My 19 year old brother was recently diagnosed with Medulloblastoma and I was curious to meet anyone who has this or knows someone who does or has had it. I'm so confused on what our/his future is. Can he live a full life with this after his radiation and chemo? Any answers are welcome! Doctors confuse me too much with what they try to explain to us so I decided it may be best to ask people that have went thru this or knows some who is. Thanks!
Medulloblastoma
- By ajennifer1016 · December 11, 2012 at 10:12 am · 3 replies
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- By LS1C5
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- December 12, 2012 at 9:15 am
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I am sorry to hear about your brother. Please see what I wrote for Vie0882. He needs to make a few decisions right now and they have to be right.
- By ajennifer1016
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- December 13, 2012 at 3:49 pm
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I'm so sorry about your baby. I know that treatment options are different depending on age. My brother is at MUSC in Charleston, SC right now for his radiation, which he started yesterday. He has a great Neuro-Oncologist doctor there who specializes in pediatric brain cancers especially Medulloblastoma. Her name is Dr. Breadlau (I believe I spelled it correctly). I'm not sure where you are located but I don't believe just an MRI can determine Medulloblastoma. I would find a hospital that specializes in it. Will pray for your precious newborn!
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My daughter 7 days old suffer from Medulloblastoma as per the MRI report.Kindly suggest me the options available for me to save her life