finished her scan after radioactiive iodne ablation for her papillary thyroid cancer and then sent on our way don't understand why no consltation from drs about what they learned from ...

Ependymoma: Treatment Options & Quality of Life Concerns Webinar

ABTA_Jillann
  • By ABTA_Jillann · Posted March 26, 2014
  • Discussion in Raising a child with cancer · 0 replies
  • Join ABTA Tuesday, 4/1/2014 from 1 p.m. to 2 p.m. Central time as we present a webinar on: Ependymoma: A Discussion of Treatment Options and Associated Quality of Life Concerns. Register here: https://www3.gotomeeting.com/register/95 ...

Family Perspectives from those who have been touched by childhood cancer

MomtoMarleigh
  • By MomtoMarleigh · Posted March 26, 2014
  • Discussion in Advocacy · 0 replies
  • The American Childhood Cancer Organization continues to extend the opportunity to parents and family members of children who have been touched by cancer to write about their experiences for a new book ...

isolation during rai

neonlights

Nutrition Workshop- Sunday, April 13, 2014 - 2pm-4pm

DanielleCook
  • By DanielleCook · Posted March 20, 2014
  • Discussion in Teens · 0 replies
  • A Workshop Presented by the Georgetown University Hospital Pediatric Hematology Oncology Parent Advisory Board: Dishing it Up: geared towards Adolescent and Young Adult Cancer Survivors, Parents and Caregivers ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Managing Survivorship: Adolescents & Young Adults with Brain Tumors Webinar

ABTA_Jillann
  • By ABTA_Jillann · Posted March 18, 2014
  • Discussion in Teens · 0 replies
  • ABTA is hosting a webinar this Wednesday, 3/19/2014 from 2 p.m. to 3 p.m. Central time. Managing Survivorship for Adolescents and Young Adults who have Been Diagnosed with Pediatric Brain Tumors Join ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · Posted March 14, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Biphenotypic Leukemia

avasmom2
  • By avasmom2 · Posted March 14, 2014
  • Discussion in Newly diagnosed · 0 replies
  • Hello, My 5 year old daughter was recently diagnosed with Biphenotypic Leukemia when we went in for a skin infection that would not clear. We are devastated by this diagnosis. We are 3 days past her first ...

Contribution of Family Perspectives for New Pediatric Palliative Care Book

MomtoMarleigh
  • By MomtoMarleigh · Posted March 10, 2014
  • Discussion in Advocacy · 0 replies
  • The American Childhood Cancer Organization, with sponsorship and support from the ACS is continuing to gather parent and family perspectives for its new book on the topic of pediatric palliative care ...

Can't Stop Crying

tarys19
  • By tarys19 · Posted March 7, 2014
  • Discussion in Newly diagnosed · 5 replies
  • My daughter was diagnosed yesterday after her initial MRI. I keep saying those awful words over and over "my child has cancer." We see an Oncologist next week. My child has an Oncologist to start with ...

My daughter symptoms.. Cancer?!

nicoledorman
  • By nicoledorman · Posted March 6, 2014
  • Discussion in Awareness and fundraising · 7 replies
  • Hello, My daughter is 3 years old and for the last month has had lots of Cancer like symptoms. I feel silly for even thinking its a possibility because of how rare the chances are but I just keep saying ...

Things you can do

Support ACCO

Help the American Childhood Cancer Organization reach its goals and support people like yourself by making a donation today.

Donate to the American Childhood Cancer Organization

Discussion topics

Financial Impact of Childhood Cancer

Download the free report from Inspire and ACCO -- The Financial Impact of Childhood Cancer

Help Raise Awareness!


PJammin (r) - For kids with cancer

Go Gold - For kids with cancer

Links and Resources from ACCO

About Us
About the American Childhood Cancer Organization's purpose and mission.

Free Resources
We offer a variety of FREE books and materials for kids and families.

Treatment Information
Information about childhood cancer treatment centers, clinical trials, and more.

Donate
Your gift will allow us to continue developing new programs and to continue creating and distributing free materials for children and families.

Educate Your Community
This presentation, entitled "Unsung Heroes" will help you educate yourself and your community about the trials and tribulations faced by children and families. As a parent, caregiver, patient, or survivor, you'll have a powerful tool to supplement your already-powerful story.

Gold Ribbon Awareness
ACCO's new awareness program. Host a gold-themed event to raise funds and awareness!

PJammin for Kids with Cancer
Create supportive schools and businesses in your community by hosting pajama days for kids with cancer!

Sign up for our Email Newsletter

Connect with ACCO on Facebook

Community leaders