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Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

ElleMadix
  • By ElleMadix · New reply April 16, 2014
  • Discussion in Newly diagnosed · 4 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...

Avastin plus CCNU

Denise555
  • By Denise555 · New reply April 16, 2014
  • Discussion in Treatments · 1 reply
  • Dad diagnosed with glioblastoma May 2013. Had surgery, 3 weeks radiation, tried temodar but tumor grew, now on avastin for past 6 weeks and no new growth but increased weakness. Had MRI yesterday and ...

Last day of Radiation and Temodar

ekann8
  • By ekann8 · Posted April 16, 2014
  • Discussion in Treatments · 0 replies
  • 4/18 is the last treatment of Radiation and Temodar for the 6 weeks of treatment since my husband was diagnosed with an inoperable GBM IV on 2/5. In addition, during the last 3 weeks he has reduced the ...

Brain Tumor News April 16, 2014

ABTA_Jillann
  • By ABTA_Jillann · Posted April 16, 2014
  • Discussion in ABTA events · 0 replies
  • *MGH Findings Suggest Novel Treatment Approach for Brain Tumors http://www.bioresearchonline.com/doc/mgh -findings-suggest-novel-treatment-approa ch-for-brain-tumor-0001 *Adult Cancer Drugs Offer Hope ...

Boosting immune system functioning with Avemar and modified citrus pectin?

Foggle
  • By Foggle · New reply April 16, 2014
  • Discussion in Treatments · 1 reply
  • Hi everyone Great news- my most recent MRI has shown shrinkage in the high-intensity area around the primary tumour site, and improvements in the other three lesions (one operated, two not). I was found ...

atypical teratoid rhabdoid tumor

concerned_sister
  • By concerned_sister · New reply April 16, 2014
  • Discussion in Newly diagnosed · 1 reply
  • Hello, i am starting a new discussion because I couldn't find a group talking about the type of tumor my sister has. I don't feel like i have very much information on the medical side of all of this ...

Vimpat for seizures?

calabria1982
  • By calabria1982 · New reply April 15, 2014
  • Discussion in Living with a brain tumor · 13 replies
  • Has anyone taken Vimpat for seizures. My son Michael was given Vimpat to replace depakote for seizure prevention. He's also on 1500 mg. of keppra twice a day. So much medication:(. All he does is wean ...

DCA for Glioblastoma

lindawc
  • By lindawc · New reply April 15, 2014
  • Discussion in Treatments · 58 replies
  • Hi- My friend wants to start DCA treatments. We've been in touch with the Canadian facility that will manage care remotely; however, does anyone know of a doctor in Texas that might believe in and administer ...

Gbm stage 4

pugsy2001
  • By pugsy2001 · New reply April 15, 2014
  • Discussion in Treatments · 2 replies
  • My husband has had surgery, radiation, chemo .. He was fine until they switched the treatment to 5 days on 23 days off. Two days before the second round his symptons got terrible worse. They had told ...

Gbm grade 4

ninjaandrews
  • By ninjaandrews · New reply April 15, 2014
  • Discussion in Newly diagnosed · 10 replies
  • Hi, I'm new to this site and have been reading everyone's stories. My wonderful mum was diagnosed in the 14th feb with a grade 4 gbm. It us non-operable. She spent 8 week in hospital and got home two ...

Low grade glioma treatments

akist
  • By akist · New reply April 15, 2014
  • Discussion in Treatments · 10 replies
  • I have a low grade glioma and am trying to treat it. I would like to hear from anyone that has experience in low grades, treatments, but also day to day dealing with seizures and symptoms... many thanks ...

Treatment of Craniopharyngiomas

ABTA_Jillann
  • By ABTA_Jillann · Posted April 15, 2014
  • Discussion in Tumors in children · 0 replies
  • Join us for a webinar Tuesday, 5/6/2014 - 1 p.m. to 2 p.m. Central time discussing the Treatment of Craniopharyngiomas: An Update on Current Trends in Surgical, Medical and Radiation Therapy. Join Kevin ...

Join us as we kick off Brain Tumor Awareness Month

ABTA_Jillann
  • By ABTA_Jillann · Posted April 15, 2014
  • Discussion in Treatments · 0 replies
  • With Dr. Susan Chang, MD, director of Division of Neuro-Oncology Brain Tumor Research Center, Department of Neurological Surgery UCSF. Thursday, 5/1/2014 - 2 p.m. to 3 p.m. Central time for Brain Tumor ...

GBM worse - how to cope??

ninja1
  • By ninja1 · New reply April 15, 2014
  • Discussion in Living with a brain tumor · 19 replies
  • My husband had a seizure which we found out that it was because the tumor recurred (his second recurrence). He's going to start avastin and a clinical trial. I don't know what this means. How long will ...

Glioblastoma

pugsy2001
  • By pugsy2001 · New reply April 14, 2014
  • Discussion in Newly diagnosed · 11 replies
  • I posted a couple days ago about my husbands struggle with this disease. Well we had another MRI today cause symptoms were coming back, headache, trouble walking, confusion. The MRI showed some improvement ...

Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

ElleMadix
  • By ElleMadix · Posted April 14, 2014
  • Discussion in Newly diagnosed · 0 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...

Neuoplasm of Uncertain Behavior of Brain and Spinal Cord (HCC)

ElleMadix
  • By ElleMadix · Posted April 14, 2014
  • Journal · 0 replies
  • Good Afternoon Everyone, This is my first journal entry on the website, and I have to be honest with all of you when I say that my hand is shaking the entire time I'm trying to "swype" the journal entry ...

Garlic - Vegy Championist

Michalisk
  • By Michalisk · Posted April 14, 2014
  • Discussion in Living with a brain tumor · 0 replies
  • Kalimera, I found this really interesting video and i decide it to share it for those they follow a holistic approach in combination to the conventional medicine. Any thought for this vegetable... http://tv.greenmedinfo.com/the-1-anti-ca ...

need expensive medication for my daughter

jojoekerns
  • By jojoekerns · New reply April 14, 2014
  • Discussion in Treatments · 8 replies
  • Can anybody tell me how to get medication for my daughter.We were told that the new medication would be around $545.00 a month. We find this inposiable to buy at this time . Does anybody know how to get ...

My journal

Renalroy
  • By Renalroy · New reply April 14, 2014
  • Journal · 4 replies
  • I have so much to say, I really don't know where to begin. April 11th- Roddy had an oncology appointment today. The said the the paralysis on his left side is due to the tumor. They scheduled him for ...

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