My 20 year old daughter has been diagnosed with an Anaplastic Astroblastoma. She was having horrible headaches and blurry vision. An MRI on 10/25 revealed a large tumor , 11/1 she had a gross total resection. The surgery was successful in that the MRI reflects the tumor was completely removed, She has started radiation treatments as the Dr.'s recommended that there are not enough know benefits and lots of know side effects for the chemo so for now, she is just receiving radiation and is in day 9 of 30 treatments. She is recovering from surgery well and was very healthy prior to all of this. She was just accepted into nursing school prior of all of this.
We have had a difficult time finding much information about this kind of tumor. The team that was appointed to her at 1st was not much help. We travelled out of state to obtain advice from recommended neuro ongologists. We now have her team in place and feel confident .
She is now "awakening" from the surgery and all of the medication she had been taking and is reading all the not so good information out there about astroblastomas, Can anyone share some positive outcomes for this dreaded diagnosis? And provide words of encouragement for this journey?