Caregiver corner
Mom, 68, GBM
- By GypSea · New reply May 20, 2013
- 14 replies
- Hi all, I am new to this forum. I am primary care giver for my mom. 1/30/13 she came home from her full time job feeling fine, and had a seizure. An MRI showed 4 lesions on her brain, the biggest 1.6cm ...
BLOG
- By newsusu · New reply May 14, 2013
- 23 replies
- Hello, again. So, after all my researching on the internet and reading every body's experience on ABTA, I decided I want to start a blog regarding brain tumor patients and their caregivers; specifically ...
Overwhelmed by Caregiving?
- By ABTA_Jillann · New reply May 12, 2013
- 1 reply
- Have you checked out MyCaringLink, powered by Lotsa Helping Hands? It's a caregiver support tool that allows you to help coordinate rides, child care, meals, blog on updates and more. Visit www.abta.lotsahelpinghands.com ...
Seizure side effects
- By Kbleyle · New reply May 9, 2013
- 11 replies
- My husband had a seizure on Monday morning. It was pretty bad; I couldn't get him off the floor and into a chair for over an hour. We saw the neurologist the next day, and she said it would take three ...
How long will the horrible radiation effects last?
- By Marlea0121 · New reply May 4, 2013
- 14 replies
- I am wondering how long the effects of radiation and chemotherapy generally last. My brother completed his 6th week of both last week. He is also depressed so it is difficult to tell if is the remaining ...
Oligodedroglioma - Chemo Care Package
- By Sarah0603 · New reply May 3, 2013
- 5 replies
- My ex-husband had his first brain tumor nearly 10 years ago. It was a grade 1 oligodendroglioma in his left occipital lobe. Unfortunately, a new tumor is growing in the old tumor bed and we're waiting ...
oligodendoglioma High stage 2 or 3
- By blueopel · New reply May 1, 2013
- 17 replies
- Hi , As caregiver I need some help. My daughter in law has been diagnosed with about a stage 2.5 oligodendrglioma of the tempporal lobe tumor . In jan she had seizures was told hers was inoperatable 2 ...
Husband on Hospice
- By TinaRD · New reply April 2, 2013
- 8 replies
- Hello, My husband began hospice on February 14. It's been a difficult journey, however, now it seems to be a little harder because he seems to get a bit more agitated (especially at night). He has a catheter ...
Caring for a loved one with a brain tumor
- By ABTA_Jennifer · Posted March 27, 2013
- 0 replies
- The American Brain Tumor Association was recently featured in the Lotsa Helping Hands Caregiving Support & Volunteer Blog. Read more: https://www.lotsahelpinghands.com/blog/2 013/02/caring-for-a-loved-one-with-a-bra ...
What are you experiences with TERI and SSID?
- By GlioblastomaSis · New reply March 25, 2013
- 4 replies
- My brother is a recently diagnosed GBM and has two young kids. Can you tell me your experience with the process of TERI/SSDI? We thought that we read that there would be some monetary benefit for the ...
Mentally exhausted with hospice
- By jenniferchristine07 · New reply March 22, 2013
- 3 replies
- It's been a while since I've posted. My mom who was diagnosed back in 07/12 with Glioblastoma has declined significantly. After 3 seizures over Christmas and new year, we finally have her on the correct ...
My daughter
- By Eve123 · New reply March 22, 2013
- 13 replies
- I am new to Inspire. I joined because my daughter was diagnosed with Anaplastic Astrocytoma..grade III. She had a seizure while driving in November 2012. As always after an accident she was thoroughly ...
Progression of tumor
- By newsusu · New reply February 20, 2013
- 6 replies
- Hello All. Well, there has been a complete turn of events for Bob. We returned to UCLA to start on 4th infusion of trial. After the MRI, we had to wait for Dr. Cloughesy to give us a report. Turns out ...
My Wife had a Brain Tumor
- By Miltonec · New reply February 20, 2013
- 5 replies
- My wife was diagnosed with stage 4 Large B cell non-hodgkins Lymphoma brain tumor in May of 2009. After a year of chemo and radiation she was declared in remission in May of 2010 and has been in remission ...
oligodendroglioma grade ii
- By conch1970 · New reply February 18, 2013
- 18 replies
- Anybody else understand the feeling of "YES" cancer is gone, but how do I deal with the loved one that is diffrent now! Is it the tumor location or the medicine ...
Tumor returned
- By newsusu · Posted February 9, 2013
- 0 replies
- It's been a while since I have been on this site as I have been busy with life changes. Bob was diagnosed with GBM in Oct '11. He had a resection, radiation therapy and was put on Temodar. All was going ...
Time Frame
- By jamihelm · New reply February 8, 2013
- 18 replies
- My sister in law has decided to stop radiation but not chemotherapy. When her father asked the radiation doctor, he said that without treatment she probably has 4 months left and with treatment 8 months ...
Helpful info
- By mybetterhalf · Posted January 31, 2013
- 0 replies
- Hi, There may already be a discussion like this but it may help if we could post information that we have learned on this journey that may make others lives a little easier. My husband Jon was on Avastin ...
Help a Caregiver
- By ABTA_Jillann · Posted January 17, 2013
- 0 replies
- Our MyCaringLink partner, Lotsa Helping Hands, is asking people to pledge to be part of this Saturday's day of service by helping a caregiver. Whether you set up a MyCaringLink page on their behalf, visit ...
Caregiver Stress
- By ABTA_Jillann · New reply January 9, 2013
- 2 replies
- Join us Thursday, January 10, 2013 CST at 12 p.m. CST. for our next webinar, Coping with Caregiver Stress with Ashley Varner, MSW, MBA, OSW-C. This webinar will explore and discuss practical strategies ...
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