Right-Sided Parentitis Right Leg

I had resection/crainotomy in January 12 for a GBM grade IV. I have been left with a deficit - partial paralysis of my right leg. I have an AVO brace which I am not happy with. Can someone recommend who I should see about this - my oncologist is of no help. I have seen a rehabilitative cancer dr. also, to no avail. Have had my brace adjusted several times by prostetic company. Is there someone out there that has experienced the same thing? Also, where do you get shoes - as now one foot is bigger than the other due the brace. HELP!!!!!!!!!!!!!!

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Hi Kantu,
I'm not dealing with anything as serious you are (grade II/III oligodendroglioma), but I have had right leg weakness since surgery (also Jan 12th, but 2009). My leg was completely "flaccid" and I had to have extensive physical therapy to get to where I can walk with a cane. I remember seeing other patients at PT who were working with leg braces. So, maybe a physical therapist or occupational therapist could help you. They might at least be able to direct you in the right direction. Also, the right primary care physician can be a huge help and a great advocate. My PCP is quite young and inexperienced, but he is very caring and will take the time that my specialists won't (or can't) to listen to my needs and concerns.

Wish I could be more help.

Best wishes,
PennyL

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Thanks for replying, I have an AVO brace and have also used it with therapy. Main concern is that I need two different size shoes. Haven't had much luck in that respect. I am at my wits end spending money on shoes that don't fit/work, etc. I also walk with a cane. Thanks for listening.

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Kantu,

Hello. I am sorry that you are having these issues. I also have an AVO brace and it took a few times to get it fitted just right for my shoes. I was lucky because the orthotist and physical therapists worked together to make sure I had things right. If your orthotist could work on your AVO while you are at PT, that might help. I would recommend my orthotist, but I am in MN and it looks like they are a local company :(

As for the shoes... this is probably not the medically correct way to deal with the issue, but I just bought a pair of shoes that were a size too big. It fit my left foot with the AVO and I adjusted to having a shoe that was a bit big on my right foot. I used tennis shoes -- just bought some grey ones that didn't stick out too much. I had to use a walker, but was blessed that chemo fought my tumors and now I can walk without that assistance. I hope the same will be true for you.

Could you ask a nurse at your NO's office. She might know of a good orthotist.

Good luck! Hope you are up and walking without too much trouble soon!
Susan

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I use an AFO leg brace, since my astrocytoma was discovered. I go to a shoe store that has experience fitting braces and has many unique shoe sizes. I wear a size wider, to accomodate my brace, and my left foot is "small" in it, but not terrribly so. You might ask around for a store like that. I took a friend who had totally different problem, but needed unique sized shoes in a different State (I moved 2000 miles away from the one I just meantioned). It takes time, but we finally found one that can help both of us. I also HEARD (never investigated it) that some stores offer a discount for differently sized feet. The one I heard of was Nordstroms (sp) here in the States. But I never investigated it.

As your brace guys, and other shoes stores and orthodists where to get the best shoes.

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