Husban has grade ii astrocytoma right front temporal lobe

• By briggs
• Reply 3427096
• October 3, 2012 at 8:43 am
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The steroids cause this,and yes it did happen to me. We have been married almost 50 years,and my husband wanted a divorce,tried to hit me,but I made it through it,and knew it was not him talking. He took most of his issues out on me. I had to have help from the family to get me through it. My son in law helped a lot,and my daughter. They helped take him to the doctor,and I still had to manage the appointments. He was always a wonderful husband,and I knew it was not him,but it still was hard to indure. He had to have the steroids for swelling,but we managed to wean him off them with the doctors help,and now he is back to normal.He is the wonderful man I married,but it took a while to get him off steroids. I did not have this place to ask questions at the time,and was very frightened. Try to get others to help you,and know that it will get better. I thought after the surgery that everything would be great,but with brain tumors,and no one else understands except the caregiver and family that it takes time,and then you go back to a New Normal. I still like the new normal,he is doing great,and back to being my sweet husband. Kathy, Toms wife

• By briggs
• Reply 3427242 · In reply to 3427096 by briggs
• October 3, 2012 at 9:26 am
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I forgot to mention that my husband was put on some nerve meds that helped. I thought I might need them,but he got better,and I did not need them. I look back,and God has got us through all them,but it has been a rough rocky road. Kathy, Toms wife

• By LoveHopeInspire
• Reply 3428004
• October 3, 2012 at 1:34 pm
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My husband was diagnosed with oligoastrocytoma in the right frontal/temporal area in February 2011. He had surgery that removed 50% of the tumor. I have also noticed behavior changes in my husband. He is less patient, easily frustrated, and he is often yelling at our sons (ages 9 and 11). Ultimately I had to have several talks with my husband, and finally we went to speak with a counselor. He threatened to leave my November 2011, stating that I should move on. I think this was part of his grieving process. It is exhausting walking on egg shells everyday. My husband in on generic Keppra and Tegretol. You mentioned a funny taste and light sensation that your husband experiences. Prior to the surgery, my husband had an unusual smell and taste the preceded a partial seizure. After surgery my husband explains his partial seizures as a sensation of warmth (almost like running water) that flows from his feet up. The neuro-oncologist explains that these are partial seizures and that the experiences can vary from person to person and before and after surgery. I empathize with your situation, and I hope knowing that others are having the same difficulties will provide encouragement. We all need that! I do encourage you to go to the appointments. My husband is experiencing short term memories issues and difficulty with cognition. He leaves the medical issues to me. Best Wishes!!

• By LERATO
• Reply 3429609
• October 4, 2012 at 4:09 am
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LoveHopeinspire,

The more I read about other people experiences, is the more I wonder if the tumor on the optic nerve is growing or not. Sometime ago it was swelling and I realised that there is too much salt I am taking. I stopped having salt and I feel no pain and swelling has gone down. I am only going back in November and I am hoping that I will have good results. My heart goes out to those that are having bad experiences. Let us pray to the all Mighty to help us overcome this monsters attacking us. I wonder does the tumor make one to urinate every now and then. I am not diabetic but since I have been diagnosed, I urinate every two minutes, this happens at night.

• By DebbieMc (Inactive)
• Reply 3574800
• November 26, 2012 at 10:24 pm
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I have this same tumour, stage 3. My moods are definitely different and I've asked my hubby for a divorce twice. Once for being late home from work. Completely crazy but at the time I thought I was rational.

• By jgills
• Reply 3596731
• December 4, 2012 at 4:43 pm
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I myself was diagnosed with Grade 3 (Anaplastic) Astrocyoma in May... I had surgery followed by Radiation Therapy and Chemotherapy. Now that I've finished Radiation, I no longer need to be on steroids....The steroids were horrible- my husband was so glad when they d/c'd the steroids ! He said I was mean to him and our children. It is important that your immediate support group(friends/family) understand that you don't mean to act this way, but you have to take these meds to get better. I am also on generic Keppra and Temodar and my husband tells me the week after Temodar treatment I could be quite cranky. I try my best, but thankfully my husband understands this and we talk about it and are working through it. I wish you the best!

