Avastin plus CCNU

  • By Denise555 · New reply 9:43 am
  • 4 replies
  • Dad diagnosed with glioblastoma May 2013. Had surgery, 3 weeks radiation, tried temodar but tumor grew, now on avastin for past 6 weeks and no new growth but increased weakness. Had MRI yesterday and ...

Novocure device

  • By andy44 · New reply yesterday at 1:24 pm
  • 7 replies
  • Hello all, I am wondering if any patients here are using the Novocure device. I understand this treatment is available in the US and in Europe. I am trying to collect some information about it, and I ...

avastin and carboplatin for reoccurence GBMIV

  • By glioblastoma · New reply April 21, 2014
  • 5 replies
  • Is anyone currently using this combination ...

Proccluster for glioma treatment

  • By akist · New reply April 17, 2014
  • 8 replies
  • I was given proccluster tablets to take once a day every day for a long time, I cannot even look them up on the internet, if anyone knows what they are or has used them please let me know. Apparently ...

Tumor treating fields

  • By gloria2344 · New reply April 16, 2014
  • 19 replies
  • Hello, Anyone have thoughts or information on this type of treatment? It is called Novo TTF. Here is the link to the Ted Talk. ncer_with_electric_fields.html My ...

Last day of Radiation and Temodar

  • By ekann8 · Posted April 16, 2014
  • 0 replies
  • 4/18 is the last treatment of Radiation and Temodar for the 6 weeks of treatment since my husband was diagnosed with an inoperable GBM IV on 2/5. In addition, during the last 3 weeks he has reduced the ...

Boosting immune system functioning with Avemar and modified citrus pectin?

  • By Foggle · New reply April 16, 2014
  • 1 reply
  • Hi everyone Great news- my most recent MRI has shown shrinkage in the high-intensity area around the primary tumour site, and improvements in the other three lesions (one operated, two not). I was found ...

DCA for Glioblastoma

  • By lindawc · New reply April 15, 2014
  • 58 replies
  • Hi- My friend wants to start DCA treatments. We've been in touch with the Canadian facility that will manage care remotely; however, does anyone know of a doctor in Texas that might believe in and administer ...

Gbm stage 4

  • By pugsy2001 · New reply April 15, 2014
  • 2 replies
  • My husband has had surgery, radiation, chemo .. He was fine until they switched the treatment to 5 days on 23 days off. Two days before the second round his symptons got terrible worse. They had told ...

Low grade glioma treatments

  • By akist · New reply April 15, 2014
  • 10 replies
  • I have a low grade glioma and am trying to treat it. I would like to hear from anyone that has experience in low grades, treatments, but also day to day dealing with seizures and symptoms... many thanks ...

Join us as we kick off Brain Tumor Awareness Month

  • By ABTA_Jillann · Posted April 15, 2014
  • 0 replies
  • With Dr. Susan Chang, MD, director of Division of Neuro-Oncology Brain Tumor Research Center, Department of Neurological Surgery UCSF. Thursday, 5/1/2014 - 2 p.m. to 3 p.m. Central time for Brain Tumor ...

need expensive medication for my daughter

  • By jojoekerns · New reply April 14, 2014
  • 8 replies
  • Can anybody tell me how to get medication for my daughter.We were told that the new medication would be around $545.00 a month. We find this inposiable to buy at this time . Does anybody know how to get ...

Survey Website about glioblastoma causes and treatment

  • By KH42 · New reply April 14, 2014
  • 13 replies
  • Hello, this is just an idea i was thinking about. it would be could to create a survey website where all the members can go in and complete. I believe a lot of people will benefit from it and also will ...

Reducing Steriods in Terminal Brain Cancer

  • By jaxpool · New reply April 11, 2014
  • 3 replies
  • Hi Everyone, my lovely dad who is 73 was diagnosed with terminal brain cancer in early February this year, the prognosis was 3 months, no surgery, radiotherapy or chemo. He is on 24 mg of dex-we were ...

low neutrophils

  • By marst · New reply April 10, 2014
  • 3 replies
  • Dear all, My brother finished 6 weeks of radiotherapy+chemo (temodal) a month ago and will continue with 5/23 cycles starting on monday. I am just worried about his neutrophils mainly. They were 1.59 ...

Brain cancer - Curcumin

  • By valerie37 · New reply April 10, 2014
  • 22 replies
  • Hi everyone. I was diagnosed with a grade 2 Oligodendroglioma in my left temporal region in April 2007. I had surgery for a biopsy only and 12 months of Temodar that did not shrink my tumor but it did ...


  • By lookingforsupport8 · New reply April 9, 2014
  • 1 reply
  • Hello All, Can anyone who is actually treating or being treated with Valcyte now connect with me on this? I am trying to make a decision in the next 48 hours regarding whether to add that treatment to ...

DCA for glioma treatment

  • By akist · Posted April 9, 2014
  • 0 replies
  • Has anyone got experience with DCA? If yes I would like to hear from you. How much did you take, in what form, how often, what did you think about it. I was given 3 vials of DCA to infuse over the next ...

Oligodendroglioma: New Treatments and Updates in Care

  • By ABTA_Jillann · New reply April 8, 2014
  • 2 replies
  • Register: 7802622 Join Nina A. Paleologos, MD, neuro oncology researcher and clinician at Rush University Medical Center, with an expertise in oligodendroglioma ...

Need information on Duke Brain treatment program

  • By briggs · New reply April 6, 2014
  • 22 replies
  • We plan to take my husband to Duke at spring break. Any info about Duke,and any new trials or treatments they may do would be helpful. Also, info about hotel arrangements to stay there. How long does ...

Things you can do

Support ABTA

Together with your help, the American Brain Tumor Association will fund more research and reach more people, with the shared goal of improving, extending and ultimately saving lives. With your gift, those coping with a brain tumor diagnosis will know -- more than ever -- that they are not alone.

Donate to the American Brain Tumor Association

Discussion topics

More from ABTA

Community leaders