Living with a brain tumor
ABTA Headlines Newsletter
- By ABTA_Jillann · Posted yesterday at 1:45 pm
- 0 replies
- The Spring/Summer issue of Headlines is now available for download at www.abta.org ABTA_Jillann Connections Support Community Group Leader ...
Lost.....
- By Mikee480 · New reply yesterday at 12:46 pm
- 12 replies
- Does anyone else feel lost like me? I have a grade 2 olig since 2010 and the Doctors have decided not to operate, just watch and wait method. They also told me i have only 10 years to live...roughly ...
Personal Inquiry Please Enlighten
- By cd007 · New reply yesterday at 10:50 am
- 9 replies
- I am 35 years old and am blessed with a wonderful husband and 3 year old son. Recently my son has been asking mommy and daddy for a sister. This thought has also been on my mind as well for the last year ...
ANOTHER MRI
- By briggs · New reply yesterday at 2:00 am
- 24 replies
- It is that time again for my husband to have his MRI. It is every two months,and I ask for prayers that the new growth has shrunk. He is on Temodar,now for 6 months. This is the second time around,and ...
Weird Incident yesterday morning
- By melm1965 · New reply May 19, 2013
- 7 replies
- Had the windows open early and music on; walked around the corner and felt "faint"...the next thing I know I am on the couch, splayed out with drool down my neck. I remember trying to call my husband ...
Allergic to temodar
- By careg · New reply May 15, 2013
- 2 replies
- Sics help ...
Dementia caused by tumor???
- By Meeshell08 · New reply May 14, 2013
- 6 replies
- My husband was diagnosed with a tumor in front left temporal lobe. Wears waiting for next appt for new MRI to get a better picture to show how best to remove it since it's not a solid mass, it's intermeshed ...
Anti depressants
- By GypSea · New reply May 13, 2013
- 5 replies
- Mom is pretty much bed ridden now, and very sad and agitated. I am wondering if anyone has any experience with mood enhances. She was diagnosed with GBM in feb this year, finished her radiation and chemo ...
professional care at hospital or care at home?
- By caregiver2013 · New reply May 13, 2013
- 16 replies
- Hi, would like to get your experiences and opinions about which one is better for patient who has come to end of journey. Staying at hospital or hospice-home? Thanks in advance ...
Brain stem tumor
- By Marlea0121 · New reply May 13, 2013
- 33 replies
- Hello, I am trying to find out if there is anyone has of knows of someone with a tumor in the brainstem. My brother has an inoperable, low grade brainstem glioma and even with all of the research I have ...
what are signs and symtoms that I will see when he starts to decline?
- By Emmaleigh · New reply May 9, 2013
- 3 replies
- My husband was dx in September 2012. He had completed his radiation and is currently on Avastin every two weeks. He had to stop taking temodar b/c of low platelets. He is napping more than usual. God ...
housing support
- By meliora · New reply May 8, 2013
- 11 replies
- Diagnosed with mixed glioma left temporal lobe 2006, surgery, radiation, seizures, memory problems, left teaching, disability, 3 children. Breakdown of marriage, left marital home last July with kids ...
GBM4: Leg weakness and Feet pain
- By LoveMyKen · New reply May 8, 2013
- 10 replies
- My boyfriend was diagnosed with GBM4 December 14, 2012. He has gone through the normal course of treatments -- complete resurrection of tumor, 6 weeks of combined radiation and temador and now 5/23 of ...
wait and watch?
- By LTS · New reply May 8, 2013
- 22 replies
- I have a meningioma 1 cm , but has grown 1.6 mm on my last scan.back to the doctors again.The doctor at Johns Hopkins wants to remove it (with any growth). I am going to get another opinion at Georgetown ...
Family support
- By Rasmanny · New reply May 6, 2013
- 4 replies
- I was recently diagnosed with Oligodendroglioma 2, started with seizure, had biopsy and craniotomy and am now recovering and dealing with partial right hand and foot paralysis. I start radiation and a ...
Glioblastoma and low platelets
- By Emmaleigh · New reply May 6, 2013
- 11 replies
- Husband has gbm since September 2012. He is on Avastin. But can't take temodar because his platelets are very low. His arms are bruised and stabbed with cuts and nicks. Is this dangerous ...
Sodium Bicarbonate-Baking Soda
- By caregiver2013 · New reply May 4, 2013
- 20 replies
- Hi anyone using Sodium Bicarbonate also known as baking soda for brain tumors ...
MRIs are improving but physically declining
- By AmyRoanokeVA · New reply May 4, 2013
- 13 replies
- Hi all, My father was diagnosed with GBM on 9/21/12. He had radiation and chemo along with Avastin and his three tumors are inoperable. He now takes Temodar 5/23 300 mg and Avastin. We've had 3 MRIs since ...
Where to find hope?
- By sand0211 · New reply May 3, 2013
- 14 replies
- My 58 yr old husband was diagnosed with GBM IV 3 months ago- had craniotomy jan 11 and much of the 5 plus cm tumor was resected. He finished first round of temodar and 6 weeks of radiation- Follow up ...
GBM4 still getting smaller !
- By suzieta · New reply May 3, 2013
- 60 replies
- My husband's MRI last week shows that his GBM4 (diagnosed in Aug'12) has gotten approx. 20% smaller than his MRI in January. He had surgery in August, radiation, temodar. The MRI in November showed significant ...
Things you can do
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