Treatments

Trial off Avastin

HaVeHoPeAlWaYs
  • By HaVeHoPeAlWaYs · New reply 8:05 am
  • 9 replies
  • Hello all. My father has a Grade 3 Anaplastic Astrocytoma. He went through the standard treatment of surgery, radiation/chemo and then started the maintenance temodar cycle. Unfortunately he had an allergic ...

Friday radiation and chemo

bluemoon0101
  • By bluemoon0101 · New reply 3:11 am
  • 1 reply
  • Well Friday I'll start radiation and chemo for Astrocytoma3 and I was wondering how is this treated like step by step on how they do this? What are the side effects and what should I expect? What about ...

It Seems Like He Is Dying

Laura321
  • By Laura321 · New reply yesterday at 8:08 am
  • 20 replies
  • My father was dx with an inoperable Grade III tumor in January, 2013. His symptoms (first evident in late 10/12) were rapidly progressing left side weakness, including falls. By the time we got the biopsy ...

Swelling of feet

oh2btan
  • By oh2btan · New reply May 17, 2013
  • 8 replies
  • My wife stopped chemo last month and now on timed release keppra as of a few weeks ago and her feet are swelling. She takes a duretic and not helping relieve the water. Any thoughts ...

immunotherapy / vaccines

Mike1945
  • By Mike1945 · New reply May 16, 2013
  • 6 replies
  • Would be grateful for info about immunological / vaccine approaches to treatment of GBM. Had a right temporal tumor resected mid-March. Follow up MRI due in mid June. Decided not to proceed with post-surgical ...

Brain Tumor Cocktail concocted by a consortium of 28 researchers!!

Scottttt
  • By Scottttt · New reply May 15, 2013
  • 9 replies
  • Ben Williams beat his GBM 17 years ago and wrote a book about his approach using a brain tumor cocktail of off label drugs. An international consortium of 28 brain tumor researchers have crafted a carefully ...

Temodar schedule and getting off seizure meds

Scottttt
  • By Scottttt · New reply May 14, 2013
  • 14 replies
  • I'm about to start Temodar on the 5/23 cycle schedule. I was under the impression that the 5 days of Temodar would be the same five days each month which is what my oncologist told me. I don't think he ...

Low Dose Naltrexone? Alternative type treatment?

Serenity505
  • By Serenity505 · New reply May 14, 2013
  • 4 replies
  • A friend of mine that she had a couple relatives with tumors , one being a brain tumor, told me that LDN ( low dose naltrexone ) has slowed the growth of their tumors or completely stopped the progression ...

Alternative Meds

Miracle11
  • By Miracle11 · New reply May 13, 2013
  • 7 replies
  • My husband was diagnosed on 03/12 with a brain tumor , he had a surgery, pathology outcome grade 2; a year after 3/13 MRI showed a growing so he had surgery again and pathology came with the news of a ...

How do we agree to do nothing...

Number8
  • By Number8 · New reply May 7, 2013
  • 19 replies
  • My husband has just came thru his second surgery March 5th, and is doing very well. We're still waiting for the final reports as to what we're looking at , they've expressed that its cancer with the likelyness ...

Low Grade Glioma Left Temporal Lobe at Head of Hippocampus

MargaretM
  • By MargaretM · New reply May 6, 2013
  • 24 replies
  • Any information on glioma at head of hippocampus on left temporal lobe will be greatly appreciated. Even a biopsy is likely to damage the memory so doctors are doing periodic MRIs and will only operate ...

Wbr

Stephinlongbeach
  • By Stephinlongbeach · New reply May 5, 2013
  • 2 replies
  • Does anyone know if after wbr moms vision might go back to normal ...

GBM - when to start maintenance Temodar

dingo0202
  • By dingo0202 · New reply May 4, 2013
  • 23 replies
  • David was diagnosed with GBM in 12/2012. He is about to complete his 6 weeks of radiation + Temodar. How long after the radiation phase does the maintenance Temodar phase typically begin? Thanks Erica ...

Not understanding radiation

Renalroy
  • By Renalroy · New reply May 3, 2013
  • 17 replies
  • My husband was diagnosed with an anaplastic astrocytoma grade three a year ago today and they want to to another round of radiation not even a year after his first round. I was told by some people that ...

Cigarette smell

careg
  • By careg · New reply May 1, 2013
  • 7 replies
  • A few years ago i started smelling a dirty ashtry even though I don't smoke and no one I know does did anyone else get this wides smell ...

Long term diet success

careg
  • By careg · New reply May 1, 2013
  • 3 replies
  • Ok sinnce we need more help than we age getting from medicine who is having success with diet and nutrition and for how long. How much exercise ...

Tarceva and Brain Cancer

Rubfay
  • By Rubfay · New reply April 29, 2013
  • 2 replies
  • I have stage 4 non-small lung cancer metastasized to brain. Had 9cm mass and lower left lobe removed in August. After surgery, they found 3 spots of cancer in my brain. Started 150mg of Tarceva in October ...

Fucoidan

Thess3_13
  • By Thess3_13 · New reply April 27, 2013
  • 6 replies
  • Has anyone used Fucoidan as a supplement in combination with standard treatments? If so, can you tell me a little about it ...

Radiation

fuzzyjacko
  • By fuzzyjacko · New reply April 26, 2013
  • 5 replies
  • My wife is about to undergo radiation therepy. She was told she will not be the same. She will have cognative changes and not be sharp anymore. Can anyone who has had radiation tell me how it was and ...

LGG Advice Please

Pac7
  • By Pac7 · New reply April 23, 2013
  • 5 replies
  • I was told about 3 years ago I have a LGG in my right frontal lobe after seizures. Very small. About 7mm. I decided on the watch and wait approach at the time as i was getting my masters and felt surgery ...

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