Survivor stories

2x survivor but depressed

  • By j2xsurvivor · New reply yesterday at 9:06 pm
  • 8 replies
  • I am a 2x survivor but am depressed every day and can't get passed it because I see everyone around me walking around and wearing heels and short skirts like I "used to do" But I should really be Thanking ...

radiation and temodar

  • By NickyGoodwin · New reply March 4, 2014
  • 6 replies
  • Can anyone give me some hope. I'm pretty much inoperable apart from recent biopsy which confirm a grade 3 astro. I'm about to start 6 weeks RT with temodar and I'd like to know if anyone else has had ...

7th good MRI for GBM4

  • By suzieta · New reply February 16, 2014
  • 20 replies
  • My husband had his 7th good MRI last week. We don't know what is having the most impact but he has done these 3 things (besides surgery, radiation and temodar): 1. calorie restricted / low carb diet (at ...

I thank our Father

  • By Ron7012 · New reply January 26, 2014
  • 19 replies
  • Thank God with me today. Four years ago I was diagnosed with a rare brain cancer. The doctors told me I would likely die in months . Although I had survived surgery removing a tumor the size of a fist ...

MRI stable again for GBM4

  • By suzieta · New reply January 22, 2014
  • 18 replies
  • My husband's MRI on 11/26 showed stability again. We are so grateful that GBM4 tumor is either "gone" or "de-activated". Either way, we are grateful and pray/wish the same for everyone on this website ...

Shout Out to Ben Lindon - 5 yr GBM Survivor

  • By Janacoco · New reply December 30, 2013
  • 11 replies
  • Ben Lindon, of Malvern, who was diagnosed with an inoperable GBM in 2008, scaled the three highest mountains in the United Kingdom (Ben Nevis, Scafell Pike and Snowdon) recently to raise money for brain ...

Last chemo, Remission!

  • By bluemoon0101 · Posted November 3, 2013
  • 0 replies
  • Well after a week(10/21-10/24)of many test and my blood count was very low! Cancer cells were 30,000 and I'm a believer and I never lost faith, hope and healing! Went to a conference(10/24-10/26) and ...

Brain tumor Melengioma surgery survivor

  • By Rebecca2013 · New reply November 1, 2013
  • 18 replies
  • Hi,I would like to share with you my story in short about my brain tumor diagnosed June 2013.My tumor was 3.8cm,I had no symptoms that went along with this kind of tumor.How it was found,I recognized ...

Great News today

  • By briggs · New reply September 24, 2013
  • 22 replies
  • My huband had his two month MRI today, and tumor was still smaller. The doctor said if it is good next time, he can go off the temodar. I am so thankful to God for this good news. There is still some ...

GBM4 stable, no growth since last MRI

  • By suzieta · New reply August 25, 2013
  • 34 replies
  • We will get the official report on Tuesday, but the Onc says the MRI shows that the tumor is stable, no change, no growth, no reduction. This is great news as far as GBM4 goes, but we are disappointed ...

Brain Stem Tumor

  • By larrylm53 · New reply August 21, 2013
  • 2 replies
  • I had a tumor removed from my brain stem 2yrs and 8 months ago. Expected to be a 2 hour surgery but it went 41/2 because my top vertebrate had to be removed and put back. I am still alive so I can't complain ...

8 months today!

  • By melevy3816 · New reply August 5, 2013
  • 21 replies
  • As of today, I am 8 months from diagnosis, and my last two MRIs were stable. I feel good,almost back to my pre-diagnosis "self", I have no symptoms, and my only deficit is the loss of my left peripheral ...

Interested in starting your own ABTA fundraising event?

  • By ABTA_Jillann · Posted August 2, 2013
  • 0 replies
  • Volunteer Fundraising Events occur in every corner of the country and are organized by families, friends, brain tumor survivors, and/or brain tumor patients and benefit the American Brain Tumor Association ...

Student loan related bankruptcy

  • By Chaltu · New reply July 31, 2013
  • 4 replies
  • After going through negative out come, I am trying to see where my credit report is. I know according to my medical report I will only live 4yrs (, so I trying to see if I can get rid of all debt before ...

One year survival has come!!!

  • By tapatterson71 · New reply June 14, 2013
  • 10 replies
  • Guys i just want to say that i dont come on here often, but when i do i always read amazing and informative blogs. I want to say that for those those that have issues that i cant say that i have faced ...


  • By briggs · New reply May 31, 2013
  • 18 replies
  • Thanks for your prayers. My husbands MRI was some better,and no new growth. Thanks to God and Temodar. We will have another one in two months. It is so wonderful knowing that we have our group supporting,and ...

biopsy results

  • By masolomou · New reply April 18, 2013
  • 7 replies
  • Dear friends today they send me my biopsy results and thre are something that i dont undersdunt.Please if someone knows let me know.My tumour is oligo 11 with a slightly eaised ki prolieferative index ...

30th anniversary of a brain stem astoricytoms

  • By SDKarBear · New reply December 28, 2012
  • 6 replies
  • Today is my 30 years since my diagnosis of a brain stem asytrocytoma, and i am still here. I am living proof the even the best doctors are not always right. I am happy, but wish there were more long term ...

Pediatric Brain Cancer: Medulloblastoma

  • By kkymmie13 · New reply November 25, 2012
  • 9 replies
  • Just wanting to share stories with anyone experiencing any effects or treatments having to do with Medulloblastoma ...

The battle that never wins

  • By Chaltu · Posted November 15, 2012
  • 0 replies
  • I just want to share that I am still like a kid thinking and celebrating victory of passing this battle. November 15th 2011 was the day I left the hospital after that intensive surgery. I have been celebrating ...

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