The ABTA Presents: Understanding Non-Malignant Brain Tumors Webinar

ABTA_Jillann
  • By ABTA_Jillann · November 1, 2012 at 3:27 pm · 4 replies
  • In Non-malignant tumors
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Even though a benign brain tumor is not cancerous, the diagnosis can result in damaged brain tissue from the tumor itself and/or the treatment which typically involves surgery and sometimes radiation and chemotherapy. Related symptoms may also be long-term and even life-threatening.

This webinar will discuss meningiomas, pituitary and other non-malignant tumors; updates in treatment, care and "watch and wait" will also be explored.

Wednesday, November 28 at 1:30 p.m. CDT. Registration: https://www3.gotomeeting.com/register/215695734

ABTA_Jillann
Connections Community Group Leader

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4 replies   

ladyj56

i am very interested in this topic
as i am suffering from a non malignat low grade glioma
it is on the occicipital lobe....measures 1x9x1x8x1x7
and a small dva has shown up recently
what should i be doing ? the drs are well quiet
i have family dr,neurologist.neuro surgeon.neur optho..i feel like a page between them,,sigh

Sheral58 (Inactive)
  • By Sheral58 (Inactive)
  • Reply 3552563
  • November 17, 2012 at 7:13 pm
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I am signed up. Anxious to see it.

ABTA_Mary

Dear Lady56,
A low grade glioma is a slow growing tumor. When it is located in the occipital lobe, vision is commonly affected. If you are worried about your vision, the neuro ophthalmologist will be able to explain your vision deficits to you. Most people with this tumor type try to eat nutritiously, rest and exercise daily. I have had many people in my support group with low grade tumors, and they have benefitted from hearing about how others manage. Please look at our support group list from this link. http://www.abta.org/care-treatment/support-resources/support-groups/support -group-listings.html/.

Having a lot of doctors can be so overwhelming, but also informing. They have specific roles to make sure your health is managed properly. However, all the doctors need to share information about your case. If they are in the same medical system, then commonly they have access to electronic medical records with summaries, lab and scan results. If they are not associated in the same system, you will need to make sure the doctors are copied on summaries and scans are sent so they all have your information. Managing medical records is found in Chapter 3 of this great publication on the ABTA website, Orientation to Caregiving. Here is the link. http://www.abta.org/secure/orientation-to-caregiving-1.pdf

Sincerely,
Mary Lovely, PhD, RN, CNRN

ladyj56
  • By ladyj56
  • Reply 3560285 · In reply to 3560013 by ABTA_Mary
  • November 20, 2012 at 3:02 pm
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thank you so much Mary//so much info in a few sentences// i am a very healthy eater.rest daily exercise..well that is limited at the moment..as i had a knee scope on the 29th of oct..he is wanting to replace this knee
i have asked for physio..to try and imrove the quad on the left
i will indeed check out this support group
yes all the docs are interlinked
thanks for this info and i am right on it

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