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Scheduled Maintenance of Inspire 5/30 2-3am Eastern Time

TeamInspire
  • By TeamInspire · Posted yesterday at 11:51 am
  • Journal · 0 replies
  • All, We are planning an outage of the Inspire.com website on Saturday, May 30th at 2-3 a.m, Eastern for system maintenance. The site will not be available for some or all of this window. Please let us ...

Late Effects in Survivors of Childhood CNS Tumors

jesica111
  • By jesica111 · Posted May 12, 2015
  • Journal · 0 replies
  • With improved treatments, a large majority of children (>70%) with central nervous system (CNS) tumors will become long term survivors. These survivors are at risk for adverse long term outcomes, also ...

Free web magazine for children

cheerup
  • By cheerup · Posted May 7, 2015
  • Journal · 2 replies
  • The May issue of the free, non commercial web magazine for children is published(uploaded). www.cheerupkids.weebly.com There will be a photo gallery in June, Theme:"Daddy and me" or "Father's love" for ...

HUMOR IS ENCOURAGEMENT TOO...

Survivor29
  • By Survivor29 · Posted May 3, 2015
  • Journal · 101 replies · Photos
  • HUMOR IS ENCOURAGEMENT TOO... FUNNY HUMOR...DRY HUMOR...ODD HUMOR...HOENST HUMOR, ...MAKE YA GRIN & SMILE HUMOR,...DELAYED- REACTION HUMOR, ... AAAAH OK, "I'LL GIVE IT A TRY" HUMOR,... SILLY HUMOR ...

CARRAGEENAN & SULFA, SULFITS, ETC. WHAT'S IN YOUR HEALTHY FOODS???

Survivor29
  • By Survivor29 · Posted May 2, 2015
  • Journal · 32 replies
  • WARNING: DOES YOUR ALMOND, COCONUT, SOY, RICE, OR OTHER NUT MILK CONTAIN THIS INGREDIENT??? "CARRAGEENAN "…. SULFA, SULFUR, AND SULFITE AND ANYTHING WITH SIMILAR PREFIX OR SUFFIX IN THE WORDING? REGARDLESS ...

Oral and Dental Considerations in the Management of Leukemic Children

jesica111
  • By jesica111 · Posted April 29, 2015
  • Journal · 0 replies
  • An incidence of overall oral sequelae in leukemic children of 54% has been reported in the literature. Oral complications include mucositis, fungal and viral infections, salivary gland hypofunction, dental ...

GnRH-Analogues for Ovarian Protection in Childhood Cancer Patients

jesica111
  • By jesica111 · Posted April 29, 2015
  • Journal · 0 replies
  • Systemic chemotherapy frequently causes primary ovarian insufficiency. In prepubertal girls, currently the only option to preserve ovarian function is ovarian tissue preservation. The use of gonadotropin-releasing ...

Irinotecan for Treatment of Childhood Cancers:

jesica111
  • By jesica111 · Posted April 27, 2015
  • Journal · 0 replies
  • Irinotecan has been increasingly used for treatment of pediatric cancers over the past decade. Irinotecan has modest single-agent activity against common childhood solid tumors, and the low incidence ...

What do you wish your doctor knew?

Brian
  • By Brian · Posted April 22, 2015
  • Journal · 663 replies · Photos
  • Dear members, Some of you have seen the story of the schoolteacher who asked students to anonymously finish the sentence, “I wish my teacher knew…” in an effort to get the children to share something ...

Chromosomal Translocations as Biomarkers in Leukemia Diagnosis

jesica111
  • By jesica111 · Posted April 21, 2015
  • Discussion in Advocacy · 0 replies
  • Chromosomal translocations are primary events in the development of leukemias and are used as biomarkers of various hematological malignancies. Biomarkers enable rational modifications of primary cancer ...

Anastin or Anastin and CNNU? I need feedback on an experiences with either

hoospot
  • By hoospot · Posted April 11, 2015
  • Discussion in Treatment · 0 replies
  • My son is 18 and will be deciding between either doing Avastin or Avastin and cnnu. I just need to know others experiences with them. He is being treated for a brain tumor. Temodar was not responding ...

brain tumor glioma

hoospot
  • By hoospot · Posted April 9, 2015
  • Discussion in Treatment · 0 replies
  • My 18 year old recently had his 3rd craniotomy. He has been on temodar for 3 months but a contrast area kept growing in size hence the craniotomy to try to biopsy the contrast area. Unfortunately they ...

Up, down, round and round :)

FunSyze
  • By FunSyze · Posted April 6, 2015
  • Journal · 39 replies · Photos
  • Hi all, I was recently in the hospital for an infection in my face, My eye, my lymph nodes. I am feeling better, doing better and now I am weak and sore and going through some of the same pain journeys ...

Free web magazine for children

cheerup
  • By cheerup · Posted April 4, 2015
  • Journal · 0 replies
  • Cheer Up Kids is a free non commercial monthly web magazine for the brave fighters (children fighting against life altering disease). The April issue is uploaded. Please share it with the brave fighters ...

Rising Health Care Costs

stage4warrior
  • By stage4warrior · Posted April 2, 2015
  • Discussion in Financial and insurance issues · 0 replies
  • Hi everyone, Last Sunday the LA Times featured a story regarding Rising Health Care costs. I was one of the topics in this story please read the article and share if you will your positive or negative ...

Time doesn't heal all wounds, but baseball helps!

wylieswish
  • By wylieswish · Posted March 27, 2015
  • Journal · 1 reply
  • He would be 15 this year. a sweet baby. I miss him so much, and his brother too! Can`t believe it's been 3 years. His friends are playing sports, flirting with the girls and finishing their middle school ...

Update: Guestbooks

TeamInspire
  • By TeamInspire · Posted March 24, 2015
  • Journal · 0 replies
  • Hello, We are constantly working to improve Inspire by adding features that members find useful and retiring those that members do not. To that end, we have retired the guestbook feature. We understand ...

Brain tumor-oglioastrocytoma

hoospot
  • By hoospot · Posted March 10, 2015
  • Discussion in Treatment · 1 reply
  • My son was diagnosed at age 13 (2010 grade 3) and underwent 6 months of Temodar and 61/2 weeks of Proton Beam Radiation. December of 2014 they found a spot and we went on Temodar again. March 2015 the ...

I need you help!

Dawn100
  • By Dawn100 · Posted March 5, 2015
  • Journal · 0 replies · Photos
  • Hi, my name is Dawn Malacos. My daughter Bentley was diagnosed with leukemia when she was 3 years old! As you all know it was a long battle. Leukemia treatment for girls lasts for about 2 1/2 years! She ...

We are all Experts by Experience

Brian
  • By Brian · Posted March 4, 2015
  • Journal · 61 replies · Photos
  • Dear members, I am pleased to announced that we have just published, for the third year running, Experts by Experience 2015: A compilation of patients’ stories, a new special report developed in partnership ...

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Financial Impact of Childhood Cancer

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