• By LERATO
• Reply 3597983
• December 5, 2012 at 6:48 am
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Hi Family,

I have been to hospital and I was told that the tumor, has not grown, I must keep on eating the way I do and excercise. Thanks to the Lord above, he is a holy and will always protect those that loves him.

• By briggs
• Reply 3598110 · In reply to 3597983 by LERATO
• December 5, 2012 at 8:03 am
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Wonderful, We take my husband this next Tuesday. Please everyone pray. Thanks, Kathy Toms wife

• By LERATO
• Reply 3598217
• December 5, 2012 at 8:41 am
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Hi Cathy,

We will pray for Tom, and I will also tell my church congregation to also pray with me. He is the beginning and the end, there is no one like him. He is good all the time.

• By LERATO
• Reply 3598282
• December 5, 2012 at 9:02 am
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Hi Cathy,

We will pray for Tom, and I will also tell my church congregation to also pray with me. He is the beginning and the end, there is no one like him. He is good all the time.

• By briggs
• Reply 3599846 · In reply to 3598282 by LERATO
• December 5, 2012 at 6:54 pm
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Yes, we are nothing without Jesus Christ. Kathy, Toms wife

• By Chaltu
• Reply 3603009
• December 6, 2012 at 8:09 pm
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Amen! In my belief there is nothing more than prayer and letting God handles it. He brought us and always has a way to solve it. Just like it was mentioned in Luke 11:9

• By Chaltu
• Reply 3603047 · In reply to 3596731 by jgills
• December 6, 2012 at 8:23 pm
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jgills, I hope you are better and pray that you are doing ok too. I was diagnosed with the same ( Anaplastic Astrocytoma Grade 3) as you. I have done only surgery last year and was able to live conformable. After seeing my 2 MRI test clean and doctor not being able to explain it correctly. My biggest fear was the out come of Radiation Therapy and Chemo therapy treatment that I heard. Most negative response is from the doctor at the time. Would please share your experience and daily result. Thanks and God bless.

• By jgills
• Reply 3608944 · In reply to 3603047 by Chaltu
• December 9, 2012 at 2:23 am
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Chaltu, My tumor was situated in such a matter that going into surgery we knew that he would not be able to remove the entire tumor: therefore radiation therapy was a given. Based on the pathology report and post surgical MRI,neuro-oncologist recommended simultaneous Temodar. I was able to get through 6 weeks of both with very few side effects. Following 6 weeks follow-up MRI he began new chemo Phase: 5days on/23 days off Temodar for 12 cycles - at a higher dosage. My November MRI showed a small 3mm spot that was not on the prior MRI....so repeat MRI was set for 4 weeks instead of 6. That was on Tuesday and now it appears the spot is shrinking/fading. I have been somewhat tired and a little forgetful, but overall I am feeling well and looking forward to returning to work.
I agree with your statement above...it is in the hands of God. I try my best to eat well and stay positive.

• By elise8634
• Reply 3670452 · In reply to 3608944 by jgills
• January 3, 2013 at 12:38 am
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Hi all I was dignosed with an anaplastic astrocytoma grade 3 two years ago , the neuro surgeon removed 90%. I still have 10% remaining all of my subsequent MRIs have proven no change but the Dr. said my left , thside would be weak for 2 weeks , but instead I was left a hemiplegic with almost no balance thus I fall often, Ihad gotten a lot better after rehab in Vallejo Kaiser then all of a suddenly in Jan. of 20012 I started falling down and I am now afflicted with terrible spacticity thus my left hand is not usable probably ever again. I pray for some improvement I have to stretch out my arm,fingers and leg every morning because they just stiffen up again.Iown 2 acres and cannot walk around anymore and it really makes me depressed. Anyone with similar experiences ot there? Regards, Elise