Discussions

Muscle weakness

Mommyzika
  • By Mommyzika · Posted April 11, 2014
  • In Raising a child with cancer · 4 replies
  • My son who was diagnosed with ALL has just completed the intensive phase of chemotherapy and is now in the maintenance phase. He is at standard risk and was given dexa in his last protocol. It's been ...

Response needed

dleach
  • By dleach · Posted April 3, 2014
  • In Advocacy · 0 replies
  • **URGENT** Immediate response needed! Any family who has had a successful or unsuccessful attempt to get access to a drug for compassionate use. Please contact Ruth Hoffman this morning as soon as possible ...

child afraid is afraid to go to school

neonlights
  • By neonlights · Posted April 1, 2014
  • In Emotional support for my child · 1 reply
  • My daughter 13 just completed her treatment for papillary thyroid cancer and was supposed to go back to school today and refused to she finally broke down and admitted she is afraid something is going ...

New Treatments for Ependymoma

ABTA_Jillann
  • By ABTA_Jillann · Posted March 31, 2014
  • In Raising a child with cancer · 0 replies
  • Dr. Bouffet is one of a group of dedicated scientists and adult and pediatric neuro-oncologists (CERN) working to find new treatments for ependymoma, The CERN Foundation has one ultimate goal – curing ...

Send children to grandparents' house?

wonderwoman5432
  • By wonderwoman5432 · Posted March 31, 2014
  • In Brothers and sisters · 4 replies
  • Hello, I'm struggling here--after my nine-year old daughter was diagnosed with very high risk Leukemia, we sent my four year old son to stay with grandparents in another state. It has been two months ...

after radioactive scans ? why no consultation

neonlights
  • By neonlights · Posted March 27, 2014
  • In Raising a child with cancer · 0 replies
  • Our daughter just finished her scan after radioactiive iodne ablation for her papillary thyroid cancer and then sent on our way don't understand why no consltation from drs about what they learned from ...

Ependymoma: Treatment Options & Quality of Life Concerns Webinar

ABTA_Jillann
  • By ABTA_Jillann · Posted March 26, 2014
  • In Raising a child with cancer · 0 replies
  • Join ABTA Tuesday, 4/1/2014 from 1 p.m. to 2 p.m. Central time as we present a webinar on: Ependymoma: A Discussion of Treatment Options and Associated Quality of Life Concerns. Register here: https://www3.gotomeeting.com/register/95 ...

Family Perspectives from those who have been touched by childhood cancer

MomtoMarleigh
  • By MomtoMarleigh · Posted March 26, 2014
  • In Advocacy · 0 replies
  • The American Childhood Cancer Organization continues to extend the opportunity to parents and family members of children who have been touched by cancer to write about their experiences for a new book ...

isolation during rai

neonlights

Nutrition Workshop- Sunday, April 13, 2014 - 2pm-4pm

DanielleCook
  • By DanielleCook · Posted March 20, 2014
  • In Teens · 0 replies
  • A Workshop Presented by the Georgetown University Hospital Pediatric Hematology Oncology Parent Advisory Board: Dishing it Up: geared towards Adolescent and Young Adult Cancer Survivors, Parents and Caregivers ...

Managing Survivorship: Adolescents & Young Adults with Brain Tumors Webinar

ABTA_Jillann
  • By ABTA_Jillann · Posted March 18, 2014
  • In Teens · 0 replies
  • ABTA is hosting a webinar this Wednesday, 3/19/2014 from 2 p.m. to 3 p.m. Central time. Managing Survivorship for Adolescents and Young Adults who have Been Diagnosed with Pediatric Brain Tumors Join ...

Biphenotypic Leukemia

avasmom2
  • By avasmom2 · Posted March 14, 2014
  • In Newly diagnosed · 0 replies
  • Hello, My 5 year old daughter was recently diagnosed with Biphenotypic Leukemia when we went in for a skin infection that would not clear. We are devastated by this diagnosis. We are 3 days past her first ...

Contribution of Family Perspectives for New Pediatric Palliative Care Book

MomtoMarleigh
  • By MomtoMarleigh · Posted March 10, 2014
  • In Advocacy · 0 replies
  • The American Childhood Cancer Organization, with sponsorship and support from the ACS is continuing to gather parent and family perspectives for its new book on the topic of pediatric palliative care ...

Can't Stop Crying

tarys19
  • By tarys19 · Posted March 7, 2014
  • In Newly diagnosed · 5 replies
  • My daughter was diagnosed yesterday after her initial MRI. I keep saying those awful words over and over "my child has cancer." We see an Oncologist next week. My child has an Oncologist to start with ...

My daughter symptoms.. Cancer?!

nicoledorman
  • By nicoledorman · Posted March 6, 2014
  • In Awareness and fundraising · 7 replies
  • Hello, My daughter is 3 years old and for the last month has had lots of Cancer like symptoms. I feel silly for even thinking its a possibility because of how rare the chances are but I just keep saying ...

afraid of malignant bone tumor!!!!!

mango1990
  • By mango1990 · Posted March 3, 2014
  • In Awareness and fundraising · 2 replies
  • hello all.. my brother is 6years old and since last one year, complains about severe leg pain at night. it was occassional. but recently its happenning every night. he is always less intersted abt foods ...

ACCO Family Perspectives

MomtoMarleigh
  • By MomtoMarleigh · Posted February 28, 2014
  • In Advocacy · 0 replies
  • The American Childhood Cancer Organization had decided to expand the opportunity for writing for its new book on pediatric palliative care to children with cancer and to siblings in addition to parents ...

How to help a friend?

stotte
  • By stotte · Posted February 13, 2014
  • In Newly diagnosed · 1 reply
  • One of my best friends was told last night her 6 year old daughter has Luekemia. Her daughter is like a niece to me I love her so much. Immediatley everyone responded with posts about prayers and thoughts ...

Questions about cancer??

fuji
  • By fuji · Posted February 7, 2014
  • In Teens · 4 replies
  • I wasn't sure where to post this, seemed like the best place to get some answers or at least some encouragement that we are going in the right direction. 1. I see in much of the articles that often there ...

relapse fears

ErinE
  • By ErinE · Posted December 31, 2013
  • In Emotional support for parents and caregivers · 4 replies
  • Hi everyone, I'm new to the discussion board and looking for some advice on how to deal with relapse fear. My 8 year old daughter, Moira, was diagnosed with a very high risk form of t-cell ALL on May ...

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