Journals
Prednisone
- By kcjones1965 · Posted 10:50 am
- 0 replies
- While awaiting insurance approval of a new migraine medicine and an appointment with the neuro-surgeon, my neurologist has tried me on prednisone for head pain. 3 days, 40mgs each day. Has anyone else ...
Tired of Waiting
- By kcjones1965 · Posted June 17, 2013
- 10 replies
- I was diagnosed with Migraines in 2008 at the age of 42 and then Hemiplegic Migraines (HM) in 2010 (with a 5mm meningioma). My new neurologist isn't convinced I every had HM's, maybe a TIA, she has finally ...
need help
- By jojoekerns · Posted June 15, 2013
- 1 reply
- Anybody from the Phila. area .Im looking for a phone number for a support group ..........Thans Joe K e mail jojoekerns @aol.com ...
DIPG Help with info please
- By teamjosiah2013 · Posted June 13, 2013
- 1 reply
- hello, my name is Nancy. April 22,2013 my son Josiah whom is 5 ..was diagnose with dipg . he has 2 tumors growing on his brain stem. Josiah just completed his 30 treatments of radiation . doctors are ...
Post op day 4
- By JEREL1911 · Posted June 11, 2013
- 0 replies
- Discharged yesterday 90% of tumor removed and feeling very good. I didn't think it would go this well but I am glad it is. Good luck and God bless to all following in the journey ...
Desperate to Help My 47 yr old Brother
- By MIRACULOUS · Posted June 9, 2013
- 11 replies
- Today is my brother Steve's 47th birthday. He is nearing the end of his battle with stage 4 colon cancer. It not only has taken much of his body it also has invaded his brain and eyesight. We are involved ...
Still having seizures :(
- By miz_michelle · Posted June 5, 2013
- 1 reply
- Overall, Kayla is doing great. She returned to school fine, was back on honor roll and hanging out with her friends as if she never had brain surgery. This was her eighth grade year, so they did a lot ...
Faith, Hope and Love ... and proof
- By attilafromhungary · Posted May 30, 2013
- 20 replies
- Dear My Friends, many thanks for worried inquires, messages and sorry for writing only now. The answer is simple we haven’t known the exact situation untill today ... Simply we haven’t got exact answer ...
CLEAR MRI
- By michelle39 · Posted May 30, 2013
- 12 replies
- Just left Roswell and my husband Ralphs MRI was clear once again! His surgeon finally released him after seeing him for over a year after surgery. His neuro oncologist was really pleased with how he is ...
MRI - Wait and Worry
- By KarenLeslie · Posted May 30, 2013
- 9 replies
- Well here I am a year and a half from my 12+ hour operation for removal of a very large meningioma on my brain stem, thankfully, most of the BT was removed (lower right hand side)....in subsequent MRI's ...
I don't know how to do it....
- By kronick · Posted May 29, 2013
- 2 replies
- I seem to be caught in a rather vicious cycle at the moment. I am not functioning at my "normal levels" (and may never again) and when I find myself falling short of my pre-diagnosis expectations, I get ...
what a relief!
- By meliora · Posted May 29, 2013
- 6 replies
- Can't sleep for some reason tonight (maybe rain?) but thought I'd use my awake time to report back. Had my 9 monthly mri yesterday. It took a lot longer than before (around an hour) and sounded different ...
Grade 2 Astrocytoma?
- By phillyb · Posted May 24, 2013
- 9 replies
- I joined this site some time ago. I have responded to a few posts but have never posted myself. I am having surgery on May 30, 2013. First diagnosed in 10/2007 low grade glioma. Doctors took a watch and ...
Would like advice.
- By gbulan · Posted May 23, 2013
- 1 reply
- I am writing because I have just visited a friend of mine that had a brain tumor that was operated on last July. It was some rare childhood type tumor that she was diagnosed with at age 58. She has had ...
Mr
- By leskzn · Posted May 21, 2013
- 0 replies
- I have a son 7yrs with a Astrocytoma on the Brain stem ...
prayers for a Little Girl (Anaplastic Astrocytoma, Grade III on brain stem)
- By attilafromhungary · Posted May 21, 2013
- 30 replies
- Dear All, I am a father of a 5 and a half years old beautiful girl, Bogika. We live in Hungary and till February 18th 2013 we had beautiful life with Bogika and with my wife, Zsuzsi. On February 18th ...
medicare advantage or medicare supplement?
- By meliora · Posted May 19, 2013
- 7 replies
- Back again - still no mortgage modification/refinance and rapidly falling credit despite attempts to help by hospital social workers, health and housing org, local congressman advocates etc etc ...
My sister Gwen
- By a-sisters-love · Posted May 14, 2013
- 4 replies
- Has a brain tumor and needs funding or she will not get surgery. My sister has one of these types of tumor Posterior Fosse meningiomas or Intraventricular meningiomas. We have not been given much info ...
Recently had surgery to remove a brain tumor
- By timdipp69 · Posted May 3, 2013
- 4 replies
- I found out in Feb. that I had a brain tumor, it was the size of a raquet ball, they did surgery to remove it. I have to go in to have a follow up MRI on Monday & I am getting nervous about it. Not sure ...
Title
- By jmills · Posted May 3, 2013
- 7 replies
- Been getting weird, fast, stabbing headaches and shakes today. Also, I'm on Ambien and Benadryl right now, so things make little sense. My jaw has been hurting, too. It cracks and locks up. My stomach ...
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