I have an idea that could potentially help many people. I would like to know more about specific symptoms of people suffering from GBM in the right parietal lobe. Symptoms seem to vary so much between patients based on the type of tumor and the placement of a tumor, and so if people would be willing to start discussions based on a specific area that their or their loved ones tumor is, I believe that this could be helpful.
My husband is at home in hospice, has a right parietal lobe tumor diagnosed in 2008. We have been through multiple treatment rounds. The tumor is now unresponsive to treatment, and is now in the motor strip. His current symptoms include left hemineglect, left sided paralysis, some word slurring, fatigue and sleeping a lot, some incontinence, some falls. He walks with assistance (gait belt), and cannot use a walker because of the left sided paralysis. He also has swallowing issues, and aspirates regularly when eating or drinking. Lately, he runs low grade fevers in the night. He has some headaches mostly at night. He can't sleep because of the severe gastritis. He also can't urinate even though on flomax. I assume the tumor is causing some urinary inhibition. He does not want to take narcotics for the pain, because he fears constipation but will take acetimenophen and diazepam .(Valium). Of course, there has been some cognition changes, mostly impulsivity, but they have not been the most difficult symptoms, as he seems to be fairly unaware of those cognition changes. Last spring he had 5 recurrent cases of meningitis (psuedomones) and spent months in the hospital, and it really started the continuous downward spiral. He is now on 3x per day IV antibiotics. Has anyone experienced something similar?
I suppose I would like a crystal ball to find out what else can go wrong. I don't think he has a lot longer, but would like to know if anyone else has experienced these kinds of symtoms who has a right parietal lobe tumor and what to expect in the future.