Newly diagnosed

Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

  • By ElleMadix · New reply yesterday at 2:55 pm
  • 4 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...


  • By mrbeck84 · New reply yesterday at 12:15 pm
  • 2 replies
  • I just got diagnosted with a petroclivical meningioma does anybody had one before ...

atypical teratoid rhabdoid tumor

  • By concerned_sister · New reply yesterday at 11:27 am
  • 1 reply
  • Hello, i am starting a new discussion because I couldn't find a group talking about the type of tumor my sister has. I don't feel like i have very much information on the medical side of all of this ...

Gbm grade 4

  • By ninjaandrews · New reply April 15, 2014
  • 10 replies
  • Hi, I'm new to this site and have been reading everyone's stories. My wonderful mum was diagnosed in the 14th feb with a grade 4 gbm. It us non-operable. She spent 8 week in hospital and got home two ...


  • By pugsy2001 · New reply April 14, 2014
  • 11 replies
  • I posted a couple days ago about my husbands struggle with this disease. Well we had another MRI today cause symptoms were coming back, headache, trouble walking, confusion. The MRI showed some improvement ...

Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

  • By ElleMadix · Posted April 14, 2014
  • 0 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...

Brain Stem Tumor

  • By blkmaverick34 · New reply April 13, 2014
  • 10 replies
  • Hello I'am very new to the group and i was very interested if anyone or you know of anyone has experienced a new diagnosed of a brain tumor? And what did you do to retrieve extra information ...

New medullary brain tumor

  • By xlygibson · New reply April 12, 2014
  • 21 replies
  • I was just diagnosed with an unknown type of tumor 1 X1.6 cm on the posterior medulla, left side just by the 4th ventricle. Most likely benign according to the MRI. I have read everything I can, but my ...

New here, Mom with GBM

  • By Cabbers · New reply April 7, 2014
  • 9 replies
  • Hello, all, As one friend put it this week, it looks like I am joining this club that none of us on here ever wanted to be a part of. My mom--late 60s, independent, vibrant, with the most boring and uneventful ...

Angry with those who have past and God...

  • By AmyJeanDev · New reply April 4, 2014
  • 8 replies
  • I've always believed that our loved ones who have past before us can look down on us and help guide us in the right direction and help us with decisions. I also have always had a relationship with God ...

Support for kids

  • By jpod27 · New reply April 2, 2014
  • 9 replies
  • I have a question for all of you dealing with a brain tumor diagnosis who have young kids. My husband had surgery for a GBM tumor at the end of February and is now being treated with Radiation/Temodar ...

what to expect

  • By marty31 · New reply April 2, 2014
  • 6 replies
  • What is the hardest is not knowing what to expect. My husband has been through surgery and chemo and radiation and some doctors think is progressing some say it may be pseudo progression. Surgeon says ...

Diagnosis not determined

  • By hinsopa · New reply April 1, 2014
  • 4 replies
  • I would appreciate your advice. I am a 2 time ovarian cancer surviver that is trying to help my dearest friend. She began having numbness and some changes in use of her left side about 9 months ago. Stroke ...

Inoperable GBM

  • By Floydparts · New reply March 31, 2014
  • 10 replies
  • I am just reaching out for information that anyone may have. My healthy 47 year old husband was diagnosed with GBM and tomorrow will finish his 5th radiation and chemo therapy treatment. His tumor is ...

Brand new here and scared.

  • By AmyJeanDev · New reply March 30, 2014
  • 11 replies
  • Hi, my name is Amy and I live in Pa with my boyfriend and 2 boys ages 10 and 6. Up until last month I was living what I thought was a dream. I was teaching and had met the man I wanted to spend forever ...

Family BT link?

  • By sisco1021 · New reply March 26, 2014
  • 4 replies
  • Hello- I am writing to see if anyone on this board has had more than 1 family member diagnosed with a brain tumor. This is my background. I lost my sister 9 years ago (on Thursday) to a GBM IV. She was ...

unspecific spot on mri

  • By vrgogal · New reply March 26, 2014
  • 2 replies
  • my son (21) has been having episodes that kind of copy seizures. I have took him to 4 different hospitals and no one can tell me what is going on with him. about every 6 months or so he starts smelling ...

Also new to GBM behavior

  • By dinahshore · New reply March 24, 2014
  • 17 replies
  • I am in the beginning phases of this with my husband diagnosed with GBM phase IV in February. He is 58. They removed 90% of it and the treatments start in a week. My biggest problem is that I am the sole ...

Unusal case Grade II astrocytome 73 years old

  • By KamillaWright · New reply March 21, 2014
  • 6 replies
  • My mother is an unusal case. Apparently Grade II astrocytomas usually occur in children and young adults, not someone who is 73 years old. I have been searching the internet to find situations like hers ...

Optimistic Support

  • By LovelyLaura1313 · New reply March 12, 2014
  • 2 replies
  • I wanted to share these articles I found that provided me with some optimism for the future. One is from the University of California the other from Ohio State University. Much love to you all! -Laura ...

Things you can do

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