Living with a brain tumor

Other adults with Pilocytic Astrocytoma?

  • By swagus · New reply yesterday at 12:00 pm
  • 2 replies
  • Hi everyone, I am new here, but I am wondering if there are others out there in a situation similar to mine. Here's my journey so far.... I was first diagnosed with a brain tumor in 2006 (Pilocytic Astrocytoma ...

Agitation - Your Experiences

  • By mcort · New reply yesterday at 11:25 am
  • 3 replies
  • My wife was Dx'd in Oct 2012 with GBM. Been down the radiation/drugs/chemo roads. Thursday through Saturday increasing levels of agitation. I have read various things on and ...

How do you keep your faith when your angry with your Higher Power?

  • By AmyJeanDev · New reply April 22, 2014
  • 17 replies
  • Hi, I'm newly diagnosed with an Oligodendroglioma low grade in Jan, 2014. I've always been a positive person and believed "Everything happens for a reason" and I am Catholic and prayed daily. After my ...

The Mental Side

  • By mathmom411 · New reply April 21, 2014
  • 20 replies
  • I have a question .... I just don't know exactly how to ask it. Here's the PHYSICAL stuff: My husband of 26+ years had the astroblastoma brain tumor - Rt occipital / temporal lobe area. Dx Jan 2012. Tumor ...

Vimpat for seizures?

  • By calabria1982 · New reply April 15, 2014
  • 13 replies
  • Has anyone taken Vimpat for seizures. My son Michael was given Vimpat to replace depakote for seizure prevention. He's also on 1500 mg. of keppra twice a day. So much medication:(. All he does is wean ...

GBM worse - how to cope??

  • By ninja1 · New reply April 15, 2014
  • 19 replies
  • My husband had a seizure which we found out that it was because the tumor recurred (his second recurrence). He's going to start avastin and a clinical trial. I don't know what this means. How long will ...

Garlic - Vegy Championist

  • By Michalisk · Posted April 14, 2014
  • 0 replies
  • Kalimera, I found this really interesting video and i decide it to share it for those they follow a holistic approach in combination to the conventional medicine. Any thought for this vegetable... ...

New protocol that combines sorafenib and everolimus?

  • By Kareneastnc · New reply April 13, 2014
  • 1 reply
  • Thanks to all for the help I have received from this site. My 53 year old husband was diagnosed a year ago with AA3 with chemo/radiation follow up. A new spot appeared in jan 2014 but remained stable ...

Advice for decline

  • By Darl1 · New reply April 9, 2014
  • 15 replies
  • My hubby finished his radiation/ chemo 2 weeks ago. Toward the end of treatment he started to get every side effect in the book, including a terrible upper respiratory infection but his speech and mobility ...

Ask your Oligodendroglioma questions LIVE today to Dr. Paleologos

  • By ABTA_Jillann · Posted April 9, 2014
  • 0 replies
  • Register for our free webinar, "Oligodendroglioma: New Treatments & Updates in Care," taking place TODAY! RSVP at 7802622 Submit your questions even if you cannot ...

Have you submitted your Ependymoma questions yet for today's webinar?

  • By ABTA_Jillann · Posted April 1, 2014
  • 0 replies
  • There is still time! Visit 9524278 to submit a question for Dr. Bouffet to answer LIVE today. The webinar will be recorded, so if you cannot listen please still ...

white-grey matter

  • By caregiver2013 · Posted March 28, 2014
  • 0 replies
  • Hi, any opinion about there has no border between between white and grey area due to radiation damage? Does anyone have this? Does it make you sleepy all day? Any treatments for it? Thanks in advance ...

Botox for chronic headaches?

  • By calabria1982 · New reply March 27, 2014
  • 2 replies
  • My son Michael has chronic headaches and the neurologist has suggested Botox injections due to the fact that the pain meds haven't worked. Has anyone had these injections? Any success? He's questioning ...

Everything tastes sour

  • By raindancing · New reply March 22, 2014
  • 4 replies
  • Hi, I'm wondering if you have suggestions. My husband says everything tastes sour. This started while he has been on BCNU and Avastin. I'm thinking of buying some MSG to sprinkle on his food to see if ...

Need Support- At The End of My Rope as a Caregiver

  • By girlonfire · New reply March 22, 2014
  • 14 replies
  • I just needed to vent and hopefully get some support. Today we spent the entire afternoon in the Acute Care Unit of the cancer hospital we go to. (Huntsman Cancer Hospital). My husband got dehydrated ...

Family Won't Help

  • By girlonfire · New reply March 18, 2014
  • 23 replies
  • My family (mom and sister) have really disconnected with the brain cancer issue. My husband has a grade 2/3 oligo. My parents never ask about it. My sister doesn't either. I just asked my sister who doesn't ...

Ugh what to do?

  • By michelle39 · New reply March 14, 2014
  • 6 replies
  • My husband Ralph had an MRI on March 6 which showed a spot just to the left if the tumor bed. He was sent for a PET scan. Yesterday he had a meeting with his oncologist who wants to treat the tumor with ...

Getting off of steroid

  • By CJC44 · New reply March 13, 2014
  • 8 replies
  • My dad has been on dex since his diagnosis of GBM in November. His Oncology Team wants him off the steroid and we can see that he needs to be off of them, as he is losing his muscling. His legs are so ...

Intro/husband has Astrocytoma

  • By MickeyAnn · New reply March 12, 2014
  • 15 replies
  • Husband was diagnosed with a low grade Astrocytoma in 2007. Its in the speech area of brain. He opted for Temodar and radiation due to the location. It shrunk the tumor significantly. After about a year ...

Scared about tumor coming back

  • By girlonfire · New reply March 10, 2014
  • 10 replies
  • I just wanted to ask how everyone deals with knowing the brain tumor can come back any time. My husband had surgery in August for a oligodendrocytoma, grade 3. They said they got all the tumor. Now we ...

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