Journals

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Blast Found

Vgrande
  • By Vgrande · Posted April 4, 2014
  • 3 replies
  • Question for anyone who can help .. My son has been going though treatment for almost 3 years .. we just had his last LP and we only had one more to go .. first time ever they called us and said they ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · Posted March 14, 2014
  • 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

15 Things I Wished I'd Known about Grief

meichner
  • By meichner · Posted February 17, 2014
  • 4 replies
  • 15 Things I Wish I’d Known About Grief. 1. You will feel like the world has ended. I promise, it hasn’t. Life willgo on, slowly. A new normal will come, slowly. 2. No matter how bad a day feels, it is ...

Introducing Photos for Inspire

Walter
  • By Walter · Posted February 11, 2014
  • 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

New infographic: Inspire Rare Disease Health Communities at a Glance

John2
  • By John2 · Posted January 9, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 1/9//13 Dear members, I am writing to share with you a new infographic that Inspire published yesterday: Inspire Rare Disease Health Communities at ...

Loss of 12 year old son AML 11/1/2013

gibbysue
  • By gibbysue · Posted December 28, 2013
  • 3 replies
  • One week after diagnosis, my 12-year old son died due to complications of AML. A whirlwind.... The shock of diagnosis, paperwork, testing, complications and shock of death of a child. ..still reeling ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · Posted December 6, 2013
  • 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Thank You, From Inspire

Walter
  • By Walter · Posted November 26, 2013
  • 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Hospital Group Purchasing Organizations (GPOs) & Generic Drug Shortages

nycphil
  • By nycphil · Posted November 24, 2013
  • 0 replies
  • PhysiciansAgainstDrugShortages (PADS) is a grassroots coalition working pro bono to expose the role of anticompetitive hospital group purchasing (GPO) contracting practices, self-dealing, and kickbacks ...

Love them like it could be the last day!

wylieswish
  • By wylieswish · Posted October 28, 2013
  • 3 replies
  • I know you must wonder why I still write. I write so my son`s life will not be lost in vain. Wylie was the most fantastic child I could ever have wished for. Diagnosed at age 9, his only wish was to survive ...

My Brave little Hero.

Aviens-mom
  • By Aviens-mom · Posted October 24, 2013
  • 0 replies
  • A healthy baby boy! So beautiful and sweet. I knew you were special from the day you were born. I have watched you grow through these last 3 years. So happy and carefree. No worries because you knew I ...

why i always feel the need to help a child in need

Jackieq6
  • By Jackieq6 · Posted October 10, 2013
  • 0 replies
  • Reflecting on my childhood around the age of 12 i had the responsibilities of a 40od year old person. I had to become an adult before i knew how to become a proper young lady. The responsibilities were ...

upcoming MRI control, Oct 9, at a Little Princess - please pray for Her

attilafromhungary
  • By attilafromhungary · Posted October 7, 2013
  • 22 replies
  • Dear Friends, We need Your support, prayers again … Three months elapsed and on this Wednesday (Oct 9.), at 7.45 in the morning (Central Europe Time :o) our Little Angel will lay into the “spacecraft ...

Sources sought for stories about federal goverment shutdown

John2
  • By John2 · Posted October 2, 2013
  • 0 replies
  • From: John Novack, Communications Director, Inspire 10/2/13 Dear members, Journalists from several national broadcast news outlets contacted us today seeking to interview patients and caregivers who are ...

Great Comebacks Regional Awards

MsJearl
  • By MsJearl · Posted October 1, 2013
  • 11 replies
  • WOW, I am so grateful. I am 2013 East Coast Great Comebacks recipient.. I get my award on Saturday October 4, 2013 in NY, yeahhhhhh... Thank you founder Rolf Bernirschke & Great Comeback program, Convatec ...

New report: How good communication underpins positive patient outcomes

John2
  • By John2 · Posted September 25, 2013
  • 0 replies
  • From: John Novack, Communications Director, Inspire 9/25/13 Dear members, I'm writing to share with you a new report based on an online survey of more than 1,000 Inspire members affected by cancer. "The ...

Video: Childhood Bone Cancer Survivor from 3 years old

dreamteam
  • By dreamteam · Posted September 13, 2013
  • 0 replies
  • Tony Quinn was diagnosed with Osteosarcoma at 3 years of age. He is a 23 year survivor. Our son now competes in 5K events and in regional Paralympic events. Isaiah 40:31 Please copy and past the link ...

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