Survivor stories

GREAT NEWS

By briggs · New reply 2:05 am
13 replies
Thanks for your prayers. My husbands MRI was some better,and no new growth. Thanks to God and Temodar. We will have another one in two months. It is so wonderful knowing that we have our group supporting,and ...

biopsy results

By masolomou · New reply April 18, 2013
7 replies
Dear friends today they send me my biopsy results and thre are something that i dont undersdunt.Please if someone knows let me know.My tumour is oligo 11 with a slightly eaised ki prolieferative index ...

One Year

By mathmom411 · New reply April 3, 2013
14 replies
It's been 525,600 minutes since this all started and Thank You for your prayers and good wishes. I turned to ABTA forums for help. We have had 3 "stable" post-treatment MRIs .... our next one in March ...

30th anniversary of a brain stem astoricytoms

By SDKarBear · New reply December 28, 2012
6 replies
Today is my 30 years since my diagnosis of a brain stem asytrocytoma, and i am still here. I am living proof the even the best doctors are not always right. I am happy, but wish there were more long term ...

Pediatric Brain Cancer: Medulloblastoma

By kkymmie13 · New reply November 25, 2012
9 replies
Just wanting to share stories with anyone experiencing any effects or treatments having to do with Medulloblastoma ...

The battle that never wins

By Chaltu · Posted November 15, 2012
0 replies
I just want to share that I am still like a kid thinking and celebrating victory of passing this battle. November 15th 2011 was the day I left the hospital after that intensive surgery. I have been celebrating ...

JUST CELEBRATING

By Chaltu · New reply October 31, 2012
18 replies
"This is the day, that the lord had made, I will rejoice and be glad in it." Today is right on the date of my sugary Oct. 24 2011, today being Tuesday and yet as I have been going and staying strong ...

One Year After AA3 dx & Life is Very Good

By Janacoco · New reply October 14, 2012
14 replies
It is with deep gratitude to the dedicated doctors, nurses, research staff, technicians and medical office staff who worked (and continue to work) so diligently and the countless, caring people who prayed ...

hubby with brain tumor/ uncertainty everywhere

By aimeealone · New reply September 24, 2012
9 replies
if there's anyone who can help this clueless person out i would truly be grateful. thanks, here's my soap opera, sadly it's my life. my hubby(54) is a CDL driver for Penske, he had work a year with them ...

Need some encouragement? Looking for other survivors?

By ABTA_Jillann · New reply September 19, 2012
1 reply
This year's ABTA Patient and Family Conference is the perfect place. You won't want to miss it! Join us for: Stories of Courage: A Panel Discussion Panelists: JoAnne G. Colucci, Parent/Caregiver/Advocate ...

Tumor Tale for someone's tomorrow

By lnrd · New reply September 14, 2012
3 replies
January 2010, "you have a 4 cm brain tumor", lets get you in next week to take care of it, NOW! What a way to end a week, the latter part of January was interesting I might say. As I walk out of the doctors ...

More Great News

By briggs · New reply September 12, 2012
8 replies
My husband had another good MRI. It has been 16 months after his surgery,radiation,and temodar. He goes every three months for an MRI. We are so thankful to God for taking care of him. Thankful for a ...

my father gbm stage 4. so i made a song for to explain the experience.

By Bstayathome · Posted August 9, 2012
0 replies
I just want people to hear how I see this experience threw ny eyes. My father has gbm stage 4. He is still fighting strong. And its been a hard fight so far. But hope keeps the fire in the fight . Enjoy ...

Radiation steps

By Chaltu · New reply May 10, 2012
10 replies
Well hello, I am happy at the same time confused as to what to do. I had my MRI (2/12/12 and 5/01/12) both showed same with no brain tumar growing. But the Raditation doctor wants me to go through it ...

Temodar Alternatives Wanted

By PoppaT · New reply February 20, 2012
12 replies
I was first diagnosed in1995 with Glioblastoma. Had surgery and radiation and entered a clinical trial (terapazamine) post surgery. In November 2007 I had a seizure but scans were clear. In June 2008 ...

Representative Gabby Giffords

By johnstumorblog · Posted November 15, 2011
0 replies
I found Representative Giffords' survivor story, as related in an interview with Diane Sawyer this week, to be terrifically inspirational. I'm interested in the reaction of others. Here's a link: http://abcnews.go.com/US/gabby_giffords ...

Neurofibroma Brain Tumors

By kotasmimi · Posted November 4, 2011
0 replies
At hte young age I was found to have been born with a brain tumor the size of 11 golf balls was able to have successfully removed after 37 hours operation in 1985, a year later a second one had grown ...

Victoria Rose, brain tumor survivor performs on Dancing with the Stars

By ABTA_Jillann · Posted November 3, 2011
0 replies
Victoria Rose, the 15 year old brain tumor survivor who performed on Dancing with the Stars on Tuesday, view her personal story: http://www.youtube.com/watch?v=iDWysLMjk cA Victoria’s performance on Dancing ...

long term brain tumor survivor

By Toshy · New reply October 10, 2011
11 replies
I'm 41 now (it's 2011) and was diagnosed with an Astrocytoma in 1977 when I was 7 though my symptoms appear to have started in 1975. I'm looking for others similar to me ...

lymphedema

By lisa37 · New reply October 4, 2011
2 replies
I am a cancer survivor i had several brain surgeries and lots of radiation to treat astrocytoma brain cancer i was 15 and 18 i am now 37 allergic to almost all medicines i have both forms of lymphedema ...

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