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All new and active discussions & journals

Daughter died from ALL

Kayla-RIP
  • By Kayla-RIP · New reply August 31, 2010
  • Discussion in Emotional support for parents and caregivers · 9 replies
  • I lost my daughter in May 15, 2001 from ALL. Acute Lymphocytic Leukemia. She would've turned 18 this year Dec 25. We all miss her so much and I never really recovered from her death. I think about her ...

Adult Medulloblastoma

preiousldy
  • By preiousldy · New reply August 27, 2010
  • Journal · 1 reply
  • A childhood cancer that my daughter was told she has at 29. She is almost done with her 31 treatments of radation and will go back to M. D. Anderson in Houston in Sept. for scans and to get her chemo ...

A few more words about privacy

Brian
  • By Brian · New reply August 27, 2010
  • Journal · 76 replies
  • All of us at Inspire care a great deal about your privacy and work hard to ensure the information you trust us with is kept safe. We designed Inspire so that you have complete control over how your personal ...

Almost Normal Now?

PoeDunk
  • By PoeDunk · New reply August 27, 2010
  • Journal · 3 replies
  • Part of me feels a bit uncertain about getting TOO excited about life getting back to "normal". It'll never be FULLY normal, but I've come to expect that. Keegan is 14 months old now, and on June 21st ...

Child Cloth Mask

Macygracesmommy
  • By Macygracesmommy · New reply August 25, 2010
  • Discussion in Raising a child with cancer · 1 reply
  • Anyone know of a good website I can find a fun, cloth (washable) medical mask for my daughter who is neutropenic ...

My son Baylen dx Highrisk Medulloblastoma 11/09

amiddie
  • By amiddie · New reply August 23, 2010
  • Discussion in Treatment · 11 replies
  • My son, Baylen, was diagnosed with High Risk disseminated Medulloblastoma/PNET in November 2009. They were unable to resect any of the tumors. He is nearing the end of his current treatment in July. I ...

Cancer Survivors Wanted

itrogirl
  • By itrogirl · New reply August 16, 2010
  • Discussion in Happenings · 2 replies
  • We will celebrate my daughters 5 year cancer free birthday in october.She is now 11 years old.Is there any survivors that can share their story, so i can best support my daughter ...

Books you would recommend

dleach
  • By dleach · New reply August 16, 2010
  • Journal · 15 replies
  • This year my son's memorial fund at Children's National Medical Center is the recipient of the holiday gift book program for our local Barnes and Noble. I need your help- what books did your child like ...

Anyone lost their home, job, etc after child's diagnosis?

skylersmom
  • By skylersmom · New reply August 14, 2010
  • Discussion in Financial and insurance issues · 1 reply
  • Hi Everyone, I'm super happy to report that my daughter who was diagnosed in April 2008 with Leukemia ALL reached her End of Treatment on July 8, 2010..... I was wondering if anyone else lost everything ...

I can't believe it

TracyR1966
  • By TracyR1966 · New reply August 13, 2010
  • Journal · 1 reply
  • My son was diagnosed with Estesioneuroblastoma in Dec. 09. It's been a roller coaster since then. Emotionally as well as psysically draining. i just wanted to share his bravery with everyone. After 7 ...

"True friends walk in ....

dleach
  • By dleach · New reply August 13, 2010
  • Journal · 81 replies
  • when everyone else walks out. " I read that today and it hit home. After several days of challenges on many fronts, this really resonates. People love to complain, not create solutions. People love to ...

havent been on in a while

Hurricaine8O8
  • By Hurricaine8O8 · New reply August 12, 2010
  • Journal · 1 reply
  • hahaha sorry guys i havent been on in a while due to school starting again but im doing okay hope all is well with you guys -- michael ...

End of Treatment for ALL - How do we get back on our feet?

skylersmom
  • By skylersmom · New reply August 9, 2010
  • Discussion in Emotional support for parents and caregivers · 2 replies
  • Hello, My eight year old daughter just finished her treatment for Leukemia ALL. She was diagnosed April 29, 2008. It has been a long couple of years.... My husband and I lost our business, our home, our ...

Anaplastic Astrocytoma

jleataylor
  • By jleataylor · New reply August 6, 2010
  • Discussion in Raising a child with cancer · 2 replies
  • My almost 13 year old son was diagnosed May 13, 2009 with anaplastic astrocytoma grade 3 in the optic nerve, mid brain, and cerebellum. He had a partial resection, radiation therapy, and just finished ...

Starting a support group

Beth_Bingman
  • By Beth_Bingman · Posted August 6, 2010
  • Discussion in Emotional support for parents and caregivers · 0 replies
  • Hi, My son was diagnosed with Stage 3b Neuroblastoma at birth on November 19, 2009. He went through 5 cycles of chemo and had surgery in March to remove the remaining tumor. We now test his urine monthly ...

Friends

mygirlstoo
  • By mygirlstoo · New reply August 5, 2010
  • Discussion in Raising a child with cancer · 3 replies
  • Does your child or children have problem making friends because of what they have been through. My daughter does and I believe that it is because of all of this and the fact that this condition has made ...

Another dx....and another, and another, and another......

alclmom
  • By alclmom · New reply August 4, 2010
  • Journal · 5 replies
  • I suppose there is some truth to being more aware of people around you when your child is diagnosed with cancer.....I just can't help but being super sensitive to the families that are facing new dx of ...

My presentation to the new doctors

dleach
  • By dleach · New reply August 2, 2010
  • Journal · 2 replies
  • This is the text/ notes from the presentation I did yesterday for new residents. Mason Robert Leach 9/16/02-10/13/02 DX:Medulloblastoma 1. What was the hardest part about hearing the bad news about your ...

A question- your feedback will help

dleach
  • By dleach · New reply July 30, 2010
  • Discussion in Raising a child with cancer · 6 replies
  • Next week I am going talk on a panel about giving bad news to parents. The audience is new doctors, brand new. We have a great opportunity to have our voice heard. What worked for you- what were things ...

KATY'S JOURNEY`

COCOABINK
  • By COCOABINK · New reply July 28, 2010
  • Journal · 1 reply
  • KATY HAD SURGERY ON JUNE 8, 2009 TO REMOVE A JPA BRAIN TUMOR FROM HER BRAIN STEM. THE TUMOR WAS FOUND TO NOT BE "CANCEROUS," BUT THAT DID LITTLE TO REASSURE ME. SHE STILL HAS 10% OF THAT TUMOR IN HER ...

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The American Childhood Cancer Organization Support Community connects patients, families, friends and caregivers for support and inspiration. The American Childhood Cancer Organization Support Community is sponsored by the American Childhood Cancer Organization in partnership with Inspire.