Discussions

Meningioma right frontal lobe

Barb67
  • By Barb67 · Posted April 17, 2014
  • In Non-malignant tumors · 8 replies
  • I was diagnosed approximately 3 years ago. Since my first MRI tumor almost doubled in size. It is now 3.2cmx2.0cmx2.?cm. I am going for another MRI on Tuesday because my headaches are really getting horrible ...

New to this site, have some questions for you

Liesa-Joan
  • By Liesa-Joan · Posted April 17, 2014
  • In Newly diagnosed · 24 replies
  • I am fairly new to this site. Husband diagnosed 1/1/14 with GBM tumor. My question to you all is "what did the Doctor say was the cause?". I have done a little research on the net and it says "Men over ...

How do you keep your faith when your angry with your Higher Power?

AmyJeanDev
  • By AmyJeanDev · Posted April 16, 2014
  • In Living with a brain tumor · 5 replies
  • Hi, I'm newly diagnosed with an Oligodendroglioma low grade in Jan, 2014. I've always been a positive person and believed "Everything happens for a reason" and I am Catholic and prayed daily. After my ...

Last day of Radiation and Temodar

ekann8
  • By ekann8 · Posted April 16, 2014
  • In Treatments · 0 replies
  • 4/18 is the last treatment of Radiation and Temodar for the 6 weeks of treatment since my husband was diagnosed with an inoperable GBM IV on 2/5. In addition, during the last 3 weeks he has reduced the ...

Brain Tumor News April 16, 2014

ABTA_Jillann
  • By ABTA_Jillann · Posted April 16, 2014
  • In ABTA events · 0 replies
  • *MGH Findings Suggest Novel Treatment Approach for Brain Tumors http://www.bioresearchonline.com/doc/mgh -findings-suggest-novel-treatment-approa ch-for-brain-tumor-0001 *Adult Cancer Drugs Offer Hope ...

Hospice

Krick
  • By Krick · Posted April 16, 2014
  • In Caregiver corner · 3 replies
  • My mom has been in hospice for 1 month. It is still a difficult journey. We have an aide that comes 3 days a week for bathing her in the hospital bed. She is really great. We have a nurse that come three ...

Avastin plus CCNU

Denise555
  • By Denise555 · Posted April 16, 2014
  • In Treatments · 1 reply
  • Dad diagnosed with glioblastoma May 2013. Had surgery, 3 weeks radiation, tried temodar but tumor grew, now on avastin for past 6 weeks and no new growth but increased weakness. Had MRI yesterday and ...

meningioma

mrbeck84
  • By mrbeck84 · Posted April 16, 2014
  • In Newly diagnosed · 4 replies
  • I just got diagnosted with a petroclivical meningioma does anybody had one before ...

Boosting immune system functioning with Avemar and modified citrus pectin?

Foggle
  • By Foggle · Posted April 15, 2014
  • In Treatments · 1 reply
  • Hi everyone Great news- my most recent MRI has shown shrinkage in the high-intensity area around the primary tumour site, and improvements in the other three lesions (one operated, two not). I was found ...

Gbm stage 4

pugsy2001
  • By pugsy2001 · Posted April 15, 2014
  • In Treatments · 2 replies
  • My husband has had surgery, radiation, chemo .. He was fine until they switched the treatment to 5 days on 23 days off. Two days before the second round his symptons got terrible worse. They had told ...

Novocure device

andy44
  • By andy44 · Posted April 15, 2014
  • In Treatments · 5 replies
  • Hello all, I am wondering if any patients here are using the Novocure device. I understand this treatment is available in the US and in Europe. I am trying to collect some information about it, and I ...

Treatment of Craniopharyngiomas

ABTA_Jillann
  • By ABTA_Jillann · Posted April 15, 2014
  • In Tumors in children · 0 replies
  • Join us for a webinar Tuesday, 5/6/2014 - 1 p.m. to 2 p.m. Central time discussing the Treatment of Craniopharyngiomas: An Update on Current Trends in Surgical, Medical and Radiation Therapy. Join Kevin ...

Join us as we kick off Brain Tumor Awareness Month

ABTA_Jillann
  • By ABTA_Jillann · Posted April 15, 2014
  • In Treatments · 0 replies
  • With Dr. Susan Chang, MD, director of Division of Neuro-Oncology Brain Tumor Research Center, Department of Neurological Surgery UCSF. Thursday, 5/1/2014 - 2 p.m. to 3 p.m. Central time for Brain Tumor ...

How to cope as a caregiver?

Liesa-Joan
  • By Liesa-Joan · Posted April 15, 2014
  • In Caregiver corner · 19 replies
  • I lost my Father last year, he was my God, he died at age 91. I grieved the whole year. On 1/1/14, my husband's right arm stopped working normally. We went to the emergency room and the CT scan showed ...

Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

ElleMadix
  • By ElleMadix · Posted April 14, 2014
  • In Newly diagnosed · 4 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...

Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

ElleMadix
  • By ElleMadix · Posted April 14, 2014
  • In Newly diagnosed · 0 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...

Garlic - Vegy Championist

Michalisk
  • By Michalisk · Posted April 14, 2014
  • In Living with a brain tumor · 0 replies
  • Kalimera, I found this really interesting video and i decide it to share it for those they follow a holistic approach in combination to the conventional medicine. Any thought for this vegetable... http://tv.greenmedinfo.com/the-1-anti-ca ...

Vimpat for seizures?

calabria1982
  • By calabria1982 · Posted April 14, 2014
  • In Living with a brain tumor · 13 replies
  • Has anyone taken Vimpat for seizures. My son Michael was given Vimpat to replace depakote for seizure prevention. He's also on 1500 mg. of keppra twice a day. So much medication:(. All he does is wean ...

short term memory loss

missyanne
  • By missyanne · Posted April 13, 2014
  • In Non-malignant tumors · 7 replies
  • Married my husband in Nov. 2006 and diagnosed with an egg-sized non-malignant menengioma in Feb of 2007. Shocked my neurologist by walking into the hospital for my appointment. 7 years later, yearly MRIs ...

New protocol that combines sorafenib and everolimus?

Kareneastnc
  • By Kareneastnc · Posted April 12, 2014
  • In Living with a brain tumor · 1 reply
  • Thanks to all for the help I have received from this site. My 53 year old husband was diagnosed a year ago with AA3 with chemo/radiation follow up. A new spot appeared in jan 2014 but remained stable ...

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