Recovery

10 Years Out

Koni
  • By Koni · New reply yesterday at 7:29 am
  • 15 replies
  • 10 years ago lg Petroclival Meningioma diagnosis. 2 surgeries, 30+ hrs, 34 rds radiation. 1/3 still looming about. Yesterday I got my test results, No change zero none in all these 10 yrs.. I am doing ...

Sugar

oh2btan
  • By oh2btan · New reply May 14, 2013
  • 10 replies
  • Is there any scientific research for how sugar affects persons with cancer ...

Free Webinar

ABTA_Jillann
  • By ABTA_Jillann · Posted May 14, 2013
  • 0 replies
  • Register for our free webinar on May 29, "The Role of Rehabilitation in Recovery for the Brain Tumor Survivor." Click here to sign up: https://www3.gotomeeting.com/register/65 3417310 ABTA_Jillann Connections ...

Water retention

oh2btan
  • By oh2btan · New reply May 1, 2013
  • 1 reply
  • Is anyone experiencing water retention after taken time released keppra and dexamethosone? My wife is taken lasix and its not working ...

Steriods -

oh2btan
  • By oh2btan · New reply April 30, 2013
  • 5 replies
  • Does anyone know how long does dexamethasone stay in your body when you are weaning off of the drug? My wife is on 2.5 mil per day. I have read online that if you have been on it a year it will take a ...

FATIGUE? OR AWAKE?

Briaaanaaa
  • By Briaaanaaa · New reply April 28, 2013
  • 1 reply
  • I learned BY ACCIDENT that my benign meningioma had progesterone receptors. Neurosurgeon who performed first treatment (surgery) made no mention anywhere, any way. I continued to take ("bio identical ...

Itchy Scalp anyone

blessed222
  • By blessed222 · New reply April 23, 2013
  • 33 replies
  • In April 2012, I had 2 benign meningomas (around the sinus area) removed in a sucessful surgery. When the diagnosis was made, I had just returned from China and it has been a roller coaster ride ever ...

Recovery from meningioma surgery and effects of steroids

Angelmiller
  • By Angelmiller · New reply April 22, 2013
  • 6 replies
  • Just wondering about experiences anyone has had with euphoria after meningioma brain surgery. The dexadron (dexamethasone) made me talk manically, but I also had a calmness and feeling of serenity that ...

Recovered from 5th Operation

Tommyuk
  • By Tommyuk · New reply April 10, 2013
  • 5 replies
  • I'm Tommy I am now hitting the 40 years and above age group, but as usual I'm trying tp pretend im younger than I really am. I've had five major craniotamy operations (most recent Dec 20th 2012). My first ...

Coping Mechanisms

kellylindberger
  • By kellylindberger · New reply April 2, 2013
  • 4 replies
  • Hi everyone! As I keep reading so many stories on this website, I feel so inspired. I was wondering if we could discuss what everyone's personal coping mechanisms are through recovery. What do you do ...

brain tumor

jojoekerns
  • By jojoekerns · New reply March 29, 2013
  • 13 replies
  • My daughter had a brain tumor removed in march she in haveig a hard time waking up.Doctors said that is because of the brain stem I need some information on the brain stem and how to do rehab.Any thing ...

Back home after brain surgery

masolomou
  • By masolomou · New reply March 25, 2013
  • 11 replies
  • Dear Friends today is my first day back home after my first surgery for oligo 11. My Recovery were very good and quikly and i am so satisfy.No pain no fever no infection.My MRI SHOW 95% recection.My Neurosergeon ...

one year post-op for meningioma, mom still having cognitive impairment

LuckyMichelle
  • By LuckyMichelle · New reply March 13, 2013
  • 7 replies
  • My 81-year-old mother had a benign meningioma removed in November 2011. Her short-term memory, motivation, judgment, and executive function remain severely impaired. She only wants to sleep. It seems ...

Managing Grief

akosua
  • By akosua · New reply March 12, 2013
  • 7 replies
  • It took me awhile to come back here, I could not handle the loss and the grief I was feeling after I lost my husband to this brain cancer which is happening so often to a lot of people. How do you manage ...

MRI because of headaches

DebbieMc (Inactive)
  • By DebbieMc (Inactive) · New reply February 3, 2013
  • 31 replies
  • Nov 11 chemo/radiation done, no signs of tumour but headaches have been happening the last couple of weeks. I have an MRI on Tuesday to see if anything going on! I am nervous but am pleased my oncologist ...

meningioma

butterfly0
  • By butterfly0 · New reply January 28, 2013
  • 10 replies
  • i was wondering if anyone has lost their sense of smell from meningioma . If so, do you have any tips on dealing with it ...

Husban has grade ii astrocytoma right front temporal lobe

Luvmyhubbyhatecancer
  • By Luvmyhubbyhatecancer · New reply January 3, 2013
  • 15 replies
  • My husban was diagnosed with a grade ii astrocytoma in his right front temporal lobe in march2011. He has undergone two surgeries and a good percentage of the tumor has been removed, however what remain ...

Is a headache just a headache?

DebbieMc (Inactive)
  • By DebbieMc (Inactive) · New reply December 21, 2012
  • 3 replies
  • I hate getting headaches! They don't happen often but always scare me. I don't think a headache will ever just be a headache again! My husband always asks if I drank much water and my answer is always ...

meningioma

butterfly0
  • By butterfly0 · New reply December 20, 2012
  • 3 replies
  • I am at my 6 month post surgery. They did a mri on me and found scar tissue. He wants to do another in 3 months. Has anyone had scar tissue and what does that mean ...

looking for support in Las Vegas NV Area

lvcyn
  • By lvcyn · New reply December 15, 2012
  • 3 replies
  • I've posted in the past without responce. I'm not sure if I'm responding to the correct board. Looking for others in Las Vegas experience and inspiration ...

Things you can do

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